You can view the webinar recording below. This hour long webinar with Helen Wheatley will provide an insight into the development of the NICE guideline "Transition from children's to adult's services". It will outline key recommendations from the guideline as well as providing an overview of good practice in transitions. Aimed at: Frontline practitioners working with children and young people and their families

1. NICE Collaborating Centre for Social Care
Introducing the NICE Guideline ‘Transition from children’s to
adults’ services for young people using health or social care
services’
Focusing on multi agency working to support young people with
SEND preparing for adulthood

2. NICE Collaborating Centre for Social Care

3. NICE Collaborating Centre for Social Care
Contents
• Guideline development
• Guideline recommendations
• Young people’s views
• Families’ views
• Guideline implementation
• Wider Policy and guidance update
• Summary and references
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4. NICE Collaborating Centre for Social Care
National Institute for
Health and Care
Excellence (NICE)
Commissioner
Social Care
Institute for
Excellence (SCIE)
Lead partner
Personal Social
Services Research
Unit
(PSSRU)
Evidence for Policy
and Practice
Information and
Co-ordinating
Centre
(EPPI)
Research in
Practice
(RiP)
Research in
Practice for Adults
(RiPfA)
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5. NICE Collaborating Centre for Social Care
Research evidence
Practice evidence
Evidence on views and experiences
People who use services, carers, practitioners, commissioners
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6. NICE Collaborating Centre for Social Care
Evidence informed practice
M
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7. NICE Collaborating Centre for Social Care
Recommendations from the Guideline
Service recommendations:
• Overarching principles
• Transition planning
• Support before transfer
• Support after transfer
• Supporting infrastructure
+ Research recommendations
Key points:
• Involve young people, families
and carers in planning and service
design
• Developmentally appropriate
services and person centred
approaches
• Joint working at strategic and
operational levels
• Use data to track, review and
plan
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8. NICE Collaborating Centre for Social Care
Implementation challenges – the
recommendations in practice:
1. Adults’ services taking joint responsibility with children’s services for
transition
2. Joint planning, development and commissioning of services involved
in transition across children’s and adults’ health and social care
3. Improving front line practice with young people through training in
developmentally appropriate services and person-centred practice
4. Maximising opportunities for young people who have become
disengaged or who are not eligible for adults’ services to access care
and support
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9. NICE Collaborating Centre for Social Care
Young
people’
s views
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10. NICE Collaborating Centre for Social Care
Learning from young people
• Plan jointly for meetings – including
agendas
• Professionals - don’t speak in jargon
• Listen and make space for young
people’s views in and out of
meetings
• Support young people to learn about
making choices and informed
decisions – eg in different situations
and about small and more significant
things
…and then let them make them!
Taken from
http://www.allfie.org.uk/docs/Viper/Guide/HearU
sOut.pdf
• Focus on me the person, not my
condition
• Ask about my whole life
• Be friendly and don’t make
assumptions about how
teenagers behave
• Have up to date, age appropriate
information
• Help me learn more about my
condition so I can make good
decisions
Taken from: http://www.mefirst.org.uk/wp-
content/uploads/2016/01/Talking-About-
Rights.pdf
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11. NICE Collaborating Centre for Social Care
Parents’ and carers’ views at transition
Main concerns at transition:
• The young person’s ability to manage his / her life
• A lack of progression or meaningful daytime occupation
• Increased vulnerabilities associated with independence
• The threat of harm and police involvement arising from behaviour problems
• Poor or worsening mental health
• Parent’s own ability to continue the caring role
Taken from:
University of York (2013) Transition to Adult Services and Adulthood for Young People with Autistic
Spectrum Conditions
http://php.york.ac.uk/inst/spru/pubs/2371/
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12. NICE Collaborating Centre for Social Care
1. Adults’ services taking joint responsibility with
children’s services for transition
Why
• Better outcomes for young people
• Continuity and better quality of care
at transition
• Better communication / sharing of
information to support people
• Diverse range of support is needed
How
• Joint review of systems eg data sharing
or assessments
• Consistent approach to young people’s
involvement in service and support
planning
• Shared transfer arrangements eg early
meetings / clinic visits
• Individual plans focused on outcomes –
considering all available support
• Locate staff together / secondments /
joint training
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13. NICE Collaborating Centre for Social Care
2. Joint planning, development and commissioning of services
involved in transition across children’s and adults’ health and
social care
Why
• Better outcomes for young people
• All involved get a clear
understanding of available support
• Better joint working and co-
ordinated approaches
• More evidence based
commissioning and cost effective
support
How
• Transition protocol / agreement
• Using the Local Offer – sharing
and gathering information
• Using data from services and
young people and families to plan
future support and measure
impact
• Joint commissioning and pooled
budgets
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14. NICE Collaborating Centre for Social Care
3. Improving frontline practice with young people through
training in developmentally appropriate services and
person-centred practice
Why
• Young people will get support
tailored to them which they are more
likely to engage positively with
• Supports staff in their roles to enable
young people to focus on their goals
and hopes for the future and to make
decisions
• Gives a personalised framework
focused on outcomes that
professionals from all services can
work with
How
• Add to staff development plans and plans
for team training
• Review assessments across services – are
they person centred?
• All staff to take an holistic view to plans
eg how is good health care supporting
educational attainment or independence
• Staff with specific expertise run sessions
with other teams to share approaches
• Use young people’s views on their
experience to improve planning of
assessment and reviews
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15. NICE Collaborating Centre for Social Care
4. Young people disengaged or not eligible for
services
Why
• Ensure all young people get
support when they need it
• Avoid more complex support or
needs developing in the future
• Inform future strategic planning
and service design
How
• Share data on young people in
transition to help identify those who
are disengaging
• Use transition planning to ensure
young people understand the
impact of taking risks eg in
managing their own condition
• Make sure young people and
families / carers know about the
Local Offer and latest information on
available support
• Examine use of technology eg
consultation via Skype and sharing
information using social media
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16. NICE Collaborating Centre for Social Care
Legislation and guidance
• Care Act 2014
• Children and Families Act 2014
• Children Act 1989 and Children Act 2004
• SEND Revised Code of Practice
• NHS England – Transforming Care/Building the right support
• Autism Strategy (adults)
• Welfare Reform Act 2012 (+ new Welfare Reform and Work Bill)
• CQC and Ofsted – new SEND inspection framework (May 2016)
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17. NICE Collaborating Centre for Social Care
In summary - Common elements across
legislation, guidance and good practice
• Engagement and participation of young people, families and
carers
• Focus on outcomes and wellbeing
• Person-centred assessment and planning including good
information on options and support
• Joint working across services
• Skilled and supported staff
• Joint commissioning and service development
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18. NICE Collaborating Centre for Social Care
https://www.ripfa.org.uk
help@ripfa.org.uk
@ripfa
Thank You
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