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Using Community Research to Inform 
Health and Social Policy for Immigrant 
and Refugee Communities 
Brenda Roche 
Wellesley Institute
Wellesley Institute 
Wellesley Institute conducts community based policy research 
that focuses on, and is grounded in, the social determinants 
of health 
Our work includes: 
• Analysis of patterns and trends in the current body of evidence 
• Focused policy analysis 
• Community studies conducted in partnership with external groups and 
agencies 
| www.wellesleyinstitute.com 2
Community Research 
We have a history of supporting community based research 
approaches 
Over time we have moved more towards policy focused 
research 
Research that is grounded in community has untapped 
potential to inform policy debates; it can provide timely and 
concrete evidence through local data 
3 
November 5, 2014 | 
www.wellesleyinstitute.com
Community Research 
Community research has the ability to create real links 
between broad-based public health ‘evidence’ and ‘local 
knowledge’ 
Policy tools can help to unify data that is being gathered but is 
fragmented 
Action oriented research can help pull together partners & to 
use their expertise to collect data that absent from public 
debate 
4 
November 5, 2014 | 
www.wellesleyinstitute.com
Challenges 
Community research has a chequered past; at times it has been 
viewed as too focused on capacity building and not on 
evidence 
Projects can function in isolation, failing to connect work that is 
being done by other stakeholders 
Community agencies are vital to this work, but face growing 
and competing demands in their daily work 
5 
November 5, 2014 | 
www.wellesleyinstitute.com
Challenges 
Data collection at the community level can seem disconnected 
from policy discussions and debates 
How can we ensure that that data being gathered has 
relevance at the ground level and informs practice and 
shares knowledge? 
The current research and policy climate includes a context with 
limited funding, can appear unreceptive to knowledge 
mobilization, and policy change 
6 
November 5, 2014 | 
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Health Equity Impact Assessments 
A Health Equity Impact Assessment (HEIA) is a tool used to 
analyze a new program or policy’s potential impact on 
health, health disparities and health disadvantaged 
populations. 
Collecting front-line information and data from health care 
professionals can help to assess whether there have been 
health effects 
7 
November 5, 2014 | 
www.wellesleyinstitute.com
HEIA on the IFH Program 
Canadian Doctors for Refugee Care worked with health care 
providers to track the impacts of changes to the IFH program 
through an online survey 
Wellesley Institute used these data in a policy-oriented HEIA on 
the IFH program 
The findings pointed to dramatic health impacts of the cuts to 
the IFH; from lack access to basic primary care to limited use 
of critical care, even in medical emergencies 
8 
November 5, 2014 | 
www.wellesleyinstitute.com
HEIA on the IFH Program 
A federal court later overturned the IFH cuts, citing in its 
judgment the growing evidence regionally, provincially & 
nationally 
This research demonstrates some of the best ideas in bridging 
community and policy research; it was timely, relied on the 
expertise of community providers and made use of a tool 
that looked at concrete impacts of policy changes 
9 
November 5, 2014 | 
www.wellesleyinstitute.com
Community based policy research 
HEIA on the IFH program for refugees is a good illustration of 
where a simple tool can help to pull together data that 
providers are collecting 
Sometimes community data is not being collected, but we 
know that policies are being shaped and revised without 
input from community members and their representatives 
10 
November 5, 2014 | 
www.wellesleyinstitute.com
Migrant Workers Speak 
With the Migrant Workers Alliance for Change (MWAC) we are 
looking at the health, employment and social impacts for 
workers who are here under the Temporary Foreign Worker 
Program (TFWP) 
There are significant changes taking place with the TFWP, but 
limited information from the workers themselves 
As policies relevant to migrant workers under the TFWP are 
being revised, insights from workers themselves is urgently 
needed 
11 
November 5, 2014 | 
www.wellesleyinstitute.com
Migrant Workers Speak 
Project emphasizes an action research approach; collaborative 
decision making process between team members from 
MWAC and the Wellesley Institute 
This work relies on the active collaboration of community 
partners in gathering local data 
Workers are asked to take part in surveys, individual interviews 
and focus groups 
Currently we are in the middle of data collection 
12 
November 5, 2014 | 
www.wellesleyinstitute.com
Migrant Workers Speak 
This type of research has great potential to bring migrant 
workers’ perspectives to the forefront of current discussions 
on the TFWP 
The research depends on on community partners sharing their 
expertise, and working in a collaborative way 
In part this relies on frank discussions from the start about 
what community partners hope to achieve, and what are 
institutional needs 
13 
November 5, 2014 | 
www.wellesleyinstitute.com
Issues Moving Forward 
We need to create opportunities for different forms of 
community research that contribute to policy discussion and 
debate. 
How can we ensure that this work asserts the value of local 
data, and contributes to policy analysis in concrete and 
defendable ways? 
In linking community and policy research how can we ensure 
knowledge mobilization for front line practice does not get 
overlooked? 
14 
November 5, 2014 | 
www.wellesleyinstitute.com
Value Moving Forward 
Partnership approaches are critical to producing community 
research that can inform policy discussions and debates 
- Allows us to work across communities 
- We can draw on different expertise and tools to gather concrete and 
meaningful data 
Community-generated evidence is critical in cases where health 
and social policy may be driven more by ideology than by 
evidence. The evidence may not be perfect, but it tells a 
story that can challenge the credibility of policies that are 
not evidence-based 
15 
November 5, 2014 | 
www.wellesleyinstitute.com
Thank you! 
