Connecting the Digital Dots (J. Kloth)

1. How to Build + Reach
Online Communities
Through Collaboration
Connecting the Digital Dots:
Yasmin Kloth, MS
Senior Digital Communications Strategist

2. All of Us Research Program

3. ⦿ How can we be more inclusive in
medical research so that health
approaches can one day be
tailored for the individual?
Importance of Diversity in Research
A Resource for All of Us

4. The All of Us Research Program
Who We Are
⦿ The cornerstone of the larger Precision Medicine Initiative—led by the NIH
⦿ One million or more volunteers, reflecting the broad diversity of the U.S.
⦿ Data will inform a variety of research studies

5. The All of Us Research Program
Our Mission and Objectives
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Nurture
relationships
with one million or more
participant partners, from all
walks of life, for decades
Catalyze a
robust ecosystem
of researchers and funders
hungry to use and support it
Our mission
To accelerate health research
and medical breakthroughs,
enabling individualized
prevention, treatment,
and care for all of us
Deliver the
largest,
richest
biomedical
dataset ever
that is easy, safe,
and free to access

6. ⦿ How can we reach and build trust in
communities previously
underrepresented in medical
research?
Importance of Diversity in Research
Building Bridges

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Current Consortium Members
DV Network
(Direct Volunteers)
HPO Network
(Health Care Provider
Organizations)
RMCs
California Precision
Medicine Consortium
Illinois
Precision
Medicine
Consortium
New England
Precision
Medicine
Consortium
Trans-American
Consortium for the
Health Care Systems
Research Network
New York City
Precision Medicine
Consortium
Platform
Development
University of Arizona University of Pittsburgh
Southern
All of Us Network
SouthEast
Enrollment Center
All of Us, Wisconsin FQHCs (Federally Qualified Health Centers)
VA
Medical Centers
Communication
& Engagement
Biobank

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Current Consortium Members
Community Partners

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The Online + Offline Relationships
Connecting the Digital DotsPhotobyGoaShapeonUnsplash
PhotobyPietroJengonUnsplash

10. Data, Digital, and All of Us

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Social Media + Health
e-Patient, e-Provider, e-Researcher
“We find once again that there is a social life of health
information, as well as peer-to-peer support, as people
exchange stories about their own health issues to help each
other understand what might lie ahead.”
--Susannah Fox & Maeve Duggan, Health Online 2013,
Pew Research Center

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Social Media + Health
e-Patient, e-Provider, e-Researcher

13. 13
Social + Health
All of Us and Social Media

14. Social + Health
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Connecting the Digital Dots

15. Meeting People & Communities Where They Are

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Connecting with Communities
@NIH #JoinAllofUs Twitter Chat

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Connecting with Communities
#JoinAllofUs @WebMD Twitter Chat

18. 18
Connecting with Communities
Localize + Amplify

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Connecting with Communities
Localize + Amplify
https://www.facebook.com/BlackWomensHealthImperative/videos/10156011504815750/

20. https://www.facebook.com/lulac.national.dc/videos/10159951598135162/
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Connecting with Communities
Localize + Amplify

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Connecting with Communities
Localize + Amplify

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The Offline + Online Relationships
Connecting the Digital Dots
PhotobyPietroJengonUnsplash
PhotobyGoaShapeonUnsplash

23. ⦿ The All of Us Research Program is working to enroll 1M+ people into a large research
cohort
⦿ Engaged and activated patients on digital platforms makes now a prime moment for
this program
⦿ The use of social media by All of Us Consortium organizations and institutions is vital
for meeting communities where they are
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Summary
Meeting People Where They Are

24. Sign up for updates:
joinallofus.org
Facebook, Twitter, + Instagram
@AllofUsResearch
#JoinAllofUs
Yasmin.kloth@nih.gov
Questions?
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Precision Medicine Initiative, PMI, All of Us, the All of Us logo, and “The Future of Health Begins with You” are service marks of the U.S. Department of Health and Human Services.