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4. Newborn screening updates
- 1. Newborn Screening Updates LCO & HoM Forum – 1 July 2016 Angela Dietrich, Senior QAAdvisor Public Health England leads the NHS Screening Programmes
- 2. Overview Topics included in this presentation: NIPE SMART NIPE stakeholder event & survey Pulse Oximetry NBS Screening Newborn Hearing Screening Newborn screening publications 2 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 3. NIPE 3 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 4. NIPE NIPE SMART- interoperability • Increasing number of requests for NIPE SMART integration with maternity IT systems (current and potential NIPE SMART users) • Trusts do not wish to use two (or 3) systems – maternity and NIPE SMART with associated double (or triple) data entry • Interoperability work has now started • NIPE SMART user development workshop – 21st July 2016. • Survey across existing users to: • identify those aspects of the system they like, those they don’t • identify some areas where the national system could be improved • ascertain from all trusts how many would want to use their maternity systems to record and support screening as opposed to a new SMART system 4 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 5. Pulse Oximetry Screening Rationale • Hypoxaemia present in the majority of critical CHD (CCHD) • Frequently clinically undetectable - current tests can miss 50% of babies with CHD and 1/3 of babies with critical CHD • Pulse oximetry may detect babies with CCHD early, before they collapse. In studies using PulseOx in addition to standard tests, more than 90% of affected babies picked up 5 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 6. Pulse Oximetry Screening Simple test Can detect other serious (non-cardiac) illnesses Pulse oximetry pilot progress and report went to the UK NSC in June 2016 It is hoped that the pilot will provide evidence that PO screening: - • is feasible, cost-effective and acceptable to parents and staff • adds value to existing screening procedures 6 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 7. UK Newborn Pulse Oximetry Screening Pilot Pathway 7 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 8. NIPE NIPE publications First ever NIPE handbook published in April 2016 • Excellent resource for clinicians. Details the screening elements undertaken as part of the head to toe baby examination. • Advises Trusts to consider implementing mandatory assessment of clinical competencies for all health care professionals who conduct newborn physical examinations. Revised NIPE Standards 2016 • Five standards • Covers the identification and referral of babies born with congenital abnormalities of the eyes, hips and testes • Cardiac standards: Will be developed at a later date. Will include findings and outcomes of the Pulse Oximetry Pilot Study. Presentation title - edit in Header and Footer 8 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 9. NBS Screening NBS publications •Revised guidelines for newborn blood spot sampling •New template letters •Quick guide will be available in hard copy soon •New results to parents template letters •New IMD parent leaflets (13) 9 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 10. NBS guidelines The revised guideline highlights: • Importance of NBS screening in preventing severe disability and death • Steps to take if parents decline screening • Why good quality samples are vital for accurate screening results • How to complete the blood spot card and collect good quality spots first time • What to do in different situations when a baby has had a blood transfusion or needs a preterm repeat 10 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 11. NBS Screening Programme reviews • Card sample transport review – project to gather data on sample transport issues and best practice • Programme is reviewing options for NBS labs to work Saturdays and Bank Holidays • Residual bloodspot consultation - waiting for ministerial confirmation • Review of bloodspot card once residual bloodspot consultation completed • Review of standards - volunteers to be recruited by the NBS programme 11 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 12. NBS Screening NBS Failsafe Solution • Continues to help find babies that may have missed screening • Some paediatric hospitals now have access e.g. GOSH • User group meets quarterly with representation from all regions 12 Newborn Screening Updates LCO & HoM Forum – 1 July 2016
- 13. NHSP New IT system SMaRT4Hearing • No planned go-live date as yet • Extensive testing in progress • Regional workshops will be scheduled to support this transition • Each NHSP site will be provided with a list of active records that need updating • NHSP managers to ensure that the correct Internet Explorer versions are used • Queries re: implementation of the new system can be sent to: smart.hearing@nhs.net 13 Newborn Screening Updates LCO & HoM Forum – 1 July 2016 NHSP
- 14. • Screening qualification to be rolled out from April 2017 • The qualification will be a Level 3 Diploma for Health Screeners • Trusts can register to become an awarding centre to provide the new qualification to their staff, and to other screening providers For more information visit: http://cpd.screening.nhs.uk/healthscreenerqualification 14 Newborn Screening Updates LCO & HoM Forum – 1 July 2016 NHSP – Screening qualification
- 15. 5 new and revised standards • Provide a defined set of measures to ensure local programmes are safe and effective • Cover the screening journey up to and including the point of referral to audiology and entry into audiological assessment. 15 Newborn Screening Updates LCO & HoM Forum – 1 July 2016 NHSP Standards
- 16. Any Questions?