Introduction to panel where Standards Developing Organization and National Competence Centers discuss the scope of the European SDO platform reflecting on earlier presentations.
Presentation by Kelly Hart, ONDC in PM&C, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Presentation by Hugo Leroux and Liming Zhu, CSIRO, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Presentation by Kelly Hart, ONDC in PM&C, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Presentation by Hugo Leroux and Liming Zhu, CSIRO, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
International perspective for sharing publicly funded medical research dataARDC
Presentation by Olivier Salvado, CSIRO, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Investigator-initiated clinical trials: a community perspectiveARDC
Presentation by Miranda Cumpston, ACTA, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Kuchinke Clinical Trials Networks supported by tools and servicesWolfgang Kuchinke
Clinical Trials Networks supported by Tools and Services from Infrastructure Projects.
International clinical trials are a challenge to management. Though, the number of clinical trials worldwide is increasing by around 10% per year, approvals for new molecule entities and biomedical licenses show little long-term increase. Main challenges are the need to recruit and retain sufficient numbers of patients and the successful implementing e-Clinical Trials technologies, especially for trials incorporating ePRO (patient reported outcome) and eRecruitment services. We suggest that clinical trials networks should cooperate with infrastructure projects to enable the implementation of eTrials and patient-centric trials.
Clinical trials systems can be optimised by coordination through information sharing and collaboration and by building networks. Here infrastructures can function as enablers by the provision of
software tools, especially patient centric trials, ePRO (Patient Reported Outcome) and data collection and recruitment using EHRs (Electronic Health Records) and the implementation of nessessary data protection, privacy protection and identity management. As example for a clinical trials network ECRIN is addressed. ECRIN is a public, non-profit organisation that links scientific partners and networks across Europe to facilitate multinational clinical research. We suggest the integration of clinical research at ECRIN with several infrastructure services developed by BBMRI, EATRIS, EUDAT, TransForm, p-medicine, BioMedBridges, etc., resulting in an increase in interoperability of clinical data management, biobanking, genetic databases, Electronic Health Records (EHR), query systems, data warehouses, data repositories and imaging data.
Sshoc kick off meeting - 1.4.1 ENVRI-FAIR: Environmental Research Infrastruct...SSHOC
SSHOC Kick-Off Meeting. Utrecht, The Netherlands, 11-12 March 2019
ENVRI-FAIR: Environmental Research Infrastructures building FAIR services accessible for society, innovation and research - Ari Asmi
Enabling Re-Use and Sustainability: The role of information infrastructure fu...Platforma Otwartej Nauki
Conference Opening Science to Meet Future Challenges, Warsaw, March 11, 2014, organized by Interdisciplinary Centre for Mathematical and Computational Modelling, University of Warsaw.
The Isaacus -Digital Health HUB closing event 1.11.2018
Liisa-Maria Voipio-Pulkki / Ministry of Social affairs and Health
"What will come next? How does the future look for us?"
First eStandards conference Healthcare Executives Panel Dipak Kalrachronaki
This is the introduction to a panel in the first eStandards conference aiming to bring together with Hospital CIOs, actors in the healthcare system: representative of payers, healthprofessionals to get a sense of the issues with interoperability in largescale eHealth deployment. Here Prof. Dipak Kalra provides the perspective of a health professional
International perspective for sharing publicly funded medical research dataARDC
Presentation by Olivier Salvado, CSIRO, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Investigator-initiated clinical trials: a community perspectiveARDC
Presentation by Miranda Cumpston, ACTA, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Kuchinke Clinical Trials Networks supported by tools and servicesWolfgang Kuchinke
Clinical Trials Networks supported by Tools and Services from Infrastructure Projects.
International clinical trials are a challenge to management. Though, the number of clinical trials worldwide is increasing by around 10% per year, approvals for new molecule entities and biomedical licenses show little long-term increase. Main challenges are the need to recruit and retain sufficient numbers of patients and the successful implementing e-Clinical Trials technologies, especially for trials incorporating ePRO (patient reported outcome) and eRecruitment services. We suggest that clinical trials networks should cooperate with infrastructure projects to enable the implementation of eTrials and patient-centric trials.
