Slides accompanying a presentation to participants in the NHS Leadership Academy's executive fast track programme. I did this in tandem with patient leader Lynne Craven.
Slides accompanying a presentation to participants in the NHS Leadership Academy's executive fast track programme. I did this in tandem with patient leader Lynne Craven.
Learning Disabilities: Share and Learn WebinarNHS England
Topic One: Enhanced Care Service (ECS)
Guest speakers: Caroline Kirby - Interim Lead Complex Needs Commissioner, Angie Simmons - Team Leader, Enhanced Care Service (ECS), Ted Page - Behavioural Nurse Specialist (ECS)
and Rachel Barrett – Expert by Experience, Speakeasy Now
The presentation reflects on good practice around avoiding hospital admission in Worcestershire who have developed an enhanced care service working proactively in the community.
Topic Two: Strategic resettlement, personalisation at scale and pace
Guest speaker: Pól Toner, Head of Improvement, NHS England
The presentation considers Strategic Resettlement, which is part of the Improvement and Enablement function of the Learning Disability Programme. It is being put in place to support the delivery of a transformational change to close inpatient services and develop the appropriate scale of personalised community care for people with a learning disability and/or autism who display behaviour that challenges, as set out in Building the Right Support. The function provides additional support to local systems to accelerate discharges where appropriate, focusing specifically on patients with the most complex needs and a long length of stay (over 5 years).
Stomp - one year on presentation july 2017NHS England
NHS England marked the first anniversary of the STOMP project on Tuesday 04 July with a review of the year and the launch of a play by the MiXIT theatre group in Newcastle. The group includes people with a learning disability, autism or both and shows the effects that over-medication can have on the health and wellbeing of individuals and their families.
Learning Disabilities: Share and Learn Webinar – 30 March 2017NHS England
Topic: How can we meet the needs of children with complex behavioural challenge?
Guest speakers: Dame Christine Lenehan, Director,
Council for Disabled Children and Sue North, Acting Lead for Children and Young People Workstream, Transforming Care, Learning Disabilities Programme, NHS England
This webinar focuses on the work of the Lenehan Review which looked at children and young people with a diagnosis of learning disability, autism, mental health, challenging behaviour. Why does the system struggle currently and what could be done to change it so that children and young people have better outcomes.
The Centre for Children and Young People’s Participation, University of Central Lancashire. Presentation for seminar Series 2014, Children and Social Justice, May 2014
'Embedding children and young people’s participation in health services and research'
Learning Disabilities: Share and Learn Webinar Thursday 27 October 2016Paul Goulding
Topic one: What helps makes a successful Care and Treatment Review?
Guest speakers:
Anne Webster, Clinical Lead, Learning Disability Programme, NHS England
Gavin Harding, MBE, Learning Disability Advisor, Learning Disability Programme, NHS England
Maggie Graham, Learning Disability Programme, NHS England
The presentation focused on everyone’s role in a Care and Treatment Review and explored the vital role of the chair of the panel, the expert advisers and also people who attend a panel, for example the role of an advocate at a CTR.
The presentation was also provided an update on the policy refresh, what is happening and when, and a discussion about the role of the learning disability advisers in the programme.
Topic Two: Guidance for TCPs in relation to Children and Young People
Guest Speaker: Phil Brayshaw, NHS England
The presentation considered how Transforming Care Partnerships can plan and deliver local support and services for children, young people and their families. This is ahead of the publication of “Developing support and services for children and young people with learning disabilities and/or autism” later this year (November).
The presentation also considered each of the 9 principles of the Service Model: Supporting people with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition: Service model for commissioners of health and social care services, how they relate specifically to children and young people and what this will mean in terms of local commissioning intentions going forwards.
Transforming Care: Share and Learn Webinar – 26 October 2017NHS England
Topic One: Developing support and services for children and young people: introducing new guidance for Transforming Care Partnerships
Guest speakers: Phil Brayshaw (Clinical Lead) and David Gill (Learning Disability Advisor), NHS England
This webinar introduces new guidance for Transforming Care Partnerships developed by NHS England and supported by the Local Government Association. This guidance supports commissioners in planning joined-up support and services for children and young people with learning disabilities, autism or both (in line with the national service model).
