Khaled Al-Shair talks about Quality of Life assessment for aspergillosis
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Khaled Al-shair talks to the Aspergillus Patients Support meeting on his work analysing the Quality of Life data collected by the National Aspergillosis Centre, Manchester, UK
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Khaled Al-Shair talks about Quality of Life assessment for aspergillosis
- 1. LED BY GRAHAM ATHERTON SUPPORTED BY GEORGINA POWELL, MARIE KIRWAN & DEBBIE KENNEDY NAC CENTRE MANAGER CHRIS HARRIS QUALITY OF LIFE STUDY BY KHALED AL-SHAIR NATIONAL ASPERGILLOSIS CENTRE UHSM MANCHESTER Support Meeting for Aspergillosis Patients Fungal Research Trust
- 2. National Aspergillosis Centre Manchester Dr Khaled Al-shair MD PhD
- 4. What is chronic pulmonary aspergillosis (CPA) ?
- 8. How important to have regular and frequent assessment?
- 10. How the disease is regularly monitored?
- 12. Is there a standardized measure to assess these most frequent symptoms of the disease, its burden on physical, social and psychological aspects of life?
- 14. What are the components of this questionnaire?
- 16. Is it a valid measure?
- 18. Symptom domain Activity domain Impact domain SGRQ Total core SGRQ score range 71.4 100 2.7 100 6 85.4 00 99.4 96.2 55.6 66.6 2.6 Alshair K et al, 2011
- 19. A: Patients with Band 1 of chronic pulmonary aspergillosis B: Patients with Band 2 and 3 of chronic pulmonary aspergillosis P=0.007 P=0.002 P=0.004 P=0.015 Can the SGRQ differentiate between different grades of CPA?
- 20. Why I should fill the questionnaire every three months?