Clinical trials systems can be optimised by coordination through information sharing and collaboration and by building networks. Here infrastructures can function as enablers by the provision of
software tools, especially patient centric trials, ePRO (Patient Reported Outcome) and data collection and recruitment using EHRs (Electronic Health Records) and the implementation of nessessary data protection, privacy protection and identity management. As example for a clinical trials network ECRIN is addressed. ECRIN is a public, non-profit organisation that links scientific partners and networks across Europe to facilitate multinational clinical research. We suggest the integration of clinical research at ECRIN with several infrastructure services developed by BBMRI, EATRIS, EUDAT, TransForm, p-medicine, BioMedBridges, etc., resulting in an increase in interoperability of clinical data management, biobanking, genetic databases, Electronic Health Records (EHR), query systems, data warehouses, data repositories and imaging data.
Sshoc kick off meeting - 1.4.1 ENVRI-FAIR: Environmental Research Infrastruct...SSHOC
SSHOC Kick-Off Meeting. Utrecht, The Netherlands, 11-12 March 2019
ENVRI-FAIR: Environmental Research Infrastructures building FAIR services accessible for society, innovation and research - Ari Asmi
Enabling Re-Use and Sustainability: The role of information infrastructure fu...Platforma Otwartej Nauki
Conference Opening Science to Meet Future Challenges, Warsaw, March 11, 2014, organized by Interdisciplinary Centre for Mathematical and Computational Modelling, University of Warsaw.
The Isaacus -Digital Health HUB closing event 1.11.2018
Liisa-Maria Voipio-Pulkki / Ministry of Social affairs and Health
"What will come next? How does the future look for us?"
First eStandards conference Healthcare Executives Panel Dipak Kalrachronaki
This is the introduction to a panel in the first eStandards conference aiming to bring together with Hospital CIOs, actors in the healthcare system: representative of payers, healthprofessionals to get a sense of the issues with interoperability in largescale eHealth deployment. Here Prof. Dipak Kalra provides the perspective of a health professional
PanCareSurPass @SIOP Europe/CCI Europe Meeting 2021, Riccardo HauptKylieOBrien10
Research Manager Dr. Riccardo Haupt presented the PanCareSurPass project at the ‘PanCare and ELTEC – Late effects’ session of the SIOP Europe/CCI Europe Meeting 2021 on 28th April 2021.
PanCareSurPass has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 89999. The material presented and views expressed here are the responsibilities of the author(s) only. The EU Commission takes no responsibility for any use made of the information set out.
Towards an international Patient Summary Standardchronaki
Starting from Trillium Bridge, this presentation delivered in the Dutch eHealthWeek 2016, in the EU/US MoU session reflects on the past, present and future activities towards an international patient summary.
Connected health data meets the people: Diversity, Standards, and Trustchronaki
Using health data in a connected world requires new competencies, a personal digital health compass calibrated to individual personalities and needs. Patients and clinicians able to collect and manage data, data-operational informatics professionals able to analyze data, and cutting-edge researchers, innovators, and educators able to apply knowledge, will take learning health systems to the next level.
In this EFMI-HL7 event using innovative technology and surprises to engage the audience, we will discuss strategies for empowering and activating people to engage, share and use their health data. We will point to diversity, trust and open standards like HL7 FHIR to open up access and capacities to manage data safely for patients, care-givers, and the health system.
The Maturing Telemedicine Infrastructure in Denmark: Building the Human Capital, Morten Bruun-Rasmussen, CEO MEDIQ
Health Professional Education in Biomedical & Health Informatics: the EFMI AC2 approach, Professor John Mantas, University of Athens, Greece, EFMI Past President
Digital health literacy: a necessity for Activating Citizens, Professor Anne Moen, University of Oslo, Norway, VP for IMIA, European Federation for Medical Informatics
“Internet of People”: Elements of Trust and Risk, Eva Turk, DNVGL.
