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Producing health
information for children
and young people	

Colleen	
  Shannon	
  
	
  Freelance	
  Healthcare	
  	
  Wri...
About	
  this	
  presentation	
  
These	
  slides	
  are	
  from	
  a	
  talk	
  I	
  gave	
  at	
  a	
  Patient	
  
Infor...
The	
  next	
  few	
  minutes	
  
•  Media	
  trends	
  
•  About	
  the	
  guide:	
  overview	
  and	
  experts	
  
•  Yo...
Media	
  trends	
  (UK)	
  
0	
   20	
   40	
   60	
   80	
   100	
  
Age	
  12-­‐15	
  
Age	
  8-­‐11	
  
Age	
  5-­‐7	
 ...
Media	
  use	
  
Source:	
  Ofcom.	
  2014.	
  Children	
  and	
  parents:	
  Media	
  attitudes	
  report.	
  
http://sta...
About	
  the	
  guide	
  
Guide	
  to	
  producing	
  health	
  information	
  for	
  children	
  
and	
  young	
  people	...
Expert	
  advisers	
  
•  Children’s	
  author	
  :	
  Camilla	
  de	
  la	
  Bedoyere	
  
•  Reviewers	
  
•  Professor	
...
Inside	
  the	
  guide	
  
•  Foreword	
  by	
  Kath	
  Evans	
  
•  Writing	
  tips	
  
•  Why	
  the	
  right	
  informa...
Making	
  it	
  work	
  
Ask	
  the	
  kids!	
  
Involve	
  their	
  
families	
  and	
  
teachers	
  
Be	
  inclusive	
  ...
The	
  voice	
  of	
  experience	
  
	
  
“Get	
  information	
  across	
  in	
  stories…”	
  	
  
	
  
	
  
	
  
“User	
 ...
Inspiring	
  case	
  studies	
  
Many	
  of	
  our	
  case	
  study	
  contributors	
  are	
  speaking	
  
today:	
  
•  M...
Inspiring	
  case	
  studies	
  
Newham	
  Council	
  &	
  Resonant	
  
Media	
  
Play	
  your	
  way	
  to	
  60	
  a	
  ...
Inspiring	
  case	
  studies	
  
British	
  Heart	
  Foundation	
  
yHeart	
  
	
  
Website	
  and	
  social	
  media	
  f...
Other	
  inspiring	
  work	
  
National	
  Deaf	
  
Children’s	
  Society	
  
My	
  life,	
  my	
  health	
  
	
  
Campaig...
Other	
  inspiring	
  work	
  
Best	
  Beginnings	
  
Baby	
  buddy	
  
App	
  for	
  young	
  parents	
  
www.bestbeginni...
Useful	
  resources	
  
•  Ofcom.	
  Children	
  and	
  parents:	
  Media	
  attitudes	
  
report.	
  stakeholders.ofcom.o...
Looking forward to the
future!
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Health information for children and young people

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Do you need to create health information for children and young people? Here you'll find some statistics about digital media use in this age group, how to produce high quality patient information, and inspiring case studies. Check out the full Guide to Producing Health Information for Children and Young People, available from the Patient Information Forum at www.pif.org.uk and for more ideas, see my website at www.healthcarewriting.co.uk/portfolio

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Health information for children and young people

