Palliative and End of Life Care:
Supporting Patient Choice
Jayne Cooper
Interim CEO and Director of Nursing
1
2008/9 hospital episode statistics
2
Hospital episodes for people registered with a
NWS GP practice in the last year of life 2013/14
3
What is CoSI?
• A Coordinated, Safe and Integrated (CoSI) service model
• Partnership and collaborative model across a number of
providers: Woking & Sam Beare Hospices (Lead Partner), Marie
Curie, Princess Alice Hospice and Virgin Care
• Responsive, skilled nursing and personal care for those who are
unstable, at a time of crisis, deteriorating, or dying
• Patients with estimated prognosis of up to 6-8 weeks of life
• Pilot evaluated and commissioned substantively by NW Surrey
CCG in March 2015
4
CoSI Aims
• Reduced anxiety for patients and families of stressful and
inappropriate admissions to hospital
• Enhanced patient choice for place of care and place of death
• Improved experience of care and support at home
• Support rapid and safe discharge where the estimated prognosis
is only weeks or days
• Promote continuity and enhanced co-ordination across partner
organisations
• Reduction in average acute hospital costs per patient
5
CoSI model
• Patients known to the Community Nursing Service in NW Surrey
• Co-ordination hub based at Woking Hospice
• 7 day clinical co-ordination providing single point of access,
dovetailing with out of hours community nursing
• Delivery team for care during the day and overnight
• Day resources: WSBH & PAH
• Night resources: Marie Curie & WSBH
• Clinical prioritisation to those patients with highest needs
• Monthly reporting to the Commissioning Support Unit –
monitoring of patients
• Quarterly reports to CCG
6
Activity Report: April 2015 to March 2016
• 297 patients and their families/carers were supported
• 270 were new referrals to the service
• 37% of patients referred with an estimated prognosis of days
• 62% were referred with an estimated prognosis of weeks with
unstable and changing needs
• Average monthly caseload equates to 35 patients
• 82% of patients had a primary diagnosis of cancer
• Average patient age: 77
• 560 patients supported by CoSI since inception of pilot at the
beginning of June 2014
• Regular satisfaction surveys and clinical audit expertise
7
Achievements and outcomes: April 2015 to March
2016
• 76% of patients had care commenced within 48 hrs
• 12 days is the average length of care episode per patient
• 8% patients admitted to hospital (acute episode; fall; unplanned
unstable symptoms; cord compression; patient collapsed; 999
call)
• Patients discharged from CoSI if needs stabilise beyond 6-8 weeks
and referred to CHC
• 100% of patients who died under CoSI care achieved their
preferred place of death (home)
8
Achievements and outcomes: April 2015 to March
2016
• Excellent patient and family feedback
• Strengthened partnership working across providers
• A trusted provision for GP referrals
• Integrates with other aspects of hospice and end of life care
services, including those in the acute hospital setting
• Standardised processes and coordination across providers 24/7
Winner of KSS AHSN End of Life Care award and NCPC End of Life
Care Champions of the year 2016
9
Feedback
Patient/carer surveys reported that:
• 100% reported they received care and support which fully met
their needs
• 100% of respondents had confidence in the CoSI team
• 100% said the CoSI service had met their expectations
• 98% said they were involved as much as they wanted to be in
the care given
• 96% said their care was well planned and organised
10
CoSI impact on hospital episodes
11
Evaluation and commissioning
• Not only high quality but cost effective…
• End of life care programmes difficult to evaluate effectively – no
end of life care coding in hospitals
• To evaluate the pilot NW Surrey CCG looked at those under the
care of CoSI against a control group of patients that had died in
hospital
• Activity patterns examined over the last year and 3 months of life
• Notable change in activity patterns for those under the care of
CoSI – average acute cost in the last 3 months of life £3,812 (non-
CoSI) vs £1,700 for those under the CoSI service
• An observed saving of over £2,000 per patient
12
Our learnings and key challenges
• Collaboration is vital
• Standardise processes and approach
• Strong clinical and provider leadership
• Robust evaluation methodology and strong data infrastructure
• Hours of the service
• Resources aligned to the model
• Balancing the principles of continuity and clinical prioritisation
• Lack of joined up multi-provider record in the home
13
Recognition
14
NCPC End of Life Care Champions of the year 2016

Jayne Cooper

  • 1.
