Applications of Social Media for Research
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My talk at the 2015 American Diabetes Association meeting!
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Applications of Social Media for Research
- 1. Applications of Social Media for Research and Health Promotion Joyce Lee, MD, MPH Doctor as Designer Twitter: @joyclee
- 2. JAMA Pediatrics Social Media Editor
- 4. Agenda • Social Media Statistics • Users/Features • Opportunities/Challenges
- 5. Agenda • Social Media Statistics • Users/Features • Opportunities/Challenges
- 6. Q: Are there any other uses of social media in clinical medicine or research that you want to learn about? A: “No. This is a complete waste of time. This is not real research. The fad will die out soon.”
- 7. % of US Adults who use Social Media (2012-2014) Pew Research
- 11. Agenda • Social Media Statistics • Users/Features • Opportunities/Challenges
- 14. “Teens are leaving Facebook in droves for new friends like Instagram, Snapchat and Twitter - at an estimated rate of up to a million a year…It’s hard to look cool when you’re hanging out with Mom and Dad.”
- 15. Intimacy Less Social Pressure “Privacy” Fast and visual Exclusively Mobile Snapchat
- 16. Yikyak
- 22. Campaigns
- 31. Measurement
- 34. Recruitment
- 35. Facebook Targeting by: • Age (18-25) • Location (United States or California) • Language (English) • Tobacco- and/or marijuana-related keywords that appeared in their Facebook profiles
- 36. Intervention
- 39. Only pt with NGLY-1 #umichmed
- 40. #umichmed
- 41. 16 cases worldwide Parent advocacy/fundraising Treatments Clinical Trials #umichmed
- 42. #umichmed
- 43. Patient survey about protein losing enteropathy (PLE) and plastic bronchitis (PB) • Hosted on website & Facebook page • Posted on 2 existing, patient-run Facebook pages • Request for survey results ->asked to refer other individuals • Google ads
- 45. Challenges
- 46. Limitations • No available detailed clinical data (i.e. hemodynamic data in CHD) • Disease verification • Bias of online communities • Privacy (social media is not secure)
- 54. Social Media Research in Diabetes
- 66. Studies • Descriptive Survey • Ethnography – Health communities/Makers • Facebook Mining – Reliability of Health Information • Patient powered research network?