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Finnish Institute for Health and Welfare
interRAI knowledge on national level –
from data to policies and legislation
2nd World interRAI conference 2020, Leuven, Belgium
Anja Noro, PhD, Research Professor & RAI contributors in
Finland
Finnish Institute for Health and Welfare
Availability of data
Need for data for national steering
Trends in statistics
New challenges and possibilities
From data to knowledge management
Anja Noro 05/02/2020 2
Data for national steering and legislation
• Act on Supporting the Functional Capacity of the Ageing
Population and on Social and Health Care Services for Elderly
people (2013) and forthcoming adjustments (2020)
• Addition: Staffing ratio of 0.7 for all long term care (24/7) services
• Addition: Mandating RAI system in home and long-term (24/7) care
• Quality Recommendations 2001, 2008, 2013, 2017, and 2020
• Act on informal care – informal care fee and services (2005->
2015)
• Act on foster care (2015) and specifications for foster care for
older people (2016)
05/02/2020Anja Noro 3
Data availability in Finland
• Wide administrative registers (use of health and social
services, medications, deaths, etc.)
• Longitudinal population surveys on households, health,
attitudes, etc. since 1970
• Follow-up of the elderly care act on unit level: staffing and
functioning models since 2013
• Implementation and benchmarking with RAI in home
care and LTC since 2000
05/02/2020Anja Noro 4
Tackling the ageing of the population in
Finland
- statistics according to age (1-year)
05/02/2020Anja Noro 5
Proportion (%) of 75 + years old in services
in years 2001 – 2018. Source: © THL, Statistics and Indicator
Sotkanet.fi 2005-2020
04/02/2020Anja Noro 6
Trends in physical (ADL_H, 0-6) and cognitive
performance (CPS, 0-6) among assessed clients in 2000-
2019 in LTC (24/7)
05/02/2020Anja Noro 7
Costs of care for older people in Finland
in 2015 - 2019
05/02/2020Anja Noro 8
Net costs of services €/resident by region
05/02/2020Anja Noro 9
Use of interRAI data on national level
• Impact assessment for preparing legislation
• Impact on clients, their families, staff, management,
performance and quality, service organizers and providers,
costs, etc.
• Before and after follow-up design
• Bottom-up  Top-down  Bottom-up  Top-down  …
05/02/2020Anja Noro 10
Use of the available data on national
planning and steering has challenges
• Legal basis on data collection
• For register based research (linking on individual level) a
special procedure needed (GDPR, Findata 2020-)
• More information available on service use than on
prevention and promotion for older people on population
level
• new approaches needed for finding risk populations based on
big data
05/02/2020Anja Noro 11
Challenges for further work in knowledge
management
• National or regional efforts in combining available
information needed - Open access?
• Use of health and wellbeing technologies on individual
level and increase in self-reports and self-assessments
via internet
• A lot of evidence available but the challenge remains
whether it is used in an optimal way or format?
05/02/2020Anja Noro 12
THANK YOU!
Contact:
anja.noro@thl.fi
05/02/2020Anja Noro 13

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InterRAI knowledge on national level – from data to policies and legislation - Anja Noro

  • 1. Finnish Institute for Health and Welfare interRAI knowledge on national level – from data to policies and legislation 2nd World interRAI conference 2020, Leuven, Belgium Anja Noro, PhD, Research Professor & RAI contributors in Finland Finnish Institute for Health and Welfare
  • 2. Availability of data Need for data for national steering Trends in statistics New challenges and possibilities From data to knowledge management Anja Noro 05/02/2020 2
  • 3. Data for national steering and legislation • Act on Supporting the Functional Capacity of the Ageing Population and on Social and Health Care Services for Elderly people (2013) and forthcoming adjustments (2020) • Addition: Staffing ratio of 0.7 for all long term care (24/7) services • Addition: Mandating RAI system in home and long-term (24/7) care • Quality Recommendations 2001, 2008, 2013, 2017, and 2020 • Act on informal care – informal care fee and services (2005-> 2015) • Act on foster care (2015) and specifications for foster care for older people (2016) 05/02/2020Anja Noro 3
  • 4. Data availability in Finland • Wide administrative registers (use of health and social services, medications, deaths, etc.) • Longitudinal population surveys on households, health, attitudes, etc. since 1970 • Follow-up of the elderly care act on unit level: staffing and functioning models since 2013 • Implementation and benchmarking with RAI in home care and LTC since 2000 05/02/2020Anja Noro 4
  • 5. Tackling the ageing of the population in Finland - statistics according to age (1-year) 05/02/2020Anja Noro 5
  • 6. Proportion (%) of 75 + years old in services in years 2001 – 2018. Source: © THL, Statistics and Indicator Sotkanet.fi 2005-2020 04/02/2020Anja Noro 6
  • 7. Trends in physical (ADL_H, 0-6) and cognitive performance (CPS, 0-6) among assessed clients in 2000- 2019 in LTC (24/7) 05/02/2020Anja Noro 7
  • 8. Costs of care for older people in Finland in 2015 - 2019 05/02/2020Anja Noro 8
  • 9. Net costs of services €/resident by region 05/02/2020Anja Noro 9
  • 10. Use of interRAI data on national level • Impact assessment for preparing legislation • Impact on clients, their families, staff, management, performance and quality, service organizers and providers, costs, etc. • Before and after follow-up design • Bottom-up  Top-down  Bottom-up  Top-down  … 05/02/2020Anja Noro 10
  • 11. Use of the available data on national planning and steering has challenges • Legal basis on data collection • For register based research (linking on individual level) a special procedure needed (GDPR, Findata 2020-) • More information available on service use than on prevention and promotion for older people on population level • new approaches needed for finding risk populations based on big data 05/02/2020Anja Noro 11
  • 12. Challenges for further work in knowledge management • National or regional efforts in combining available information needed - Open access? • Use of health and wellbeing technologies on individual level and increase in self-reports and self-assessments via internet • A lot of evidence available but the challenge remains whether it is used in an optimal way or format? 05/02/2020Anja Noro 12