This document summarizes a webinar on meeting the needs of children with complex behavioral challenges. It discusses:
1) Children who often have both learning disabilities and mental health needs, commonly autism, who may be in inpatient mental health units or residential special schools. Most are boys and teenagers with communication impairments and challenging behavior.
2) According to policy and data from 2016, there were 170 children under 18 and 635 aged 18-25 in inpatient units, often treated far from home. Many stayed much longer than the 28 day limit.
3) A national children's team will track implementation of plans to meet children's needs, ensure proper care reviews, audit recommendations to improve outcomes,
Learning Disabilities: Share and Learn Webinar – 29 June 2017NHS England
Topic One : Violence or behaviour that challenges in children with learning disabilities and autism – how you can help to make a difference
Guest speaker: Yvonne Newbold, World Health Innovation Summit Ambassador - Learning Disabilities, Autism and their Families
Around 25% of children who are diagnosed with a learning disability or autism will develop violent and challenging behaviour yet there is very little understanding or awareness of this issue. This means that affected families, who are already coping with frightening and dangerous situations every day at home, are often met with disbelief, judgement and blame from the people they turn to for help. Yvonne Newbold talks through some simple strategies that could make all the difference.
Topic Two : Positive Behaviour Support – Supporting people with behaviours of concern in their communities
Guest speaker: Tom Evans, PBS Development Lead, British Institute of Learning Disabilities
This webinar focuses on Positive Behaviour Support and how it can support children and adults who are at risk of being excluded or experiencing restrictive practices because they have behaviours that are considered to be challenging or concerning.
Stomp - one year on presentation july 2017NHS England
NHS England marked the first anniversary of the STOMP project on Tuesday 04 July with a review of the year and the launch of a play by the MiXIT theatre group in Newcastle. The group includes people with a learning disability, autism or both and shows the effects that over-medication can have on the health and wellbeing of individuals and their families.
Guest speakers: Siobhan Gorry and Sarah Jackson - NHS England and Carl Shaw and David Gill – Learning Disability advisors
Understand about unnecessary admission to hospital and avoid lengthy stays, ensuring treatment has clearly defined outcomes, planning for discharge from admission (CTR policy)
Learn about specific pathways that will enable children and young people to remain with or near to family and get the support they need aligned to the service model
Hear about innovative ideas to be tested/evaluated of supporting CYP and families through a grants process
Understand how children and young people with LD and/or autism can leave school with a good education, health and care plan or other transition plan that supports their transition to adulthood leading to better outcomes for them and their families.
Transforming Care: Share and Learn Webinar – 26 October 2017NHS England
Topic One: Developing support and services for children and young people: introducing new guidance for Transforming Care Partnerships
Guest speakers: Phil Brayshaw (Clinical Lead) and David Gill (Learning Disability Advisor), NHS England
This webinar introduces new guidance for Transforming Care Partnerships developed by NHS England and supported by the Local Government Association. This guidance supports commissioners in planning joined-up support and services for children and young people with learning disabilities, autism or both (in line with the national service model).
David Gill shares his experience of growing up with Asperger’s syndrome and talks about how getting the right support is critical to young people’s lives.
Topic Two: Creating a positive behaviour support organisational and workforce development framework for Transforming Care Partnerships and service providers
Guest speaker: Sarah Leitch, British Institute of Learning Disabilities (BiLD)
This webinar describes the Positive Behaviour Support workforce development framework Black Country Transforming Care Partnership commissioned from BiLD and provides other Transforming Care Partnerships with a model that can be taken into other organisations.
Learning Disabilities: Share and Learn Webinar Thursday 27 October 2016Paul Goulding
Topic one: What helps makes a successful Care and Treatment Review?
Guest speakers:
Anne Webster, Clinical Lead, Learning Disability Programme, NHS England
Gavin Harding, MBE, Learning Disability Advisor, Learning Disability Programme, NHS England
Maggie Graham, Learning Disability Programme, NHS England
The presentation focused on everyone’s role in a Care and Treatment Review and explored the vital role of the chair of the panel, the expert advisers and also people who attend a panel, for example the role of an advocate at a CTR.
The presentation was also provided an update on the policy refresh, what is happening and when, and a discussion about the role of the learning disability advisers in the programme.
Topic Two: Guidance for TCPs in relation to Children and Young People
Guest Speaker: Phil Brayshaw, NHS England
The presentation considered how Transforming Care Partnerships can plan and deliver local support and services for children, young people and their families. This is ahead of the publication of “Developing support and services for children and young people with learning disabilities and/or autism” later this year (November).
The presentation also considered each of the 9 principles of the Service Model: Supporting people with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition: Service model for commissioners of health and social care services, how they relate specifically to children and young people and what this will mean in terms of local commissioning intentions going forwards.
Learning Disabilities Share and Learn Webinar – 25 May 2017 - Children and yo...NHS England
Guest Speakers: Sue North and Maureen Banda, Children and Young People's Team, NHS England
The Children and Young People’s team at NHS England share the updated Care, Education and Treatment Review Policy, highlighting what is new. They also talk about the team’s focus and priorities for 2017/18 and the supplementary guidance for commissioners from the new service model. A parent carer who was involved in its development also joins the panel.
Transforming Care: Share and Learn Webinar – 28 September 2017NHS England
Guest Speaker: Fraser Battye, NHS Midlands and Lancashire CSU
NHSE has commissioned an independent evaluation of Building the Right Support which is being provided by The Strategy Unit (Midlands and Lancashire CSU), University of Birmingham, ICF and BILD. The evaluation aims to provide evidence to help improve the programme as it is being implemented. This means taking a supportive and learning-oriented approach, working with Transforming Care Partnerships (TCP) and others to understand what is working, what isn’t and what can be learnt to improve services. The method involves TCPs in several ways – including as case studies and through a programme-wide survey. This webinar provides an opportunity to hear from the evaluation team and understand how you can get involved.
Topic Two: How we can Transform Care for children and young people – learning from experience
Guest Speakers: Maureen Banda – Children and Young People’s Regional Strategic Case Manager for London, Isabelle - M's Mother and Pasquale Brammer - Local Children's Commissioner
This webinar features a real story of a young person (M) being admitted inappropriately to a psychiatric intensive care unit. Their experience of care and services was not good, which led to deterioration in M’s health. M is now thriving in an appropriate setting, and the webinar explores how we can learn from experience and provide the right care at the right time, in the right setting. M’s mother also joins the session.
Learning Disabilities: Share and Learn Webinar – 11 May 2017NHS England
This webinar focuses on the Model Service Specification for Enhanced/Intensive support and aims to explain the core functions that need to be in place in the community in order to support people with a learning disability, autism or both who display behaviours that challenge which place themselves or others at risk of serious harm; or for whom the nature or degree of risk might otherwise lead to exclusion, placement breakdown, and admission to inpatient services.
The webinar includes real life examples of how some Transforming Care Partnerships have approached the development of these functions.
Learning Disabilities: Share and Learn Webinar – 29 June 2017NHS England
Topic One : Violence or behaviour that challenges in children with learning disabilities and autism – how you can help to make a difference
Guest speaker: Yvonne Newbold, World Health Innovation Summit Ambassador - Learning Disabilities, Autism and their Families
Around 25% of children who are diagnosed with a learning disability or autism will develop violent and challenging behaviour yet there is very little understanding or awareness of this issue. This means that affected families, who are already coping with frightening and dangerous situations every day at home, are often met with disbelief, judgement and blame from the people they turn to for help. Yvonne Newbold talks through some simple strategies that could make all the difference.