David Gill shares his experience of growing up with Asperger’s syndrome and talks about how getting the right support is critical to young people’s lives.
Topic Two: Creating a positive behaviour support organisational and workforce development framework for Transforming Care Partnerships and service providers
Guest speaker: Sarah Leitch, British Institute of Learning Disabilities (BiLD)
This webinar describes the Positive Behaviour Support workforce development framework Black Country Transforming Care Partnership commissioned from BiLD and provides other Transforming Care Partnerships with a model that can be taken into other organisations.
Presentation by Carli Sheers and Liza Seubert, Strengthening Consumer Voice: Using art and stories to educate and shift mental health stigma. Presented at the Western Australian Mental Health Conference 2019.
Guest speakers: Siobhan Gorry and Sarah Jackson - NHS England and Carl Shaw and David Gill – Learning Disability advisors
Understand about unnecessary admission to hospital and avoid lengthy stays, ensuring treatment has clearly defined outcomes, planning for discharge from admission (CTR policy)
Learn about specific pathways that will enable children and young people to remain with or near to family and get the support they need aligned to the service model
Hear about innovative ideas to be tested/evaluated of supporting CYP and families through a grants process
Understand how children and young people with LD and/or autism can leave school with a good education, health and care plan or other transition plan that supports their transition to adulthood leading to better outcomes for them and their families.
The Appointment - a film to support working towards dementia friendly dental ...UKFacultyPublicHealth
The Appointment: a film to support working towards dementia friendly dental practices - presentation at the Faculty of Public Health annual conference 2016
Presentation to Centre for Studies of Childhood and Youth5th International Conference. "Researching children's everyday lives: socio-cultural contexts "
Learning Disabilities: Share and Learn WebinarNHS England
Topic One: Enhanced Care Service (ECS)
Guest speakers: Caroline Kirby - Interim Lead Complex Needs Commissioner, Angie Simmons - Team Leader, Enhanced Care Service (ECS), Ted Page - Behavioural Nurse Specialist (ECS)
and Rachel Barrett – Expert by Experience, Speakeasy Now
The presentation reflects on good practice around avoiding hospital admission in Worcestershire who have developed an enhanced care service working proactively in the community.
Topic Two: Strategic resettlement, personalisation at scale and pace
Guest speaker: Pól Toner, Head of Improvement, NHS England
The presentation considers Strategic Resettlement, which is part of the Improvement and Enablement function of the Learning Disability Programme. It is being put in place to support the delivery of a transformational change to close inpatient services and develop the appropriate scale of personalised community care for people with a learning disability and/or autism who display behaviour that challenges, as set out in Building the Right Support. The function provides additional support to local systems to accelerate discharges where appropriate, focusing specifically on patients with the most complex needs and a long length of stay (over 5 years).
Stomp - one year on presentation july 2017NHS England
NHS England marked the first anniversary of the STOMP project on Tuesday 04 July with a review of the year and the launch of a play by the MiXIT theatre group in Newcastle. The group includes people with a learning disability, autism or both and shows the effects that over-medication can have on the health and wellbeing of individuals and their families.
Learning Disabilities: Share and Learn Webinar – 30 March 2017NHS England
Topic: How can we meet the needs of children with complex behavioural challenge?
Guest speakers: Dame Christine Lenehan, Director,
Council for Disabled Children and Sue North, Acting Lead for Children and Young People Workstream, Transforming Care, Learning Disabilities Programme, NHS England
This webinar focuses on the work of the Lenehan Review which looked at children and young people with a diagnosis of learning disability, autism, mental health, challenging behaviour. Why does the system struggle currently and what could be done to change it so that children and young people have better outcomes.
The Centre for Children and Young People’s Participation, University of Central Lancashire. Presentation for seminar Series 2014, Children and Social Justice, May 2014
'Embedding children and young people’s participation in health services and research'
Learning Disabilities: Share and Learn Webinar Thursday 27 October 2016Paul Goulding
Topic one: What helps makes a successful Care and Treatment Review?
Guest speakers:
Anne Webster, Clinical Lead, Learning Disability Programme, NHS England
Gavin Harding, MBE, Learning Disability Advisor, Learning Disability Programme, NHS England
Maggie Graham, Learning Disability Programme, NHS England
The presentation focused on everyone’s role in a Care and Treatment Review and explored the vital role of the chair of the panel, the expert advisers and also people who attend a panel, for example the role of an advocate at a CTR.
