This document summarizes a presentation about Maredata, a Spanish network focused on open research data management. The network brings together Spanish research teams working on topics like interoperability, access, preservation, and open data policies. It aims to coordinate these groups, avoid duplications in research, and promote transparency. The benefits of open research data discussed include increased collaboration, validation of results, and transparency. Future areas of focus for the network include identifying discipline-specific research data management needs, exploring open health data, and addressing issues like data protection, quality, and ethics.
Business context of FAIR health data networks - The Hyve - MEDINFO Lyon 2019Kees van Bochove
MedInfo Lyon 2019: FAIR Health Data Sharing Initiatives in Europe: Opportunities and Challenges for international cooperation (Ulli Prokosch, Thomas Ganslandt, Ulrich Sax, Christian Lovis, Carlos Luis Parra Calderón, Peter Rijnbeek, Nigel Hughes, Wiro Niessen, Barend Mons, Kees Van Bochove)
In the data-driven age of medical research many initiatives and projects focus on data linkage and functional integration as well as data reuse. Providing “FAIR data” is a common challenge for all of them. For this workshop leaders of six nation-wide and European initiatives/projects have joined in order to identify the major concepts, challenges and hurdles.
This presentation was used to provide the business context of FAIR data in health data networks.
How 2019 became the year FAIR landed in biopharmaceutical R&DKees van Bochove
At the Pharma IT 2019 conference in London, Kees van Bochove, Founder of The Hyve gave a talk on how 2019 became the year in which many biopharmaceutical companies have operational programs to make data FAIR across the enterprise.
As part of a webinar series on Open Research in Ireland, the National Open Research Forum (NORF) presented a webinar focused on Infrastructures to support Open Research on 30 March 2021. This presentation on the European Open Science Cloud (EOSC) was delivered by Sarah Jones (GÉANT).
Business context of FAIR health data networks - The Hyve - MEDINFO Lyon 2019Kees van Bochove
MedInfo Lyon 2019: FAIR Health Data Sharing Initiatives in Europe: Opportunities and Challenges for international cooperation (Ulli Prokosch, Thomas Ganslandt, Ulrich Sax, Christian Lovis, Carlos Luis Parra Calderón, Peter Rijnbeek, Nigel Hughes, Wiro Niessen, Barend Mons, Kees Van Bochove)
In the data-driven age of medical research many initiatives and projects focus on data linkage and functional integration as well as data reuse. Providing “FAIR data” is a common challenge for all of them. For this workshop leaders of six nation-wide and European initiatives/projects have joined in order to identify the major concepts, challenges and hurdles.
This presentation was used to provide the business context of FAIR data in health data networks.
How 2019 became the year FAIR landed in biopharmaceutical R&DKees van Bochove
At the Pharma IT 2019 conference in London, Kees van Bochove, Founder of The Hyve gave a talk on how 2019 became the year in which many biopharmaceutical companies have operational programs to make data FAIR across the enterprise.
As part of a webinar series on Open Research in Ireland, the National Open Research Forum (NORF) presented a webinar focused on Infrastructures to support Open Research on 30 March 2021. This presentation on the European Open Science Cloud (EOSC) was delivered by Sarah Jones (GÉANT).
Presented by Helena Cousijn (FREYA)
during the OpenAIRE workshop "Research policy monitoring in the era of Open Science and Big Data" taking place in Ghent, Belgium on May 27th and 28th 2019
Day 1: Monitoring and Infrastructure for Open Science
https://www.openaire.eu/research-policy-monitoring-in-the-era-of-open-science-and-big-data-the-what-indicators-and-the-how-infrastructures
2019-10-11 The value of FAIR data in health data networks - The Hyve - ELIXIR...Kees van Bochove
This presentation at the ELIXIR SME Innovation meeting on Personal Health Train and the distributed analysis of health data covered the value of data in health data networks. Slides attached for reference purposes.
#ELIXIR #SME #PHT #personalhealthtrain #healthdata
Europe today lacks a publicly funded cloud infrastructure for exploitation of research data. Data research infrastructures and e-Infrastructures should coordinate themselves to realize the International Data Commons.
ELIXIR Standards and Formats: ISA Tools and FAIRsharingPeter McQuilton
A 15 minute presentation at the ELIXIR Europe/ELIXIR-UK SME Forum at Churchill College, Cambridge UK. This talk focuses on ISA-tools and FAIRsharing.org, around standard use, data sharing and data standard implementation and endorsement.
The FP7 Post-Grant Open Access Pilot: An All-Encompassing Gold Open Access Fu...OpenAIRE
A year into the EC FP7 Post-Grant Open Access Pilot, this presentation delivered at the LIBER Annual Conference 2016 in Helsinki shows the current progress of this funding initiative. This Gold OA Pilot has currently two funding worklines, a main one for APC/BPC payments for post-grant manuscripts arising from finished FP7 projects and an alternative funding mechanism for supporting APC-free OA journals and platforms. Detailed figures are provided for the APC payments made so far, together with a number of findings the initiative has already come upon.
