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By
Sheila Marie P. Oconer, RN,
MAN
REALITY TELLS US THAT
EVERY PERSON WILL DIE
LESS THAN 10% WILL DIE
SUDDENLY AND 90% WILL
DIE AFTER PROLONGED
ILLNESS
Experiences throughout lifetime defines the
way he or she wishes the end of own life
Family, culture, life events influences a
person choices facing life and death come
sooner rather than later
Anthropologist Margaret Mead says,
“When a person is born we rejoice, and
when they get married we jubilate, but
when they die we pretend nothing
happens”.
Talking about death and dying is often
difficult for nurses and patients, if
nurses does not want to talk about it
there is no discussion, and death
become the "elephant in the room”---
something unavoidable and taboo.
Communicating bad news is an
essential skills for the physician, nurses
and interdisciplinary team members
who interacts with the patient and
families
6 Steps to communicating Bad News
1. Get started
-plan what to say based on medical facts, create
conducive environment, determine who are others
persons present, and allocate ample time.
2. Find out what the patient knows
-assess his or her ability to comprehend bad news
3. Find out what the patient wants to know
-recognize and support patient’s preference to
decline information and designate someone else to
communicate in his/her behalf, consider cultural,
religious, and socioeconomic influences
4. Share information
-say it then stop. Pause frequently, check for
understanding and use silence and body
language, avoid vagueness, jargon and
euphemism
5. Respond to feelings
- expect affective, cognitive and fight-flight
responses., be prepared for strong emotions and
a broad range of reactions. Give time to react,
listen and encourage description of feelings. Use
nonverbal communication of touch and eye
contact
6. Plan/follow up
-provide additional test, symptom treatment,
and referrals as needed, discuss potential
sources of support, assess safety of the
patient and home supports before he/she
leaves . Repeat the news at future visits.
 Advance directives Help individual identify their
personal wishes in a legal manner and to share
that information with the people around them,
including medical personnel.
 Durable power of attorney, living will declaration,
appointment of health care representative, DNR
and life prolonging procedures declaration are all
legally recognized documents for indicating one’s
health care wishes
 Five Wishes (towey,2005) and Allow Natural Death
(AND) are 2 more recent options for stating end-
of-life care wishes.
CURATIVE/ACUTE CURE
 Life-prolonging and acute care options focus on cure
HOSPICE CARE
 Nonlife prolonging care, provide comfort and dignity at
end of life.
PALLIATIVE CARE
 Refers to comprehensive management of physical,
psychological, social, spiritual and existential needs of
the patient.
 Care of people with incurable and progressive illnesses
 Achieve the best quality of life, control of pain, and other
symptoms
Nurse’s primary
responsibilities is to
coordinate patient’s
care and to assist
with Symptom
Management or
Focus on treating
Symptom
Physical Non pain
symptoms
Respiratory – difficulty of
breathing, excess secretions,
anxiety
Gastrointestinal –
constipation, nausea/vomiting
 Anxiety and Delirium
Anxiety at end of life – loss of control, loss of self
esteem, loss of independence
 treating physical symptoms of pain and SOB, anti-
anxiety meds
Delirium – fluctuating cognitive disturbance, changes in
mental status, occurs in the last hours to days of most
dying patients
 environmental comfort by reducing stimuli,
reorientation, familiar person at bedside, health team
members providing emotional, social and spiritual
support, music therapy, therapeutic/healing touch,
nonmedical nursing interventions, anti-anxiety meds
given cautiously
 NUTRITION AND HYDRATION
Declining appetite for Dying persons,
less active body requires less
nourishment
Hydration is detrimental to fluid
overload
 Give bites rather than regular portions,
foods in variety
 Provide small amounts of fluid like
popsicles or ice chips, meticulous
 mouth care for dry mouth
 PHYSICAL, PAIN SYMPTOMS
“We all must die. But if I can save him from
days of torture, that is what I feel is my great
and ever new privilege. Pain is more terrible
Lord of mankind than even death itself”
Albert Schweitzer
Unrelieved pain can contribute to unnecessary suffering,
evidenced by sleep disturbance, hopelessness, loss of
control and impaired social interactions
Pain may hasten death by increasing physiological stress,
decreasing mobility, contributing to pneumonia and
thromboemboli
 Nurse must be able to assess pain, assist patient in
describing their pain, use Wong-Baker Pain Rating scale
 Treatment of pain based on origins and systematic
approach (pain meds and adjuvant)
 Pain meds remain the 1st line of tx
 Opiods are used if nonopiods ineffective
 Understanding between addiction and tolerance,
physical dependence
Physiological Type of Pain
 Nociceptive
- Somatic
Tissue injury
Skeletal system, soft tissue, joints, skin or connective tissue
Localized pain can be point by finger
Describe as throbbing, dull, aching, gnawing in nature
Treated with NSAIDs, steroids partially responsive to opiod
therapy or combinations
- Visceral
Activation of nociceptors
Internal organs
Unable to localize, may use open hand to show affected
area,pain is diffuse
Deep, aching, cramping or sensation of pressure
Very responsive to opiod therapy
Example is shoulder pain secondary to lung or liver metatases
 Neuropathic
-injury to peripheral nerve or CNS
Shooting, stabbing, burning, shock-like
Constant or intermittent
Less responsive to opiods, responds best to
anticonvulsants, tricyclic antidepressants
Ex. Herpes zoster or diabetic neuropathy
LOSS AND GRIEF
 Primary Losses
Loss of people close to them –
spouses, children, parents, siblings
 Secondary Losses
Are those resulting from the primary Loss-
companionship, roles the deceased assume
in relationship and independence
Grief – is the natural and normal loss of any kind
and is experienced psychologically, behaviorally,
socially and physically. It involves changes over
time
Mourning- is the cultural and/or public display of
grief through one’s behaviors. These include
accepting the reality of loss, reacting to separation,
and finding ways to channel reactions, handling
the unfinished business, and transferring the
attachment to the deceased from physical
presence to symbolic interaction.