The presentation was also provided an update on the policy refresh, what is happening and when, and a discussion about the role of the learning disability advisers in the programme.
Topic Two: Guidance for TCPs in relation to Children and Young People
Guest Speaker: Phil Brayshaw, NHS England
The presentation considered how Transforming Care Partnerships can plan and deliver local support and services for children, young people and their families. This is ahead of the publication of “Developing support and services for children and young people with learning disabilities and/or autism” later this year (November).
The presentation also considered each of the 9 principles of the Service Model: Supporting people with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition: Service model for commissioners of health and social care services, how they relate specifically to children and young people and what this will mean in terms of local commissioning intentions going forwards.
Transforming Care: Share and Learn Webinar – 26 October 2017NHS England
Topic One: Developing support and services for children and young people: introducing new guidance for Transforming Care Partnerships
Guest speakers: Phil Brayshaw (Clinical Lead) and David Gill (Learning Disability Advisor), NHS England
This webinar introduces new guidance for Transforming Care Partnerships developed by NHS England and supported by the Local Government Association. This guidance supports commissioners in planning joined-up support and services for children and young people with learning disabilities, autism or both (in line with the national service model).
David Gill shares his experience of growing up with Asperger’s syndrome and talks about how getting the right support is critical to young people’s lives.
Topic Two: Creating a positive behaviour support organisational and workforce development framework for Transforming Care Partnerships and service providers
Guest speaker: Sarah Leitch, British Institute of Learning Disabilities (BiLD)
This webinar describes the Positive Behaviour Support workforce development framework Black Country Transforming Care Partnership commissioned from BiLD and provides other Transforming Care Partnerships with a model that can be taken into other organisations.
Presentation by Carli Sheers and Liza Seubert, Strengthening Consumer Voice: Using art and stories to educate and shift mental health stigma. Presented at the Western Australian Mental Health Conference 2019.
Guest speakers: Siobhan Gorry and Sarah Jackson - NHS England and Carl Shaw and David Gill – Learning Disability advisors
Understand about unnecessary admission to hospital and avoid lengthy stays, ensuring treatment has clearly defined outcomes, planning for discharge from admission (CTR policy)
Learn about specific pathways that will enable children and young people to remain with or near to family and get the support they need aligned to the service model
Hear about innovative ideas to be tested/evaluated of supporting CYP and families through a grants process
Understand how children and young people with LD and/or autism can leave school with a good education, health and care plan or other transition plan that supports their transition to adulthood leading to better outcomes for them and their families.
The Appointment - a film to support working towards dementia friendly dental ...UKFacultyPublicHealth
The Appointment: a film to support working towards dementia friendly dental practices - presentation at the Faculty of Public Health annual conference 2016
Presentation to Centre for Studies of Childhood and Youth5th International Conference. "Researching children's everyday lives: socio-cultural contexts "
Mental Health Policy Briefing: Raising the Priority of California Children wi...LucilePackardFoundation
Mental health services and supports for children with special health care needs (CSHCN) must be a priority for California. This briefing will provide an overview of the mental health services to which CSHCN are entitled, highlight current state policy priorities, and share ways to engage in advocacy efforts. Speakers will be available after the briefing for questions.
On 9 February 2016 Guy's and St Thomas' Charity brought together health professionals, decision-makers, voluntary organisations, patient representatives and others in Lambeth and Southwark to explore ways of improving health by looking outside the confines of healthcare. We wanted to showcase and discuss approaches to improving health outcomes which tackle the wider aspects that impact on people’s wellbeing – from housing to education or social connections.
Speakers:
- Imogen Moore – Citizens UK
- Jeremy Swain – Thames Reach
- Catherine Pearson – Healthwatch Lambeth
- Ollie Smith – Guy’s and St Thomas’ Charity
Find out more about the event and our work supporting new ideas in health at www.gsttcharity.org.uk
Summary from the very first Capital C event held at Impact Hub Kings Cross on Saturday 29th November.
Capital C is a collaboration to improve cancer care for the people of London hosted by Macmillan Cancer Support and Swarm. The goal for the group is to put patient's voice at the heart of a long-term strategy to improve patient experience in London.