Topic Two : Positive Behaviour Support – Supporting people with behaviours of concern in their communities
Guest speaker: Tom Evans, PBS Development Lead, British Institute of Learning Disabilities
This webinar focuses on Positive Behaviour Support and how it can support children and adults who are at risk of being excluded or experiencing restrictive practices because they have behaviours that are considered to be challenging or concerning.
Stomp - one year on presentation july 2017NHS England
NHS England marked the first anniversary of the STOMP project on Tuesday 04 July with a review of the year and the launch of a play by the MiXIT theatre group in Newcastle. The group includes people with a learning disability, autism or both and shows the effects that over-medication can have on the health and wellbeing of individuals and their families.
Guest speakers: Siobhan Gorry and Sarah Jackson - NHS England and Carl Shaw and David Gill – Learning Disability advisors
Understand about unnecessary admission to hospital and avoid lengthy stays, ensuring treatment has clearly defined outcomes, planning for discharge from admission (CTR policy)
Learn about specific pathways that will enable children and young people to remain with or near to family and get the support they need aligned to the service model
Hear about innovative ideas to be tested/evaluated of supporting CYP and families through a grants process
Understand how children and young people with LD and/or autism can leave school with a good education, health and care plan or other transition plan that supports their transition to adulthood leading to better outcomes for them and their families.
Transforming Care: Share and Learn Webinar – 26 October 2017NHS England
Topic One: Developing support and services for children and young people: introducing new guidance for Transforming Care Partnerships
Guest speakers: Phil Brayshaw (Clinical Lead) and David Gill (Learning Disability Advisor), NHS England
This webinar introduces new guidance for Transforming Care Partnerships developed by NHS England and supported by the Local Government Association. This guidance supports commissioners in planning joined-up support and services for children and young people with learning disabilities, autism or both (in line with the national service model).
David Gill shares his experience of growing up with Asperger’s syndrome and talks about how getting the right support is critical to young people’s lives.
Topic Two: Creating a positive behaviour support organisational and workforce development framework for Transforming Care Partnerships and service providers
Guest speaker: Sarah Leitch, British Institute of Learning Disabilities (BiLD)
This webinar describes the Positive Behaviour Support workforce development framework Black Country Transforming Care Partnership commissioned from BiLD and provides other Transforming Care Partnerships with a model that can be taken into other organisations.
Learning Disabilities: Share and Learn Webinar Thursday 27 October 2016Paul Goulding
Topic one: What helps makes a successful Care and Treatment Review?
Guest speakers:
Anne Webster, Clinical Lead, Learning Disability Programme, NHS England
Gavin Harding, MBE, Learning Disability Advisor, Learning Disability Programme, NHS England
Maggie Graham, Learning Disability Programme, NHS England
The presentation focused on everyone’s role in a Care and Treatment Review and explored the vital role of the chair of the panel, the expert advisers and also people who attend a panel, for example the role of an advocate at a CTR.
The presentation was also provided an update on the policy refresh, what is happening and when, and a discussion about the role of the learning disability advisers in the programme.
Topic Two: Guidance for TCPs in relation to Children and Young People
Guest Speaker: Phil Brayshaw, NHS England
The presentation considered how Transforming Care Partnerships can plan and deliver local support and services for children, young people and their families. This is ahead of the publication of “Developing support and services for children and young people with learning disabilities and/or autism” later this year (November).
The presentation also considered each of the 9 principles of the Service Model: Supporting people with a learning disability and/or autism who display behaviour that challenges, including those with a mental health condition: Service model for commissioners of health and social care services, how they relate specifically to children and young people and what this will mean in terms of local commissioning intentions going forwards.
Learning Disabilities Share and Learn Webinar – 25 May 2017 - Children and yo...NHS England
Guest Speakers: Sue North and Maureen Banda, Children and Young People's Team, NHS England
The Children and Young People’s team at NHS England share the updated Care, Education and Treatment Review Policy, highlighting what is new. They also talk about the team’s focus and priorities for 2017/18 and the supplementary guidance for commissioners from the new service model. A parent carer who was involved in its development also joins the panel.
Transforming Care: Share and Learn Webinar – 28 September 2017NHS England
Guest Speaker: Fraser Battye, NHS Midlands and Lancashire CSU
NHSE has commissioned an independent evaluation of Building the Right Support which is being provided by The Strategy Unit (Midlands and Lancashire CSU), University of Birmingham, ICF and BILD. The evaluation aims to provide evidence to help improve the programme as it is being implemented. This means taking a supportive and learning-oriented approach, working with Transforming Care Partnerships (TCP) and others to understand what is working, what isn’t and what can be learnt to improve services. The method involves TCPs in several ways – including as case studies and through a programme-wide survey. This webinar provides an opportunity to hear from the evaluation team and understand how you can get involved.
Topic Two: How we can Transform Care for children and young people – learning from experience
Guest Speakers: Maureen Banda – Children and Young People’s Regional Strategic Case Manager for London, Isabelle - M's Mother and Pasquale Brammer - Local Children's Commissioner
This webinar features a real story of a young person (M) being admitted inappropriately to a psychiatric intensive care unit. Their experience of care and services was not good, which led to deterioration in M’s health. M is now thriving in an appropriate setting, and the webinar explores how we can learn from experience and provide the right care at the right time, in the right setting. M’s mother also joins the session.
Learning Disabilities: Share and Learn Webinar – 11 May 2017NHS England
This webinar focuses on the Model Service Specification for Enhanced/Intensive support and aims to explain the core functions that need to be in place in the community in order to support people with a learning disability, autism or both who display behaviours that challenge which place themselves or others at risk of serious harm; or for whom the nature or degree of risk might otherwise lead to exclusion, placement breakdown, and admission to inpatient services.
The webinar includes real life examples of how some Transforming Care Partnerships have approached the development of these functions.
Learning Disabilities: Share and Learn WebinarNHS England
Topic One: Enhanced Care Service (ECS)
Guest speakers: Caroline Kirby - Interim Lead Complex Needs Commissioner, Angie Simmons - Team Leader, Enhanced Care Service (ECS), Ted Page - Behavioural Nurse Specialist (ECS)
and Rachel Barrett – Expert by Experience, Speakeasy Now
The presentation reflects on good practice around avoiding hospital admission in Worcestershire who have developed an enhanced care service working proactively in the community.
Topic Two: Strategic resettlement, personalisation at scale and pace
Guest speaker: Pól Toner, Head of Improvement, NHS England
The presentation considers Strategic Resettlement, which is part of the Improvement and Enablement function of the Learning Disability Programme. It is being put in place to support the delivery of a transformational change to close inpatient services and develop the appropriate scale of personalised community care for people with a learning disability and/or autism who display behaviour that challenges, as set out in Building the Right Support. The function provides additional support to local systems to accelerate discharges where appropriate, focusing specifically on patients with the most complex needs and a long length of stay (over 5 years).
Transforming Care: Share and Learn Webinar – 22 February 2018NHS England
Title: Participation and engagement in the national programme for children and young people
Session led by Cindy Gordillo, Children & Young People Learning Disability Programme, NHS England
NHS England and Transforming Care Partnerships have been working with the Council for Disabled Children, KIDS, Barnardos, Challenging Behaviour Foundation and Inclusion North to support the participation of children and young people with learning disabilities, autism or both in the Transforming Care Programme. This webinar showcases how all the organisations involved engaged with young people and guidance.
