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Drawing Out Links: Health Equity,
Social Determinants of Health and
Social Policy
Bob Gardner & Steve Barnes
Graduate Class on Research Methods, Social
Work, University of Toronto
January 23, 2012
Outline
• set out how the Wellesley Institute, as an independent
progressive research and policy think tank, supports research,
policy analysis and community mobilization to drive social change
in the foundations of health inequities;
• identify the potential and challenges of applied research across a
range of methodologies – from local community-based research,
through quantitative analysis of trends in income and health
inequalities, through comparative policy research;
• explore how to ‘translate’ solid research into policy impact
• draw parallels between the social determinants of health and
health equity strategy and contemporary social problems;
• discuss key challenges for social policy and community building in
the coming period of austerity.
2
January 24, 2012 |
www.wellesleyinstitute.com
A Parallel: Health Equity Strategy Into
Action
• health inequities are pervasive and damaging
• but these inequities can be addressed through comprehensive health equity
strategy
• and by focusing policy, programs and resources on particularly health
disadvantaged populations by:
• identifying priority populations and systemic barriers
• plan the most effective mix of focused services and support to meet the priority
populations’ diverse needs
• embed equity into system performance management thorough population-specific
targets and incentives
• evaluate effectiveness and impact, and build these learnings into continuous
improvement
• and acting well beyond health -- tackling the underlying roots of health
inequality in the wider social determinants of health
• through community-based innovation, cross-sectoral collaborations and fundamental
social and policy change to reduce inequality
• and the community and political mobilization to demand and drive the necessary policy
changes
3
The Problem to Solve = Health
Disparities in Ontario
•there is a clear gradient in health
in which people with lower
income, education or other
indicators of social inequality and
exclusion tend to have poorer
health
•+ major differences between
women and men
•the gap between the health of
the best off and most
disadvantaged can be huge – and
damaging
•impact and severity of these
inequities can be concentrated in
particular populations
4
Gradient of Health Across Many
Conditions
5
6
Impact of Disparities
• not just a gradient of health and impact on quality
of life
• inequality in how long people live
• difference btwn life expectancy of top and bottom
income decile = 7.4 years for men and 4.5 for women
• more sophisticated analyses add the pronounced
gradient in morbidity to mortality → taking account of
quality of life and developing data on health adjusted
life expectancy
• even higher disparities btwn top and bottom = 11.4
years for men and 9.7 for women
Statistics Canada Health Reports Dec 09
7
Foundations of Health Disparities (and Parallels to Other
Problems) Lie in Social Determinants of Health
•clear research consensus that roots
of health disparities lie in broader
social and economic inequality and
exclusion
•impact of inadequate early
childhood development, poverty,
precarious employment, social
exclusion, inadequate housing and
decaying social safety nets on health
outcomes is well established here
and internationally
•we need comprehensive strategy to
drive policy action and social change
across these determinants
•these same systemic factors shape
many other social problems
8
January 24, 2012 |
www.wellesleyinstitute.com
Complexity: Canadians With Chronic Conditions
Who Also Report Food Insecurity
9
SDoH As a Complex Problem
Determinants interact and
intersect with each other in a
constantly changing and dynamic
system
In fact, through multiple
interacting and inter-dependent
economic, social and health
systems
Determinants have a reinforcing
and cumulative effect on
individual and population health
Similar dynamic complexity in
other spheres of social policy
10
Three Cumulative and Inter-Connecting Levels
in Which SDoH Shape Health Inequities
1. because of inequitable access to
wealth, income, education and
other fundamental determinants
of health →
2. also because of broader social and
economic inequality and
exclusion→
3. because of all this, disadvantaged
and vulnerable populations have
more complex needs, but face
systemic barriers within the health
and other service systems →
1. gradient of health in which more
disadvantaged communities have
poorer overall health and are at
greater risk of many conditions
2. some communities and
populations have fewer
capacities, resources and resilience
to cope with the impact of poor
health
3. these disadvantaged and
vulnerable communities tend to
have inequitable access to the
services and support they need
11
Need to look at how these
other systems shape the
impact of SDoH:
•access to health services
can mediate harshest
impact of SDoH to some
degree
•community resources
and resilience
Can apply similar lens to
systemic and community
factors that shape broader
social inequality:
•social services can
mediate
•structure and strengths
of communities shape
impact and dynamics of
inequalities
12
January 24, 2012 |
www.wellesleyinstitute.com
13
Why Worry About Policy?
• We are all interested in tackling social and economic inequality, whether:
• developing strategies for government action
• advocating for particular program investments
• getting governments to act on evidence or research
• what is needed to ensure that vulnerable populations have good health?
