Donall henderson ncpc
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The document discusses initiatives by the National Council for Palliative Care (NCPC) and Dying Matters Coalition to promote public health approaches to end of life care. It outlines the mission and membership of the Dying Matters Coalition, which aims to change attitudes towards death and dying. It also describes the Dying Well Community Charter and eight pilot sites implementing the charter and public health approaches at the local level. Finally, it promotes upcoming events like Dying Matters Awareness Week and expresses hopes that the "pathfinder" sites can catalyze community action around end of life care.
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This document introduces the concept of compassionate communities and a public health approach to end of life care. It argues that palliative care needs to expand beyond clinical settings and include community partners. The goals are to normalize discussions of death and dying, increase community involvement in end of life care through initiatives like memorial days and care mentors, and make end of life care everyone's responsibility rather than just the domain of health services. Key challenges include recognizing limits to services and bringing public health approaches and non-health sectors into end of life care.
Transforming the relationship with patients and communities (are we getting t...
This document discusses transforming the relationship between patients and the NHS to be more person-centered. It outlines that policies have increasingly focused on personalized care, evidence shows approaches like shared decision making and self-management support can improve outcomes. However, reality still lags rhetoric, with limited patient involvement and coordination of care. Fully engaging patients in their care can improve health, experiences, and outcomes, but cultural and organizational challenges remain. The document calls for prioritizing patient partnerships, reframing engagement as core to the NHS mission, and investing in skills and tools to realize more person-centered health systems.
Janet Ortega
The Care Quality Commission conducted a review of end of life care in England to examine inequalities. They found that while the quality of end of life care varies, some groups experience worse care coordination and have their needs overlooked. Specifically, people with conditions besides cancer, older adults, those with dementia or from minority groups may face barriers. The review highlighted examples of good local practices that promote personalized care and address inequalities. The CQC will use its findings to strengthen regulation and assessment of end of life care quality and encourage continued improvement in meeting individual needs.
End of life care in London
The London Assembly Health Committee has investigated the quality of care people receive at the end of their life. Does good end of life care depend on your age, whether you live alone, your diagnosis or economic status? Read the digital report's finding and recommendations.
Marc Wortmann
This document discusses dementia friendly communities and Alzheimer's Disease International's (ADI) efforts to promote them. ADI was established in 1984 and works to help Alzheimer associations around the world. It aims to raise global awareness of Alzheimer's and dementia. As of 2016, ADI had helped 26 countries establish national dementia plans. ADI also organizes World Alzheimer's Month each September to raise global awareness. ADI promotes the involvement of those with dementia and defines a dementia friendly community as a place where those with dementia can live fulfilling lives and are included. Examples of dementia friendly initiatives in countries like Japan, Belgium, and Singapore are provided.
How Health Professionals Can Promote Plant-Based Living
Dr. Shireen Kassam, medical doctor and passionate plant-based nutrition advocate discussed the important role that plant-based health professionals play in the broader vegan movement. Dr. Kassam is the founder of Plant-Based Health Professionals UK, an organization that educates health professionals, the public, and policymakers about the human health benefits of whole-food, plant-based nutrition.
Register here: https://info.vegfund.org/plant-based-living-webinar
If you’re a plant-based health and wellness professional, this webinar will show you creative and practical ways to spread the word about plant-based living.
Discover what you need as a health professional to take your plant-based advocacy to the next level!
In this webinar, you’ll learn how to:
Use your knowledge and experience as a health professional to promote plant-based living
Incorporate creative yet practical advocacy strategies
Adapt your messaging and outreach to the needs of different audiences
Overcome the challenges you’ll face while helping patients understand and follow plant-based dietary guidance
Acquire the skills and knowledge you need for successful plant-based advocacy
Apply the lessons learned by Plant-Based Health Professionals UK on their journey
Support Sheet 6: Dignity in end of life care
Dignity should be accorded to all people receiving end-of-life care, especially dying patients and their families. The Department of Health established ten principles for dignified care, including treating each person with respect, enabling independence and choice, listening to needs and wishes, and ensuring privacy. These principles involve holistic needs assessments, advance care planning, and engaging family members to plan care that maintains confidence and alleviates loneliness for those nearing the end of life.
Working together to improve community engagement in care homes - Joint HSC an...
