'Working Together in Research' - Leeds - 26th June 2013Simon Denegri
The document discusses public involvement in UK health research. It finds that most people support healthcare research and many would consider participating. However, few patients discuss research options with their doctors or receive information about available studies. The National Institute for Health Research aims to improve public participation through several initiatives. These include supporting relevant research, open data sharing, and empowering patients to help guide research priorities and experiences. The goal is to develop partnerships between researchers and the public to improve research quality and patient outcomes.
Let's talk people in research sept 2014Simon Denegri
This slide-deck covers the main components of current NIHR approaches towards public involvement in research; its ongoing strategic review of the area and; its current policy towards engaging patients through the NHS.
PCORI helps people make informed health care decisions by funding comparative effectiveness research guided by patients and caregivers. It focuses on improving outcomes for various subpopulations through research on prevention, diagnosis, treatment and healthcare systems. PCORI is establishing a National Patient-Centered Clinical Research Network involving clinical research networks, patient groups, and other partners to facilitate large-scale, real-world research.
Eliot Marston: Public Engagement - Who? What? Why? Where? Whom?mds-rkto
This document discusses public engagement in research. It defines public engagement as connecting higher education institutions and researchers with the public to increase involvement in research design, delivery, and dissemination, generating mutual benefit. It outlines why public engagement is now a national priority for research funding, as public money supports research. Engaging the public can help make research more effective and increase impact. The document advises that now is a good time to get involved in public engagement as major research funders increasingly require and support engagement activities.
The document discusses the importance of patient participation in medical research, noting that over 80% of people believe it is important for the NHS to offer research opportunities and that most trusts do not provide information to support patient choice in research. It emphasizes the need to increase patient willingness to participate in studies, enable greater choice, and involve patients in designing research from the beginning to help shape a system where research is a driver of higher quality care.
Involving People: Patients, Participants & Consumers in U.K.Cancer Research (...Nowgen
Involving People: Patients, Participants & Consumers in U.K.Cancer Research, presented by Richard Stephens at the EUPATI-UK Network Conference on 6 March 2014 in Leeds, UK
Professsor John Gladman - Caring for older people and stroke survivorsCLAHRC-NDL
Caring for older people and stroke survivors theme presentation by Professor John Gladman, delivered at the NIHR CLAHRC East Midlands launch event on 14 February 2014, Loughborough.
INVOLVE perspectives on learning and development (Sarah Buckland, INVOLVE)Nowgen
"INVOLVE perspectives on learning and development", presented by Sarah Buckland, INVOLVE, at the EUPATI-UK Network Conference on 6 March 2014 in Leeds, UK
'Working Together in Research' - Leeds - 26th June 2013Simon Denegri
The document discusses public involvement in UK health research. It finds that most people support healthcare research and many would consider participating. However, few patients discuss research options with their doctors or receive information about available studies. The National Institute for Health Research aims to improve public participation through several initiatives. These include supporting relevant research, open data sharing, and empowering patients to help guide research priorities and experiences. The goal is to develop partnerships between researchers and the public to improve research quality and patient outcomes.
Let's talk people in research sept 2014Simon Denegri
This slide-deck covers the main components of current NIHR approaches towards public involvement in research; its ongoing strategic review of the area and; its current policy towards engaging patients through the NHS.
PCORI helps people make informed health care decisions by funding comparative effectiveness research guided by patients and caregivers. It focuses on improving outcomes for various subpopulations through research on prevention, diagnosis, treatment and healthcare systems. PCORI is establishing a National Patient-Centered Clinical Research Network involving clinical research networks, patient groups, and other partners to facilitate large-scale, real-world research.
Eliot Marston: Public Engagement - Who? What? Why? Where? Whom?mds-rkto
This document discusses public engagement in research. It defines public engagement as connecting higher education institutions and researchers with the public to increase involvement in research design, delivery, and dissemination, generating mutual benefit. It outlines why public engagement is now a national priority for research funding, as public money supports research. Engaging the public can help make research more effective and increase impact. The document advises that now is a good time to get involved in public engagement as major research funders increasingly require and support engagement activities.
The document discusses the importance of patient participation in medical research, noting that over 80% of people believe it is important for the NHS to offer research opportunities and that most trusts do not provide information to support patient choice in research. It emphasizes the need to increase patient willingness to participate in studies, enable greater choice, and involve patients in designing research from the beginning to help shape a system where research is a driver of higher quality care.
Involving People: Patients, Participants & Consumers in U.K.Cancer Research (...Nowgen
Involving People: Patients, Participants & Consumers in U.K.Cancer Research, presented by Richard Stephens at the EUPATI-UK Network Conference on 6 March 2014 in Leeds, UK
Professsor John Gladman - Caring for older people and stroke survivorsCLAHRC-NDL
Caring for older people and stroke survivors theme presentation by Professor John Gladman, delivered at the NIHR CLAHRC East Midlands launch event on 14 February 2014, Loughborough.