Transforming Care: Share and Learn Webinar – 30 November 2017NHS England
Topic One: “What does good look like: Person-centred support to promoting positive outcomes for people with learning disability and autism”.
Guest speaker: Professor Julie Beadle-Brown, Professor in Intellectual and Developmental Disabilities at the Tizard Centre, University of Kent
This presentation introduces an evidence based practice framework for promoting positive outcomes for people with a learning disability, autism or both, including those who may display behaviours described as challenging. It considers what is needed for successful implementation, with a particular focus on practice leadership and introduce a tool for assessing and monitoring implementation. Participants can download the “What does good look like” guide and tool from https://www.unitedresponse.org.uk/what-does-good-look-like
Topic Two: High Impact Actions for service improvement and delivery by Transforming Care Partnerships.
Guest speaker: Emma Stark, Improvement Manager, Sustainable Improvement Team, NHS England
This presentation gives an in-depth reminder of the High Impact Actions for service improvement and delivery by Transforming Care Partnerships (TCP). Published a year ago this month, the High Impact Actions aim to help TCPs make the biggest strides forward in supporting people of all ages with a learning disability, autism or both to have a home within their community, be able to develop and maintain relationships and get the support they need to live health, safe and rewarding lives, thereby reducing the number of people in inpatient settings.
Learning Disabilities: Share and Learn Webinar – 18 May 2017NHS England
This webinar focuses on the Model Service Specification for Community Based Forensic Support and aims to explain core functions that need to be in place locally in order to provide effective specialist Community-based Forensic Support to meet the needs of adults with a learning disability, autism or both who display behaviours that challenge which have led to contact with the criminal justice system, or where there is risk of this.
Learning Disabilities: Share and Learn Webinar - 23 February 2017NHS England
Topic one: Transforming care and the future funding of supported housing.
Guest speaker: Amy Swan, Learning Disability Programme, NHS England.
NHS England estimates that around 2,400 people with a learning disability and/or autism will require new living arrangements upon discharge from inpatient care by March 2019. Supported housing plays a crucial role in enabling people to live in the community.
From 1 April 2019 the Government has proposed to bring in a new funding model for supported housing costs, capping housing benefit to LHA rates. This presentation discusses the recent government consultation on proposals for a new housing costs funding model for supported housing and how to mitigate the resulting impact on Transforming Care.
Topic Two: Care and Treatment Review – key changes in the refreshed policy
Guest Speakers: Maggie Graham and Gavin Harding, Learning Disability Programme, NHS England
This presentation talks about some of the key changes in the refreshed Care and Treatment Review policy.
Transforming Care: Share and Learn Webinar – 31 August 2017NHS England
Helping people with a learning disability to give feedback
Guest Speakers: Ruth Hudson - Insight Specialist, Joe Penrose - Insight and Feedback Officer, Katie Matthews, Aaron Oxford and Thomas Chalk - Learning Disability Network Managers
NHS England’s Insight and Learning Disability Engagement teams recently published their bite-size guide to helping people with a learning disability to give feedback.
The webinar is aimed at staff who do not have much experience of involving people with a learning disability in giving feedback. It is of particular interest to staff working in Patient Experience and Communication and Engagement roles. Most of the services people with a learning disability use are the same services as everyone else, and so it is important they are included in feedback and engagement work. Join the teams on the webinar to find out more about increasing the representation of one of the most seldom heard groups of people.
Learning Disabilities: Share and Learn Webinar – 26 January 2017NHS England
Topic One: Developing a cross system workforce plan for the learning disabilities workforce
Guest speakers: Lisa Proctor, Workforce Specialist, Midlands and East and Marie Lancett, Workforce Specialist South, Health Education England, Christiana Evans, Locality Manager (South West), Skills for Care and Marc Lyall, Regional Director – West of England, Skills for Health
This session is designed to help Transforming Care Partnerships who are developing a workforce plan for the learning disabilities workforce in their locality. It gives an overview of workforce planning methodology and describes how you can use pen pictures to think about the workforce needs in relation to the requirements of the individuals that you serve. It also explains how planning your workforce should work alongside your service planning and service redesign. There are also signposts to sources of information that may be useful in developing a TCP workforce plan.
Topic Two: Employing expert by experience in commissioning
Guest speakers: Catherine Keay (Transforming Care Manager) and Jo Minchin (Autism Expert by Experience), South West Lincolnshire CCG
This topic covers the role of experts by experience when they are directly employed by a Clinical Commissioning Group. It outlines a dual role in relation to Care and Treatment Reviews with the CCG and involvement of people with lived experience and their carers through the Lincolnshire Autism Partnership Board and working groups, specifically the Involvement and Collaboration Group (the A Team Network). The session also covers progress with CTRs for people with autism from a CCG and EbE perspective, including local CCG CTRs, reasonable adjustments and accessibility, barriers and areas for development and achievements to date.
Transforming Care: Share and Learn Webinar – 29 March 2018NHS England
Topic One: "The ERIN Initiative"
Guest speakers: Susan Holloway, NHS Chorley & South Ribble CCG and NHS Greater Preston CCG and Sheila Roberts, Lancashire Care NHS Foundation Trust
The aim of "The ERIN (Education, Resources, Interventions and Networking) Initiative" is to provide a local, accessible, responsive, early assessment and intervention service for children aged 0-5 years who may be placed on the pre-school Autism Spectrum Disorder (ASD) pathway.
This webinar reports on the progress made during a pilot which commenced on 1st October 2017 to implement a service which deals with complex/challenging behaviors of children who may or may not go on to have a diagnosis with autism.
Topic Two: An introduction and brief overview of the Source4Networks platform
Session led by Rob Cockburn, Sustainable Improvement Team, NHS England
This topic provides an introduction and brief overview of the Source4Networks platform and its potential to support the Transforming Care Programme.
Learning Disabilities: Share and Learn Webinar – 27 July 2017NHS England
Topic One: Transforming care for children and young people with autism
Guest speakers: Sarah Jackson and David Gill, NHS England and Pat Smith, Autism East Midlands
This webinar looks at some of the challenges seen, such as gaps in provision for children and young people with autism, and will discuss some of the work that is taking place to address these issues.
Topic Two: “The assuring transformation data system” - how to upload data and run reports
Guest speakers: Andy Tookey, NHS England and Judith Ellison and Sarah Freeman, NHS Digital
This webinar is aimed at people who are new to reporting assuring transformation (AT) data or who are unsure how to run reports.
Learning Disabilities: Dynamic Registers Webinar – 14 December 2016NHS England
Specific challenges in working with dynamic registers: Kevin Elliott, Clinical Lead (Policy & Strategy), Transforming Care Programme, NHS England
Sarah Jackson, Strategic Case Manager (North),Children and Young People, Learning Disabilities and/or Autism Workstream, NHS England
Topics covered:
- Risk stratification
- Consent
- Children and Young People
- People with autism and no learning disability
Learning Disabilities: Share and Learn Webinar for Transforming Care Partners...NHS England
This webinar is relevant to all Transforming Care Partnerships, with a focus on a whole system approach to shaping the market. The session was commissioned by Jane Alltimes of the LGA and led by Sarah Broadhurst from the Institute of Public Care on behalf of the Local Government Association. The session:
• Explores market shaping activities that take a whole system, lifespan approach to commissioning for people with a learning disability and/or autism, enabling them to live good lives in the community;
• Considers research undertaken by IPC on market shaping and the development of learning disability market position statements;
• Works through some of the key challenges to shaping the market and identify solutions and approaches to overcoming these;
• Looks at the quality of the market and provision as part of the development of market position statements;
• Sign-post to useful resources and tools on market shaping activity
Learning Disabilities: Dynamic Registers Webinar – 20 December 2016NHS England
Information governance in developing dynamic registers
Kevin Elliott, Clinical Lead (Policy & Strategy), Transforming Care Programme, NHS England
A discussion on information governance covering key issues, multi-agency working and data collection.