You can view the webinar recording below.
This hour long webinar with Helen Wheatley will provide an insight into the development of the NICE guideline "Transition from children's to adult's services". It will outline key recommendations from the guideline as well as providing an overview of good practice in transitions.
Aimed at: Frontline practitioners working with children and young people and their families
Community Wellbeing - What has Social Prescribing got to offer Public Health
IPH, Open, Conference, Belfast, Northern, Ireland, Dublin, Titanic, October, 2014, Public, Health
Six principles for engaging people and communitiesJeremy Taylor
Slides presented at King's Fund on 1 November 2016. How to make real the vision in the Five Year Forward View of "a new relationship with patients and communities"? We know a lot about the "what" and the "who" of implementation. But the "how" is still a mess. What high impact actions would make a difference to driving this agenda? I offer some thoughts. These slides are not entirely self-explanatory without the accompanying talk. Please feel free to get in touch to explore further!
This workshop brought together, for the first time, the pioneers and the partner organisations of the Integrated Care and Support programme. It focused on building a learning community that will help develop, share and spread knowledge and solutions at scale and pace across the country.
More information: http://www.nhsiq.nhs.uk/news-events/events/integrated-care-and-support-pioneers-inaugural-workshop.aspx
More about the integrated care and support pioneers programme: http://www.nhsiq.nhs.uk/7862.aspx
Health Care Consent, Aging and Dementia: Mapping Law and Practice in BCBCCPA
In October 2016, the Canadian Centre for Elder Law working with ASBC started a 16 month project on the law and practice around health care consent in BC with a focus on older adults and adults with dementia. This project will address issues around health care consent with a focus on older adults and adults with dementia. Along with addressing the legal framework surrounding health care consent it will highlighted related issues such as polypharmacy, etc.
Presented by:
- Krista James, National Director, Canadian Centre for Elder Law
- Alison Leaney, Provincial Coordinator, Vulnerable Adults Community Response, Public Guardian and Trustee
- Barbara Lindsay, Director, Advocacy and Education
The role of individual education plans (IEPs) in post-primary schools in the transition planning process into post-secondary education (PSE) for individuals with an autism spectrum disorder
Slide 1: Title Slide
Extrachromosomal Inheritance
Slide 2: Introduction to Extrachromosomal Inheritance
Definition: Extrachromosomal inheritance refers to the transmission of genetic material that is not found within the nucleus.
Key Components: Involves genes located in mitochondria, chloroplasts, and plasmids.
Slide 3: Mitochondrial Inheritance
Mitochondria: Organelles responsible for energy production.
Mitochondrial DNA (mtDNA): Circular DNA molecule found in mitochondria.
Inheritance Pattern: Maternally inherited, meaning it is passed from mothers to all their offspring.
Diseases: Examples include Leber’s hereditary optic neuropathy (LHON) and mitochondrial myopathy.
Slide 4: Chloroplast Inheritance
Chloroplasts: Organelles responsible for photosynthesis in plants.
Chloroplast DNA (cpDNA): Circular DNA molecule found in chloroplasts.
Inheritance Pattern: Often maternally inherited in most plants, but can vary in some species.
Examples: Variegation in plants, where leaf color patterns are determined by chloroplast DNA.
Slide 5: Plasmid Inheritance
Plasmids: Small, circular DNA molecules found in bacteria and some eukaryotes.
Features: Can carry antibiotic resistance genes and can be transferred between cells through processes like conjugation.
Significance: Important in biotechnology for gene cloning and genetic engineering.
Slide 6: Mechanisms of Extrachromosomal Inheritance
Non-Mendelian Patterns: Do not follow Mendel’s laws of inheritance.
Cytoplasmic Segregation: During cell division, organelles like mitochondria and chloroplasts are randomly distributed to daughter cells.
Heteroplasmy: Presence of more than one type of organellar genome within a cell, leading to variation in expression.
Slide 7: Examples of Extrachromosomal Inheritance
Four O’clock Plant (Mirabilis jalapa): Shows variegated leaves due to different cpDNA in leaf cells.
Petite Mutants in Yeast: Result from mutations in mitochondrial DNA affecting respiration.
Slide 8: Importance of Extrachromosomal Inheritance
Evolution: Provides insight into the evolution of eukaryotic cells.
