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The route to success

in end of life care in acute hospitals

your guide

June 2010
End of life care pathway for acute hospitals

Step 1

Step 2

Discussions
as the end
of life
approaches

Assessment,
care planning
and review

Step 3

Step 4

Delivery of
high quality
Co-ordination
care in an
of care
acute
hospital

ā€¢ Open, honest ā€¢ Conduct a
ā€¢ Strategic coholistic
communicaordination
assessment
tion
working with
ā€¢ Agreed care
ā€¢ Identifying
primary and
plan and
triggers for
community
regular
discussion
health
ā€¢ Advance care review of
services,
needs and
planning.
ambulance/
preferences
transport
ā€¢ Assessing
services and
needs of
social care
carers
ā€¢ Advance care ā€¢ Co-ordination
planning.
of individual
patient care
ā€¢ Discharge
planning
ā€¢ Rapid
discharge
home to die
ā€¢ Fast track
continuing
health care.

ā€¢ Dignified
environment
ā€¢ Access to
specialist
palliative care
advice
around the
clock
ā€¢ Specialist
hospital
palliative care
team
ā€¢ Access to
spiritual care
ā€¢ Access to
tailored
information.

Step 5

Step 6

Care in the
last days
of life

Care after
death

ā€¢ Identification
of the dying
phase
ā€¢ Review of
needs and
preferences
for place of
death
ā€¢ Support for
both patient
and carer
ā€¢ Recognition
of wishes
regarding
resuscitation
and organ
donation.

ā€¢ Recognition
that end of
life care does
not stop at the
point of death
ā€¢ Timely
verification
and
certification of
death or
referral to
coroner
ā€¢ Care and
support of
carer and
family,
including
emotional
and practical
bereavement
support.

High quality end of life care making best use of resources

Senior clinical decision-making close to the patient and an appropriately
trained and supported workforce

Strong governance including board oversight and senior
management engagement

Key documents
End of Life Care Strategy DH
Improving Outcomes Guidance in Supportive and Palliative Care (IOG). NICE
Treatment and care towards the end of life: good practice in decision making. GMC
Delivering end of life care quality and productivity

6 key levers
for rapid progress towards high
quality end of life care
1 There should be co-ordinated
care and discharge planning
based on assessed need and by
working with patients and
families, as well as partners in
the community and social care.
2 Senior clinicians should make
treatment decisions close to the
patient, intervening early and
managing uncertain prognosis.
3 Use recognised tools already
developed, such as advance care
planning or the Liverpool Care
Pathway for the Dying Patient
(LCP), and train staff in their use.
4 There should be strong
organisational governance
including trust board oversight
and senior management
engagement.
5 There should be training and
education as appropriate to each
team memberā€™s role, with full use
of e-learning and more
traditional learning methods
while addressing staff attitudes
towards death and dying.
6 There should be access to a
hospital specialist palliative care
team seven days a week in line
with Improving outcomes
guidance (2004).

Delivering
improved outcomes
ā€¢ Improve the patient experience and
quality of care.
ā€¢ Enable people to die in the place of
their choice
ā€¢ Allow the trust to manage its resources
effectively, including by the reduction of
inappropriate interventions
ā€¢ Manage and reduce unplanned
hospital admissions
ā€¢ Develop a skilled workforce with
improved staff morale and retention
ā€¢ There will be fewer complaints and
improved reputation for trust.

Care Quality Commission
EOLC 'Prompts' for registration
standards and regulations
ā€¢ Individuals are assessed (by specialists
where appropriate) and involved in
planning their care and can make
choices, particularly around pain
management
ā€¢ Relevant information is provided
ā€¢ Unnecessary disruption is minimised
ā€¢ Individuals can have people present as
they die
ā€¢ Staff are respectful of their privacy,
dignity and comfort
ā€¢ The care plan records post-death
wishes, including religious sensitivities
(see resources page 24).
Useful sources of further information and support
National End of Life Care Programme
www.endoflifecareforadults.nhs.uk
National End of Life Care Programme Route to Success series support sheets
and information
www.endoflifecare.nhs.uk/routes_to_success

e-ELCA (End of Life Care for All): free and comprehensive e-learning resource
www.e-elca.org.uk
Guidance about compliance: Essential standards of quality and safety Care
Quality Commission (see end of life care ā€˜promptsā€™ on page 68)
http://www.cqc.org.uk/_db/_documents/Essential_standards_of_quality_and_sa
fety_March_2010_FINAL.pdf
Crown Copyright 2010