Building the right support for people with a learning disability and/or autis...NHS England
Presentations from NHS England's national event Building the right support for people with a learning disability and/or autism: one year on and two years ahead, 8 November 2016.
Learning Disabilities: Dynamic Registers Webinar – 12 December 2016NHS England
Why develop a dynamic register?
Kevin Elliott, Clinical Lead (Policy & Strategy)
Transforming Care Programme, NHS England
Jacky Martel, Family Carer
Dan Maddison, Project Manager, Transformation & Delivery Team
North of England Commissioning Support
Topics covered:
- Background and context – what is a dynamic register?
- Challenges and benefits
- A carer’s perspective
- Developing a standardised template
On 9 February 2016 Guy's and St Thomas' Charity brought together health professionals, decision-makers, voluntary organisations, patient representatives and others in Lambeth and Southwark to explore ways of improving health by looking outside the confines of healthcare. We wanted to showcase and discuss approaches to improving health outcomes which tackle the wider aspects that impact on people’s wellbeing – from housing to education or social connections.
Speakers:
- Imogen Moore – Citizens UK
- Jeremy Swain – Thames Reach
- Catherine Pearson – Healthwatch Lambeth
- Ollie Smith – Guy’s and St Thomas’ Charity
Find out more about the event and our work supporting new ideas in health at www.gsttcharity.org.uk
Southwark and Lambeth-based projects Knee High Design Challenge, Diabetes Modernisation Initiative and Pathway explore what it takes to maintain change in the local healthcare system: understanding the issue & adapting to ever-changing context; gathering & maximising evidence; and building & maintaining meaningful relationships.
Find out more at www.gsttcharity.org.uk
Building momentum: who’d have thought ROMS could create such a buzz? - WorkshopCYP MH
CYPMH conference 2016 Future in Mind Vision to Implementation
Building momentum: who’d have thought ROMS could create such a buzz? (Feedback and outcome measures and diversity -children and young people with learning disabilities and neurodevelopmental conditions) -
Ro Rossiter & Duncan Law with team and service users and parents/carers (Child Outcomes Research Consortium & London and South East CYP IAPT Learning Collaborative)
Realizing article 19 and 23 of the CRPD - What types of- and considerations for social services at local level for children with disabilities?
From 4th Child Protection Forum in Tajikistan, 2013.
Learning Disabilities: Share and Learn WebinarNHS England
Topic One: Enhanced Care Service (ECS)
Guest speakers: Caroline Kirby - Interim Lead Complex Needs Commissioner, Angie Simmons - Team Leader, Enhanced Care Service (ECS), Ted Page - Behavioural Nurse Specialist (ECS)
and Rachel Barrett – Expert by Experience, Speakeasy Now
The presentation reflects on good practice around avoiding hospital admission in Worcestershire who have developed an enhanced care service working proactively in the community.
Topic Two: Strategic resettlement, personalisation at scale and pace
Guest speaker: Pól Toner, Head of Improvement, NHS England
The presentation considers Strategic Resettlement, which is part of the Improvement and Enablement function of the Learning Disability Programme. It is being put in place to support the delivery of a transformational change to close inpatient services and develop the appropriate scale of personalised community care for people with a learning disability and/or autism who display behaviour that challenges, as set out in Building the Right Support. The function provides additional support to local systems to accelerate discharges where appropriate, focusing specifically on patients with the most complex needs and a long length of stay (over 5 years).
Transforming Care: Share and Learn Webinar – 22 February 2018NHS England
Title: Participation and engagement in the national programme for children and young people
Session led by Cindy Gordillo, Children & Young People Learning Disability Programme, NHS England
NHS England and Transforming Care Partnerships have been working with the Council for Disabled Children, KIDS, Barnardos, Challenging Behaviour Foundation and Inclusion North to support the participation of children and young people with learning disabilities, autism or both in the Transforming Care Programme. This webinar showcases how all the organisations involved engaged with young people and guidance.
Transforming Care: Share and Learn Webinar – 30 November 2017NHS England
Topic One: “What does good look like: Person-centred support to promoting positive outcomes for people with learning disability and autism”.
Guest speaker: Professor Julie Beadle-Brown, Professor in Intellectual and Developmental Disabilities at the Tizard Centre, University of Kent
This presentation introduces an evidence based practice framework for promoting positive outcomes for people with a learning disability, autism or both, including those who may display behaviours described as challenging. It considers what is needed for successful implementation, with a particular focus on practice leadership and introduce a tool for assessing and monitoring implementation. Participants can download the “What does good look like” guide and tool from https://www.unitedresponse.org.uk/what-does-good-look-like
Topic Two: High Impact Actions for service improvement and delivery by Transforming Care Partnerships.
Guest speaker: Emma Stark, Improvement Manager, Sustainable Improvement Team, NHS England
This presentation gives an in-depth reminder of the High Impact Actions for service improvement and delivery by Transforming Care Partnerships (TCP). Published a year ago this month, the High Impact Actions aim to help TCPs make the biggest strides forward in supporting people of all ages with a learning disability, autism or both to have a home within their community, be able to develop and maintain relationships and get the support they need to live health, safe and rewarding lives, thereby reducing the number of people in inpatient settings.
Learning Disabilities: Share and Learn Webinar – 18 May 2017NHS England
This webinar focuses on the Model Service Specification for Community Based Forensic Support and aims to explain core functions that need to be in place locally in order to provide effective specialist Community-based Forensic Support to meet the needs of adults with a learning disability, autism or both who display behaviours that challenge which have led to contact with the criminal justice system, or where there is risk of this.
Learning Disabilities: Share and Learn Webinar - 23 February 2017NHS England
Topic one: Transforming care and the future funding of supported housing.
Guest speaker: Amy Swan, Learning Disability Programme, NHS England.
NHS England estimates that around 2,400 people with a learning disability and/or autism will require new living arrangements upon discharge from inpatient care by March 2019. Supported housing plays a crucial role in enabling people to live in the community.
From 1 April 2019 the Government has proposed to bring in a new funding model for supported housing costs, capping housing benefit to LHA rates. This presentation discusses the recent government consultation on proposals for a new housing costs funding model for supported housing and how to mitigate the resulting impact on Transforming Care.
Topic Two: Care and Treatment Review – key changes in the refreshed policy
Guest Speakers: Maggie Graham and Gavin Harding, Learning Disability Programme, NHS England
This presentation talks about some of the key changes in the refreshed Care and Treatment Review policy.
Transforming Care: Share and Learn Webinar – 31 August 2017NHS England
Helping people with a learning disability to give feedback
Guest Speakers: Ruth Hudson - Insight Specialist, Joe Penrose - Insight and Feedback Officer, Katie Matthews, Aaron Oxford and Thomas Chalk - Learning Disability Network Managers
NHS England’s Insight and Learning Disability Engagement teams recently published their bite-size guide to helping people with a learning disability to give feedback.