  1. 1. Producing health information for children and young people Colleen  Shannon    Freelance  Healthcare    Writer  &  Editor   www.healthcarewriting.co.uk    
  2. 2. About  this  presentation   These  slides  are  from  a  talk  I  gave  at  a  Patient   Information  Forum  event:   Creating  information  for  children  and  young   people   London,  January  2015    
  3. 3. The  next  few  minutes   •  Media  trends   •  About  the  guide:  overview  and  experts   •  Your  information:  Making  it  work   •  The  voice  of  experience   •  Inspiring  case  studies     •  Useful  resources   •  The  future!  
  4. 4. Media  trends  (UK)   0   20   40   60   80   100   Age  12-­‐15   Age  8-­‐11   Age  5-­‐7   Age  3-­‐4   2011   2014   Source:  Ofcom.  2014.  Children  and  parents:  Media  attitudes  report.   http://stakeholders.ofcom.org.uk/binaries/research/media-­‐literacy/media-­‐use-­‐attitudes-­‐14/ Charts_Section_3.pdf     Tablet  ownership  (%)  
  5. 5. Media  use   Source:  Ofcom.  2014.  Children  and  parents:  Media  attitudes  report.   http://stakeholders.ofcom.org.uk/binaries/research/media-­‐literacy/media-­‐use-­‐attitudes-­‐14/ Charts_Section_3.pdf     •  35%  of  children  aged  5-­‐15  read  nearly  every  day:   so  print  is  still  an  important  format   •  77%  use  a  games  console  every  day:  so  if  you   want  the  widest  reach,  this  might  be  the  way   to  go  
  6. 6. About  the  guide   Guide  to  producing  health  information  for  children   and  young  people     July  2014         Patient  Information  Forum   www.pif.org.uk    
  7. 7. Expert  advisers   •  Children’s  author  :  Camilla  de  la  Bedoyere   •  Reviewers   •  Professor  Sue  Ablett,  Children’s  Cancer  and  Leukaemia  Group     •  Cassie  Davis,  CLIC  Sargent   •  Kath  Evans,  NHS  England   •  Beki  Moult,  GOSH   •  Professor  Nisha  Dogra,  University  of    Leicester   •  Dr  Knut  Schroeder,  GP   •  Additional  advice     •  Jenny  Frank,  Children’s  Society    (young  carers)   •  Vicki  Kirwin,  National  Deaf  Children’s  Society  (accessibility)    
  8. 8. Inside  the  guide   •  Foreword  by  Kath  Evans   •  Writing  tips   •  Why  the  right  information  matters   •  Involving  children  &  young  people   •  Communication  approaches   •  How  to  create  high  quality  information   •  Case  studies;  Resources;  Bibliography  
  9. 9. Making  it  work   Ask  the  kids!   Involve  their   families  and   teachers   Be  inclusive   Seek   educational   input   Ask  clinicians   Work  with   authors  &   artists   Make  best  use   of  media   Reach  your   audience   Evaluate  and   report  
  10. 10. The  voice  of  experience     “Get  information  across  in  stories…”           “User  test  at  every  stage  …”       “Get  input  from  the  people  who  you’ll   be  relying  on  to  distribute  your   resources…”         “Be  flexible  and  never  say  no.  Be  really   open  to  lots  of  different  ideas.”       “Enjoy  your  work!”     “Know  your  audience,  check  you   know,  and  then  ask  again!”    
  11. 11. Inspiring  case  studies   Many  of  our  case  study  contributors  are  speaking   today:   •  Monkey  Wellbeing   •  Breast  Cancer  Care   •  Northumberland  Tyne  &  Wear  NHS  Foundation   Trust   •   Diabetes  UK   •  National  Children’s  Bureau  
  12. 12. Inspiring  case  studies   Newham  Council  &  Resonant   Media   Play  your  way  to  60  a  day   Campaign  with  schools  to  reduce   obesity  and  increase  physical  activity   among  7  -­‐  11  year  olds   www.resonantmedia.co.uk    
  13. 13. Inspiring  case  studies   British  Heart  Foundation   yHeart     Website  and  social  media  for   young  people   www.yheart.net    
  14. 14. Other  inspiring  work   National  Deaf   Children’s  Society   My  life,  my  health     Campaign  to  improve  deaf  young   people’s  experiences  of  GP   services.   youngpeople.ndcsbuzz.org.uk/ mylifemyhealth    
  15. 15. Other  inspiring  work   Best  Beginnings   Baby  buddy   App  for  young  parents   www.bestbeginnings.org.uk/babybuddy      
  16. 16. Useful  resources   •  Ofcom.  Children  and  parents:  Media  attitudes   report.  stakeholders.ofcom.org.uk/   •  General  Medical  Council.  2007.  0-­‐18  years  guidance.   www.gmc-­‐uk.org     •   Joan  Ganz  Cooney  Centre   www.joanganzcooneycenter.org     •  O’Reilly,  Dogra  &  Ronzoni.  Research  with  children:   Theory  and  practice.  Sage  Publications,  2013.    
  17. 17. Looking forward to the future!

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