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Feel the Fear  -  Learning from Dying Matters Conversation Pilots Hilary Fisher Lorna Potter Director, Dying Matters   Community Development Adviser Dying Matters and NCPC
The challenges ,[object Object],[object Object],[object Object],[object Object],[object Object]
Method - Coalition ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
GPs  ,[object Object],[object Object],[object Object],[object Object],[object Object]
Patients ,[object Object],[object Object],[object Object],[object Object]
Aims of Dying Matters GP Pilot  ,[object Object],[object Object]
Success measures ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Pilot participation -  Participants and  responses ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Intervention Workshops for GPs Communication skills training GP involvement in developing a suite of communications materials to support conversations about end of life
Methodology Data collection GP Questionnaire (pre and post pilot)  Patient Questionnaire Conversation and Action Record Sheet Death Audit
Type of illness Diseases and circumstances in patients, family  members and carers with whom GPs discussed  end of life
Stage of illness Stage of disease and circumstances in patients,  family members and carers with whom GPs  discussed end of life
Conversation triggers The triggers for 155 conversations with patients, family members and carers when GPs discussed end of life
Continuing the conversation ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Actions taken by GPs following a conversation
Change in GP confidence Change in all GPs’ self-rated confidence in starting  and having conversations pre and post pilot May 2010 ( n  = 46)  Sept  2010 ( n  = 53)
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
What You Can Do
[object Object],[object Object],[object Object]

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Dying Matters: Feel the fear, and have the conversation anyway

  • 1. Feel the Fear - Learning from Dying Matters Conversation Pilots Hilary Fisher Lorna Potter Director, Dying Matters Community Development Adviser Dying Matters and NCPC
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  • 9. Intervention Workshops for GPs Communication skills training GP involvement in developing a suite of communications materials to support conversations about end of life
  • 10. Methodology Data collection GP Questionnaire (pre and post pilot) Patient Questionnaire Conversation and Action Record Sheet Death Audit
  • 11. Type of illness Diseases and circumstances in patients, family members and carers with whom GPs discussed end of life
  • 12. Stage of illness Stage of disease and circumstances in patients, family members and carers with whom GPs discussed end of life
  • 13. Conversation triggers The triggers for 155 conversations with patients, family members and carers when GPs discussed end of life
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  • 15. Actions taken by GPs following a conversation
  • 16. Change in GP confidence Change in all GPs’ self-rated confidence in starting and having conversations pre and post pilot May 2010 ( n = 46) Sept 2010 ( n = 53)
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Editor's Notes

  1. NCPC the umbrella charitable body for palliative care: Influences government policy; Supports all sectors involved in providing, commissioning and using hospice and palliative care services; Promotes palliative care for all; Provides guidance on best practice Members of Dying Matters include: NHS, voluntary and independent health and care sectors, including hospices, care homes, charities supporting old people, children and bereavement, from social care and housing sectors, faith organisations, community organisations, schools and colleges, academic bodies, trade unions, the legal profession and from the funeral sector Our members are working together to encourage people to talk about their wishes including where they want to die and their funeral plans with friends, family and loved ones
  2. We ran a 4 month project with 24 GP practices – 59 GPs - participating - Support GPs in their conversations with patients & relatives about dying/death - Pilot communications materials that will assist GPs in communications with patients & relatives and the utility of the materials from a patient perspective in initiating and assisting with discussions about death, dying and bereavement.
  3. The evaluation included: GPs GP assessment of the utility and usefulness of the materials developed to help with : -Initiating appropriate conversations -Having approximate conversations GP views on the design of materials The numbers of people with whom GPs have initiated conversations. GP confidence / willingness to initiate conversations GP confidence whilst having conversations   Patients Patient’s views on the helpfulness of material used by GP. Patient’s views on the helpfulness of patient directed material. Patients views on the design of materials.  
  4. In 27 of the 155 conversations, DNAR was both discussed and recorded in the patient’s notes.