Antenatal programme updates

1. Antenatal screening programme updates
London Heads of Midwifery & Screening Coordinators ANNB Forum
2 March 2018
Public Health England leads the NHS Screening Programmes

2. Resources
APS Group
• leaflet printing, storage and distribution
• online website order link from gov.uk
New animated screening resource
https://www.youtube.com/watch?v=_afr5olIpTM
https://www.nhs.uk/conditions/pregnancy-and-baby/screening-tests-
abnormality-pregnant/
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3. KPI’s
Q2 2017 to 2018 published
2018 to 2019 KPI possible introduction
• ST4 – offer of counselling appointment 12+0 (standard 5)
• FA3 – coverage of T21, T18, T13 combined screening (standard 1)
Antenatal screening coverage KPI e-learning resource - gov.uk
KPI quarterly summary factsheet…..
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4. KPI summary factsheets
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5. SCT- laboratory update
SCT laboratory handbook for antenatal screening
laboratories published into 2 separate publications
• antenatal
• newborn
Laboratory workshops – closing date 1 April 2018
• London 13 April 2018
• Leeds 17 April 2018
5 Antenatal screening programme updates

6. SCT- data collection and reporting
Update on data returns 2016/17
Antenatal
• 130/ 141 laboratory returns received
• 4 labs cannot submit due to IT problems
• delays due to the cyber attack
PND data now collected by NCARDRS
Newborn data received from all UK newborn blood spot laboratories - analysis
in progress
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7. SCT
SCT Screening Programme Handbook – to be published by end of 2018
Electronic Family Origin Questionnaire
• implementation resources developed with Sunquest ICE available for
rollout
• workshops to be arranged shortly
National guidance updated online
• SCT screening overview
• patient societies
• counselling and referral for prenatal diagnosis
• antenatal screening – special circumstances
• failsafe, quality assurance & data collection
• support & training
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8. SCT – education update
Haemoglobinopathies: short counselling course 27 June 2018
Genetic risk assessment and counselling module 10/11 May 2018 and 14/15
June 2018
SCT screening: specialist counselling update- free one day course for
practitioners who have completed PEGASUS or equivalent. 26 April 2018
(London), 15 May 2018 (TBC outside London)
SCT multimedia e-learning resource- 9 units
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9. IDPS
Data report 2016-17 to be published
Initial findings
• coverage high
• not all trusts collate matched cohort coverage data
• higher rate of declines in some areas outside London
• majority of hepatitis B positive women seen within 6 weeks (ID2)
• screening coordinators need to have effective processes in place to see
women within 10 days, as some areas’ performance was low. The reasons
and management of this cohort of women needs investigating further
• delivery of hepatitis B vaccination and immunoglobulin variable
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10. IDPS
Resources
• e-learning package to be launched April 2018
• counselling table top information resource to support equality of information
of screen positive women at initial 10 day appointment (in consultation)
• miscarriage letter template in development - to be disseminated via QA
teams and blog to promote use
Screening outcomes- National Integrated Maternal and Paediatric Outcomes
Surveillance (NIMPOS) system in development with PHE, Institute of Child
Health and PHE National Infection teams. This will extend HIV study to include
hepatitis B and syphilis via one web based submission process.
Audit of perinatal HIV in children born in the UK 2006-2013 published Jan 2018
10 Antenatal screening programme updates

11. IDPS
PHE congenital syphilis review
• rising incidence of syphilis infection
• acquisition of maternal infection after a negative antenatal screen is an area
of increasing concern – the ‘NEGATIVE NOW’ message when giving results
• vital role of all health professionals in raising sexual health awareness
Hepatitis B pathway review underway
Laboratory work streams
• laboratory task group to review lab handbook, results processes etc
• annual lab IDPS workshop 2018 (TBC) - to give updates on current priorities
and QA
• laboratory QA and UKAS working together to agree IDPS measures
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12. FASP
KPI FA2- coverage of the fetal anomaly scan- completeness improving.
Returns to be published from quarter 1 2018/19
FASP annual data report 2015-2016- published in November 2017
Challenges include
• lack of adequate reporting and IT systems to collect and report data
• unable to define exclusions and split exclusion categories
• unable to provide matched cohort data
Data is being analysed – actions plans recommended where not meeting
thresholds
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13. FASP
Education
• plans to update the NT resource
• condition specific information leaflets being updated and reviewed. The
leaflets for professionals will be removed as each leaflet is updated
• congenital diaphragmatic hernia leaflet updated - available soon
National Congenital Anomaly and Rare Disease Registration Service
• higher chance results should be reported by laboratories
• monthly report from software – some labs outstanding
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14. NCARDRS
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15. DESP in pregnancy
NHS Diabetic Eye Programme Standards
DES-PS-6 standard
Proportion of pregnant women with diabetes seen within 6 weeks of notification
of their pregnancy to the screening provider.
Submitted by local screening provider
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16. 16 Antenatal screening programme updates

17. Any questions?