• comprehensive health and related services
• information to enable individuals to better manage their health care
• investment in research and service/program development
• and many changes beyond health care and research:
• community capacity and resource building
• addressing underlying social determinants of health
• all of these changes flow through government policy in one way or
another
• maximizing the policy impact of research is one critical part of winning
the necessary progressive policy
14
Starting Points: Research, Knowledge and
Policy Impact
Knowledge exchange involves:
• different forms of knowledge -- research, practice-based, lessons learned, community
experience
• different purposes -- making a case for investment, innovation or policy change
To turn knowledge, program proposals or research into policy action requires :
1. getting research findings or the policy case to the right people – in terms they can use
2. understanding the environment in which govt policy decisions are made
3. being able to identify the policy implications of your research or identified community
needs -- and to translate that into concrete policy options to solve the problems you
have found
4. assessing the most effective policy options – pros and cons, costs, risk management
5. being able to make an effective – and winning -- case for your policy recommendations
6. partnering with those with specific policy and knowledge exchange expertise and
experience
7. grounding your research and policy advocacy in wider campaigns and alliances for
social change will maximize its impact
Maximizing Policy Impact
To have policy impact we need to:
• understand the political and policy environment and policy
process within governments
• analyze the problem(s) identified by research or community
needs, and develop potential policy solutions
• assess the pros and cons and cost benefits of various policy
options
• choose and promote policy options that can work
• make a convincing case for them -- at best, with concrete
recommendations that can be acted on
• develop a targeted knowledge exchange strategy to get the
analysis and options to those who can decide
15
16
Identify the Policy Implications
Assess implications of research
findings or program – ‘so what”
•new needs or gaps in existing
services identified
•community preferences or
priorities determined
•barriers to getting services or
support identified
•innovations or ‘best practices’
•evaluating what initiatives work –
and how, for whom, and in what
contexts
•systemic inequities uncovered
What can be done with this
knowledge – ‘now what’
•service providers adapt or expand
services, govts fund
•programs and resource allocations
reflect community priorities
•program or policy changes to
reduce barriers
•other providers take them up
•adapt and generalize to drive
innovation
•policy changes to address systemic
foundations of inequities
17
Knowledge → ‘policy-ready’
• to get your findings or case to the intended decision makers
– in ways they can understand and use – always involves
translation
• into the very different languages and mind sets of govts
• into ‘policy speak’
• and very concrete – translating your findings into:
• specific actionable policy options and recommendations
• that will work in the existing policy environment
• couched in the formats – cabinet briefing notes – and frameworks –
cost-benefit analysis and risk management – that govts use
• the more ‘policy ready’ → the more chance for influence
18
Know Your Policy Environment
• to be able to do policy relevant research and influence policy
change, you need to know:
• the policy framework for your particular issue
• e.g. which levels of govt, and which Ministries or depts govern your issue?
• what are the main formal policies that shape your area?
• just as impt – what are the unstated assumptions and constraints that
shape the sphere?
• what are trends in govt funding and policy in the area?
• how policy is developed:
• players, processes and tempo
• constraints -- risk averse, short-termism, crisis-driven
• and some specific aspects of the government of the day:
• how does your issue relate to its overall agenda?
• where is it in the electoral cycle?
19
Think of Policy Development as Process
• a particular policy – or policy framework – is the result of
decisions made about how to address a particular objective
or problem
• sometimes this can be a deliberate decision not to address the
particular issue
• within the public service there is a generally a careful
process of:
• identifying objectives
• assessing a range of possible actions to achieve the result
• analyzing them against number of factors –
effectiveness, cost, risk, political context, public and community
support, etc.
• always trade-offs, compromise , different “publics” affected
20
Analyzing Policy Options
• policy options are the different legislative, program, funding, and other
ways governments can act to meet defined objectives
• to identify the best options, think of a wide range of factors such as
• how complex and big a policy change you are looking for
• impact (balancing criteria such as equity, efficiency, stability)
• cost – be specific -- is it short-term, capital or operating, one-time or
continuing, etc.?
• versus benefits – specify here too – are the benefits short-term or
more long term -- such as eventual reduced health care expenditures
as a result of upstream investment in health promotion and
prevention?
• timing – how long to show an impact?
• for government, assessing pros-cons, risks and cost-benefits is a standard
part of policy process
• for you, posing recommendations/demands in terms used and
understood within the policy process increases your credibility and
usability
Making the Case to Policy Makers
• know your audience -- and the policy environment and way of thinking within govts
• pick the right person/level to make pitch to – with the authority and levers to act
• be aware of their position and constraints
• think translation: from options to a winnable case
• framed in ways that resonate with policy makers
• making complex issues understandable and actionable
• with a human story for elected officials especially (and the media)
• customize reports for policy audiences
• separate/short policy implications summaries
• in terms they understand and with concrete recommendations they can act on
• use the forms they are used to – decks and briefing notes
• e.g. always address cost benefits, risk management, options and other factors that govt
policy makers think about
• all geared to different levels and functions within govt – e.g. different for Deputy
Minister than mid-level policy analyst
21
22
Making the Case to Policy Makers II
• meeting is best, plus covering letter/brief
• consider your most effective ‘line-up’ to make the case
• not just one-time, but systematic outreach and follow up
with policy makers
• follow up meetings
• as part of long-term strategy to build relationships with key policy
makers in your spheres
• always a question of balance:
• need hard-nosed analysis
• always stay grounded in movement/community principles → limit on
room to compromise
• but also strategically opportunistic → maximize chance of winning
case
23
Take the ‘Long View’
• significant policy change can take many years
• but also look for immediate winnable issues
• to build momentum and hope
• but be careful of co-optation and short-term reforms that deflect from
long-term goals
• Caledon Institute for Social Policy has term “relentless incrementalism”
• have good peripheral vision -- situate your issue in relation to
• other comparable issues → to build coalitions – the wider the better,
with ‘unusual suspects’ as well
• the overall govt policy agenda -- back to ‘fit’
• be prepared for set-backs:
• even the most compelling evidence and well crafted brief doesn't
always drive policy
• politics does
It’s Also/All About Power
• driving policy change on complex/contentious issues is not
just about presenting the best evidence and case
• governments and politicians have to have the political will to
act
• long history of HIV/AIDS movement = have to be forced
• critical importance of political and community mobilization:
• building and staying grounded in community movements
• building/sustaining broad coalitions for change
24
Get Some Help
• policy analysis is a specialized trade and the policy world is a
complex and difficult environment
• community organizations, service providers and researchers
can’t drop everything and become policy analysts and
advocates
• so draw on specialized expertise in knowledge exchange
• partner with organizations with policy expertise
• back to need for systematic strategy:
• partner with govts early in policy or research process
• build relationships
• see knowledge exchange as dynamic and iterative process
25
Parallel: Health Inequities = ‘Wicked’
Problem
• health inequities and their underlying social determinants of health are classic
‘wicked’ policy problems:
• shaped by many inter-related and inter-dependent factors
• in constantly changing social, economic, community and policy environments
• action has to be taken at multiple levels -- by many levels of government,
service providers, other stakeholders and communities
• solutions are not always clear and policy agreement can be difficult to achieve
• effects take years to show up – far beyond any electoral cycle
• have to be able to understand and navigate this complexity to develop solutions
• we need to be able to:
• identify the connections and causal pathways between multiple factors
• articulate the mechanisms or leverage points that we assume drive change in
these factors and population health as a whole
• identify the crucial policy levers that will drive the needed changes
• specify the short, intermediate and long-term outcomes expected and the
preconditions for achieving them.