The webinar is aimed at staff who do not have much experience of involving people with a learning disability in giving feedback. It is of particular interest to staff working in Patient Experience and Communication and Engagement roles. Most of the services people with a learning disability use are the same services as everyone else, and so it is important they are included in feedback and engagement work. Join the teams on the webinar to find out more about increasing the representation of one of the most seldom heard groups of people.
Learning Disabilities: Share and Learn Webinar – 26 January 2017NHS England
Topic One: Developing a cross system workforce plan for the learning disabilities workforce
Guest speakers: Lisa Proctor, Workforce Specialist, Midlands and East and Marie Lancett, Workforce Specialist South, Health Education England, Christiana Evans, Locality Manager (South West), Skills for Care and Marc Lyall, Regional Director – West of England, Skills for Health
This session is designed to help Transforming Care Partnerships who are developing a workforce plan for the learning disabilities workforce in their locality. It gives an overview of workforce planning methodology and describes how you can use pen pictures to think about the workforce needs in relation to the requirements of the individuals that you serve. It also explains how planning your workforce should work alongside your service planning and service redesign. There are also signposts to sources of information that may be useful in developing a TCP workforce plan.
Topic Two: Employing expert by experience in commissioning
Guest speakers: Catherine Keay (Transforming Care Manager) and Jo Minchin (Autism Expert by Experience), South West Lincolnshire CCG
This topic covers the role of experts by experience when they are directly employed by a Clinical Commissioning Group. It outlines a dual role in relation to Care and Treatment Reviews with the CCG and involvement of people with lived experience and their carers through the Lincolnshire Autism Partnership Board and working groups, specifically the Involvement and Collaboration Group (the A Team Network). The session also covers progress with CTRs for people with autism from a CCG and EbE perspective, including local CCG CTRs, reasonable adjustments and accessibility, barriers and areas for development and achievements to date.
Transforming Care: Share and Learn Webinar – 29 March 2018NHS England
Topic One: "The ERIN Initiative"
Guest speakers: Susan Holloway, NHS Chorley & South Ribble CCG and NHS Greater Preston CCG and Sheila Roberts, Lancashire Care NHS Foundation Trust
The aim of "The ERIN (Education, Resources, Interventions and Networking) Initiative" is to provide a local, accessible, responsive, early assessment and intervention service for children aged 0-5 years who may be placed on the pre-school Autism Spectrum Disorder (ASD) pathway.
This webinar reports on the progress made during a pilot which commenced on 1st October 2017 to implement a service which deals with complex/challenging behaviors of children who may or may not go on to have a diagnosis with autism.
Topic Two: An introduction and brief overview of the Source4Networks platform
Session led by Rob Cockburn, Sustainable Improvement Team, NHS England
This topic provides an introduction and brief overview of the Source4Networks platform and its potential to support the Transforming Care Programme.
Learning Disabilities: Share and Learn Webinar – 27 July 2017NHS England
Topic One: Transforming care for children and young people with autism
Guest speakers: Sarah Jackson and David Gill, NHS England and Pat Smith, Autism East Midlands
This webinar looks at some of the challenges seen, such as gaps in provision for children and young people with autism, and will discuss some of the work that is taking place to address these issues.
Topic Two: “The assuring transformation data system” - how to upload data and run reports
Guest speakers: Andy Tookey, NHS England and Judith Ellison and Sarah Freeman, NHS Digital
This webinar is aimed at people who are new to reporting assuring transformation (AT) data or who are unsure how to run reports.
Learning Disabilities: Dynamic Registers Webinar – 14 December 2016NHS England
Specific challenges in working with dynamic registers: Kevin Elliott, Clinical Lead (Policy & Strategy), Transforming Care Programme, NHS England
Sarah Jackson, Strategic Case Manager (North),Children and Young People, Learning Disabilities and/or Autism Workstream, NHS England
Topics covered:
- Risk stratification
- Consent
- Children and Young People
- People with autism and no learning disability
Learning Disabilities: Share and Learn Webinar for Transforming Care Partners...NHS England
This webinar is relevant to all Transforming Care Partnerships, with a focus on a whole system approach to shaping the market. The session was commissioned by Jane Alltimes of the LGA and led by Sarah Broadhurst from the Institute of Public Care on behalf of the Local Government Association. The session:
• Explores market shaping activities that take a whole system, lifespan approach to commissioning for people with a learning disability and/or autism, enabling them to live good lives in the community;
• Considers research undertaken by IPC on market shaping and the development of learning disability market position statements;
• Works through some of the key challenges to shaping the market and identify solutions and approaches to overcoming these;
• Looks at the quality of the market and provision as part of the development of market position statements;
• Sign-post to useful resources and tools on market shaping activity
Learning Disabilities: Dynamic Registers Webinar – 20 December 2016NHS England
Information governance in developing dynamic registers
Kevin Elliott, Clinical Lead (Policy & Strategy), Transforming Care Programme, NHS England
A discussion on information governance covering key issues, multi-agency working and data collection.
Building the right support for people with a learning disability and/or autis...NHS England
Presentations from NHS England's national event Building the right support for people with a learning disability and/or autism: one year on and two years ahead, 8 November 2016.
Learning Disabilities: Dynamic Registers Webinar – 12 December 2016NHS England
Why develop a dynamic register?
Kevin Elliott, Clinical Lead (Policy & Strategy)
Transforming Care Programme, NHS England
Jacky Martel, Family Carer
Dan Maddison, Project Manager, Transformation & Delivery Team
North of England Commissioning Support
Topics covered:
- Background and context – what is a dynamic register?
- Challenges and benefits
- A carer’s perspective
- Developing a standardised template
On 9 February 2016 Guy's and St Thomas' Charity brought together health professionals, decision-makers, voluntary organisations, patient representatives and others in Lambeth and Southwark to explore ways of improving health by looking outside the confines of healthcare. We wanted to showcase and discuss approaches to improving health outcomes which tackle the wider aspects that impact on people’s wellbeing – from housing to education or social connections.
Speakers:
- Imogen Moore – Citizens UK
- Jeremy Swain – Thames Reach
- Catherine Pearson – Healthwatch Lambeth
- Ollie Smith – Guy’s and St Thomas’ Charity
Find out more about the event and our work supporting new ideas in health at www.gsttcharity.org.uk
Southwark and Lambeth-based projects Knee High Design Challenge, Diabetes Modernisation Initiative and Pathway explore what it takes to maintain change in the local healthcare system: understanding the issue & adapting to ever-changing context; gathering & maximising evidence; and building & maintaining meaningful relationships.
Find out more at www.gsttcharity.org.uk
Building momentum: who’d have thought ROMS could create such a buzz? - WorkshopCYP MH
CYPMH conference 2016 Future in Mind Vision to Implementation
Building momentum: who’d have thought ROMS could create such a buzz? (Feedback and outcome measures and diversity -children and young people with learning disabilities and neurodevelopmental conditions) -
Ro Rossiter & Duncan Law with team and service users and parents/carers (Child Outcomes Research Consortium & London and South East CYP IAPT Learning Collaborative)
Realizing article 19 and 23 of the CRPD - What types of- and considerations for social services at local level for children with disabilities?
From 4th Child Protection Forum in Tajikistan, 2013.