Workforce meets volumes of electronic information: Why and how HL7 FHIR creates value for stakeholders in learning health systems. Doug Fridsma, President and CEO, American Medical Informatics Association, US
The need for interoperability in blockchain-based initiatives to facilitate c...Massimiliano Masi
Slides for the IEEE Blockchain Symposium in Glasgow, https://blockchain.ieee.org/standards/clinicaltrialseurope18, https://blockchain.ieee.org/standards/clinicaltrialseurope18/speakers
Digital Enlightment Forum: Towards a European ecosystem for health care data
Presentation of eStandards/Trillium II at the workshop of the Digital Enlightment Forum
eHealth Practice in Europe: where do we stand?chronaki
eHealth as the use of Information and communication technologies in the practice of health care comprises Electronic health records, Healthcare information exchange cross-jurisdictions, Personal health records, Telehealth, telemedicine and remote monitoring.
There are several efforts to reflect and measure the practice of eHealth including efforts by the OECD and WHO, but in general there is little reported sharing of health data particularly with patients. Specific barriers frequently mentioned are supporting policies and coherent widely implemented standards.
The presentation discusses relevant efforts and programs supported by the European Commission such as the eHealth DSI, eStandards, ASSESS CT, and openMedicine aiming at large scale eHealth adoption It calls for engagement of European Society, its national societies, and its members.
"The value of a European approach to mHealth in cancer Unleashing the mHealth...3GDR
The value of a European approach to mHealth in cancer
Unleashing the mHealth potential for cancer patients
Pēteris Zilgalvis
Head of Unit Health and Wellbeing
DG Communications Networks, Content and Technology
Peteris Zilgalvis, Head of the Health & Wellbeing Unit, European Commission, DG
-----
This was presented at the "Unleashing the mHealth potential for cancer patients" event held on Wednesday 25th May 2016 (16:30-18:30pm) in the European Parliament.
#mHealthCancer
"mHealth and eHealth are becoming realities in Europe: this is demonstrated by the growing size of mHealth apps’ market, by the raising investments in eHealth infrastructures and by the fast adoption, at various degrees, of mHealth applications by patients.
The burden of cancer is also raising: more than 10 million EU citizens are affected by cancer, incidence and prevalence are growing, and the socio-economic impact of cancer heavily burdens both healthcare systems and cancer patients.
The recent political agreement on the text the General Data Protection Regulation and the production of the Privacy Code of Conduct mHealth apps further stir the debate regarding the use of new mHealth technologies within cancer care pathways.
Are cancer patients enjoying the benefits of mHealth?
In which field can cancer patients profit the most from mHealth apps?
Is the regulatory framework supporting the development of useful and safe mHealth apps for cancer patients?
Are there other structural obstacles to the full integration of mHealth apps in the cancer patients’ journey?"
The event will be hosted by MEP Cristian-Silviu Busoi (EPP, Romania), one of ECPC closest champions within the European Parliament and a knowledgeable supporter of the development of eHealth/mHealth in Europe.
The event was followed by a cocktail reception.
Join the discussion on Twitter using #mHealthCancer The event is part of the initiatives for the
2016 European Week Against Cancer #EWAC2016
More information can be found on the European Cancer Patient Coalition's website:
http://www.ecpc.org/pressroom/events/icalrepeat.detail/2016/04/26/61/-/-
January 23, 2017
The Fifth Annual Health Law Year in P/Review symposium featured leading experts discussing major developments during 2016 and what to watch out for in 2017. The discussion at this day-long event covered hot topics in such areas as health policy under the new administration, regulatory issues in clinical research, law at the end-of-life, patient rights and advocacy, pharmaceutical policy, reproductive health, and public health law.
The Fifth Annual Health Law Year in P/Review was sponsored by the Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School, Harvard Health Publications at Harvard Medical School, Health Affairs, the Hastings Center, the Program On Regulation, Therapeutics, And Law (PORTAL) in the Division of Pharmacoepidemiology and Pharmacoeconomics at Brigham and Women’s Hospital, and the Center for Bioethics at Harvard Medical School, with support from the Oswald DeN. Cammann Fund.