COMPONENTS OF PEACEFUL DYING
“The key to peaceful dying is achieving the components
of peaceful living during the time you have left”
(Preston, 2000)
 Instilling good memories
 Uniting with family and medical staff
 Avoiding suffering, with relief of pain and other
symptoms
 Maintaining alertness, control, privacy, dignity and
support
 Becoming spiritually ready
 Saying goodbye
 Dying quietly
GOOD DEATH
 Is possible and can be facilitated by
the nurse who advocates for and
works to ensure that the patients,
families, and caregivers are free from
avoidable distress and suffering, that
the process is in accord with the wishes
of the patient, family, and that is
consistent with clinical, cultural, and
ethical standards.
POSTMORTEM CARE
Pronouncing Death
 Pronouncing the death of the person varies from state to
state and institution to institution, nurses may pronounce the
death, in some may not be allowed
 Policies differ and individual institutional polices are
followed
In pronouncing death, it is customary to identify the patient
and note the following;
 General appearance of the body
 Lack of reaction to verbal or tactile stimulation
 Lack of pupillary light reflex (pupils fixed and dilated)
 Absent breathing and lung sounds
 Absent carotid and apical pulses (listening for apical pulse is
full minute)
PHYSICAL CARE OF THE BODY
 IS AN IMPORTANT NURSING FUNCTION
 Careful and gentle handling of the body communicates
care and concern on the part of the nurse
 Rituals and customs should have been identified before
the death, to be incorporated into the care, reflecting
the patient/family wishes
 Nursing care also includes removal of drains, tubes, IVs
and other devices
The Nurse’s gratification does not come from caring, but
rather from supporting the patient in a peaceful and
dignified “ good death”.

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End of-life care

  • 1. By Sheila Marie P. Oconer, RN, MAN
  • 2.
  • 3. REALITY TELLS US THAT EVERY PERSON WILL DIE LESS THAN 10% WILL DIE SUDDENLY AND 90% WILL DIE AFTER PROLONGED ILLNESS
  • 4. Experiences throughout lifetime defines the way he or she wishes the end of own life Family, culture, life events influences a person choices facing life and death come sooner rather than later Anthropologist Margaret Mead says, “When a person is born we rejoice, and when they get married we jubilate, but when they die we pretend nothing happens”.
  • 5. Talking about death and dying is often difficult for nurses and patients, if nurses does not want to talk about it there is no discussion, and death become the "elephant in the room”--- something unavoidable and taboo. Communicating bad news is an essential skills for the physician, nurses and interdisciplinary team members who interacts with the patient and families
  • 6. 6 Steps to communicating Bad News 1. Get started -plan what to say based on medical facts, create conducive environment, determine who are others persons present, and allocate ample time. 2. Find out what the patient knows -assess his or her ability to comprehend bad news 3. Find out what the patient wants to know -recognize and support patient’s preference to decline information and designate someone else to communicate in his/her behalf, consider cultural, religious, and socioeconomic influences
  • 7. 4. Share information -say it then stop. Pause frequently, check for understanding and use silence and body language, avoid vagueness, jargon and euphemism 5. Respond to feelings - expect affective, cognitive and fight-flight responses., be prepared for strong emotions and a broad range of reactions. Give time to react, listen and encourage description of feelings. Use nonverbal communication of touch and eye contact
  • 8. 6. Plan/follow up -provide additional test, symptom treatment, and referrals as needed, discuss potential sources of support, assess safety of the patient and home supports before he/she leaves . Repeat the news at future visits.
  • 9.  Advance directives Help individual identify their personal wishes in a legal manner and to share that information with the people around them, including medical personnel.  Durable power of attorney, living will declaration, appointment of health care representative, DNR and life prolonging procedures declaration are all legally recognized documents for indicating one’s health care wishes  Five Wishes (towey,2005) and Allow Natural Death (AND) are 2 more recent options for stating end- of-life care wishes.
  • 10.
  • 11. CURATIVE/ACUTE CURE  Life-prolonging and acute care options focus on cure HOSPICE CARE  Nonlife prolonging care, provide comfort and dignity at end of life. PALLIATIVE CARE  Refers to comprehensive management of physical, psychological, social, spiritual and existential needs of the patient.  Care of people with incurable and progressive illnesses  Achieve the best quality of life, control of pain, and other symptoms
  • 12.