Lena Karlsson, Director, Child Protection Initiative, Save the Children Stockholm, Family and Parenting Support, Expert Consultation on Family and Parenting Support, UNICEF Office of Research – Innocenti Florence 26-27 May 2014
In this webinar, Marian Williams, PhD, Associate Professor of Clinical Pediatrics at the USC UCEDD and Program Area Lead in Early Childhood Mental Health Programs, and Co-Director
of Interdisciplinary Training discussed:
- A project to increase access to early screening and intervention for youn children in underserved communities
- Why screening is critical; what is screened
- Red flags for autism spectrum disorder
- What services are recommended for young children with developmental concerns
- How we can keep children from falling through the cracks
Building links for the prevention of Youth HomelessnessFEANTSA
Presentation given by Melanie Redman, National Learning Community on Youth Homelessness and Stephen Gaetz, Canadian Observatory on Homelessness, Canada, at the 2015 FEANTSA Policy Conference, "Homelessness, A Local Phenomenon with a European Dimension: Key Steps to Connect Communities to Europe", Paris City Hall, 19 June 2015
Send school leaders presentation july 2014 DfEAmjad Ali
A detailed presentation highlighting the important elements of the new SEN Code of Practice- which came into force June 2014.
Are you, your school, your local area ready for the changes which should start being enacted from September 2014?
Follow me on Twitter- @ASTSupportaali
Primary care and home visiting services for early identification and support for young children with developmental difficulties and/or disabilities – what is available and what is needed in CEE/CIS?
From 4th Child Protection Forum in Tajikistan, 2013.
A recording of the first talk in the Looked After Children series: Reflections from TIHR researchers on evaluating the Adoption Support Fund 2015-2017
This talk facilitated by Dr Sadie King was co-produced by all the researchers who worked on the evaluation of the adoption support fund 2015-2017 (Matt Gieve, Anna Hahne, Giorgia Iacopini, Heather Stradling, David Lawlor and the audience. It was presented as a live team reflection on the data and findings from different research subjectivities.
David Oliver: designing services that are age appropriateThe King's Fund
David Oliver, Visiting Fellow at The King’s Fund, looks at the challenges around providing health care for an ageing population, and the solutions to achieving better joined-up care.
Similar to Learning Disabilities: Share and Learn Webinar – 30 March 2017 (20)
CHAPTER 1 SEMESTER V - ROLE OF PEADIATRIC NURSE.pdfSachin Sharma
Pediatric nurses play a vital role in the health and well-being of children. Their responsibilities are wide-ranging, and their objectives can be categorized into several key areas:
1. Direct Patient Care:
Objective: Provide comprehensive and compassionate care to infants, children, and adolescents in various healthcare settings (hospitals, clinics, etc.).
This includes tasks like:
Monitoring vital signs and physical condition.
Administering medications and treatments.
Performing procedures as directed by doctors.
Assisting with daily living activities (bathing, feeding).
Providing emotional support and pain management.
2. Health Promotion and Education:
Objective: Promote healthy behaviors and educate children, families, and communities about preventive healthcare.
This includes tasks like:
Administering vaccinations.
Providing education on nutrition, hygiene, and development.
Offering breastfeeding and childbirth support.
Counseling families on safety and injury prevention.
3. Collaboration and Advocacy:
Objective: Collaborate effectively with doctors, social workers, therapists, and other healthcare professionals to ensure coordinated care for children.
Objective: Advocate for the rights and best interests of their patients, especially when children cannot speak for themselves.
This includes tasks like:
Communicating effectively with healthcare teams.
Identifying and addressing potential risks to child welfare.
Educating families about their child's condition and treatment options.
4. Professional Development and Research:
Objective: Stay up-to-date on the latest advancements in pediatric healthcare through continuing education and research.
Objective: Contribute to improving the quality of care for children by participating in research initiatives.
This includes tasks like:
Attending workshops and conferences on pediatric nursing.
Participating in clinical trials related to child health.
Implementing evidence-based practices into their daily routines.
By fulfilling these objectives, pediatric nurses play a crucial role in ensuring the optimal health and well-being of children throughout all stages of their development.
The dimensions of healthcare quality refer to various attributes or aspects that define the standard of healthcare services. These dimensions are used to evaluate, measure, and improve the quality of care provided to patients. A comprehensive understanding of these dimensions ensures that healthcare systems can address various aspects of patient care effectively and holistically. Dimensions of Healthcare Quality and Performance of care include the following; Appropriateness, Availability, Competence, Continuity, Effectiveness, Efficiency, Efficacy, Prevention, Respect and Care, Safety as well as Timeliness.
ICH Guidelines for Pharmacovigilance.pdfNEHA GUPTA
The "ICH Guidelines for Pharmacovigilance" PDF provides a comprehensive overview of the International Council for Harmonisation of Technical Requirements for Pharmaceuticals for Human Use (ICH) guidelines related to pharmacovigilance. These guidelines aim to ensure that drugs are safe and effective for patients by monitoring and assessing adverse effects, ensuring proper reporting systems, and improving risk management practices. The document is essential for professionals in the pharmaceutical industry, regulatory authorities, and healthcare providers, offering detailed procedures and standards for pharmacovigilance activities to enhance drug safety and protect public health.
Medical Technology Tackles New Health Care Demand - Research Report - March 2...pchutichetpong
M Capital Group (“MCG”) predicts that with, against, despite, and even without the global pandemic, the medical technology (MedTech) industry shows signs of continuous healthy growth, driven by smaller, faster, and cheaper devices, growing demand for home-based applications, technological innovation, strategic acquisitions, investments, and SPAC listings. MCG predicts that this should reflects itself in annual growth of over 6%, well beyond 2028.
According to Chris Mouchabhani, Managing Partner at M Capital Group, “Despite all economic scenarios that one may consider, beyond overall economic shocks, medical technology should remain one of the most promising and robust sectors over the short to medium term and well beyond 2028.”
There is a movement towards home-based care for the elderly, next generation scanning and MRI devices, wearable technology, artificial intelligence incorporation, and online connectivity. Experts also see a focus on predictive, preventive, personalized, participatory, and precision medicine, with rising levels of integration of home care and technological innovation.
The average cost of treatment has been rising across the board, creating additional financial burdens to governments, healthcare providers and insurance companies. According to MCG, cost-per-inpatient-stay in the United States alone rose on average annually by over 13% between 2014 to 2021, leading MedTech to focus research efforts on optimized medical equipment at lower price points, whilst emphasizing portability and ease of use. Namely, 46% of the 1,008 medical technology companies in the 2021 MedTech Innovator (“MTI”) database are focusing on prevention, wellness, detection, or diagnosis, signaling a clear push for preventive care to also tackle costs.
In addition, there has also been a lasting impact on consumer and medical demand for home care, supported by the pandemic. Lockdowns, closure of care facilities, and healthcare systems subjected to capacity pressure, accelerated demand away from traditional inpatient care. Now, outpatient care solutions are driving industry production, with nearly 70% of recent diagnostics start-up companies producing products in areas such as ambulatory clinics, at-home care, and self-administered diagnostics.