Medicine: Understanding mitochondrial inheritance helps in diagnosing and treating mitochondrial diseases.
Agriculture: Chloroplast inheritance can be used in plant breeding and genetic modification.
Slide 9: Recent Research and Advances
Gene Editing: Techniques like CRISPR-Cas9 are being used to edit mitochondrial and chloroplast DNA.
Therapies: Development of mitochondrial replacement therapy (MRT) for preventing mitochondrial diseases.
Slide 10: Conclusion
Summary: Extrachromosomal inheritance involves the transmission of genetic material outside the nucleus and plays a crucial role in genetics, medicine, and biotechnology.
Future Directions: Continued research and technological advancements hold promise for new treatments and applications.
Slide 11: Questions and Discussion
Invite Audience: Open the floor for any questions or further discussion on the topic.
Observation of Io’s Resurfacing via Plume Deposition Using Ground-based Adapt...Sérgio Sacani
Since volcanic activity was first discovered on Io from Voyager images in 1979, changes
on Io’s surface have been monitored from both spacecraft and ground-based telescopes.
Here, we present the highest spatial resolution images of Io ever obtained from a groundbased telescope. These images, acquired by the SHARK-VIS instrument on the Large
Binocular Telescope, show evidence of a major resurfacing event on Io’s trailing hemisphere. When compared to the most recent spacecraft images, the SHARK-VIS images
show that a plume deposit from a powerful eruption at Pillan Patera has covered part
of the long-lived Pele plume deposit. Although this type of resurfacing event may be common on Io, few have been detected due to the rarity of spacecraft visits and the previously low spatial resolution available from Earth-based telescopes. The SHARK-VIS instrument ushers in a new era of high resolution imaging of Io’s surface using adaptive
optics at visible wavelengths.
A brief information about the SCOP protein database used in bioinformatics.
The Structural Classification of Proteins (SCOP) database is a comprehensive and authoritative resource for the structural and evolutionary relationships of proteins. It provides a detailed and curated classification of protein structures, grouping them into families, superfamilies, and folds based on their structural and sequence similarities.
(May 29th, 2024) Advancements in Intravital Microscopy- Insights for Preclini...Scintica Instrumentation
Intravital microscopy (IVM) is a powerful tool utilized to study cellular behavior over time and space in vivo. Much of our understanding of cell biology has been accomplished using various in vitro and ex vivo methods; however, these studies do not necessarily reflect the natural dynamics of biological processes. Unlike traditional cell culture or fixed tissue imaging, IVM allows for the ultra-fast high-resolution imaging of cellular processes over time and space and were studied in its natural environment. Real-time visualization of biological processes in the context of an intact organism helps maintain physiological relevance and provide insights into the progression of disease, response to treatments or developmental processes.
In this webinar we give an overview of advanced applications of the IVM system in preclinical research. IVIM technology is a provider of all-in-one intravital microscopy systems and solutions optimized for in vivo imaging of live animal models at sub-micron resolution. The system’s unique features and user-friendly software enables researchers to probe fast dynamic biological processes such as immune cell tracking, cell-cell interaction as well as vascularization and tumor metastasis with exceptional detail. This webinar will also give an overview of IVM being utilized in drug development, offering a view into the intricate interaction between drugs/nanoparticles and tissues in vivo and allows for the evaluation of therapeutic intervention in a variety of tissues and organs. This interdisciplinary collaboration continues to drive the advancements of novel therapeutic strategies.
What is greenhouse gasses and how many gasses are there to affect the Earth.moosaasad1975
What are greenhouse gasses how they affect the earth and its environment what is the future of the environment and earth how the weather and the climate effects.
Richard's aventures in two entangled wonderlandsRichard Gill
Since the loophole-free Bell experiments of 2020 and the Nobel prizes in physics of 2022, critics of Bell's work have retreated to the fortress of super-determinism. Now, super-determinism is a derogatory word - it just means "determinism". Palmer, Hance and Hossenfelder argue that quantum mechanics and determinism are not incompatible, using a sophisticated mathematical construction based on a subtle thinning of allowed states and measurements in quantum mechanics, such that what is left appears to make Bell's argument fail, without altering the empirical predictions of quantum mechanics. I think however that it is a smoke screen, and the slogan "lost in math" comes to my mind. I will discuss some other recent disproofs of Bell's theorem using the language of causality based on causal graphs. Causal thinking is also central to law and justice. I will mention surprising connections to my work on serial killer nurse cases, in particular the Dutch case of Lucia de Berk and the current UK case of Lucy Letby.