Learn more on our website: http://petrieflom.law.harvard.edu/events/details/5th-annual-health-law-year-in-p-review
Scaling up innovation in healthcare - A Methodology Framework 2015Marc Lange
This presentation introduce a methodology scaling-up developed by "doers and shapers" internationally known for their expertise in eHealth and digital health
Similar to First eStandards conference Panel of the European SDO Platform (20)
In search of a Digital Health CompassPatient Empowerment chronaki
Presentation of the digital health compass in the Portuguese eHealth Summer Week with Anne Moen (U of Oslo), Catherine Chronaki (HL7), Rita Mendes (SPMS). Great moderation by Constantino Sakellarides, ENSP.
In search of a digital health compass: My data, my decision, our powerchronaki
Knowledge is power. Despite extensive investments in digital health technology, navigating the health system online is challenging for most citizens. Also for eHealth, the “Inverse Care Law” proposed by Hart in 1971, seems to apply. Availability of good medical or social care services and tools online, varies inversely with the need of the population. The low adoption of eHealth services, and persistent disparities in health triggers a call for multidisciplinary action.
Barriers and challenges are not to be underestimated. Culture, education, skills, costs, perceptions of power and role, are essential for multidisciplinary action. This comes together in digital health literacy, which ought to become an integral part to navigate any health system. Patients living with an implanted device or coping with persistent, chronic disease such as diabetes, as well as citizens engaged in self-care, caring for an elderly relative, a neighbor, or their child with illness or deteriorating health, need a digital health compass.
The panel will engage the audience to elaborate on a vision for this personal, digital health compass and drive advancement in health informatics and digital health standards. The transformative power of health data fueled by targeted digital health literacy interventions can be leveraged by open, massive, and individualized delivery. This way, digital health literate, confident patients and citizens join health professionals, researchers and policy makers to address age-related health and wellness changes to shape the emerging precision medicine and population health initiatives.
From a panel in the eHealthweek 2016. http://www.ehealthweek.org/ehome/128630/hl7-efmi-sessions/
First eStandards conference Industry Panelchronaki
Introduction and questions to the Industry Panel at the first eStandards conference: next steps towards standardization in large scale eHealth deployment
eHealth Consumers in the Age of Hyper-Personalizationchronaki
Where the Internet of Things meets healthcare we see a plethora of tools, gadgets, and apps that promise to improve life, health, and independence. As patients, family members ofr friends, we are subsumed under the term "eHealth consumers”. For us it is increasingly hard to navigate in the unfolding digital reality dominated by new gadgets, and fragmented information, data, and knowledge we don’t control. More personalized and targeted products, services, and content could alleviate this. In this slide deck we are specifically focusing on challenges and opportunities for personalization in view of varying eHealth literacy, lifestyle and health goals.
First eStandards conference Healthcare Executives Panel: Vanja Pajicchronaki
This is the introduction to a panel in the first eStandards conference aiming to bring together with Hospital CIOs, actors in the healthcare system: representative of payers, health professionals to get a sense of the issues with interoperability in largescale eHealth deployment. This is the perspective of the payer dealing with cross-border issues
First eStandards conference Healthcare Executives Panel: Bernd Bernardchronaki
This is the introduction to a panel in the first eStandards conference aiming to bring together with Hospital CIOs, actors in the healthcare system: representative of payers, health professionals to get a sense of the issues with interoperability in largescale eHealth deployment. This is the perspective of the CIO of a large hospital.
First eStandards conference Healthcare Executives Panel: Domingos Pereirachronaki
This is the introduction to a panel in the first eStandards conference aiming to bring together with Hospital CIOs, actors in the healthcare system: representative of payers, health professionals to get a sense of the issues with interoperability in largescale eHealth deployment. Here Domingos Silva Pereira provides the perspective of the CIO in a large Portuguese hospital.