INVOLVE perspectives on learning and development (Sarah Buckland, INVOLVE)Nowgen
"INVOLVE perspectives on learning and development", presented by Sarah Buckland, INVOLVE, at the EUPATI-UK Network Conference on 6 March 2014 in Leeds, UK
Let's Talk Research 2015 - Mel Chapman - Public involvement in the disseminat...NHSNWRD
This document discusses involving members of the public in disseminating research findings. It aims to explain why public involvement is important, what the benefits and challenges are, and how they can be involved. Examples are provided of past studies that engaged the public, such as creating films about a clinical trial from the perspectives of participants, doctors, and advocates. The document also provides links to resources on developing dissemination strategies and training for public involvement.
Leicester CLRN Meeting 'Making it real' 19 June 2013Simon Denegri
This document discusses public involvement in UK health research. It notes that public involvement is a core principle of the National Institute for Health Research and has been shown to improve research quality. The NIHR provides funding to support public involvement through all stages of research from setting priorities to design and delivery. There has been growth in policies that support patient choice and participation in research. However, challenges remain in fully enabling patient choice in research and ensuring high quality experiences for all patients. The document advocates for continued collaborative efforts between the public, researchers, and others to further promote patient-centered research in the NHS.
Professor Justin Waring - Implementing evidence and improvementCLAHRC-NDL
Professsor Justin Waring presentation on Implementing evidence and improvement, delivered at NIHR CLAHRC East Midlands launch event on 14 February 2014, Loughborough.
Ensuring research really does involve the young personSimon R. Stones
This presentation was delivered during a session discussing the ethics of conducting research with children and young people. The presentation emphasises the importance of involving children, young people and their families in the design and conduct of research, in order to make it more relevant.
1) The document discusses reflections on cohorts and longitudinal population studies, focusing on their strengths and weaknesses. It summarizes a survey of 77 cohort studies across 32 low and middle-income countries.
2) Key recommendations include improving data linkage, coordination between studies, use of emerging technologies, capacity building, data sharing, standardization, and translation of research outputs.
3) Barriers to effective data sharing are discussed, as well as initiatives by the Wellcome Trust to address priorities like data discoverability, incentives for data sharing, and ensuring ethical standards.
This document outlines the East Midlands Research into Ageing Network (EMRAN) project plan. EMRAN aims to facilitate high-quality applied health research into the care of older people in the East Midlands region through collaboration between researchers, commissioners, providers, practitioners, patients, and the public. The network will achieve this by developing an inclusive management structure, maintaining a database of members and their research interests, engaging partners through events and publications, and ultimately securing longer-term funding and support. The challenges will be sustaining engagement across the wide geographical region and creating a clear identity, but partnerships with other regional networks like the Academic Health Science Network can help address these challenges.
Presentation to National Institute for Health Research (NIHR) Public Involvem...Simon Denegri
This presentation includes slides detailing the initial findings from the NIHR Strategic Review of public involvement in research entitled 'Breaking Boundaries.'
Using Community Research to inform Health and Social Policy for Immigrant And...ocasiconference
The Wellesley Institute conducts community-based policy research focused on the social determinants of health. They have supported community-based research approaches and policy-focused research grounded in local data. A case study described involved assessing health impacts of changes to Ontario's Interim Federal Health Program through surveys of healthcare providers, demonstrating how community data can inform policy. The Institute is also collaborating on a project gathering perspectives of temporary foreign workers on impacts of relevant policies through surveys and interviews.
The document outlines the benefits of public engagement with research according to RCUK. It argues that public engagement can (1) increase public confidence and understanding of research, (2) inspire more young people to pursue research careers, and (3) enhance the societal impact of research. Public engagement benefits researchers by developing skills, enhancing careers and research, and increasing funding opportunities. It also benefits society by creating a more informed public and maximizing the return on investment in research.
The Manchester Institute for Collaborative Research on Ageing (MICRA) was established in 2010 as a research network and designated as a research institute in 2013. MICRA receives core funding from the Medical Health Sciences and Humanities and pursues strategic objectives such as establishing the University as a major interdisciplinary centre for ageing research and transforming public perceptions of ageing. MICRA's research themes include social and cultural change in later life, physical decline and dementia, and its public engagement strategy aims to shape debates on population ageing. The Institute is led by an interdisciplinary team of co-directors and supports ageing research across the University through funding, workshops, and capacity building.
Communicating Research Beyond Academia A researchers perspectivemonicaduke
Melanie Welham presents Communicating Research Beyond Academia A researchers perspective at the Patients Participate! Workshop at the British Library on 17th June 2011
This case study by PREPPP Award winner Dr. Anna Chudyk and her team discusses experiences, lessons learned, and barriers and facilitators to engaging in health research scoping reviews.
