Public Health England is responsible for several NHS screening programmes in the UK. This document provides updates on sickle cell and thalassemia screening, infectious disease screening, and general screening topics. Key points include new standards and service specifications being developed, educational training courses and resources being offered, issues with data collection and reporting, and a reminder about signing up for the screening programme blog for updates.

1. Public Health England is responsible for the NHS Screening Programmes
Quality Assurance (London)
Antenatal Updates
Michelle Onslow, Senior QA Advisor

2. Sickle Cell and Thalassaemia
• Review of failsafe processes the Map of Medicine
pathways – mapping incidents against the pathway
• Reviewing of UK NSC publications, educational resources
and NHS Choices
• Looking at the main reasons why women present late for
booking – aiming to focus resources in key areas
• IVF/Fertility – screening often undertaken if donor eggs
used but not if using their own, National programme doing
communication on this in conjunction with voluntary
agencies
• 2016/17 service specification to be released soon
2 Presentation title - edit in Header and Footer

3. Sickle Cell and Thalassaemia
• Courses at KCL – funded places
being offered:
Short counselling course – for non
specialists, 19th November and 21st
April 2016 both in London.
Genetic risk assessment and
counselling module, four day course for
staff delivering counselling 12th/13th
May 2016 and 16th/17th June 2016
Email sent out yesterday with
instructions
http://cpd.screening.nhs.uk/sct-
externaltraining
3 Presentation title - edit in Header and Footer

4. Sickle Cell and Thalassaemia
• SC&T e-learning resource:
Target audience, midwives, health visitors, GP’s and
counsellors
Nine modules that follow the screening pathway
Films on completing the FOQ, partner testing and
giving positive results
Information on sickle cell complications, thalassaemia
complications and a world map of prevalence
Tips on talking to parents, links to key resources and
quiz/test and certificate
Coming soon: http://cpd.screening.nhs.uk/
4 Presentation title - edit in Header and Footer

5. Sickle Cell and Thalassaemia
• PND Outcome forms:
 Short term: Decision following PND
 Long term: Pregnancy outcome, delivery etc.
 Completion and return of the forms is low
 Lack of evidence at National level to inform
standards, KPI’s etc.
 We will now look for evidence that these are
completed and returned as part of a QA visit
 Included as part of policy, evidence of a process in
place for completion and return of the forms
5 Presentation title - edit in Header and Footer

6. FASP
• New Standards:
 Nine new standards
 Some data required from local providers, some
collected nationally, most already collected via KPI’s
annual reports etc.
 National submission template with instructions
coming soon
6 Presentation title - edit in Header and Footer

7. FASP
• T13/18:
 Written consent not required but there must be clear
documentation of the offer + acceptance/decline of
T21 and T13/18
 Request form needs to have an option to accept or
decline T21 and T13/18 separately
 Report must have two risks one for T21 and one for
T13/18
 Parents must be aware that PND would identify a
result for all three conditions regardless of risk results
 Most Trusts directly contract the lab – you can
influence change
7 Presentation title - edit in Header and Footer

8. FASP
• KPI FA2 Pilot:
 Overall positive feedback from the units that took part
– many continuing to submit
 Some challenges identified – IT, correct identification
of the cohort
 A number of women were identified as missed
 Failsafe’s not in place
 Recommending that it is introduced as a KPI
 Awaiting a National decision – will provide more detail
as soon as we know
8 Presentation title - edit in Header and Footer

9. Infectious Diseases
• New standards, 2016/17 service specification, laboratory
and operational handbooks
• Regional roll out workshops Jan-March 2016
• Cessation of Rubella: No decision made yet, awaiting
ministerial sign off, we will update you as soon as we
know
• New e-learning resource coming next year
• New Hep B and HIV leaflets, leaflets translated into 20
different languages, available to download
9 Presentation title - edit in Header and Footer

10. Infectious Diseases
• Professional forum, midwives, nurse specialists, self
nominated members, helping to produce educational
resources
• Women who decline:
 Evidence to show they have a higher prevalence of
HIV
 Need a robust pathway for re-offer
 Should see screening team or specialist
• ‘Late Booking’ will become 20 weeks gestation – due to
commencement of antiretroviral therapy
• Request form needs to include acceptance and decline
for each condition
10 Presentation title - edit in Header and Footer

11. Infectious Diseases
• Results should be given by an appropriately trained
clinician (including Hep B)
• New KPI’s for coverage for Hep B & Syphilis
• ID2: being reviewed based on findings from national
audit
• Looking at all data collected:
 streamlining to reduce duplication of requests
 ensure consistency
 simplify the process
 Online data reporting system
11 Presentation title - edit in Header and Footer

12. General
• Screening Blog: https://phescreening.blog.gov.uk
 All up to date information re: screening
 Sign up to receive updates
 Email cascades will stop so if you are not signed up
you won’t know!
 If you would like to do a blog contact us
• London QA Service have a new email address:
 PHE.LondonQA@nhs.net
 The old address (PHE.screeningqalondon@nhs.net)
will be deactivated on 01.11.15
12 Presentation title - edit in Header and Footer

13. General
• Annual reports 2014/15:
 QA Team will not be doing individual feedback reports
 General London wide presentation at the next forum
 Local feedback at your TSSG
 Template will be reviewed nationally once new
standards are published to reduce duplication etc.
• NMC Revalidation:
 Remind staff looking for CPD evidence of the free
NSC e-learning resources
13 Presentation title - edit in Header and Footer