First eStandards conference Healthcare Executives Panel Introductionchronaki
This is the introduction to a panel in the first eStandards conference aiming to bring together with Hospital CIOs, actors in the healthcare system: representative of payers, healthprofessionals to get a sense of the issues with interoperability in largescale eHealth deployment.
1st eStandards conference: next steps for standardization in large scale eHea...chronaki
This is a presentation on the role of tools for eHealth standards that would accelerate standards development and adoption for large scale eHealth deployment that is affordable and sustainable. More at www.estandards-project.eu
Patient summaries in the Learning Health System: reflections from the Trilliu...chronaki
This presentation links the Trillium Bridge recommendations to data on the use of eHealth by primary care physicians in Europe and the aspirations of the Learning health system. We ask the question: what would be the role of patient summaries in the Learning Health System?
Information+Integration ? Innovation an HL7/EFMI/HIMSS @eHealthweek2015 in Rigachronaki
Join us to explore “Interoperability in action: information + integration = innovation?” and engage in lively debate on how rethinking interoperability standards and continuing education can bridge divides, change cultures, and open markets!
Perspectives from health management, industry, government, health education, and standardization exemplify challenges and opportunities for liberation of data that can drive desired social and technological innovation.
This is a call for action to explore how the partnership of HL7, EFMI and HIMSS can catalyze the equation “information + integration = innovation” to bridge divides, change culture and open markets.
eStandards: eHealth Standards & Profiles in Action for Europe and beyondchronaki
eStandards: eHealth Standards & Profiles in Action for Europe and beyond is a new EC Support action under Horizon 2020, Personalizing Healthcare Program 34, which aims to nurture large scale eHealth deployment in Europe and Beyond with standards that are easy to use, accessible, and affordable in the fast pacing wold we live in.
Status Report of the Trillium Bridge project which demonstrates the technical feasibility of European and US providers exchanging and transforming patient summaries using HL7 standards and IHE profiles. Presentation associated with the demonstration of EHR Patient Summary exchange between Kaiser Permanente in the US and the European Union (Spain, Portugal, and Luxemburg).
EU and US providers exchanging patient summaries: The case of Martha a US cit...chronaki
Update on the Trillium Bridge Project: bridging patient summaries across the Atlantic.
Presentation and demo of provider to provider mediated scenario in the EU/US Marketplace event, State House, Oct 22 in Boston, MA
NVBDCP.pptx Nation vector borne disease control programSapna Thakur
NVBDCP was launched in 2003-2004 . Vector-Borne Disease: Disease that results from an infection transmitted to humans and other animals by blood-feeding arthropods, such as mosquitoes, ticks, and fleas. Examples of vector-borne diseases include Dengue fever, West Nile Virus, Lyme disease, and malaria.
Knee anatomy and clinical tests 2024.pdfvimalpl1234
This includes all relevant anatomy and clinical tests compiled from standard textbooks, Campbell,netter etc..It is comprehensive and best suited for orthopaedicians and orthopaedic residents.
New Drug Discovery and Development .....NEHA GUPTA
The "New Drug Discovery and Development" process involves the identification, design, testing, and manufacturing of novel pharmaceutical compounds with the aim of introducing new and improved treatments for various medical conditions. This comprehensive endeavor encompasses various stages, including target identification, preclinical studies, clinical trials, regulatory approval, and post-market surveillance. It involves multidisciplinary collaboration among scientists, researchers, clinicians, regulatory experts, and pharmaceutical companies to bring innovative therapies to market and address unmet medical needs.
Couples presenting to the infertility clinic- Do they really have infertility...Sujoy Dasgupta
Dr Sujoy Dasgupta presented the study on "Couples presenting to the infertility clinic- Do they really have infertility? – The unexplored stories of non-consummation" in the 13th Congress of the Asia Pacific Initiative on Reproduction (ASPIRE 2024) at Manila on 24 May, 2024.