The document discusses how the East Midlands Academic Health Science Network (EMAHSN) can support ageing research. EMAHSN aims to accelerate innovation and spread proven ideas across large populations. It focuses on improving clinical outcomes, patient experience, and health equality. EMAHSN will complement other research organizations by focusing on adopting and spreading innovative clinical practices that are proven to be cost-effective across healthcare systems.
This document summarizes the SOPRANO research project which aims to understand how non-statutory organizations support older people's well-being and resilience. The project will explore relationships between commissioning bodies and third sector organizations, and barriers to coordinated services. Stakeholders include commissioners, voluntary organization managers, staff, volunteers, older people, and carers. Methods include surveys of commissioners, interviews with stakeholders, and systematic reviews of needs assessment tools. The goals are to produce recommendations to improve integration of services around individual needs.
CER 2016 Phillips cer symposium pcori 2016 from 012716CTSI at UCSF
This document discusses the development of PCORI's research agenda on personalized and precision medicine. It outlines Kathryn Phillips' role as an advisor to PCORI on this topic. Specifically, it describes efforts to develop targeted funding opportunities through PCORI that address key issues within personalized medicine while adhering to PCORI's mandate of comparative effectiveness research. This includes conducting expert interviews and stakeholder meetings to inform the development of research funding announcements focused on direct comparisons of personalized medicine approaches in real-world settings.
PE101: Introduction to Patient Engagement in Health ResearchCHICommunications
The document introduces patient engagement and the PREPPP award launch. It defines patient-oriented research as research engaged conducted with patients as partners that focuses on patient priorities and aims to improve outcomes and healthcare. Patient engagement means the meaningful involvement of patients in the governance, priority-setting, conduct, and knowledge translation of research. It discusses why engagement is important to ensure research addresses issues important to patients and improves outcomes. It also outlines levels of engagement from passive to active collaborative partnerships and provides resources for learning more about patient engagement.
This document discusses evidence-based public health (EBPH). It defines EBPH as the development, implementation, and evaluation of effective programs and policies through applying scientific reasoning principles. The key steps of EBPH include quantifying the public health issue, conducting a literature review, developing and prioritizing program options, creating an action plan, and evaluating programs and policies. EBPH relies on diverse sources of evidence, both quantitative and qualitative research. It differs from evidence-based medicine in its focus on populations rather than individuals and emphasis on environmental and social factors.
Poster slide show - PRIME Annual Meeting 2020angewatkins
The document summarizes the aims, activities, and plans of multiple research work packages within an organization over the past year and for the forthcoming year. Some of the key highlights mentioned include securing funding for trials and studies on topics like antibiotic prescribing and COVID-19, submitting applications for funding new research, and completing or making progress on ongoing research studies. The work packages plan to continue their research programs, pursue additional funding, and engage with partners to address healthcare needs over the coming year.
Engaging the public in research using science communicationwellcome.trust
Presented by JDan K. Kaye
Makerere University, Uganda
at the Public Engagement Workshop, 2-5 Dec. 2008, KwaZulu-Natal South Africa, http://scienceincommunity.wordpress.com/
The student moved from a Montessori school to a traditional school, which led to academic and social struggles as they adjusted to the new structured environment and made new friends. They realized they needed to adapt to the different way of learning and social norms. Over time, with effort to understand the new systems and ask for help, the student began to feel more comfortable and established friendships. They learned that all schools are different but not necessarily worse, and that dealing positively with change is what really matters.
Let's Talk Research 2015 - Mel Chapman - Public involvement in the disseminat...NHSNWRD
This document discusses involving members of the public in disseminating research findings. It aims to explain why public involvement is important, what the benefits and challenges are, and how they can be involved. Examples are provided of past studies that engaged the public, such as creating films about a clinical trial from the perspectives of participants, doctors, and advocates. The document also provides links to resources on developing dissemination strategies and training for public involvement.
Leicester CLRN Meeting 'Making it real' 19 June 2013Simon Denegri
This document discusses public involvement in UK health research. It notes that public involvement is a core principle of the National Institute for Health Research and has been shown to improve research quality. The NIHR provides funding to support public involvement through all stages of research from setting priorities to design and delivery. There has been growth in policies that support patient choice and participation in research. However, challenges remain in fully enabling patient choice in research and ensuring high quality experiences for all patients. The document advocates for continued collaborative efforts between the public, researchers, and others to further promote patient-centered research in the NHS.
Professor Justin Waring - Implementing evidence and improvementCLAHRC-NDL
Professsor Justin Waring presentation on Implementing evidence and improvement, delivered at NIHR CLAHRC East Midlands launch event on 14 February 2014, Loughborough.
Ensuring research really does involve the young personSimon R. Stones
This presentation was delivered during a session discussing the ethics of conducting research with children and young people. The presentation emphasises the importance of involving children, young people and their families in the design and conduct of research, in order to make it more relevant.
1) The document discusses reflections on cohorts and longitudinal population studies, focusing on their strengths and weaknesses. It summarizes a survey of 77 cohort studies across 32 low and middle-income countries.