An event showcasing good practice learning and examples of great connections between care homes and their local communities.
www.myhomelife.org.uk
Citizen Directed Support
Slides from talks given to Anglesey Council on how to develop Citizen Directed Support locally and in Wales. Covering (1) problems in design of welfare state (2) history of innovations (3) key ideas and reforms (4) challenge of making changes work.
#Caring4NHSPeople - virtual wellbeing session 10 June 2020
This document summarizes a virtual community meeting to support the health and wellbeing of NHS people during the Covid-19 response. The meeting will include introductions from participants, an update on the national support offer, a discussion on supporting leaders, a presentation on compassion from Professor Michael West, and a conversation on experiences supporting staff wellbeing. Participants will also have the opportunity to complete a survey on their experiences for a chance to win a coaching session. The aim of the weekly sessions is to offer support, share wellbeing activities, and connect people supporting NHS staff health and wellbeing.
Tier 4 Information for Service Users
This document provides information about residential detoxification and rehabilitation services offered by Turning Point. They offer:
- Continuous support before, during, and after treatment to work with each individual.
- Person-centered support without a one-size-fits-all approach, understanding each person's unique journey and goals.
- Help uncovering personal resources like family relationships and self-determination to support recovery.
- A safe environment to practice independent living skills and engage with the community while abstaining from substances.
It then describes what is expected of clients in their recovery plans and lists contact information.
Dr Shibley Rahman book launch February 2017
This document provides information about an event to discuss integrated care for dementia and the launch of a new book on the topic. The event will feature several speakers discussing different aspects of dementia care from various perspectives, including clinical psychology, technology, acute hospitals, care homes, and hospices. It will include a panel discussion on making person-centered integrated care a reality and the benefits of involving those with dementia and their caregivers in services and research. The event aims to stimulate discussion on providing the best possible health, wellbeing, and care for those living with dementia through a holistic and collaborative approach.
Music Therapy in Dementia Care
Community Integrated Care is a large UK charity that provides health and social care services to over 5,000 people. They are responding to a new Scottish law that aims to better integrate health and social care. One of their initiatives is a "Playlist for Life" project led by Kelly Henderson that creates personalized playlists based on people's lives for those living with dementia. These playlists have had incredible impacts, improving moods and awareness while helping people retain their identities.
Smile
Mind is a mental health charity in England and Wales that has been operating for over 70 years. It was originally founded in 1946 and called the National Association for Mental Health. Mind provides information and advice to those experiencing mental health problems and advocates on their behalf to the government and local authorities. It also aims to raise awareness of mental health issues. Mind's services are provided both directly through local associations across England and Wales as well as indirectly through campaigns, resources and awards.
Smile 3
Mind is a mental health charity founded in England and Wales in 1946, originally known as the National Association for Mental Health. It offers information, advice, and advocacy to those with mental health problems, and lobbies the government and local authorities on their behalf. Mind also works to raise awareness of mental health issues and hosts annual media awards that recognize positive portrayals of mental health. It is made up of over 130 local associations that provide various mental health services in their communities.
Who Put Out the Fire? The state of services for people with learning difficul...
This talk was given to commissioners of services for people with learning disabilities in Darlington by Dr Simon Duffy of the Centre for Welfare Reform. It argues that the people currently institutionalised in private hospitals are showing us that the whole community care system is unacceptable and that we need to start recognising that it is a system of ghettos.
ILC-UK Future of Ageing Presentation Slides - 09Nov16
On Wednesday 9th November 2016, ILC-UK held it's second annual future of Ageing conference.
We welcomed over 180 delegates made up of business leaders; charity sector experts; public sector decision makers; local authority staff; academics; and senior journalists.