• same for other spheres of social policy
26
January 24, 2012
27
Think Big, But Get Going
• challenge = health inequities and social inequalities can
seem so overwhelming and their underlying social
determinants so intractable → can be paralyzing
• think big and think strategically, but get going
• make best judgment from evidence and experience
• identify actionable and manageable initiatives that can make a
difference
• experiment and innovate
• learn lessons and adjust – why evaluation is so crucial
• gradually build up coherent sets of policy and program actions –
and keep evaluating
• need to start somewhere:
• focus today is on engaging with and understanding social
services and support to meet needs of disadvantaged
populations and understand the structural roots, of
poverty, exclusion and other social problems
Parallel: Start From The Community
• goal is to reduce health disparities and speak to needs of most vulnerable
communities – who will define those needs?
• can’t just be ‘experts’, planners or professionals
• have to build community into core planning and priority setting
• not as occasional community engagement, but to identify equity needs and
priorities, and to evaluate how we are doing
• many providers have community advisory panels or community members on their
boards
• can also build on innovative methods of engagement – e.g. citizens’ assemblies or
juries in many jurisdictions
• need to develop community engagement that will work for disadvantaged and
marginalized communities:
• in the language and culture of particular community
• has to be collaborative
• sustained over the long-term
• has to show results – to build trust
• need to go where people are
• need to partner with trusted community groups
28
And With Equity-Focused Planning
• Public Health Ontario has developed an equity assessment framework
for public health units.
• a number of Public Health Units have developed and use equity lens:
• Toronto has a simple 3 question lens -- not just for public health, but
other departments
• Sudbury has used an equity planning tool for several years
• MOHLTC and many LHINs have used Health Equity Impact Assessment
• advantage of using the similar tools = build up comparable experience
and data
• lever = could enable/require LHINs, PHUs and service providers to
undertake HEIA or other equity planning processes
• for all new programs and those focusing on particular populations
• to be eligible for particular funding
29
Parallel Beyond Planning: Embed Equity in
System Performance Management
• clear consensus from research and policy literature, and
consistent feature in comprehensive policies on health equity
from other countries:
• setting targets for reducing access barriers, improving health
outcomes of particular populations, etc
• developing realistic and actionable indicators for service delivery
and health outcomes
• tying funding and resource allocation to performance
• closely monitoring progress against the targets and indicators
• disseminating the results widely for public scrutiny
• need comprehensive performance measurement and
management strategy
• then choose appropriate equity targets and indicators for
particular populations/communities
30
Building Equity Targets
• build equity into indicators already being collected → equity angle is to
reduce differences between these populations/communities and others
or PHU as a whole on these indicators
• also drill down – e.g. a number of PHUs and LHINs have identified areas
or populations where diabetes prevalence is highest
• equity target = reduce differences in incidence, complications and
rates of hospitalization by income, ethno-cultural backgrounds, etc.
and among neighbourhoods or regions
• similarly, common goal is reducing childhood obesity → if goal is to
increase the % of kids who exercise regularly
• equity target = reduce the differentials in % of kids who exercise by
neighbourhood, gender, ethno-cultural background, etc.
• and achieving that won’t be just a question of education and
awareness, but facilities and proactive empowerment of kids – and
ensuring equitable access to resources, space and programs
31
Parallel Success Condition = Better Data
•looking abroad for promising practices
= Public Health Observatories in UK
• consistent and coherent collection and
analysis of pop’n health data
• specialization among the Observatories
– London focuses on equity issues
•interest/development in Western
Canada – Saskatoon
•national project to develop health
disparity indicators and data
•Toronto PH is addressing complexities
of collecting and using race-based data
•key direction = explore potential of
equity/SDoH data for Ontario
•in addition, innovative thinking
emerging around dynamic systems
modeling meeting population health
32
Build Equity Into Priority Issues: Chronic
Disease Prevention and Management
•very clear gradient in incidence and
impact of chronic conditions
•chronic disease prevention and
management programs cannot be
successful unless they take health
disparities and wider social conditions
into account
•some populations and communities
need greater support to prevent and
manage chronic conditions
•anti-smoking, exercise and other health
promotion programmes need to
explicitly foreground the particular
social, cultural and economic factors
that shape risky behaviour in poorer
communities– not just the usual focus
on individual behaviour and lifestyle
•need to customize and concentrate
health promotion programs to be
effective for most disadvantaged
33
Not Just at Individual Level: Build Equity-
Driven Service Models
• drill down to further specify needs and barriers:
• health disadvantaged populations have more complex and greater needs for
services and support → continuum of care especially important
• poorer people also face greater barriers – e.g. availability/cost of
transportation, childcare, language, discrimination → facilitated access is
especially important
• e.g. Community Health Centre model of care
• explicitly geared to supporting people from marginalized communities
• comprehensive multi-disciplinary services covering full range of needs
• public health and many community providers have established ‘peer health
ambassadors’ to provide system navigation, outreach and health promotion
services to particular communities
34
Extend That → Address Roots of Health
Inequities in Communities
• look beyond vulnerable individuals to the communities in which they live
• focus on community development as part of mandate for many PHUs and
CHCs
• providing and partnering to provide related services/support such as
settlement, language, child care, literacy, employment training, youth
support, etc.
