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Low Tech AAC Project: 
Advocacy, Education and Support 
Presenter: 
Krista Strait-Higgins, LISW, ACSW 
Care Services Manager
Low Tech AAC Kit 
Origin 
• Why: pALS Communication Needs 
– High Tech not always best AAC intervention 
• High Tech AAC Repair need or technical difficulties 
• Emergency Hospitalizations 
• Power outage 
• Travel 
• Bathing 
• Transferring
Low Tech AAC Kit 
Origin 
• How: Speech Therapist Collaboration 
– Collaboration with Sara Stewart, MA, CCC-SLP, 
Floyd County Hospital 
• Introduction to other low tech AAC options 
• Collaboration in creating “new and improved” AAC board 
– Collaboration with Rockwell Collins Retired 
Volunteer Program 
• Making and improving laser pointer devices 
• Donated time/material costs
Low Tech AAC Kit 
Origin 
• How: Speech Therapist Education 
– Education on Low Tech AAC options and Iowa 
Chapter Resources 
• SLP Conferences 
• Published article in Iowa Speech & Hearing 
Association newsletter 
• Encourage low tech introduction simultaneous to 
high tech introduction 
• Offered Education at Universities with SLP 
Programs
Low Tech AAC Kit 
Origin 
• How: Identified SLP Roadblocks 
– Limited time to evaluate and educate 
– Limited funds and resources 
• Limited access to materials for evaluation 
• No funding source for provision of Low Tech AAC 
options to pALS 
– Awareness of low tech AAC options
Low Tech AAC Kit 
Origin 
• How: Collaborative Solution 
– Create kits with multiple low tech materials 
– Identify education avenues for SLPs and 
families on utilizing low tech tools 
• You tube videos 
• Written instruction 
• Educational Trainings 
• Support Group Demonstration 
• Instruction at Universities 
• SLP introduction to pALS at ALS clinic
Low Tech AAC Kit 
Origin 
• How: Collaborative Solution 
– Offer delivery of kits statewide to SLPs 
working with ALS clients and/or directly to 
pALS home 
– Partner with Equipment Loan Program vendor 
to deliver low tech AAC kits statewide 
– Budget to fund kits and purchase low tech 
AAC items for pALS 
– Created video to educate on independently 
developed E-tran/EyeLink Board
Communication 
Guide 
• Yes/No /Maybe System 
• Partner assisted 
Scanning and 
Communication 
Strategies 
• ETRAN or Eyelink Board 
• Head Mouse 
• Laser Pointer Device 
• Eye Gaze AAC 
• Yes/No/Maybe 
• Partner 
assisted 
scanning 
• ETRAN or 
Eyelink 
• Eye Gaze AAC 
• Brain Computer 
Interface 
No Upper 
Extremity 
Movement 
Locked-In 
Syndrome 
Upper 
Extremity and 
Head 
Movement 
• Yes/No/Maybe System 
• Partner assisted 
scanning w/ letter or 
picture board 
• Writing 
• Personal Computer 
with voice output 
• Tablet with text to 
speech app
Low Tech AAC Kit 
• Communication Boards: picture and 
letter 
– Free boards available from The ALS 
Association 
• Contact Alisa Brownlee: 
abrownlee@alsa-national.org 
– Purchase Economy Assessment Kit Boards: 
http://lowtechsolutions.org 
• assessment kits for $150
Low Tech AAC Kit 
• Communication Boards: picture and 
letter 
– Vidatak EZ communication board 
• http://www.vidatak.com/ (approx. $12) 
– Create personalized free picture boards 
• Picto-Selector: http://pictoselector.eu/index.php 
• ConnectABILITY: 
http://connectability.ca/visuals-engine/
Low Tech AAC Kit 
• Communication Boards: picture and 
letter 
– Purchase Programs to create personalized 
boards: 
• Boardmaker: http://www.mayer-johnson.com 
• Pogoboards: http://www.pogoboards.com/ 
• Alternative Pointer Options 
– http://amyandpals.com/
Low Tech AAC Kit 
• Partner Assisted Scanning 
– Free boards available from The ALS 
Association 
• Contact Alisa Brownlee: 
abrownlee@alsa-national.org 
– Purchase Boards: http://lowtechsolutions.org 
– Partner Assisted Scanning Video
Low Tech AAC Kit 
• Laser Pointer Device 
– Instructions for making laser pointer: 
http://www.rcrv.org/community_projects.php? 
projID=393 
– Laser pointers can also be purchased at 
Lowtechsolutions.org 
– Laser Pointer Device Video
Low Tech AAC Kit 
• E-tran or EyeLink Board 
– Create own version of E-tran/EyeLink Board 
• Plexiglass cut to shape by plastic specialty vendor 
and utilize products from local craft store. Cost 
approx. $30/board plus time. 
• Sign Maker company can duplicate handmade 
board. Cost approx. $40/board. 