Edited and designed by: www.furnercommunications.co.uk

National End of Life Care Intelligence Network
www.endoflifecare-intelligence.org.uk

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The route to success in end of life care - achieving quality in acute hospitals - pathway

  • 1. The route to success in end of life care in acute hospitals your guide June 2010
  • 2. End of life care pathway for acute hospitals Step 1 Step 2 Discussions as the end of life approaches Assessment, care planning and review Step 3 Step 4 Delivery of high quality Co-ordination care in an of care acute hospital ā€¢ Open, honest ā€¢ Conduct a ā€¢ Strategic coholistic communicaordination assessment tion working with ā€¢ Agreed care ā€¢ Identifying primary and plan and triggers for community regular discussion health ā€¢ Advance care review of services, needs and planning. ambulance/ preferences transport ā€¢ Assessing services and needs of social care carers ā€¢ Advance care ā€¢ Co-ordination planning. of individual patient care ā€¢ Discharge planning ā€¢ Rapid discharge home to die ā€¢ Fast track continuing health care. ā€¢ Dignified environment ā€¢ Access to specialist palliative care advice around the clock ā€¢ Specialist hospital palliative care team ā€¢ Access to spiritual care ā€¢ Access to tailored information. Step 5 Step 6 Care in the last days of life Care after death ā€¢ Identification of the dying phase ā€¢ Review of needs and preferences for place of death ā€¢ Support for both patient and carer ā€¢ Recognition of wishes regarding resuscitation and organ donation. ā€¢ Recognition that end of life care does not stop at the point of death ā€¢ Timely verification and certification of death or referral to coroner ā€¢ Care and support of carer and family, including emotional and practical bereavement support. High quality end of life care making best use of resources Senior clinical decision-making close to the patient and an appropriately trained and supported workforce Strong governance including board oversight and senior management engagement Key documents End of Life Care Strategy DH Improving Outcomes Guidance in Supportive and Palliative Care (IOG). NICE Treatment and care towards the end of life: good practice in decision making. GMC
  • 3. Delivering end of life care quality and productivity 6 key levers for rapid progress towards high quality end of life care 1 There should be co-ordinated care and discharge planning based on assessed need and by working with patients and families, as well as partners in the community and social care. 2 Senior clinicians should make treatment decisions close to the patient, intervening early and managing uncertain prognosis. 3 Use recognised tools already developed, such as advance care planning or the Liverpool Care Pathway for the Dying Patient (LCP), and train staff in their use. 4 There should be strong organisational governance including trust board oversight and senior management engagement. 5 There should be training and education as appropriate to each team memberā€™s role, with full use of e-learning and more traditional learning methods while addressing staff attitudes towards death and dying. 6 There should be access to a hospital specialist palliative care team seven days a week in line with Improving outcomes guidance (2004). Delivering improved outcomes ā€¢ Improve the patient experience and quality of care. ā€¢ Enable people to die in the place of their choice ā€¢ Allow the trust to manage its resources effectively, including by the reduction of inappropriate interventions ā€¢ Manage and reduce unplanned hospital admissions ā€¢ Develop a skilled workforce with improved staff morale and retention ā€¢ There will be fewer complaints and improved reputation for trust. Care Quality Commission EOLC 'Prompts' for registration standards and regulations ā€¢ Individuals are assessed (by specialists where appropriate) and involved in planning their care and can make choices, particularly around pain management ā€¢ Relevant information is provided ā€¢ Unnecessary disruption is minimised ā€¢ Individuals can have people present as they die ā€¢ Staff are respectful of their privacy, dignity and comfort ā€¢ The care plan records post-death wishes, including religious sensitivities (see resources page 24).
  • 4. Useful sources of further information and support National End of Life Care Programme www.endoflifecareforadults.nhs.uk National End of Life Care Programme Route to Success series support sheets and information www.endoflifecare.nhs.uk/routes_to_success e-ELCA (End of Life Care for All): free and comprehensive e-learning resource www.e-elca.org.uk Guidance about compliance: Essential standards of quality and safety Care Quality Commission (see end of life care ā€˜promptsā€™ on page 68) http://www.cqc.org.uk/_db/_documents/Essential_standards_of_quality_and_sa fety_March_2010_FINAL.pdf Crown Copyright 2010 Edited and designed by: www.furnercommunications.co.uk National End of Life Care Intelligence Network www.endoflifecare-intelligence.org.uk