• across Canada, leading Regional Health Authorities have developed operational
and planning links with local social services or emphasized community capacity
building:
• Saskatoon began from local research documenting shocking disparities among
neighbourhoods
• focused interventions in the poorest neighbourhoods – e.g. differences in
immunization rates between poor and other neighbourhoods decreased
• beyond health – locating services in schools, relying on First Nations elders to
guide programming, etc.
• wide collaboration among public health, municipality, business, community
leaders
35
January 24, 2012 |
www.wellesleyinstitute.com
Through Cross-Sectoral Planning
• cross-sectoral coordination and planning are the glue that
binds together coordinated action on SDoH
• public health departments and LHINs are pulling together
or participating in cross-sectoral planning tables on health
issues – can get beyond institutional silos
• Local Immigration Partnerships, Social Planning Councils,
poverty reduction initiatives, etc
• healthy communities initiatives funded by the Ministry of
Health Promotion and Sport
• look for insight and inspiration from ‘out of angle’ sources:
• e.g. community gardens and kitchens can contribute to
food security to some degree, and sports programs
contribute to health, but they can also help build social
connectedness and cohesion
36
Equity-Driven Innovation: Integrated
Community-Based Care
• hub-style multi-service centres in which a range of health and
employment, child care, language, literacy, training and social
services are provided out of single ‘one stop' locations
• Quebec has long had such comprehensive integrated
community centres
• some new satellite CHCs are being developed in designated
high-need areas in Toronto will involve the CHCs delivering
primary and preventive care and other agencies providing
complementary social services out of the same location
• not just health -- schools as service hubs is being developed --
think back to earlier eras with public health nurses in schools
37
Extend That → Build Community-Level
Action
• all leading jurisdictions with comprehensive equity strategies combine
national policy with local adaptation and concentrated investment
• many cities have developed neighbourhood revitalization strategies
• Toronto’s priority neighbourhoods, Regent’s Park
• promising direction = comprehensive community initiatives:
• broad partnerships of local residents, community organizations,
governments, business, labour and other stakeholders coming
together to address deep-rooted local problems – poverty,
neighbourhood deterioration, health disparities
• collaborative cross-sectoral efforts – employment opportunities, skills
building, access to health and social services, community development
• e.g. of Vibrant Communities – 14 communities across the country to
build individual and community capacities to reduce poverty
• Wellesley review of evidence = these initiatives have the potential to
build individual opportunities, awareness of structural nature of
poverty and local mobilization → into policy advocacy
38
Parallel: Evaluating Complex Equity
Interventions
• how do we know what works = crucial importance of evaluation
• far too complex to pick apart all the causal relations and patterns of influence:
• very difficult to attribute particular changes to particular components of the overall
initiative
• will never meet RCT gold standard of proof – that approach can’t capture complexity
• but that doesn't mean particular initiative is ineffective
• impact can take many years to show up
• but that doesn’t mean nothing is happening
• traditional evaluation of one program in isolation or of a particular population
among many will not capture this complexity
• potential of more ‘realist’ approach – M + C = O
• evaluating impact of interventions – but always in particular contexts
• and sometimes we look at what works in particular population or social contexts rather
than form of intervention
• and we evaluate our framework of theory of change
• we identified levers in our strategy – did they prove to be important in practice?
• looking for indications that the change mechanisms unfold as we expected, that the
direction of causal influence and impact is as we expected ,etc
• looking for evidence that outcomes anticipated are being achieved
39
January 24, 2012
Complexities: Building Equity Targets
• can’t just measure activity:
• number or % of priority pop’n that participated in program
• need to measure health outcomes – even when impact only shows up in long-
term
• so if theory of change for health program begins with enabling more exercise
or healthier eating – then we measure that initial step
• need to assess reach
• who isn’t signing up? who needs program/support most?
• who stuck with program and what impact it had on their health – and how this
varies within the pop’n
• and assess impact through equity lens
• need to differentiate those with greatest need = who programs most need to
support and keep to have an impact
• then adapt incentives and drivers
• develop weighting that recognizes more complex needs and challenges of
most disadvantaged, and builds this into incentive system
40
Parallel: Watch for Unintended
Consequences
• health promotion that emphasizes individual health behaviour or risks
without setting it in wider social context
• can lead to ‘blame the victim’ portrayals of disadvantaged who practice ‘risky’
behaviour
• focus on individual lifestyle in isolation without understanding wider social
forces that shape choices and opportunities won’t succeed
• universal programs that don’t target and/or customize to particular
disadvantaged communities
• inequality gap can widen as more affluent/educated take advantage of
programs
• programs that focus on most disadvantaged populations without
considering gradients of health and need
• the quintile or group just up the hierarchy may be almost as much in need
• e.g. access to medication, dental care, child care and other services for which
poorest on social assistance are eligible do not benefit working poor
• supporting the very worst off, while not affecting the ‘almost as worse off’ is
unlikely to be effective overall
41
Back to Community Again: Build Momentum
and Mobilization
• sophisticated strategy, solid equity-focused research, planning and
innovation, and well-targeted investments and services are key
• but in the long run, also need fundamental changes in over-arching state
social policy and underlying structures of economic and social inequality
• these kinds of huge changes come about not because of good analysis
but through widespread community mobilization and public pressure
• key to equity-driven reform will also be empowering communities to
imagine their own alternative vision of different health futures and to
organize to achieve them
• we need to find ways that governments, providers, community groups,
unions, and others can support each others’ campaigns and coalesce
around a few ‘big ideas’
42
Health Equity
could be one of those ‘big’ unifying ideas..