2) Key recommendations include improving data linkage, coordination between studies, use of emerging technologies, capacity building, data sharing, standardization, and translation of research outputs.
3) Barriers to effective data sharing are discussed, as well as initiatives by the Wellcome Trust to address priorities like data discoverability, incentives for data sharing, and ensuring ethical standards.
This document outlines the East Midlands Research into Ageing Network (EMRAN) project plan. EMRAN aims to facilitate high-quality applied health research into the care of older people in the East Midlands region through collaboration between researchers, commissioners, providers, practitioners, patients, and the public. The network will achieve this by developing an inclusive management structure, maintaining a database of members and their research interests, engaging partners through events and publications, and ultimately securing longer-term funding and support. The challenges will be sustaining engagement across the wide geographical region and creating a clear identity, but partnerships with other regional networks like the Academic Health Science Network can help address these challenges.
Presentation to National Institute for Health Research (NIHR) Public Involvem...Simon Denegri
This presentation includes slides detailing the initial findings from the NIHR Strategic Review of public involvement in research entitled 'Breaking Boundaries.'
Using Community Research to inform Health and Social Policy for Immigrant And...ocasiconference
The Wellesley Institute conducts community-based policy research focused on the social determinants of health. They have supported community-based research approaches and policy-focused research grounded in local data. A case study described involved assessing health impacts of changes to Ontario's Interim Federal Health Program through surveys of healthcare providers, demonstrating how community data can inform policy. The Institute is also collaborating on a project gathering perspectives of temporary foreign workers on impacts of relevant policies through surveys and interviews.
The document outlines the benefits of public engagement with research according to RCUK. It argues that public engagement can (1) increase public confidence and understanding of research, (2) inspire more young people to pursue research careers, and (3) enhance the societal impact of research. Public engagement benefits researchers by developing skills, enhancing careers and research, and increasing funding opportunities. It also benefits society by creating a more informed public and maximizing the return on investment in research.
The Manchester Institute for Collaborative Research on Ageing (MICRA) was established in 2010 as a research network and designated as a research institute in 2013. MICRA receives core funding from the Medical Health Sciences and Humanities and pursues strategic objectives such as establishing the University as a major interdisciplinary centre for ageing research and transforming public perceptions of ageing. MICRA's research themes include social and cultural change in later life, physical decline and dementia, and its public engagement strategy aims to shape debates on population ageing. The Institute is led by an interdisciplinary team of co-directors and supports ageing research across the University through funding, workshops, and capacity building.
Communicating Research Beyond Academia A researchers perspectivemonicaduke
Melanie Welham presents Communicating Research Beyond Academia A researchers perspective at the Patients Participate! Workshop at the British Library on 17th June 2011
This case study by PREPPP Award winner Dr. Anna Chudyk and her team discusses experiences, lessons learned, and barriers and facilitators to engaging in health research scoping reviews.
The document discusses how the East Midlands Academic Health Science Network (EMAHSN) can support ageing research. EMAHSN aims to accelerate innovation and spread proven ideas across large populations. It focuses on improving clinical outcomes, patient experience, and health equality. EMAHSN will complement other research organizations by focusing on adopting and spreading innovative clinical practices that are proven to be cost-effective across healthcare systems.
This document summarizes the SOPRANO research project which aims to understand how non-statutory organizations support older people's well-being and resilience. The project will explore relationships between commissioning bodies and third sector organizations, and barriers to coordinated services. Stakeholders include commissioners, voluntary organization managers, staff, volunteers, older people, and carers. Methods include surveys of commissioners, interviews with stakeholders, and systematic reviews of needs assessment tools. The goals are to produce recommendations to improve integration of services around individual needs.
CER 2016 Phillips cer symposium pcori 2016 from 012716CTSI at UCSF
This document discusses the development of PCORI's research agenda on personalized and precision medicine. It outlines Kathryn Phillips' role as an advisor to PCORI on this topic. Specifically, it describes efforts to develop targeted funding opportunities through PCORI that address key issues within personalized medicine while adhering to PCORI's mandate of comparative effectiveness research. This includes conducting expert interviews and stakeholder meetings to inform the development of research funding announcements focused on direct comparisons of personalized medicine approaches in real-world settings.
PE101: Introduction to Patient Engagement in Health ResearchCHICommunications
The document introduces patient engagement and the PREPPP award launch. It defines patient-oriented research as research engaged conducted with patients as partners that focuses on patient priorities and aims to improve outcomes and healthcare. Patient engagement means the meaningful involvement of patients in the governance, priority-setting, conduct, and knowledge translation of research. It discusses why engagement is important to ensure research addresses issues important to patients and improves outcomes. It also outlines levels of engagement from passive to active collaborative partnerships and provides resources for learning more about patient engagement.