  • 13. Nurse’s primary responsibilities is to coordinate patient’s care and to assist with Symptom Management or Focus on treating Symptom
  • 14. Physical Non pain symptoms Respiratory – difficulty of breathing, excess secretions, anxiety Gastrointestinal – constipation, nausea/vomiting
  • 15.  Anxiety and Delirium Anxiety at end of life – loss of control, loss of self esteem, loss of independence  treating physical symptoms of pain and SOB, anti- anxiety meds Delirium – fluctuating cognitive disturbance, changes in mental status, occurs in the last hours to days of most dying patients  environmental comfort by reducing stimuli, reorientation, familiar person at bedside, health team members providing emotional, social and spiritual support, music therapy, therapeutic/healing touch, nonmedical nursing interventions, anti-anxiety meds given cautiously
  • 16.  NUTRITION AND HYDRATION Declining appetite for Dying persons, less active body requires less nourishment Hydration is detrimental to fluid overload  Give bites rather than regular portions, foods in variety  Provide small amounts of fluid like popsicles or ice chips, meticulous  mouth care for dry mouth
  • 17.  PHYSICAL, PAIN SYMPTOMS “We all must die. But if I can save him from days of torture, that is what I feel is my great and ever new privilege. Pain is more terrible Lord of mankind than even death itself” Albert Schweitzer
  • 18. Unrelieved pain can contribute to unnecessary suffering, evidenced by sleep disturbance, hopelessness, loss of control and impaired social interactions Pain may hasten death by increasing physiological stress, decreasing mobility, contributing to pneumonia and thromboemboli  Nurse must be able to assess pain, assist patient in describing their pain, use Wong-Baker Pain Rating scale  Treatment of pain based on origins and systematic approach (pain meds and adjuvant)  Pain meds remain the 1st line of tx  Opiods are used if nonopiods ineffective  Understanding between addiction and tolerance, physical dependence
  • 19. Physiological Type of Pain  Nociceptive - Somatic Tissue injury Skeletal system, soft tissue, joints, skin or connective tissue Localized pain can be point by finger Describe as throbbing, dull, aching, gnawing in nature Treated with NSAIDs, steroids partially responsive to opiod therapy or combinations - Visceral Activation of nociceptors Internal organs Unable to localize, may use open hand to show affected area,pain is diffuse Deep, aching, cramping or sensation of pressure Very responsive to opiod therapy Example is shoulder pain secondary to lung or liver metatases
  • 20.  Neuropathic -injury to peripheral nerve or CNS Shooting, stabbing, burning, shock-like Constant or intermittent Less responsive to opiods, responds best to anticonvulsants, tricyclic antidepressants Ex. Herpes zoster or diabetic neuropathy
  • 21. LOSS AND GRIEF  Primary Losses Loss of people close to them – spouses, children, parents, siblings  Secondary Losses Are those resulting from the primary Loss- companionship, roles the deceased assume in relationship and independence
  • 22. Grief – is the natural and normal loss of any kind and is experienced psychologically, behaviorally, socially and physically. It involves changes over time Mourning- is the cultural and/or public display of grief through one’s behaviors. These include accepting the reality of loss, reacting to separation, and finding ways to channel reactions, handling the unfinished business, and transferring the attachment to the deceased from physical presence to symbolic interaction.
  • 23. COMPONENTS OF PEACEFUL DYING “The key to peaceful dying is achieving the components of peaceful living during the time you have left” (Preston, 2000)  Instilling good memories  Uniting with family and medical staff  Avoiding suffering, with relief of pain and other symptoms  Maintaining alertness, control, privacy, dignity and support  Becoming spiritually ready  Saying goodbye  Dying quietly
  • 24. GOOD DEATH  Is possible and can be facilitated by the nurse who advocates for and works to ensure that the patients, families, and caregivers are free from avoidable distress and suffering, that the process is in accord with the wishes of the patient, family, and that is consistent with clinical, cultural, and ethical standards.
  • 25. POSTMORTEM CARE Pronouncing Death  Pronouncing the death of the person varies from state to state and institution to institution, nurses may pronounce the death, in some may not be allowed  Policies differ and individual institutional polices are followed In pronouncing death, it is customary to identify the patient and note the following;  General appearance of the body  Lack of reaction to verbal or tactile stimulation  Lack of pupillary light reflex (pupils fixed and dilated)  Absent breathing and lung sounds  Absent carotid and apical pulses (listening for apical pulse is full minute)
  • 26. PHYSICAL CARE OF THE BODY  IS AN IMPORTANT NURSING FUNCTION  Careful and gentle handling of the body communicates care and concern on the part of the nurse  Rituals and customs should have been identified before the death, to be incorporated into the care, reflecting the patient/family wishes  Nursing care also includes removal of drains, tubes, IVs and other devices
  • 27. The Nurse’s gratification does not come from caring, but rather from supporting the patient in a peaceful and dignified “ good death”.