• if we see opportunities for good health and wellbeing as a
basic right of all
• if we see the damaged health of disadvantaged and
marginalized populations as an indictment of an unequal
society – but that focused initiatives can make a difference
• if we recognize that coming together to address the social
determinants that underlie health inequalities will also
address the roots of so many other social problems
• thinking of what needs to be done to create health
equity is a way of imagining and forging a powerful
vision of a progressive future
• and showing that we can get there from here
43
• these speaking notes and further resources on
policy directions to enhance health equity, health
reform and the social determinants of health are
available on our site at
http://wellesleyinstitute.com
• email at bob@wellesleyinstitute.com
• we would be interested in any comments on the
ideas in this presentation and any information or
analysis on initiatives or experience that address
health equity
Following Up
44

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Socialpolicygradclassjan2012 120124145555-phpapp01

  • 1. Drawing Out Links: Health Equity, Social Determinants of Health and Social Policy Bob Gardner & Steve Barnes Graduate Class on Research Methods, Social Work, University of Toronto January 23, 2012
  • 2. Outline • set out how the Wellesley Institute, as an independent progressive research and policy think tank, supports research, policy analysis and community mobilization to drive social change in the foundations of health inequities; • identify the potential and challenges of applied research across a range of methodologies – from local community-based research, through quantitative analysis of trends in income and health inequalities, through comparative policy research; • explore how to ‘translate’ solid research into policy impact • draw parallels between the social determinants of health and health equity strategy and contemporary social problems; • discuss key challenges for social policy and community building in the coming period of austerity. 2 January 24, 2012 | www.wellesleyinstitute.com
  • 3. A Parallel: Health Equity Strategy Into Action • health inequities are pervasive and damaging • but these inequities can be addressed through comprehensive health equity strategy • and by focusing policy, programs and resources on particularly health disadvantaged populations by: • identifying priority populations and systemic barriers • plan the most effective mix of focused services and support to meet the priority populations’ diverse needs • embed equity into system performance management thorough population-specific targets and incentives • evaluate effectiveness and impact, and build these learnings into continuous improvement • and acting well beyond health -- tackling the underlying roots of health inequality in the wider social determinants of health • through community-based innovation, cross-sectoral collaborations and fundamental social and policy change to reduce inequality • and the community and political mobilization to demand and drive the necessary policy changes 3
  • 4. The Problem to Solve = Health Disparities in Ontario •there is a clear gradient in health in which people with lower income, education or other indicators of social inequality and exclusion tend to have poorer health •+ major differences between women and men •the gap between the health of the best off and most disadvantaged can be huge – and damaging •impact and severity of these inequities can be concentrated in particular populations 4
  • 5. Gradient of Health Across Many Conditions 5
  • 6. 6
  • 7. Impact of Disparities • not just a gradient of health and impact on quality of life • inequality in how long people live • difference btwn life expectancy of top and bottom income decile = 7.4 years for men and 4.5 for women • more sophisticated analyses add the pronounced gradient in morbidity to mortality → taking account of quality of life and developing data on health adjusted life expectancy • even higher disparities btwn top and bottom = 11.4 years for men and 9.7 for women Statistics Canada Health Reports Dec 09 7
  • 8. Foundations of Health Disparities (and Parallels to Other Problems) Lie in Social Determinants of Health •clear research consensus that roots of health disparities lie in broader social and economic inequality and exclusion •impact of inadequate early childhood development, poverty, precarious employment, social exclusion, inadequate housing and decaying social safety nets on health outcomes is well established here and internationally •we need comprehensive strategy to drive policy action and social change across these determinants •these same systemic factors shape many other social problems 8 January 24, 2012 | www.wellesleyinstitute.com
  • 9. Complexity: Canadians With Chronic Conditions Who Also Report Food Insecurity 9
  • 10. SDoH As a Complex Problem Determinants interact and intersect with each other in a constantly changing and dynamic system In fact, through multiple interacting and inter-dependent economic, social and health systems Determinants have a reinforcing and cumulative effect on individual and population health Similar dynamic complexity in other spheres of social policy 10
  • 11. Three Cumulative and Inter-Connecting Levels in Which SDoH Shape Health Inequities 1. because of inequitable access to wealth, income, education and other fundamental determinants of health → 2. also because of broader social and economic inequality and exclusion→ 3. because of all this, disadvantaged and vulnerable populations have more complex needs, but face systemic barriers within the health and other service systems → 1. gradient of health in which more disadvantaged communities have poorer overall health and are at greater risk of many conditions 2. some communities and populations have fewer capacities, resources and resilience to cope with the impact of poor health 3. these disadvantaged and vulnerable communities tend to have inequitable access to the services and support they need 11
  • 12. Need to look at how these other systems shape the impact of SDoH: •access to health services can mediate harshest impact of SDoH to some degree •community resources and resilience Can apply similar lens to systemic and community factors that shape broader social inequality: •social services can mediate •structure and strengths of communities shape impact and dynamics of inequalities 12 January 24, 2012 | www.wellesleyinstitute.com
  • 13. 13 Why Worry About Policy? • We are all interested in tackling social and economic inequality, whether: • developing strategies for government action • advocating for particular program investments • getting governments to act on evidence or research • what is needed to ensure that vulnerable populations have good health? • comprehensive health and related services • information to enable individuals to better manage their health care • investment in research and service/program development • and many changes beyond health care and research: • community capacity and resource building • addressing underlying social determinants of health • all of these changes flow through government policy in one way or another • maximizing the policy impact of research is one critical part of winning the necessary progressive policy
  • 14. 14 Starting Points: Research, Knowledge and Policy Impact Knowledge exchange involves: • different forms of knowledge -- research, practice-based, lessons learned, community experience • different purposes -- making a case for investment, innovation or policy change To turn knowledge, program proposals or research into policy action requires : 1. getting research findings or the policy case to the right people – in terms they can use 2. understanding the environment in which govt policy decisions are made 3. being able to identify the policy implications of your research or identified community needs -- and to translate that into concrete policy options to solve the problems you have found 4. assessing the most effective policy options – pros and cons, costs, risk management 5. being able to make an effective – and winning -- case for your policy recommendations 6. partnering with those with specific policy and knowledge exchange expertise and experience 7. grounding your research and policy advocacy in wider campaigns and alliances for social change will maximize its impact