20190527_Brecht Wyns & Christophe Bahim _ FAIR data maturity modelOpenAIRE
Presented by Brecht Wyns & Christophe Bahim (RDA)
during the OpenAIRE workshop "Research policy monitoring in the era of Open Science and Big Data" taking place in Ghent, Belgium on May 27th and 28th 2019
Day 1: Monitoring and Infrastructure for Open Science
https://www.openaire.eu/research-policy-monitoring-in-the-era-of-open-science-and-big-data-the-what-indicators-and-the-how-infrastructures
Big Data Europe SC6 WS 3: Where we are and are going for Big Data in OpenScie...BigData_Europe
Where we are and are going for Big Data in OpenScience
Keynote talk at the Big Data Europe SC6 Workshop on 11.9.2017 in Amsterdam co-located with SEMANTiCS2017: The perspective of European official statistics by Fernando Reis, Task-Force Big Data, European Commission (Eurostat).
OpenAIRE-Advance: Advancing Open Scholarship (Presentation at RDA 11th Plenary)OpenAIRE
Presentation by Natalia Manola, OpenAIRE Director, at RDA 11th Plenary BoF meeting - EOSC-related European Projects getting Global: Engaging with the RDA
Connecting the dots - e-Infra services for open scienceOpenAIRE
Starting from Open access towards services for open science, we present OpenAIRE, OpenMinTeD and OpenUP, three EU projects that build services to facilitate and accelerate open science.
Presentation by Wiebe de Boer, Royal Tropical Institute (KIT), to Euforic/EADI workshop: 'Showcasing Knowledge and Information Services', Geneva, 24 June 2008.
Supporting Research Data Management in UK Universities: the Jisc Managing Res...L Molloy
Research data management in the UK: interventions by the Jisc Managing Research Data programme and the Digital Curation Centre. Specifies the importance of academic librarians for RDM. Includes links to openly available training resources. Presentation by L Molloy to ExLibris event, 'Excellence in Academic Knowledge Management', Utrecht, 29 October 2013.
Presented by Helena Cousijn (FREYA)
during the OpenAIRE workshop "Research policy monitoring in the era of Open Science and Big Data" taking place in Ghent, Belgium on May 27th and 28th 2019
Day 1: Monitoring and Infrastructure for Open Science
https://www.openaire.eu/research-policy-monitoring-in-the-era-of-open-science-and-big-data-the-what-indicators-and-the-how-infrastructures
2019-10-11 The value of FAIR data in health data networks - The Hyve - ELIXIR...Kees van Bochove
This presentation at the ELIXIR SME Innovation meeting on Personal Health Train and the distributed analysis of health data covered the value of data in health data networks. Slides attached for reference purposes.
#ELIXIR #SME #PHT #personalhealthtrain #healthdata
Europe today lacks a publicly funded cloud infrastructure for exploitation of research data. Data research infrastructures and e-Infrastructures should coordinate themselves to realize the International Data Commons.
ELIXIR Standards and Formats: ISA Tools and FAIRsharingPeter McQuilton
A 15 minute presentation at the ELIXIR Europe/ELIXIR-UK SME Forum at Churchill College, Cambridge UK. This talk focuses on ISA-tools and FAIRsharing.org, around standard use, data sharing and data standard implementation and endorsement.
The FP7 Post-Grant Open Access Pilot: An All-Encompassing Gold Open Access Fu...OpenAIRE
A year into the EC FP7 Post-Grant Open Access Pilot, this presentation delivered at the LIBER Annual Conference 2016 in Helsinki shows the current progress of this funding initiative. This Gold OA Pilot has currently two funding worklines, a main one for APC/BPC payments for post-grant manuscripts arising from finished FP7 projects and an alternative funding mechanism for supporting APC-free OA journals and platforms. Detailed figures are provided for the APC payments made so far, together with a number of findings the initiative has already come upon.
20190527_Brecht Wyns & Christophe Bahim _ FAIR data maturity modelOpenAIRE
Presented by Brecht Wyns & Christophe Bahim (RDA)
during the OpenAIRE workshop "Research policy monitoring in the era of Open Science and Big Data" taking place in Ghent, Belgium on May 27th and 28th 2019
Day 1: Monitoring and Infrastructure for Open Science
https://www.openaire.eu/research-policy-monitoring-in-the-era-of-open-science-and-big-data-the-what-indicators-and-the-how-infrastructures
Big Data Europe SC6 WS 3: Where we are and are going for Big Data in OpenScie...BigData_Europe
Where we are and are going for Big Data in OpenScience
Keynote talk at the Big Data Europe SC6 Workshop on 11.9.2017 in Amsterdam co-located with SEMANTiCS2017: The perspective of European official statistics by Fernando Reis, Task-Force Big Data, European Commission (Eurostat).
OpenAIRE-Advance: Advancing Open Scholarship (Presentation at RDA 11th Plenary)OpenAIRE
Presentation by Natalia Manola, OpenAIRE Director, at RDA 11th Plenary BoF meeting - EOSC-related European Projects getting Global: Engaging with the RDA
Connecting the dots - e-Infra services for open scienceOpenAIRE
Starting from Open access towards services for open science, we present OpenAIRE, OpenMinTeD and OpenUP, three EU projects that build services to facilitate and accelerate open science.
