Health information for children and young people

1. Producing health information for children and young people Colleen Shannon Freelance Healthcare Writer & Editor www.healthcarewriting.co.uk

2. About this presentation These slides are from a talk I gave at a Patient Information Forum event: Creating information for children and young people London, January 2015

3. The next few minutes •  Media trends •  About the guide: overview and experts •  Your information: Making it work •  The voice of experience •  Inspiring case studies •  Useful resources •  The future!

4. Media trends (UK) 0 20 40 60 80 100 Age 12-‐15 Age 8-‐11 Age 5-‐7 Age 3-‐4 2011 2014 Source: Ofcom. 2014. Children and parents: Media attitudes report. http://stakeholders.ofcom.org.uk/binaries/research/media-‐literacy/media-‐use-‐attitudes-‐14/ Charts_Section_3.pdf Tablet ownership (%)

5. Media use Source: Ofcom. 2014. Children and parents: Media attitudes report. http://stakeholders.ofcom.org.uk/binaries/research/media-‐literacy/media-‐use-‐attitudes-‐14/ Charts_Section_3.pdf •  35% of children aged 5-‐15 read nearly every day: so print is still an important format •  77% use a games console every day: so if you want the widest reach, this might be the way to go

6. About the guide Guide to producing health information for children and young people July 2014 Patient Information Forum www.pif.org.uk

7. Expert advisers •  Children’s author : Camilla de la Bedoyere •  Reviewers •  Professor Sue Ablett, Children’s Cancer and Leukaemia Group •  Cassie Davis, CLIC Sargent •  Kath Evans, NHS England •  Beki Moult, GOSH •  Professor Nisha Dogra, University of Leicester •  Dr Knut Schroeder, GP •  Additional advice •  Jenny Frank, Children’s Society (young carers) •  Vicki Kirwin, National Deaf Children’s Society (accessibility)

8. Inside the guide •  Foreword by Kath Evans •  Writing tips •  Why the right information matters •  Involving children & young people •  Communication approaches •  How to create high quality information •  Case studies; Resources; Bibliography

9. Making it work Ask the kids! Involve their families and teachers Be inclusive Seek educational input Ask clinicians Work with authors & artists Make best use of media Reach your audience Evaluate and report

10. The voice of experience “Get information across in stories…” “User test at every stage …” “Get input from the people who you’ll be relying on to distribute your resources…” “Be ﬂexible and never say no. Be really open to lots of diﬀerent ideas.” “Enjoy your work!” “Know your audience, check you know, and then ask again!”

11. Inspiring case studies Many of our case study contributors are speaking today: •  Monkey Wellbeing •  Breast Cancer Care •  Northumberland Tyne & Wear NHS Foundation Trust •  Diabetes UK •  National Children’s Bureau

12. Inspiring case studies Newham Council & Resonant Media Play your way to 60 a day Campaign with schools to reduce obesity and increase physical activity among 7 -‐ 11 year olds www.resonantmedia.co.uk

13. Inspiring case studies British Heart Foundation yHeart Website and social media for young people www.yheart.net

14. Other inspiring work National Deaf Children’s Society My life, my health Campaign to improve deaf young people’s experiences of GP services. youngpeople.ndcsbuzz.org.uk/ mylifemyhealth

15. Other inspiring work Best Beginnings Baby buddy App for young parents www.bestbeginnings.org.uk/babybuddy

16. Useful resources •  Ofcom. Children and parents: Media attitudes report. stakeholders.ofcom.org.uk/ •  General Medical Council. 2007. 0-‐18 years guidance. www.gmc-‐uk.org •  Joan Ganz Cooney Centre www.joanganzcooneycenter.org •  O’Reilly, Dogra & Ronzoni. Research with children: Theory and practice. Sage Publications, 2013.

17. Looking forward to the future!