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Open voice: How open
data helps patients to
make the NHS better
Kate Ebbutt @kateebbutt
Patient Opinion
kate.ebbutt@patientopinion.org.uk
Berwick Report, August 2013
“Hear the patient voice at every level
– even when that voice is a whisper”
Berwick on Mid Staffs
“Warning signals abounded and were not
heeded…
Especially costly was the muffling of the voices
of patients and carers who took the trouble to
complain but whose complaints were too often
ignored.”
Open Voice
The world is changing – fast
Old world New world
Hierarchy Network
Broadcast Conversation
Hiding Sharing
Few Many
Closed Open
Passive recipients Active participants
Guy Brookes
Associate medical director
Adult mental health services
Leeds & York Partnership Trust
Berwick again
“Speak up about what you see –
right and wrong.
You have extraordinarily valuable
information on the basis of which
to make the NHS better.”
Active citizens and the NHS
• Not choosing, but changing
• Not making a comment, but making
a difference
• Not collecting data, but connecting
people

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Open Voice: Patient Opinion at Health in Numbers

  • 1. Open voice: How open data helps patients to make the NHS better Kate Ebbutt @kateebbutt Patient Opinion kate.ebbutt@patientopinion.org.uk
  • 2. Berwick Report, August 2013 “Hear the patient voice at every level – even when that voice is a whisper”
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  • 5. Berwick on Mid Staffs “Warning signals abounded and were not heeded… Especially costly was the muffling of the voices of patients and carers who took the trouble to complain but whose complaints were too often ignored.”
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  • 16. The world is changing – fast Old world New world Hierarchy Network Broadcast Conversation Hiding Sharing Few Many Closed Open Passive recipients Active participants
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  • 19. Guy Brookes Associate medical director Adult mental health services Leeds & York Partnership Trust
  • 20. Berwick again “Speak up about what you see – right and wrong. You have extraordinarily valuable information on the basis of which to make the NHS better.”
  • 21. Active citizens and the NHS • Not choosing, but changing • Not making a comment, but making a difference • Not collecting data, but connecting people