This document discusses evidence-based public health (EBPH). It defines EBPH as the development, implementation, and evaluation of effective programs and policies through applying scientific reasoning principles. The key steps of EBPH include quantifying the public health issue, conducting a literature review, developing and prioritizing program options, creating an action plan, and evaluating programs and policies. EBPH relies on diverse sources of evidence, both quantitative and qualitative research. It differs from evidence-based medicine in its focus on populations rather than individuals and emphasis on environmental and social factors.
Poster slide show - PRIME Annual Meeting 2020angewatkins
The document summarizes the aims, activities, and plans of multiple research work packages within an organization over the past year and for the forthcoming year. Some of the key highlights mentioned include securing funding for trials and studies on topics like antibiotic prescribing and COVID-19, submitting applications for funding new research, and completing or making progress on ongoing research studies. The work packages plan to continue their research programs, pursue additional funding, and engage with partners to address healthcare needs over the coming year.
Engaging the public in research using science communicationwellcome.trust
Presented by JDan K. Kaye
Makerere University, Uganda
at the Public Engagement Workshop, 2-5 Dec. 2008, KwaZulu-Natal South Africa, http://scienceincommunity.wordpress.com/
The student moved from a Montessori school to a traditional school, which led to academic and social struggles as they adjusted to the new structured environment and made new friends. They realized they needed to adapt to the different way of learning and social norms. Over time, with effort to understand the new systems and ask for help, the student began to feel more comfortable and established friendships. They learned that all schools are different but not necessarily worse, and that dealing positively with change is what really matters.
The value off engaging patients in researchSimon Denegri
This is a talk I gave at the Council of Academic Hospitals of Ontario (CAHO) 'Healthier Wealthier, Smarter' conference in Toronto on 1st June 2015. Do visit their new website: http://caho-hospitals.com/
Maximizing on the benefits of linken indonsangsterm
LinkedIn is a professional social networking platform that allows users to establish an online professional profile, build a network of professional connections, find jobs and business opportunities, and access the knowledge of their network. The document discusses how LinkedIn can help users control search results for their name, reconnect with colleagues, learn about companies, and leverage tools to find and reach contacts. It also notes some cautions about LinkedIn, such as maintaining a professional online image and not accepting all connection invitations. The author's own experience setting up an account revealed relevant connection suggestions and advertisements, and they plan to use LinkedIn more when job searching.
Cihr guest presentation and webinar afternoon talk - january 2014Simon Denegri
Presentation on public involvement and engagement in health research: why, how and what next? Given to the staff of the Canadian Institutes for Health Research (CIHR), Ottawa, Canada, 2014
Zolvers is a platform that connects users needing household tasks completed with qualified, background-checked individuals ready to help for a fee. Users can post tasks, receive quotes from individuals, and select someone based on their profile, community reviews, and prices. Zolvers aims to build this business in Latin America by providing a win-win system for users and workers ("Zolvers") and has grown 40% month over month with over 4,000 tasks posted as of December 2014.
The document discusses the benefits of exercise for mental health. Regular physical activity can help reduce anxiety and depression and improve mood and cognitive functioning. Exercise causes chemical changes in the brain that may help protect against developing mental illness and improve symptoms for those who already have a condition.
As an research & development activities toward linking text mining efforts to semantic web, PubAnnotation, an annotation storage&platform is introduced with a system demo. In the end, some other related systems, OntoFinder/Factory/Cloud and LODQA briefly are introduced.
This document discusses revolutionizing the downstream supply chain in the oil and gas industry through technology-based solutions. It proposes a four component system: 1) outsourcing distribution operations, 2) using a shared fleet model, 3) implementing dynamic scheduling and routing, and 4) enabling dynamic slot booking and pricing. This system aims to streamline operations, increase fleet utilization, optimize scheduling and pricing, and improve customer service and cost savings for oil companies, haulers, and customers. The system has the potential to reduce delivery costs by 15-18% and inventory levels by up to 15% while handling 25% more deliveries with the same staff.
This document is a lesson from Bible Answers on the penalty for transgression. It discusses that the wages of sin is death, which entered the world through Adam's sin. God is merciful but does not clear the guilty. Willful sin results in judgment without sacrifice for sins. Vengeance belongs to God. God's message is reward and punishment. God gave his son as a gift so that whoever believes in him will have eternal life and escape the penalty of sin. The next lesson is on a special day.
The document summarizes information about the planets in our solar system. It describes each planet's characteristics such as temperature, rotation period, and notable features like rings or moons. It provides details on planets from Mercury, being the closest to the Sun, through Neptune, and also covers Pluto, which is no longer classified as a planet. The solar system consists of 8 major planets that orbit the Sun, along with various moons, asteroids, and other objects.
Revolutionizing The Downstream Supply ChainDavid Evans
This document discusses revolutionizing the downstream supply chain in the oil and gas industry through the use of technology and innovative business models. It proposes a system with four components: 1) outsourcing distribution operations to eliminate large in-house logistics teams, 2) implementing a shared fleet model to improve vehicle utilization, 3) introducing dynamic scheduling and routing powered by advanced analytics to optimize operations, and 4) enabling dynamic slot booking and pricing to maximize profits. Adopting this holistic approach through an integrated technology solution can streamline operations, lower costs, and create value for oil companies and their partners.