Presentation by Wiebe de Boer, Royal Tropical Institute (KIT), to Euforic/EADI workshop: 'Showcasing Knowledge and Information Services', Geneva, 24 June 2008.
Supporting Research Data Management in UK Universities: the Jisc Managing Res...L Molloy
Research data management in the UK: interventions by the Jisc Managing Research Data programme and the Digital Curation Centre. Specifies the importance of academic librarians for RDM. Includes links to openly available training resources. Presentation by L Molloy to ExLibris event, 'Excellence in Academic Knowledge Management', Utrecht, 29 October 2013.
Presentation given by Sarah Jones and Joy Davidson to a group of South African librarians at a webinar organised by LIASA HELIG. http://www.liasa.org.za/node/977
Topics covered at the workshop address basic questions related to Research Data Management for open data, which include preparing a Research Data Management (RDM) plan, licensing data and intellectual property, metadata and contextual description (documentation), ethical and legal aspects of sharing sensitive or confidential data, anonymizing research data for reuse, data archiving and long-term preservation, and data security and storage.
Event: http://conferences.nib.si/AS2015/default.htm
Related material: http://conferences.nib.si/AS2015/BookAS15.pdf
Susanna Sansone's talk at the "Beyond Open" Knowledge Dialogues/Open Data Hong Kong event on research data, hosted at the Hong Kong Innocentre on Monday 20 November 2017.
Turning FAIR into Reality: Final outcomes from the European Commission FAIR D...Sarah Jones
A multi-speaker presentation given by the European Commission FAIR Data Expert Group at ScieDataCon as part of International Data Week in Botswana in November 2018.
Simon Hodson, Chair of the Group explained the remit and background. Natalie Harrower outlined key concepts. Francoise Genova spoke on the recommendations related to research data culture. Daniel Mietchen addressed the infrastructure needed and our proposals for a FAIR ecosystem, and Sarah Jones spoke to the cultural aspects needed to drive change and outlined the FAIR Action Plan.
The report has been revised in light of the 500+ comments received as part of the open consultation and will be formally released on 23rd November as part of the Austrian Presidency events.
Slides presented at the Spanish Agency of Science and Technology (FECYT) and the network of Spanish repositories (RECOLECTA) Research Data Management Webinar Series - see url:
http://www.recolecta.net/buscador/webminars.jsp
Horizon 2020: Outline of a Pilot for Open Research Data LIBER Europe
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Similar to The Spanish Open Research Data Network. Lessons learned (20)
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The Spanish Open Research Data Network. Lessons learned
1. Virtual Program on Open
Science and Research Data
Management
Organized by Columbus Association and
UNESCO
Thursday 24 May 2018
The Spanish Open Research Data Network.
Lessons learned
Remedios Melero
IATA-CSIC
2. Red Española sobre Datos
de Investigación en Abierto
2
Proyecto CSO2015-71867-REDT financiado por:
http://maredata.net/
3. What is Maredata?
• It is a network of research groups from different
Spanish universities and research centres that work
in subjects related to the management of research
data, among them:
• interoperability;
• access;
• preservation;
• metrics;
• open data policies;
• …
3
4. General objective
• Bring together and consolidate collaboration among
Spanish research teams working on research data
management, data curation, data handling
technologies…and establish links with any other
stakeholders involved in data sharing
4
5. Specific aims
1. Coordination of new actions among partners
2. Localization of research teams that have been funded
by the programme H2020.
3. To know who is who in handling and dissemiantion of
research data
4. Promotion of new lines of research
5. Support internationalization of groups
6. Creation of brief recommendations about research
data handling and management
5
6. Benefits of Open research data
• Collaboration among different research teams
• Avoid duplications, and allow validation of results
• Openess allow transparency
• Increase trust on scientists
6
7. Open research data, why?
• “As open as possible, as closed and necessary”
• Research data that results from publicly funded
research should be become and stay findable, acessible
interoperable and re-usable (FAIR principles)
• Research data are not only interesting for research
purposes but for increasing innovation in the private
sector and for the society in general
7
14. Subjects of interest arose during our events
Legal
issues
Licensing
Metrics
Preservation
Data
quality
Open science
polices
Open data
versus open
research data
Data sharing
Transparency
Reproducibility
Data management
Ethics
15. • Identify needs by disciplines in research data
management
• Discovery of Open data in health services
suceptible of being shared (mapping open data
from public hospitals)
• Protection of data and anonymization. Access and
Ethics
• Quality of data and metrics
• Blockchain technology applied to data sharing
Future lines of research
15
16. • What data are worth to share?
• How to share and preserve data?
• How to manage your data?
• How to anonymize your data?
• How to comply with your funder’s open science
policy?
• When and where are you to share your data?
Brief recommendations
“what, how, when and where”
16
17. Lessons learned from the
network…..
• It helps to create change
• It helps to analyze your own flaws
• It helps to analyze the context of your community and ascertain your
weakness, challenges and opportunities
• It contributes to create collaboration among groups that one does not
know/meet before (new collaborators)
• ……….
• “a sentir que no estás solo”