  • 15. Maximizing Policy Impact To have policy impact we need to: • understand the political and policy environment and policy process within governments • analyze the problem(s) identified by research or community needs, and develop potential policy solutions • assess the pros and cons and cost benefits of various policy options • choose and promote policy options that can work • make a convincing case for them -- at best, with concrete recommendations that can be acted on • develop a targeted knowledge exchange strategy to get the analysis and options to those who can decide 15
  • 16. 16 Identify the Policy Implications Assess implications of research findings or program – ‘so what” •new needs or gaps in existing services identified •community preferences or priorities determined •barriers to getting services or support identified •innovations or ‘best practices’ •evaluating what initiatives work – and how, for whom, and in what contexts •systemic inequities uncovered What can be done with this knowledge – ‘now what’ •service providers adapt or expand services, govts fund •programs and resource allocations reflect community priorities •program or policy changes to reduce barriers •other providers take them up •adapt and generalize to drive innovation •policy changes to address systemic foundations of inequities
  • 17. 17 Knowledge → ‘policy-ready’ • to get your findings or case to the intended decision makers – in ways they can understand and use – always involves translation • into the very different languages and mind sets of govts • into ‘policy speak’ • and very concrete – translating your findings into: • specific actionable policy options and recommendations • that will work in the existing policy environment • couched in the formats – cabinet briefing notes – and frameworks – cost-benefit analysis and risk management – that govts use • the more ‘policy ready’ → the more chance for influence
  • 18. 18 Know Your Policy Environment • to be able to do policy relevant research and influence policy change, you need to know: • the policy framework for your particular issue • e.g. which levels of govt, and which Ministries or depts govern your issue? • what are the main formal policies that shape your area? • just as impt – what are the unstated assumptions and constraints that shape the sphere? • what are trends in govt funding and policy in the area? • how policy is developed: • players, processes and tempo • constraints -- risk averse, short-termism, crisis-driven • and some specific aspects of the government of the day: • how does your issue relate to its overall agenda? • where is it in the electoral cycle?
  • 19. 19 Think of Policy Development as Process • a particular policy – or policy framework – is the result of decisions made about how to address a particular objective or problem • sometimes this can be a deliberate decision not to address the particular issue • within the public service there is a generally a careful process of: • identifying objectives • assessing a range of possible actions to achieve the result • analyzing them against number of factors – effectiveness, cost, risk, political context, public and community support, etc. • always trade-offs, compromise , different “publics” affected
  • 20. 20 Analyzing Policy Options • policy options are the different legislative, program, funding, and other ways governments can act to meet defined objectives • to identify the best options, think of a wide range of factors such as • how complex and big a policy change you are looking for • impact (balancing criteria such as equity, efficiency, stability) • cost – be specific -- is it short-term, capital or operating, one-time or continuing, etc.? • versus benefits – specify here too – are the benefits short-term or more long term -- such as eventual reduced health care expenditures as a result of upstream investment in health promotion and prevention? • timing – how long to show an impact? • for government, assessing pros-cons, risks and cost-benefits is a standard part of policy process • for you, posing recommendations/demands in terms used and understood within the policy process increases your credibility and usability
  • 21. Making the Case to Policy Makers • know your audience -- and the policy environment and way of thinking within govts • pick the right person/level to make pitch to – with the authority and levers to act • be aware of their position and constraints • think translation: from options to a winnable case • framed in ways that resonate with policy makers • making complex issues understandable and actionable • with a human story for elected officials especially (and the media) • customize reports for policy audiences • separate/short policy implications summaries • in terms they understand and with concrete recommendations they can act on • use the forms they are used to – decks and briefing notes • e.g. always address cost benefits, risk management, options and other factors that govt policy makers think about • all geared to different levels and functions within govt – e.g. different for Deputy Minister than mid-level policy analyst 21
  • 22. 22 Making the Case to Policy Makers II • meeting is best, plus covering letter/brief • consider your most effective ‘line-up’ to make the case • not just one-time, but systematic outreach and follow up with policy makers • follow up meetings • as part of long-term strategy to build relationships with key policy makers in your spheres • always a question of balance: • need hard-nosed analysis • always stay grounded in movement/community principles → limit on room to compromise • but also strategically opportunistic → maximize chance of winning case
  • 23. 23 Take the ‘Long View’ • significant policy change can take many years • but also look for immediate winnable issues • to build momentum and hope • but be careful of co-optation and short-term reforms that deflect from long-term goals • Caledon Institute for Social Policy has term “relentless incrementalism” • have good peripheral vision -- situate your issue in relation to • other comparable issues → to build coalitions – the wider the better, with ‘unusual suspects’ as well • the overall govt policy agenda -- back to ‘fit’ • be prepared for set-backs: • even the most compelling evidence and well crafted brief doesn't always drive policy • politics does
  • 24. It’s Also/All About Power • driving policy change on complex/contentious issues is not just about presenting the best evidence and case • governments and politicians have to have the political will to act • long history of HIV/AIDS movement = have to be forced • critical importance of political and community mobilization: • building and staying grounded in community movements • building/sustaining broad coalitions for change 24
  • 25. Get Some Help • policy analysis is a specialized trade and the policy world is a complex and difficult environment • community organizations, service providers and researchers can’t drop everything and become policy analysts and advocates • so draw on specialized expertise in knowledge exchange • partner with organizations with policy expertise • back to need for systematic strategy: • partner with govts early in policy or research process • build relationships • see knowledge exchange as dynamic and iterative process 25