The one day conference was chaired by Baroness Slly Greengross OBE and Lawrence Churchill CBE, and we heard from the following speakers:
- Dr Islene Araujo de Carvalho, Senior Policy and Strategy Adviser, Department of Ageing and Life Course, WHO
- John Cridland CBE, Head of the Independent State Pension Age Review
- The Rt Rev. and the Rt Hon. the Lord Carey of Clifton, Archbishop of Canterbury 1991-2002
- Ben Franklin, Head of Economics of an Ageing Society, ILC-UK
- Professor Sarah Harper, Director, Oxford Institute of Population Ageing
- Dwayne Johnson, Director of Social Care and Health at Sefton Metropolitan Borough Council
- Dr Margaret McCartney, Author and Broadcaster
- John Pullinger CB, National Statistician, UK Statistics Authority
- David Sinclair, Director, ILC-UK
- Jonathan Stevens, Senior Vice President, Thought Leadership, AARP
- Linda Woodall, Director of Life Insurance and Financial Advice, and sponsor of the Ageing Population project, Financial Conduct Authority
Dimensions Autism Summit 2022 conference presentation
In February we welcomed social care, autism, autistic and other experts to discuss some of the pressing issues in the autism sector for 2022. We will publish thought papers about each topic, to help progress thinking on how society can become more inclusive for autistic people.
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Donall henderson ncpc
- 1. www.ncpc.org.uk www.dyingmatters.org From National Perspective to Community Initiatives Donall Henderson NI Regional Representative NCPC CEO Foyle Hospice donallhenderson@foylehospice.com @FoyleHospice
- 2. www.ncpc.org.uk THE DYING MATTERS COALITION Set up by the NCPC for all those involved in palliative care, to support the 2008 End of Life Care Strategy We are a broad based, inclusive national Coalition, working in partnership, with over 30,000 members - across the NHS, voluntary and independent health sectors, social care, housing, faith and belief groups, community, pensioner, retirement organisations, schools, academia, legal, insurance, finance & funeral sectors • “Support changing knowledge, attitudes and behaviours towards death, dying and bereavement, and through this to make ‘living and dying well’ the norm.” Our Mission:
- 3. www.ncpc.org.uk The Dying Well Community Charter • Commissioned by PHE • To review the “Good Death Charter” • RCGP & RCN agreed to support rather than revise their own charter • Consultation & revision • Published alongside the Public Health Approaches toolkit • Brief to “roll it out” in 6 places www.dyingmatters.org
- 4. www.ncpc.org.uk 8 Pathfinders/Pioneers www.ncpc.org.uk • Lancaster (St. John’s Hospice) • Hull (Dove House Hospice) • Liverpool (CCGs) • Cheshire (End of Life Partnership) • Birmingham (CCGs) • Weston-super-mare (Weston Hospicecare) • Hackney (Health and Wellbeing Board) • Dorset (Conscious Ageing Trust & Compassionate Community)
- 5. www.ncpc.org.uk “Dying and death do not happen in isolation from the rest of life. People who are dying may not wish to be isolated and disconnected from their communities. There is more to do to engage communities in the end of life so that those affected by dying and death do not feel abandoned and socially isolated. Care for one another at times of crisis and loss is not simply a task for health and social care services but is everybody’s responsibility.” www.ncpc.org.uk
- 8. www.ncpc.org.uk Whose dying is it? • Western model of individual autonomy? • Relational autonomy? • Community? www.dyingmatters.org
- 9. www.ncpc.org.uk I didn’t know that www.ncpc.org.uk
- 11. www.ncpc.org.uk Bereavement • 32% of those bereaved in last 5 years said they had not been treated with compassion • 87%: Employers should have a compassionate employment policy inc bereavement leave • 56% would consider leaving their job if they weren’t properly supported in bereavement www.dyingmatters.org
- 14. www.ncpc.org.uk Evaluation • Five fields of activity o Awareness & Conversation around Dying o Support in local groups/organisations o Practical support o Meeting care needs o Prioritisation of end of life care www.dyingmatters.org
- 16. www.ncpc.org.uk National Choice Review “We support public health approaches to end of life care, for example the Dying Well Community Charter, published by the National Council for Palliative Care and Public Health England, and the Compassionate Cities approach and advise that health and social care commissioners include initiatives to support and strengthen community resilience and involvement in end of life care in their plans” www.ncpc.org.uk
- 17. www.ncpc.org.uk Dying Matters Awareness Week www.ncpc.org.uk Monday 9th – Sunday15th May 2016
- 18. www.ncpc.org.uk Our hopes • “Pathfinders” is a very deliberate use of language • New territory • Collaborate, learn, share, support • Catalyse community action and unleash a new movement • Making sure that we know we are making a difference • Support into 2015/16 www.dyingmatters.org