Health Education on prevention of hypertensionRadhika kulvi
Hypertension is a chronic condition of concern due to its role in the causation of coronary heart diseases. Hypertension is a worldwide epidemic and important risk factor for coronary artery disease, stroke and renal diseases. Blood pressure is the force exerted by the blood against the walls of the blood vessels and is sufficient to maintain tissue perfusion during activity and rest. Hypertension is sustained elevation of BP. In adults, HTN exists when systolic blood pressure is equal to or greater than 140mmHg or diastolic BP is equal to or greater than 90mmHg. The
Global launch of the Healthy Ageing and Prevention Index 2nd wave – alongside...ILC- UK
The Healthy Ageing and Prevention Index is an online tool created by ILC that ranks countries on six metrics including, life span, health span, work span, income, environmental performance, and happiness. The Index helps us understand how well countries have adapted to longevity and inform decision makers on what must be done to maximise the economic benefits that comes with living well for longer.
Alongside the 77th World Health Assembly in Geneva on 28 May 2024, we launched the second version of our Index, allowing us to track progress and give new insights into what needs to be done to keep populations healthier for longer.
The speakers included:
Professor Orazio Schillaci, Minister of Health, Italy
Dr Hans Groth, Chairman of the Board, World Demographic & Ageing Forum
Professor Ilona Kickbusch, Founder and Chair, Global Health Centre, Geneva Graduate Institute and co-chair, World Health Summit Council
Dr Natasha Azzopardi Muscat, Director, Country Health Policies and Systems Division, World Health Organisation EURO
Dr Marta Lomazzi, Executive Manager, World Federation of Public Health Associations
Dr Shyam Bishen, Head, Centre for Health and Healthcare and Member of the Executive Committee, World Economic Forum
Dr Karin Tegmark Wisell, Director General, Public Health Agency of Sweden
Explore our infographic on 'Essential Metrics for Palliative Care Management' which highlights key performance indicators crucial for enhancing the quality and efficiency of palliative care services.
This visual guide breaks down important metrics across four categories: Patient-Centered Metrics, Care Efficiency Metrics, Quality of Life Metrics, and Staff Metrics. Each section is designed to help healthcare professionals monitor and improve care delivery for patients facing serious illnesses. Understand how to implement these metrics in your palliative care practices for better outcomes and higher satisfaction levels.
R3 Stem Cells and Kidney Repair A New Horizon in Nephrology.pptxR3 Stem Cell
R3 Stem Cells and Kidney Repair: A New Horizon in Nephrology" explores groundbreaking advancements in the use of R3 stem cells for kidney disease treatment. This insightful piece delves into the potential of these cells to regenerate damaged kidney tissue, offering new hope for patients and reshaping the future of nephrology.
Leading the Way in Nephrology: Dr. David Greene's Work with Stem Cells for Ki...Dr. David Greene Arizona
As we watch Dr. Greene's continued efforts and research in Arizona, it's clear that stem cell therapy holds a promising key to unlocking new doors in the treatment of kidney disease. With each study and trial, we step closer to a world where kidney disease is no longer a life sentence but a treatable condition, thanks to pioneers like Dr. David Greene.
CHAPTER 1 SEMESTER V PREVENTIVE-PEDIATRICS.pdfSachin Sharma
This content provides an overview of preventive pediatrics. It defines preventive pediatrics as preventing disease and promoting children's physical, mental, and social well-being to achieve positive health. It discusses antenatal, postnatal, and social preventive pediatrics. It also covers various child health programs like immunization, breastfeeding, ICDS, and the roles of organizations like WHO, UNICEF, and nurses in preventive pediatrics.
The Importance of Community Nursing Care.pdfAD Healthcare
NDIS and Community 24/7 Nursing Care is a specific type of support that may be provided under the NDIS for individuals with complex medical needs who require ongoing nursing care in a community setting, such as their home or a supported accommodation facility.
Learning Disabilities: Share and Learn Webinar – 30 March 2017
1. Learning Disabilities:
Share and Learn Webinar
30 March 2017
Topic:
How can we meet the needs of
children with complex behavioural
challenge?
Dame Christine Lenehan, Director,
Council for Disabled Children
#improvingLD @NHSEnglandSI
3. Which children?
• Children and young people with both a learning disability and a
mental health need
• Autism would be common, but not just Autism
• Children on the edge of or placed within in patient mental health
units (but a note of the corresponding cohort in Residential Special
Schools)
• In profile, most will be boys, most will be teenagers, 90%+ will
have communication impairments and most will have significantly
challenging behaviour
5. Policy background: Horrific abuse of patients with learning
disabilities at the Winterbourne View Hospital in 2011, leading
to Transforming Care reforms (underpinned by new data
collections).
• At end February 2016, there were 170 in-patients with
learning disabilities and/or ASD aged under 18 years and
635 aged 18-25 years.
• Children are more likely to be treated further from home
than older inpatients. On average under 18’s were treated
79km from home.
• Young inpatients (<18 years) had on average been in
hospital for 285 days or around 9 months, ten times longer
than the 28 day limit for ‘section 2’ admissions for
assessment and treatment.
• Almost one third stayed for a year or more. Around 10
children were inpatients for 2-5 years.
Children and young people with learning
disabilities or ASD who are inpatients in
specialist mental health units (Feb 2016)
6. Care and Transfer Reviews (CTRs) were developed to
avoid unnecessary admissions and to plan towards
discharge or transfer as soon as possible. CTRs
should take place soon after admission and every six
months.
• 100 (59%) of the 170 inpatients under 18 years
had not had a CTR
• 105 (62%) still had no scheduled CTR, worse than
for other age groups.
• Only 35 (21%) of the 170 children in inpatient
care had a planned transfer date, a much lower
proportion than across all inpatients.
Children and young people with learning
disabilities or ASD who are inpatients in
specialist mental health units (Feb 2016)
7. There are rising numbers of disabled
children with complex needs and/or
life-limiting conditions, who, with their
families, are likely to need support
from health, education and social care
at times throughout their life.
Headline message from the data analysis
8. There are at least 73,000 children
of school age with complex
needs (narrowly defined):
• 10,900 children with profound
and multiple learning difficulties
• 32,300 children with severe
learning difficulties
• 27,500 children with autistic
spectrum disorders in special
schools
• 2,300 children in multi-sensory
impairments.
School Census data, Jan 2016
Using this definition, schools are
working with 23,700 more children
with complex needs than in 2004.
• 3,120 more children with PMLD
(+40%)
• 270 more children with SLD
(+1%)
• 18,860 more children with ASD in
special schools (+219%)
• 1,440 more children with MSI
(+168%)
How many disabled children are there with complex needs and
life-limiting conditions?
9. A review of the system
This Review was triggered by a small number of individual cases. They
focussed public and Ministerial attention on the care, support and
treatment provided to the small group of children and young people
with complex needs (and behaviour that challenges) involving mental
health problems and learning disabilities and/ or autism.
Alistair Burt, the then Minister of State for Care and Support, asked for
a Review to:
“take a strategic overview and recommend what practical action can
be taken by Government Departments and partners at national level
to make the system better able to co-ordinate care, support and
treatment for children and young people with complex needs (and
behaviour that challenges) involving mental health problems and
learning disabilities and/ or autism.”
10. • Lots of passionate, committed individuals who care deeply
but are affected by:
• A lack of a strategic vision for children
• A lack of accountability and coherence within the system
• No cross government ownership of the issue
• A domination of classifications, diagnoses, labels which
effectively rule out support
• A strong professional agreement on a model of support, but
one which is not commissioned
Lessons from the process
11. • An issue about the commissioning footprint
• Patchy support for parents
• Austerity biting across all statutory and non statutory
services
• Disagreements about workforce
• At tier 4, a lack of the right provision in the right place
• A financial system which incentivises crisis and
disincentivises prevention
• Short sightedness about change
Lessons from the process
12. Taking a children’s rights approach
Understanding the basic denial of rights
Each of us asking ourselves some key questions …
would this be OK for my child?
