This document summarizes a presentation on augmenting patients given by Jack Park at the 2018 Sage Assembly Conference. It discusses the need to augment individuals' abilities to make informed healthcare choices in the complex emerging biomedical field. Key issues include incomplete information, data silos, and lack of trust. The presentation argues that AI alone cannot solve these problems and that collaborative solutions are needed where algorithms augment collective sensemaking between humans. It presents a proposed project called Bibliomizer that would create federated collaboration spaces for patients, scientists, and others to integrate tools and have truth-seeking discussions aided by AI. The goal is to open doors and create new platforms for connection, understanding, and shared wisdom creation.

1. On Augmenting Patients
2018 Sage Assembly Conference
Seattle, WA
April 19, 2018
Jack Park
TopicQuests Foundation
Img: Doc Searls: https://www.flickr.com/photos/docsearls/5500714140
© 2018, TopicQuests Foundation

2. Human-centered Research Question
How can we augment an individual’s
ability to make informed choices and
participate in an emerging biomedical
knowledge ecosystem?

3. Some Key Issues
• Tip of the Iceberg
• Complexity
• Silos
• Unconnected Dots
• Inexperience
• Trust
• …
Img: https://www.presencing.org/assets/images/aboutus/ego-to-eco/E2E-banner.jpg

4. AI Alone Will Not Solve Our Problems
• The world is complex, we need all the cognitive capacity we can get
• Algorithms can harness an expanding mass of information to govern
and inform our choices but are often developed in a nontransparent
manner that obstructs the ability to identify biases or evaluate
appropriate use
• Algorithms are limited to explicit knowledge, miss deeper
sensemaking

5. Towards a Collaborative Solution Space
• We need algorithms that augment collective sensemaking, working
with humans
• Collective sensemaking requires a journey of impedance matching of framings
(which are silo-like)
• Ditto for connecting dots which may reside in different contexts and framings
• Collectivities include stakeholders, and thus emoto-cognitive journeys
• There is a need to both open the doors and to create new platforms
for connection, understanding, and shared wisdom-creation.

6. A Project: Bibliomizer*
• Federated sovereign collaboration spaces
• AI: augmenting human intelligence
• Like Journal Clubs †
• Truth-seeking CollaborativeJourneys
• For Scientists
• Integrates with tools
• Sage Bionetworks Synapse
• Jupyter notebooks
• ...
• For Patients
• Federates with others
• For Students, Clinicians, and everyone
• A kind of global knowledge garden
† https://en.wikipedia.org/wiki/Journal_club
* Bibliomizer is a code name for a project

7. Question: What can we learn from
Presencing?

8. Completed Representation
antioxidants
kill
free radicals
Contraindicates
macrophages use
free radicals to
kill bacteria
Bacterial Infection Antioxidants
Because
Appropriate For
Compromised Host
Let us augment everyone
jackpark@topicquests.org
http://www.topicquests.org/
https://slideshare.net/jackpark/
https://github.com/topicquests
Acknowledgments:
Marc-Antoine Parent
Mark Szpakowski
Kennan Kellaris Salinero
Presencing Institute