  • 26. Parallel: Health Inequities = ‘Wicked’ Problem • health inequities and their underlying social determinants of health are classic ‘wicked’ policy problems: • shaped by many inter-related and inter-dependent factors • in constantly changing social, economic, community and policy environments • action has to be taken at multiple levels -- by many levels of government, service providers, other stakeholders and communities • solutions are not always clear and policy agreement can be difficult to achieve • effects take years to show up – far beyond any electoral cycle • have to be able to understand and navigate this complexity to develop solutions • we need to be able to: • identify the connections and causal pathways between multiple factors • articulate the mechanisms or leverage points that we assume drive change in these factors and population health as a whole • identify the crucial policy levers that will drive the needed changes • specify the short, intermediate and long-term outcomes expected and the preconditions for achieving them. • same for other spheres of social policy 26 January 24, 2012
  • 27. 27 Think Big, But Get Going • challenge = health inequities and social inequalities can seem so overwhelming and their underlying social determinants so intractable → can be paralyzing • think big and think strategically, but get going • make best judgment from evidence and experience • identify actionable and manageable initiatives that can make a difference • experiment and innovate • learn lessons and adjust – why evaluation is so crucial • gradually build up coherent sets of policy and program actions – and keep evaluating • need to start somewhere: • focus today is on engaging with and understanding social services and support to meet needs of disadvantaged populations and understand the structural roots, of poverty, exclusion and other social problems
  • 28. Parallel: Start From The Community • goal is to reduce health disparities and speak to needs of most vulnerable communities – who will define those needs? • can’t just be ‘experts’, planners or professionals • have to build community into core planning and priority setting • not as occasional community engagement, but to identify equity needs and priorities, and to evaluate how we are doing • many providers have community advisory panels or community members on their boards • can also build on innovative methods of engagement – e.g. citizens’ assemblies or juries in many jurisdictions • need to develop community engagement that will work for disadvantaged and marginalized communities: • in the language and culture of particular community • has to be collaborative • sustained over the long-term • has to show results – to build trust • need to go where people are • need to partner with trusted community groups 28
  • 29. And With Equity-Focused Planning • Public Health Ontario has developed an equity assessment framework for public health units. • a number of Public Health Units have developed and use equity lens: • Toronto has a simple 3 question lens -- not just for public health, but other departments • Sudbury has used an equity planning tool for several years • MOHLTC and many LHINs have used Health Equity Impact Assessment • advantage of using the similar tools = build up comparable experience and data • lever = could enable/require LHINs, PHUs and service providers to undertake HEIA or other equity planning processes • for all new programs and those focusing on particular populations • to be eligible for particular funding 29
  • 30. Parallel Beyond Planning: Embed Equity in System Performance Management • clear consensus from research and policy literature, and consistent feature in comprehensive policies on health equity from other countries: • setting targets for reducing access barriers, improving health outcomes of particular populations, etc • developing realistic and actionable indicators for service delivery and health outcomes • tying funding and resource allocation to performance • closely monitoring progress against the targets and indicators • disseminating the results widely for public scrutiny • need comprehensive performance measurement and management strategy • then choose appropriate equity targets and indicators for particular populations/communities 30
  • 31. Building Equity Targets • build equity into indicators already being collected → equity angle is to reduce differences between these populations/communities and others or PHU as a whole on these indicators • also drill down – e.g. a number of PHUs and LHINs have identified areas or populations where diabetes prevalence is highest • equity target = reduce differences in incidence, complications and rates of hospitalization by income, ethno-cultural backgrounds, etc. and among neighbourhoods or regions • similarly, common goal is reducing childhood obesity → if goal is to increase the % of kids who exercise regularly • equity target = reduce the differentials in % of kids who exercise by neighbourhood, gender, ethno-cultural background, etc. • and achieving that won’t be just a question of education and awareness, but facilities and proactive empowerment of kids – and ensuring equitable access to resources, space and programs 31
  • 32. Parallel Success Condition = Better Data •looking abroad for promising practices = Public Health Observatories in UK • consistent and coherent collection and analysis of pop’n health data • specialization among the Observatories – London focuses on equity issues •interest/development in Western Canada – Saskatoon •national project to develop health disparity indicators and data •Toronto PH is addressing complexities of collecting and using race-based data •key direction = explore potential of equity/SDoH data for Ontario •in addition, innovative thinking emerging around dynamic systems modeling meeting population health 32
  • 33. Build Equity Into Priority Issues: Chronic Disease Prevention and Management •very clear gradient in incidence and impact of chronic conditions •chronic disease prevention and management programs cannot be successful unless they take health disparities and wider social conditions into account •some populations and communities need greater support to prevent and manage chronic conditions •anti-smoking, exercise and other health promotion programmes need to explicitly foreground the particular social, cultural and economic factors that shape risky behaviour in poorer communities– not just the usual focus on individual behaviour and lifestyle •need to customize and concentrate health promotion programs to be effective for most disadvantaged 33
  • 34. Not Just at Individual Level: Build Equity- Driven Service Models • drill down to further specify needs and barriers: • health disadvantaged populations have more complex and greater needs for services and support → continuum of care especially important • poorer people also face greater barriers – e.g. availability/cost of transportation, childcare, language, discrimination → facilitated access is especially important • e.g. Community Health Centre model of care • explicitly geared to supporting people from marginalized communities • comprehensive multi-disciplinary services covering full range of needs • public health and many community providers have established ‘peer health ambassadors’ to provide system navigation, outreach and health promotion services to particular communities 34
  • 35. Extend That → Address Roots of Health Inequities in Communities • look beyond vulnerable individuals to the communities in which they live • focus on community development as part of mandate for many PHUs and CHCs • providing and partnering to provide related services/support such as settlement, language, child care, literacy, employment training, youth support, etc. • across Canada, leading Regional Health Authorities have developed operational and planning links with local social services or emphasized community capacity building: • Saskatoon began from local research documenting shocking disparities among neighbourhoods • focused interventions in the poorest neighbourhoods – e.g. differences in immunization rates between poor and other neighbourhoods decreased • beyond health – locating services in schools, relying on First Nations elders to guide programming, etc. • wide collaboration among public health, municipality, business, community leaders 35 January 24, 2012 | www.wellesleyinstitute.com