Prix Galien International 2024 Forum ProgramLevi Shapiro
June 20, 2024, Prix Galien International and Jerusalem Ethics Forum in ROME. Detailed agenda including panels:
- ADVANCES IN CARDIOLOGY: A NEW PARADIGM IS COMING
- WOMEN’S HEALTH: FERTILITY PRESERVATION
- WHAT’S NEW IN THE TREATMENT OF INFECTIOUS,
ONCOLOGICAL AND INFLAMMATORY SKIN DISEASES?
- ARTIFICIAL INTELLIGENCE AND ETHICS
- GENE THERAPY
- BEYOND BORDERS: GLOBAL INITIATIVES FOR DEMOCRATIZING LIFE SCIENCE TECHNOLOGIES AND PROMOTING ACCESS TO HEALTHCARE
- ETHICAL CHALLENGES IN LIFE SCIENCES
- Prix Galien International Awards Ceremony
New Directions in Targeted Therapeutic Approaches for Older Adults With Mantl...i3 Health
i3 Health is pleased to make the speaker slides from this activity available for use as a non-accredited self-study or teaching resource.
This slide deck presented by Dr. Kami Maddocks, Professor-Clinical in the Division of Hematology and
Associate Division Director for Ambulatory Operations
The Ohio State University Comprehensive Cancer Center, will provide insight into new directions in targeted therapeutic approaches for older adults with mantle cell lymphoma.
STATEMENT OF NEED
Mantle cell lymphoma (MCL) is a rare, aggressive B-cell non-Hodgkin lymphoma (NHL) accounting for 5% to 7% of all lymphomas. Its prognosis ranges from indolent disease that does not require treatment for years to very aggressive disease, which is associated with poor survival (Silkenstedt et al, 2021). Typically, MCL is diagnosed at advanced stage and in older patients who cannot tolerate intensive therapy (NCCN, 2022). Although recent advances have slightly increased remission rates, recurrence and relapse remain very common, leading to a median overall survival between 3 and 6 years (LLS, 2021). Though there are several effective options, progress is still needed towards establishing an accepted frontline approach for MCL (Castellino et al, 2022). Treatment selection and management of MCL are complicated by the heterogeneity of prognosis, advanced age and comorbidities of patients, and lack of an established standard approach for treatment, making it vital that clinicians be familiar with the latest research and advances in this area. In this activity chaired by Michael Wang, MD, Professor in the Department of Lymphoma & Myeloma at MD Anderson Cancer Center, expert faculty will discuss prognostic factors informing treatment, the promising results of recent trials in new therapeutic approaches, and the implications of treatment resistance in therapeutic selection for MCL.
Target Audience
Hematology/oncology fellows, attending faculty, and other health care professionals involved in the treatment of patients with mantle cell lymphoma (MCL).
Learning Objectives
1.) Identify clinical and biological prognostic factors that can guide treatment decision making for older adults with MCL
2.) Evaluate emerging data on targeted therapeutic approaches for treatment-naive and relapsed/refractory MCL and their applicability to older adults
3.) Assess mechanisms of resistance to targeted therapies for MCL and their implications for treatment selection
ARTIFICIAL INTELLIGENCE IN HEALTHCARE.pdfAnujkumaranit
Artificial intelligence (AI) refers to the simulation of human intelligence processes by machines, especially computer systems. It encompasses tasks such as learning, reasoning, problem-solving, perception, and language understanding. AI technologies are revolutionizing various fields, from healthcare to finance, by enabling machines to perform tasks that typically require human intelligence.
Report Back from SGO 2024: What’s the Latest in Cervical Cancer?bkling
Are you curious about what’s new in cervical cancer research or unsure what the findings mean? Join Dr. Emily Ko, a gynecologic oncologist at Penn Medicine, to learn about the latest updates from the Society of Gynecologic Oncology (SGO) 2024 Annual Meeting on Women’s Cancer. Dr. Ko will discuss what the research presented at the conference means for you and answer your questions about the new developments.
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These simplified slides by Dr. Sidra Arshad present an overview of the non-respiratory functions of the respiratory tract.