    Palliative and Endof Life Care: Supporting Patient Choice Jayne Cooper Interim CEO and Director of Nursing 1
  • 2.
  • 3.
    Hospital episodes forpeople registered with a NWS GP practice in the last year of life 2013/14 3
  • 4.
    What is CoSI? •A Coordinated, Safe and Integrated (CoSI) service model • Partnership and collaborative model across a number of providers: Woking & Sam Beare Hospices (Lead Partner), Marie Curie, Princess Alice Hospice and Virgin Care • Responsive, skilled nursing and personal care for those who are unstable, at a time of crisis, deteriorating, or dying • Patients with estimated prognosis of up to 6-8 weeks of life • Pilot evaluated and commissioned substantively by NW Surrey CCG in March 2015 4
  • 5.
    CoSI Aims • Reducedanxiety for patients and families of stressful and inappropriate admissions to hospital • Enhanced patient choice for place of care and place of death • Improved experience of care and support at home • Support rapid and safe discharge where the estimated prognosis is only weeks or days • Promote continuity and enhanced co-ordination across partner organisations • Reduction in average acute hospital costs per patient 5
  • 6.
    CoSI model • Patientsknown to the Community Nursing Service in NW Surrey • Co-ordination hub based at Woking Hospice • 7 day clinical co-ordination providing single point of access, dovetailing with out of hours community nursing • Delivery team for care during the day and overnight • Day resources: WSBH & PAH • Night resources: Marie Curie & WSBH • Clinical prioritisation to those patients with highest needs • Monthly reporting to the Commissioning Support Unit – monitoring of patients • Quarterly reports to CCG 6
  • 7.
    Activity Report: April2015 to March 2016 • 297 patients and their families/carers were supported • 270 were new referrals to the service • 37% of patients referred with an estimated prognosis of days • 62% were referred with an estimated prognosis of weeks with unstable and changing needs • Average monthly caseload equates to 35 patients • 82% of patients had a primary diagnosis of cancer • Average patient age: 77 • 560 patients supported by CoSI since inception of pilot at the beginning of June 2014 • Regular satisfaction surveys and clinical audit expertise 7
  • 8.
    Achievements and outcomes:April 2015 to March 2016 • 76% of patients had care commenced within 48 hrs • 12 days is the average length of care episode per patient • 8% patients admitted to hospital (acute episode; fall; unplanned unstable symptoms; cord compression; patient collapsed; 999 call) • Patients discharged from CoSI if needs stabilise beyond 6-8 weeks and referred to CHC • 100% of patients who died under CoSI care achieved their preferred place of death (home) 8
  • 9.
    Achievements and outcomes:April 2015 to March 2016 • Excellent patient and family feedback • Strengthened partnership working across providers • A trusted provision for GP referrals • Integrates with other aspects of hospice and end of life care services, including those in the acute hospital setting • Standardised processes and coordination across providers 24/7 Winner of KSS AHSN End of Life Care award and NCPC End of Life Care Champions of the year 2016 9
  • 10.
    Feedback Patient/carer surveys reportedthat: • 100% reported they received care and support which fully met their needs • 100% of respondents had confidence in the CoSI team • 100% said the CoSI service had met their expectations • 98% said they were involved as much as they wanted to be in the care given • 96% said their care was well planned and organised 10
  • 11.
    CoSI impact onhospital episodes 11
  • 12.
    Evaluation and commissioning •Not only high quality but cost effective… • End of life care programmes difficult to evaluate effectively – no end of life care coding in hospitals • To evaluate the pilot NW Surrey CCG looked at those under the care of CoSI against a control group of patients that had died in hospital • Activity patterns examined over the last year and 3 months of life • Notable change in activity patterns for those under the care of CoSI – average acute cost in the last 3 months of life £3,812 (non- CoSI) vs £1,700 for those under the CoSI service • An observed saving of over £2,000 per patient 12
  • 13.
    Our learnings andkey challenges • Collaboration is vital • Standardise processes and approach • Strong clinical and provider leadership • Robust evaluation methodology and strong data infrastructure • Hours of the service • Resources aligned to the model • Balancing the principles of continuity and clinical prioritisation • Lack of joined up multi-provider record in the home 13
  • 14.
    Recognition 14 NCPC End ofLife Care Champions of the year 2016