  • 36. Through Cross-Sectoral Planning • cross-sectoral coordination and planning are the glue that binds together coordinated action on SDoH • public health departments and LHINs are pulling together or participating in cross-sectoral planning tables on health issues – can get beyond institutional silos • Local Immigration Partnerships, Social Planning Councils, poverty reduction initiatives, etc • healthy communities initiatives funded by the Ministry of Health Promotion and Sport • look for insight and inspiration from ‘out of angle’ sources: • e.g. community gardens and kitchens can contribute to food security to some degree, and sports programs contribute to health, but they can also help build social connectedness and cohesion 36
  • 37. Equity-Driven Innovation: Integrated Community-Based Care • hub-style multi-service centres in which a range of health and employment, child care, language, literacy, training and social services are provided out of single ‘one stop' locations • Quebec has long had such comprehensive integrated community centres • some new satellite CHCs are being developed in designated high-need areas in Toronto will involve the CHCs delivering primary and preventive care and other agencies providing complementary social services out of the same location • not just health -- schools as service hubs is being developed -- think back to earlier eras with public health nurses in schools 37
  • 38. Extend That → Build Community-Level Action • all leading jurisdictions with comprehensive equity strategies combine national policy with local adaptation and concentrated investment • many cities have developed neighbourhood revitalization strategies • Toronto’s priority neighbourhoods, Regent’s Park • promising direction = comprehensive community initiatives: • broad partnerships of local residents, community organizations, governments, business, labour and other stakeholders coming together to address deep-rooted local problems – poverty, neighbourhood deterioration, health disparities • collaborative cross-sectoral efforts – employment opportunities, skills building, access to health and social services, community development • e.g. of Vibrant Communities – 14 communities across the country to build individual and community capacities to reduce poverty • Wellesley review of evidence = these initiatives have the potential to build individual opportunities, awareness of structural nature of poverty and local mobilization → into policy advocacy 38
  • 39. Parallel: Evaluating Complex Equity Interventions • how do we know what works = crucial importance of evaluation • far too complex to pick apart all the causal relations and patterns of influence: • very difficult to attribute particular changes to particular components of the overall initiative • will never meet RCT gold standard of proof – that approach can’t capture complexity • but that doesn't mean particular initiative is ineffective • impact can take many years to show up • but that doesn’t mean nothing is happening • traditional evaluation of one program in isolation or of a particular population among many will not capture this complexity • potential of more ‘realist’ approach – M + C = O • evaluating impact of interventions – but always in particular contexts • and sometimes we look at what works in particular population or social contexts rather than form of intervention • and we evaluate our framework of theory of change • we identified levers in our strategy – did they prove to be important in practice? • looking for indications that the change mechanisms unfold as we expected, that the direction of causal influence and impact is as we expected ,etc • looking for evidence that outcomes anticipated are being achieved 39 January 24, 2012
  • 40. Complexities: Building Equity Targets • can’t just measure activity: • number or % of priority pop’n that participated in program • need to measure health outcomes – even when impact only shows up in long- term • so if theory of change for health program begins with enabling more exercise or healthier eating – then we measure that initial step • need to assess reach • who isn’t signing up? who needs program/support most? • who stuck with program and what impact it had on their health – and how this varies within the pop’n • and assess impact through equity lens • need to differentiate those with greatest need = who programs most need to support and keep to have an impact • then adapt incentives and drivers • develop weighting that recognizes more complex needs and challenges of most disadvantaged, and builds this into incentive system 40
  • 41. Parallel: Watch for Unintended Consequences • health promotion that emphasizes individual health behaviour or risks without setting it in wider social context • can lead to ‘blame the victim’ portrayals of disadvantaged who practice ‘risky’ behaviour • focus on individual lifestyle in isolation without understanding wider social forces that shape choices and opportunities won’t succeed • universal programs that don’t target and/or customize to particular disadvantaged communities • inequality gap can widen as more affluent/educated take advantage of programs • programs that focus on most disadvantaged populations without considering gradients of health and need • the quintile or group just up the hierarchy may be almost as much in need • e.g. access to medication, dental care, child care and other services for which poorest on social assistance are eligible do not benefit working poor • supporting the very worst off, while not affecting the ‘almost as worse off’ is unlikely to be effective overall 41
  • 42. Back to Community Again: Build Momentum and Mobilization • sophisticated strategy, solid equity-focused research, planning and innovation, and well-targeted investments and services are key • but in the long run, also need fundamental changes in over-arching state social policy and underlying structures of economic and social inequality • these kinds of huge changes come about not because of good analysis but through widespread community mobilization and public pressure • key to equity-driven reform will also be empowering communities to imagine their own alternative vision of different health futures and to organize to achieve them • we need to find ways that governments, providers, community groups, unions, and others can support each others’ campaigns and coalesce around a few ‘big ideas’ 42
  • 43. Health Equity could be one of those ‘big’ unifying ideas.. • if we see opportunities for good health and wellbeing as a basic right of all • if we see the damaged health of disadvantaged and marginalized populations as an indictment of an unequal society – but that focused initiatives can make a difference • if we recognize that coming together to address the social determinants that underlie health inequalities will also address the roots of so many other social problems • thinking of what needs to be done to create health equity is a way of imagining and forging a powerful vision of a progressive future • and showing that we can get there from here 43
  • 44. • these speaking notes and further resources on policy directions to enhance health equity, health reform and the social determinants of health are available on our site at http://wellesleyinstitute.com • email at bob@wellesleyinstitute.com • we would be interested in any comments on the ideas in this presentation and any information or analysis on initiatives or experience that address health equity Following Up 44