The document discusses the biblical prophecy of Daniel regarding the 2300 days and its fulfillment. Some key points discussed include:
- The heavenly judgment takes place before God's throne.
- The 2300 prophetic days ended in 1844, marking the start of the judgment hour.
- Jesus' death on the cross ended all earthly sacrifices and the cleansing of the heavenly sanctuary.
- Knowing we are living in the judgment hour, Romans 13 calls believers to live righteously as the day of salvation draws near.
The document discusses salvation being only through Christ. It provides biblical passages indicating Christ came to save sinners, he was named Jesus to save people from their sins, and there is no other name by which people can be saved. Christ was made sin for humanity so we can be made righteous. People are dependent on Christ for salvation. Christ demonstrated from scripture that the savior must be both human and divine. Salvation obtained through Christ is complete as he lives to intercede for those who come to God through him. The document concludes people should thank God for his unspeakable gift.
This document discusses using social media and online tools to share the gospel message globally. It begins by examining Christ's method of mingling with people to meet their needs and win their confidence before inviting them to follow Him. Various social media platforms like Facebook, Twitter, blogs and wikis are described as ways to mingle with people online, answer their questions, and share testimonies in order to spread the gospel message virally. The importance of using these tools to reach the billions of online searches is emphasized.
Bhushan Bhole is an Oracle Apps DBA with 3.6 years of experience. He has worked with Oracle Database, E-Business Suite and related tools on various implementations, upgrades, and platform migrations. Currently located in Pune, India, he is seeking new opportunities as an Oracle Apps DBA.
This talk was given to the Alberta Cancer Foundation in Calgary, January 2015. It looks at different approaches to public involvement in research funding by UK charities. It also includes some updated slides on the results of the Breaking Boundaries review.
Let's Talk Research Annual Conference - 24th-25th September 2014 (Simon Denegri)NHSNWRD
"Let's talk patients and the public in research": Simon Denegri's talk looked at the key roles of patients, carers and the public in making research of public benefit happen.
Presentation by Simon Denegri (NIHR) and Jennifer Preston (MCRN) to the Nuffi...Simon Denegri
The document discusses public involvement in health research and young people. It notes that the National Institute for Health Research (NIHR) sees public involvement as a core principle and has invested millions to support involvement. It provides a working definition of involvement as research being carried out "with" or "by" the public rather than "to", "about", or "for" them. The document also highlights the value involvement can add to ensuring research questions are relevant and outcomes are accessible and useful. It cites examples of involvement contributing to priority setting, study design and delivery, and review of research.
Simon Denegri - Public involvement in CLAHRCsCLAHRC-NDL
Simon Denegri (INVOLVE chair and NIHR National Director for Public Participation and Engagement in Research) keynote presentation at NIHR CLAHRC East Midlands launch event on 14 February 2014, Loughborough.
Patient Engagement for Data Science, Technology & EngineeringCHICommunications
Learn the necessities and relationship between patient engagement and data science, engineering and technology.
Presented by Trish Roche, CHI's Knowledge Translation Practice Lead, this presentation is geared towards professionals in data science looking to hone their skills in patient engagement.
APA 2015_LM Brady involving cyp in research_03.15Louca-Mai Brady
This document discusses children and young people's involvement in research. It defines key terms like consultation, participation, and involvement. It explores models of involvement from being research subjects to collaborators. Practical and ethical considerations for involving children and young people are discussed. Examples of children's advisory groups for health research are provided. The document challenges myths about young people's ability to be involved and provides tips for planning their involvement.
Isn't this about me? The role of patients and the public in implementing evid...NEQOS
Master Class, led by Professor Richard Thomson- focusing on the role of patients and public in implementing evidence-based healthcare- including shared decision making
This document discusses funding opportunities for public health research in Northern Ireland and the UK. It outlines the strategic context for public health research and infrastructure that supports it, including the Northern Ireland Public Health Research Network. Funding sources are described for both Northern Ireland and the UK, including the NIHR Public Health Research Programme. An example of a successful NIHR funded study is provided that was developed through the NIPHRN and involved collaboration between academics, health organizations, and voluntary groups.
Better Knowledge. Better Health? Making Research Relevant, Accessible, and P...Marie Ennis-O'Connor
This document discusses making research more relevant, accessible, and prioritized to patient needs through systematic reviews and knowledge translation. It emphasizes:
1) Involving patients throughout the research process to ensure the questions asked and outcomes measured are truly important to patients.
2) Ensuring research findings are disseminated through various channels in a timely, accessible, and understandable manner so they can inform healthcare decisions.
3) The importance of validity, relevance, and translating research into practical applications to benefit patients.