For more information on the Wellesley Institute 
www.wellesleyinstitute.com 
16 
November 5, 2014 | 
www.wellesleyinstitute.com

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Using Community Research to inform Health and Social Policy for Immigrant And Refugee Communities - Brenda Roche

  • 1. Using Community Research to Inform Health and Social Policy for Immigrant and Refugee Communities Brenda Roche Wellesley Institute
  • 2. Wellesley Institute Wellesley Institute conducts community based policy research that focuses on, and is grounded in, the social determinants of health Our work includes: • Analysis of patterns and trends in the current body of evidence • Focused policy analysis • Community studies conducted in partnership with external groups and agencies | www.wellesleyinstitute.com 2
  • 3. Community Research We have a history of supporting community based research approaches Over time we have moved more towards policy focused research Research that is grounded in community has untapped potential to inform policy debates; it can provide timely and concrete evidence through local data 3 November 5, 2014 | www.wellesleyinstitute.com
  • 4. Community Research Community research has the ability to create real links between broad-based public health ‘evidence’ and ‘local knowledge’ Policy tools can help to unify data that is being gathered but is fragmented Action oriented research can help pull together partners & to use their expertise to collect data that absent from public debate 4 November 5, 2014 | www.wellesleyinstitute.com
  • 5. Challenges Community research has a chequered past; at times it has been viewed as too focused on capacity building and not on evidence Projects can function in isolation, failing to connect work that is being done by other stakeholders Community agencies are vital to this work, but face growing and competing demands in their daily work 5 November 5, 2014 | www.wellesleyinstitute.com
  • 6. Challenges Data collection at the community level can seem disconnected from policy discussions and debates How can we ensure that that data being gathered has relevance at the ground level and informs practice and shares knowledge? The current research and policy climate includes a context with limited funding, can appear unreceptive to knowledge mobilization, and policy change 6 November 5, 2014 | www.wellesleyinstitute.com
  • 7. Health Equity Impact Assessments A Health Equity Impact Assessment (HEIA) is a tool used to analyze a new program or policy’s potential impact on health, health disparities and health disadvantaged populations. Collecting front-line information and data from health care professionals can help to assess whether there have been health effects 7 November 5, 2014 | www.wellesleyinstitute.com
  • 8. HEIA on the IFH Program Canadian Doctors for Refugee Care worked with health care providers to track the impacts of changes to the IFH program through an online survey Wellesley Institute used these data in a policy-oriented HEIA on the IFH program The findings pointed to dramatic health impacts of the cuts to the IFH; from lack access to basic primary care to limited use of critical care, even in medical emergencies 8 November 5, 2014 | www.wellesleyinstitute.com
  • 9. HEIA on the IFH Program A federal court later overturned the IFH cuts, citing in its judgment the growing evidence regionally, provincially & nationally This research demonstrates some of the best ideas in bridging community and policy research; it was timely, relied on the expertise of community providers and made use of a tool that looked at concrete impacts of policy changes 9 November 5, 2014 | www.wellesleyinstitute.com
  • 10. Community based policy research HEIA on the IFH program for refugees is a good illustration of where a simple tool can help to pull together data that providers are collecting Sometimes community data is not being collected, but we know that policies are being shaped and revised without input from community members and their representatives 10 November 5, 2014 | www.wellesleyinstitute.com
  • 11. Migrant Workers Speak With the Migrant Workers Alliance for Change (MWAC) we are looking at the health, employment and social impacts for workers who are here under the Temporary Foreign Worker Program (TFWP) There are significant changes taking place with the TFWP, but limited information from the workers themselves As policies relevant to migrant workers under the TFWP are being revised, insights from workers themselves is urgently needed 11 November 5, 2014 | www.wellesleyinstitute.com
  • 12. Migrant Workers Speak Project emphasizes an action research approach; collaborative decision making process between team members from MWAC and the Wellesley Institute This work relies on the active collaboration of community partners in gathering local data Workers are asked to take part in surveys, individual interviews and focus groups Currently we are in the middle of data collection 12 November 5, 2014 | www.wellesleyinstitute.com
  • 13. Migrant Workers Speak This type of research has great potential to bring migrant workers’ perspectives to the forefront of current discussions on the TFWP The research depends on on community partners sharing their expertise, and working in a collaborative way In part this relies on frank discussions from the start about what community partners hope to achieve, and what are institutional needs 13 November 5, 2014 | www.wellesleyinstitute.com
  • 14. Issues Moving Forward We need to create opportunities for different forms of community research that contribute to policy discussion and debate. How can we ensure that this work asserts the value of local data, and contributes to policy analysis in concrete and defendable ways? In linking community and policy research how can we ensure knowledge mobilization for front line practice does not get overlooked? 14 November 5, 2014 | www.wellesleyinstitute.com
  • 15. Value Moving Forward Partnership approaches are critical to producing community research that can inform policy discussions and debates - Allows us to work across communities - We can draw on different expertise and tools to gather concrete and meaningful data Community-generated evidence is critical in cases where health and social policy may be driven more by ideology than by evidence. The evidence may not be perfect, but it tells a story that can challenge the credibility of policies that are not evidence-based 15 November 5, 2014 | www.wellesleyinstitute.com
  • 16. Thank you! For more information on the Wellesley Institute www.wellesleyinstitute.com 16 November 5, 2014 | www.wellesleyinstitute.com