Learning objectives:
1. Enlist the non-respiratory functions of the respiratory tract
2. Briefly explain how these functions are carried out
3. Discuss the significance of dead space
4. Differentiate between minute ventilation and alveolar ventilation
5. Describe the cough and sneeze reflexes
Study Resources:
1. Chapter 39, Guyton and Hall Textbook of Medical Physiology, 14th edition
2. Chapter 34, Ganong’s Review of Medical Physiology, 26th edition
3. Chapter 17, Human Physiology by Lauralee Sherwood, 9th edition
4. Non-respiratory functions of the lungs https://academic.oup.com/bjaed/article/13/3/98/278874
3. Moderator
• Michiel Sprenger
• Strategy adviser @Nictiz, the National
Competence Center of the Netherlands (NCC-
NL)
• Teacher in Clinical Informatics at Eindhoven
Technical University
June 12, 2015 event 3
4. Remember the stakeholders
• Citizens (sometimes patients)
• Health professionals
• Health system
• Market
June 12, 2015 event 4
5. Remember the layered model for interoperability
ReEIF
Policy
IT Infrastructure
Care Process Health professionals
Board members, C-level mgmt
Applications Procurers, software suppliers
ICT development and management
Legal and regulatory Regulatory bodies
Information Health professionals, Informaticians
Actors
5
6. Scene of collaboration
• Three geographic layers
– Global
– Europe (main focus of today)
– National
• Partners (for this discussion)
– SDOs and Profiling Organisations:
• Develop base standards on international scale
• Assist localisation on national level
– National Competence Centres (NCCs)
• Localise standards
• Combine standards to new national specifications and/or
standards
– Policy:
• Member states (MoH)
• eHealth Network (eHN, JAseHN)
June 12, 2015 event 6
7. Panellists
• Christof Gessner, NCC-DE, HL7-DE and
European HL7-SAB
• Pim Volkert, NCC-NL, SNOMED-NL
• Manne Andersson, NCC-SE and JAseHN
• Karima Bourquard, IHE-EU
• Catherine Chronaki, HL7-EU
• Robert Stegwee, CEN-TC251 EU
June 12, 2015 event 7
8. Panel discussion
• Panellists: introduce yourself
• Answer the following questions:
• What is, or are, your main collaboration issues
• How should we pick them up
• What should be the result
June 12, 2015 event 8
9. Related questions:
• Do we really need European standards?
• How to liaise with industry ?
• How to liaise with stakeholders like citizens
and professionals
June 12, 2015 event 9
10. Eleven Draft Recommendations (Part 1: on Standards)
1. Make it easier to refer to specific standards and
specifications in eHealth (public) procurement –
establish a standards sets repository
2. Develop free and open tools-based access to
standards for implementation and deployment
3. Increase the visibility of clinical best practices in
terms of professional guidelines linked to generic
workflows and information sets
4. Detail a clear governance and maintenance process
for each set of standards related to an identified
combination of use cases
2016-04-21 eStandards Conference at conhIT 2016 10
11. Eleven Draft Recommendations (Part 2: on Data)
5. Support the flow of health data between record
systems and (mobile) devices (break down the silos)
6. Make it safe and easy to migrate to the cloud for
health and healthcare data to become interoperable
7. Provide guidance on the interpretation of the medical
device directive in case of personal use of eHealth
and mHealth services (Active Assisted Living)
8. Consider broadening the scope of the European
Health Terminology Services (being developed under
CEF) to include the full range of health data, including
patient generated, sensor and medical device data
2016-04-21 eStandards Conference at conhIT 2016 11
12. Eleven Draft Recommendations (Part 3: on Usage)
9. Clinical model content should be shared
internationally, irrespective of the particular paradigm
used in its creation, and the incorporation of such
content in clinical applications should be encouraged
10. Localisation of standards sets should be supported
and guided to prevent local adaptation of the
underlying standards that “break” cross-border or
cross-realm interoperability
11. Establish an eHealth Standards Observatory, for the
purpose of monitoring
– the use of standards sets related to use cases
– the use of terminologies in data capture and data exchange
– the adoption of cross-border guidelines
(including patient summary)
2016-04-21 eStandards Conference at conhIT 2016 12