This document discusses patient-oriented research and patient engagement in health research. It defines patient-oriented research as research that engages patients as partners, focuses on patient priorities, improves outcomes, and aims to apply knowledge to improve healthcare. Patient engagement is defined as meaningful involvement of patients in governance, priority-setting, conducting, and knowledge translation of research. The document outlines guiding principles of engagement, why engagement is important, levels of engagement, and tools/resources to support engagement. It emphasizes inclusion of diverse voices and conducting research with patients, not on them.
Co-design, Co-produce, Co-deliver: Collaboration is the only viable path to s...Simon R. Stones
In this presentation, delivered to the Translate external advisory board at their bi-annual meeting, the importance of patient and public involvement in research is highlighted, as well as simple strategies that researchers, healthcare professionals and private organisations can take to involve people in all aspects of research, from the bench to the bedside.
This document discusses patient and public involvement (PPI) in health and social care research. It defines PPI as research being conducted "with" or "by" members of the public rather than "to", "about", or "for" them. The document outlines the benefits of PPI, including providing a patient perspective, improving the research process, and ensuring research ethics. It also discusses challenges of PPI, such as requiring additional time and resources from researchers and public representatives. Overall, the document advocates for early and continued involvement of patients and the public in all stages of the research process.
Implementing Patient & Public Involvement in Research: 27.06.2017RDSLondon
This document provides guidance on effective patient and public involvement (PPI) in research. It discusses what PPI is, who can be involved, and how to avoid tokenistic involvement. PPI refers to actively working with patients, caregivers and the public to plan, conduct and disseminate research. Effective PPI ensures research questions reflect patient priorities, methods are appropriate, and findings are disseminated to lay audiences. The document provides examples of how patients can be involved at different stages of the research process and urges researchers to meaningfully incorporate PPI in grant applications.
Slide presentation for the June 4, 2014 joint PCORI/ National Institute on Aging (NIA) of the National Institutes of Health webinar. This webinar announced the selection of the research team that will carry out a major, five-year, $30 million patient-centered study of the effectiveness of individually tailored care plans to help older individuals avoid falls and related injuries.
Genomic sequencing will soon be as routine as a blood test, allowing people to learn more about their genetic identity and how it relates to health conditions and treatment. However, without proper ethical guidelines, profit-driven research may not prioritize diseases that affect the most people. To address this, the public needs to be actively involved in all stages of genomics research to help shape priorities. One proposal is a "Wiki-genome" platform where people can voluntarily upload and share their genome data to help researchers, while also participating in discussions to guide future research. However, ensuring public participation will require addressing issues around privacy, informed consent, and who pays for sequencing.
This presentation was delivered as part of a seminar to the Child Health Evaluative Sciences (CHES) Research Group, based at The Hospital for Sick Children (SickKids) in Toronto, ON, Canada. The presentation focused on the importance and some of the practicalities of involving young people in research.
This document summarizes recommendations from a panel discussion on engaging patients in emergency medicine (EM) research. The panel reviewed literature on patient engagement and conducted interviews with EM researchers. They recommend that EM researchers adopt patient engagement to improve research relevance and impact. Specifically, they recommend that the Canadian Association of Emergency Physicians (CAEP) create resources and guidelines to support patient engagement at all stages of research. This includes establishing a national patient council, training materials, and making patient engagement eligible for funding. The panel also provides best practices for the preparatory, execution and translation phases of research that engages patients.
Patient Engagement Presentation - MPN Network Forum April 18, 2017Alexandra Enns
April 18, 2017
In April we held a Network Forum on engaging policymakers and patients/public effectively and appropriately. We would like to give a warm thanks to both Carolyn Shimmin, Patient Engagement expert of CHI's Knowledge Translation team, and Marcia Thomson, Assistant Deputy Minister of Manitoba Health, Seniors and Active Living for their presentations. Below you can see Carolyn's presentation - to see more of her work on patient engagement and to learn more about knowledge translation at CHI, please check out the blog Knowledge Nudge here. If you would like more information, helpful tools or advice about patient/public engagement in research, please contact Carolyn Shimmin at cshimmin@exchange.hsc.mb.ca
Health Services Research UK 2019 Public InvolvementSimon Denegri
Presentation by Simon Denegri on public perspectives on the impact of health research and issues with understanding the impact of public involvement in research
This is a presentation I gave as part of an NIHR masterclass event for its trainees earlier this year. It seemed to go down well and hopefully there are some useful pointers in here for people communicating about health research or science.
Future 'research' hospital 2015: a patient perspectiveSimon Denegri
My five tenets of a research intensive hospital in the future as seen from a patient and public perspective. This is an extract from a presentation given to the Royal College of Physicians Patient Network in February 2015
Involve presentation jan 21st 2015 - simon denegriSimon Denegri
Presentation to the INVOLVE Group meeting in January 21st on the Breaking Boundaries strategic review of public involvement - its conclusions and draft recommendations.