Richard's entangled aventures in wonderlandRichard Gill
Since the loophole-free Bell experiments of 2020 and the Nobel prizes in physics of 2022, critics of Bell's work have retreated to the fortress of super-determinism. Now, super-determinism is a derogatory word - it just means "determinism". Palmer, Hance and Hossenfelder argue that quantum mechanics and determinism are not incompatible, using a sophisticated mathematical construction based on a subtle thinning of allowed states and measurements in quantum mechanics, such that what is left appears to make Bell's argument fail, without altering the empirical predictions of quantum mechanics. I think however that it is a smoke screen, and the slogan "lost in math" comes to my mind. I will discuss some other recent disproofs of Bell's theorem using the language of causality based on causal graphs. Causal thinking is also central to law and justice. I will mention surprising connections to my work on serial killer nurse cases, in particular the Dutch case of Lucia de Berk and the current UK case of Lucy Letby.
1. “Take My Hand”
Young People’s Experiences of
Mental Health Services
PSI Conference 2018
Clayton Whites Hotel, Wexford
8 November 2018
Naomi Kennan &
Dr. Niall Muldoon
2. Ombudsman for Children’s Office (OCO)
Independent statutory body
Ombudsman for Children Act, 2002
Presidential appointment
Direct accountability to the Oireachtas
Statutory functions:
1. Examining and investigating complaints
2. Promoting children’s rights and welfare
3. Young
people
To hear &
highlight their
views
To directly
engage with
them
To support
them to
identify
reforms
To pursue the
progressive
realisation of
their rights
“Take My Hand” report - Why?
“Users of mental health services
should be empowered to
participate meaningfully in the
design, implementation, delivery
and evaluation of mental health
services, systems and policies”
UN Special Rapporteur
4. Framework for children’s mental health services in Ireland
• UNCRC & other international children’s rights standards
• Legislation: the Mental Health Act 2001 & recent amendments
• Public policy: A Vision for Change, National Youth Mental Health Taskforce,
Youth Mental Health Pathfinder project, Joint Oireachtas Committees etc.
Relevant data
6,811 waiting for community-based psychology appointment (July 2017)
• 2,186 waiting more than 12 months
2,419 waiting to see CAMHS (December 2017)
• 1,257 waiting more than 12 weeks
• 317 waiting more than 12 months
226 children admitted to CAMHS inpatient units (2017)
• 72 CAMHS inpatient beds available (December 2017)
• 11 beds in Linn Dara closed for 6 months
81 children admitted to adult inpatient units (2017)
Context for the consultation
5. Initial planning of consultation
• Information-sharing sessions in units
• Obtaining voluntary, written assent from young people
• Obtaining voluntary, written consent from parents/guardians
Methodology
• 25 participating young people, aged 14-17
• 3 questions: What helped? What was challenging? What changes would you
like to see made?
• Supporting the use of different methods to express views:
• Painting, collage
• Photography
• Mind maps
• Semi-structured interviews
“Take My Hand” report – How?
6.
7. What young people find helpful?
• Positive relationships with professionals, family & peers
• Accessing diagnosis, treatment & support
• Self-development
What young people find challenging?
• Difficult relationships with professionals, family & friends
• Accessing appropriate services in a timely manner
• Restrictions & stressors
Findings
8. Young people’s recommendations for change
• Awareness, education and support in schools
• Physical health assessment
• Inpatient programmes
• Consistency of services
• Professional attitudes
• Being heard
• Autonomy
• Social and physical environment
Findings
Doctors – “Be less
forward & speak to
you in simpler words”
“Focus on peer
support”
School – “more
supports available”
“More funding for
CAMHS”
9. Bringing the young people’s views to the:
Oireachtas Committee on the Future of Mental Health Care
Oversight Group for the Review of ‘A Vision for Change’
Department of Health
Political representatives, statutory bodies & civil society
organisations
Psychological Society of Ireland
European Network of Ombudspersons for Children
Next steps…