But not getting lost in the world of parents
Using the tools in the systems to support our
approaches
13. Responsibility and Accountability
Nationally ... what cross government mechanism should be in place to
stop these children getting lost, particularly as the service
configurations change?
For clinicians, what should a national approach look like?
Locally ... where should responsibility be …….
• For local areas?
• ForLD/Mental health services?
14. Workforce
Lack of skilled staff at every level
So,
How do we support staff at all levels on managing challenging
behaviour?
Do our models and commissioning join up locally?
Can we share skill sets?
15. Understanding financial flows
• Do current financial planning systems incentivise the models we
want to see?
• For children in in-patient care £1 million per child, every 3 years of
placement is a conservative indicator of cost
• Do you know what you are spending? And for what outcomes?
• How do we incentivise invest to save, early intervention etc ?
• How do we identify this group early enough and what do we do?
16. New approaches , new models ?
Looking at what is possible instead
Do these services have to be a one way street?
How could we support new models of care?
How do we make the most of programme linkages, Transforming Care,
Future in Mind, IPC and the SEND reforms … from a regional or sub
regional approach?
Basic lessons about supporting families … Why are we back on key
workers again and how do we move forward?
18. • Good quality behavioural support services
• Which recognise early
• Which support parents
• Which aren’t diagnosis based
• Which work across health, education and social care
• Build on the models of dynamic risk registers
• Understand costs and outcomes
• Don’t accept that institutionalisation is inevitable
Looking at different models of success
19. Supporting families promoting good
practice
WHAT FAMILIES WANT KEY QUESTIONS FOR LOCAL
AUTHORITIES AND HEALTH COMMISSIONERS?
1. Regular visits, planned around the needs of the young person and
family
2. A child-and family-centred plan for “keeping in touch” is agreed at
the outset and regularly reviewed
3. Families involved in transition planning, at the point of admission or
before?
4. Supporting children to “feel at home”
5. Making the most of communications technologies
6. Access to advocacy and skills in non-verbal communication
7. Listening to parents’ concerns, supporting them and intervening
when trust breaks down
20. Learning Disabilities:
Share and Learn Webinar
30 March 2017
Children and Young People’s
Workstream
Sue North, Acting Lead for Children
and Young People Workstream,
Transforming Care, Learning
Disabilities Programme, NHS England
#improvingLD @NHSEnglandSI
22. www.england.nhs.uk
Aims of the work stream
• Children, young people and their families will
receive the right support at the right time in the right
place to meet their needs and enable them to live at
home or in the local community.
• Transforming Care Partnerships will have clear
plans to enable them to successfully deliver this.
23. www.england.nhs.uk
“Golden threads”
Children, young people and families are supported
to have a good quality of life. They are treated with
respect and have an expectation of a home in their
local community
Children and young people should be kept safe but
at the same time supported to take positive risks
Children and young people should have choice and
control over their lives
Children and young people’s support should be
provided in the least restrictive way
Children and young people should get equal health
outcomes to the rest of the population
Equal!
24. www.england.nhs.uk
Dame Christine Lenehan. January 2017
“These are our children and they are
known. They occur in every area and
they often follow a well-trodden
pathway out of their local authority
area, never to come back”
25. www.england.nhs.uk
• Independent Chair
• Parent Carer representative
• Department for Education
• Association of Directors of
Children’s Services
• Local Government Association
• Voluntary Sector
• Department of Health
• NHS England – Special
Educational Needs team, /
Children & Young Peoples Mental
Health team, / Transforming Care /
Integrated Personal Commissioning
Children and Young People’s
steering group
27. www.england.nhs.uk
• Refresh – Autumn 2016
• Within the new policy, specific annex in
relation to children and young people
responding to issues raised in the
engagement process.
• Changes in the timescales for review.
• Code and toolkit for children and young
people to be published shortly.
Care and Treatment Review Policy
refresh – care, education and treatment
reviews for children and young people
28. www.england.nhs.uk
• Embedding and quality assuring the process and outcomes of CETRs
• Implementation of the Children’s Supplementary Guidance and use of the
‘pathway’ to support this
• Supporting TCPs to make sure there is a children and young people’s lead
on Transforming Care Partnership Boards
• That children and young people are included in registers that identify those
at risk of admission.
• Representation of children & young people on TCP Boards to co-produce
decision making and the implementation of plans which directly impact
them
• Robust, pro-active preparation for Adulthood to reduce the
• cohort of future adult in-patients
Key Processes for Improvement
29. www.england.nhs.uk
The national children and young
people’s team
• Track Transforming Care Partnership Boards implementation of
their plans to ensure they are all age and meet the needs of
children and young people and their families / carers
• Tracking implementation of Care, Education and Treatment
Review policy.
• Work with system partners to audit the implementation of the
recommendations from the Lenehan Report.
• Ensure systems are in place to monitor the impact on admissions
and discharges for u18s resulting from £1 million of transformation
funding for projects focused on improving outcomes for children
and young people.
• Collate and share case study examples from areas receiving £1m
transformation funding.
30. www.england.nhs.uk
Children & Young Peoples Team
Sue North – Acting lead
David Gill – learning disability
adviser
Phil Brayshaw – service model lead
Tracy Holmes – Project
Management Support
Regional Strategic Case Managers
• Sarah Jackson - North
• Siobhan Gorry – North
• Tonita Whittier – Midlands & East
• Kate Sutton – Midlands & East
• Maureen Banda – London
• Cindy Gordillo– South
31. www.england.nhs.uk
Children & Young Peoples team
• suenorth@nhs.net
• davidgill8@nhs.net
• Tonita.whittier@nhs.net
• Kate.sutton1@nhs.net
• c.gordillo@nhs.net
• Maureen.banda@nhs.net
• Siobhan.gorry@nhs.net
• Sarah.jackson23@nhs.net
• Tracy.holmes3@nhs.net
• Phil.Brayshaw@nhs.net
• www.england.nhs.uk/learningdisabilities/care/camhs
To set the context, Im going to ask you to think about the Panarama expose on winterbourne view which aired over 5 years ago in May 2011. Many of us will have seen it, majority of us will have heard about the systematic abuse of people living in it. The youngest resident was 18 and high numbers of people resident there had been placed as young people.
Winterbourne view showed that the system is not working for children and particularly young people with challenging behaviour as a result of autism and or learning disability.
Unfortunately, it hasn’t ended there-there have been high profile cases since Winterbourne View – including Connor Sparrowhawk, who was epileptic, autistic and had learning disabilities and tragically died in a bath in an ATU age 18 …. and Matthew Garnett, a 15 year old boy who has autism and who was until very recently sectioned in a intensive care secure psychiatric unit, waiting over 7 months for an assessment as there was no appropriate provision available to meet his needs…
There are particular difficulties with young people who have mental health crises such as Connor or Matthew. Young people like them can become trapped in ATUs where staff don’t know who they really are or how they are when they’re not in a mental health crises. They may assume that their behaviour is an integral part of their LD rather than viewing it as they would with a neurotypical young person, as an episode from which they can recover.
The links – different language but same vision and lots of crossover for most vulnerable young people
received feedback and input from a large number of commissioners, local authorities, parent and family members, people with learning disabilities, autism or both, voluntary sector partners and clinical experts and experts by experience.