Public involvement in NIHR research in 2025 #BreakingBoundaries #INVOLVE2014Simon Denegri
What will public involvement in the National Institute for Health Research (NIHR) look like in 2025? This presentation from the 2014 INVOLVE Conference 'Changing Landscapes' looks at the findings of the NIHR strategic review of public involvement. It also previews the direction and priorities emerging from the review panel's deliberations.
These lecture slides, by Dr Sidra Arshad, offer a quick overview of the physiological basis of a normal electrocardiogram.
Learning objectives:
1. Define an electrocardiogram (ECG) and electrocardiography
2. Describe how dipoles generated by the heart produce the waveforms of the ECG
3. Describe the components of a normal electrocardiogram of a typical bipolar lead (limb II)
4. Differentiate between intervals and segments
5. Enlist some common indications for obtaining an ECG
6. Describe the flow of current around the heart during the cardiac cycle
7. Discuss the placement and polarity of the leads of electrocardiograph
8. Describe the normal electrocardiograms recorded from the limb leads and explain the physiological basis of the different records that are obtained
9. Define mean electrical vector (axis) of the heart and give the normal range
10. Define the mean QRS vector
11. Describe the axes of leads (hexagonal reference system)
12. Comprehend the vectorial analysis of the normal ECG
13. Determine the mean electrical axis of the ventricular QRS and appreciate the mean axis deviation
14. Explain the concepts of current of injury, J point, and their significance
Study Resources:
1. Chapter 11, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 9, Human Physiology - From Cells to Systems, Lauralee Sherwood, 9th edition
3. Chapter 29, Ganong’s Review of Medical Physiology, 26th edition
4. Electrocardiogram, StatPearls - https://www.ncbi.nlm.nih.gov/books/NBK549803/
5. ECG in Medical Practice by ABM Abdullah, 4th edition
6. Chapter 3, Cardiology Explained, https://www.ncbi.nlm.nih.gov/books/NBK2214/
7. ECG Basics, http://www.nataliescasebook.com/tag/e-c-g-basics
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2. “In the future the public will be more technically
sophisticated, inquisitive and informed than ever
before.”
Professor Samuel Thier, Harvard University
Speaking at the launch of the UK eHealth Informatics Research
Centres and Network, May 2013
3. A working definition of public involvement
INVOLVE defines public involvement in research as
research being carried out ‘with’ or ‘by’ members of
the public rather than ‘to’, ‘about’ or ‘for’ them.
This includes, for example, working with research
funders to prioritise research, offering advice as
members of a project steering group, commenting on
and developing research materials, undertaking
interviews with research participants.
4. What we aspire to:
A dynamic partnership between the
public, researchers and others, to
advance NHS, public health and
social care research and improve the
health and well being of the
population
A national advisory group established
in 1996 and funded by, and part
of, the National Institute for Health
Research (NIHR)
www.invo.org.uk
INVOLVE: a platform for change
How we do it?
• Leadership across NIHR
• Building and sharing the
evidence base
• Developing capacity and
capability
• Influencing policy and practice
8. Patient access to NHS research
Public appetite
• 82 per cent of people believe it is
important for the NHS to offer
opportunities to take part in
healthcare research.
• Less than 7% said they would
never take part in a clinical
research study.
NIHR Clinical Research Networks
Survey May 2012
• Over 70% of patients look for
information about clinical trials
ecancer 5 235 2011 ‘Information
needs of cancer patients’
Patient experience
• National Cancer Patient
Experience Survey 2012
– 1 in 3 patients had a
discussion about research
with a health professional
– > 53% who were not
asked, would like to have
been
• Discussion much less likely if
happening at all for patients with
other conditions
• 91% of Trusts do not provide
information to support patient
choice in research: NIHR CRN CC
Mystery Shopper 2013
9. Public support for participating in medical
research
IPSOS MORI Poll for Association of Medical Research Charities, 2011
11. Public involvement in UK health research
• Core principle of National Institute for Health
Research (NIHR)
• NIHR leadership based on evidence of public
involvement driving research quality
• NIHR funding for national advisory group – INVOLVE -
has given agenda strong platform
• Success built on ‘partnership’ working
• Clear expectation set with research community
• A ‘deal-breaker’ and ‘marriage maker’
12. Strategic leadership across funders
‘Public involvement in research applications to NRES,’
INVOLVE/NRES Report 2011
14. Examples of public involvement
• as joint grant holders or co-applicants on a research
project
• involvement in identifying research priorities
• as members of a project advisory or steering group
• commenting and developing patient information
leaflets or other research materials
• undertaking interviews with research participants
• user and/or carer researchers carrying out the
research.
15. The future looks like….
Leadership, evidence, capacity, influence
• Focus on ‘quality’
• Strategic co-ordination
• Principles and standards
• Governance and accountability
• Collaboration and partnership in key areas
16. “In the future the public will be more technically
sophisticated, inquisitive and informed than ever
before.”
Professor Samuel Thier, Harvard University
Speaking at the launch of the UK eHealth Informatics Research
Centres and Network, May 2013