– E-tran Board Video 
– EyeLink Board Video
Low Tech AAC Kit 
• E-tran Board 
– Purchase Board: http://lowtechsolutions.org 
• $140 and currently out of stock 
– Create Personalized Picture or Phrase Based 
Board with velcro and laminated 
picture/phrase quadrants 
– Mega Bee: video demo
Low Tech AAC Kit 
• Partner Assisted Strategies 
– www.speakbook.org 
• Books can be printed and made by families or 
SLP serving family 
• Volunteers put books together for kits 
• Costs for materials approx. $25/book 
– Video Demo
Low Tech AAC Kit 
• Writing Board 
– Boogie Board 
– Dry erase board 
– Paper & pen 
– Magna doodle
Low Tech AAC Kit 
• Lessons Learned 
– Rolling Duffle Bag better than plastic totes 
– Lighter weight plexi-glass better than bullet 
proof plexi-glass for E-tran/EyeLink Boards 
– Some SLPs don’t have time to introduce and 
review these materials with families 
– Care Services staff need to introduce/offer at 
appropriate times 
– Families need help reviewing materials
Low Tech AAC Kit 
• Lessons Learned 
– Continued outreach and education needed 
on low tech AAC options 
– Research on effectiveness of low tech AAC 
needed 
• Wish List for Low Tech Kit 
– Add playbook wrist tool 
– Add MegaBee to each kit

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Presentation 201 a krista strait higgins-low tech aac project-advocacy education and support

  • 1. Low Tech AAC Project: Advocacy, Education and Support Presenter: Krista Strait-Higgins, LISW, ACSW Care Services Manager
  • 2. Low Tech AAC Kit Origin • Why: pALS Communication Needs – High Tech not always best AAC intervention • High Tech AAC Repair need or technical difficulties • Emergency Hospitalizations • Power outage • Travel • Bathing • Transferring
  • 3. Low Tech AAC Kit Origin • How: Speech Therapist Collaboration – Collaboration with Sara Stewart, MA, CCC-SLP, Floyd County Hospital • Introduction to other low tech AAC options • Collaboration in creating “new and improved” AAC board – Collaboration with Rockwell Collins Retired Volunteer Program • Making and improving laser pointer devices • Donated time/material costs
  • 4. Low Tech AAC Kit Origin • How: Speech Therapist Education – Education on Low Tech AAC options and Iowa Chapter Resources • SLP Conferences • Published article in Iowa Speech & Hearing Association newsletter • Encourage low tech introduction simultaneous to high tech introduction • Offered Education at Universities with SLP Programs
  • 5. Low Tech AAC Kit Origin • How: Identified SLP Roadblocks – Limited time to evaluate and educate – Limited funds and resources • Limited access to materials for evaluation • No funding source for provision of Low Tech AAC options to pALS – Awareness of low tech AAC options
  • 6. Low Tech AAC Kit Origin • How: Collaborative Solution – Create kits with multiple low tech materials – Identify education avenues for SLPs and families on utilizing low tech tools • You tube videos • Written instruction • Educational Trainings • Support Group Demonstration • Instruction at Universities • SLP introduction to pALS at ALS clinic
  • 7. Low Tech AAC Kit Origin • How: Collaborative Solution – Offer delivery of kits statewide to SLPs working with ALS clients and/or directly to pALS home – Partner with Equipment Loan Program vendor to deliver low tech AAC kits statewide – Budget to fund kits and purchase low tech AAC items for pALS – Created video to educate on independently developed E-tran/EyeLink Board
  • 8. Communication Guide • Yes/No /Maybe System • Partner assisted Scanning and Communication Strategies • ETRAN or Eyelink Board • Head Mouse • Laser Pointer Device • Eye Gaze AAC • Yes/No/Maybe • Partner assisted scanning • ETRAN or Eyelink • Eye Gaze AAC • Brain Computer Interface No Upper Extremity Movement Locked-In Syndrome Upper Extremity and Head Movement • Yes/No/Maybe System • Partner assisted scanning w/ letter or picture board • Writing • Personal Computer with voice output • Tablet with text to speech app
  • 9. Low Tech AAC Kit • Communication Boards: picture and letter – Free boards available from The ALS Association • Contact Alisa Brownlee: abrownlee@alsa-national.org – Purchase Economy Assessment Kit Boards: http://lowtechsolutions.org • assessment kits for $150
  • 10. Low Tech AAC Kit • Communication Boards: picture and letter – Vidatak EZ communication board • http://www.vidatak.com/ (approx. $12) – Create personalized free picture boards • Picto-Selector: http://pictoselector.eu/index.php • ConnectABILITY: http://connectability.ca/visuals-engine/
  • 11. Low Tech AAC Kit • Communication Boards: picture and letter – Purchase Programs to create personalized boards: • Boardmaker: http://www.mayer-johnson.com • Pogoboards: http://www.pogoboards.com/ • Alternative Pointer Options – http://amyandpals.com/
  • 12. Low Tech AAC Kit • Partner Assisted Scanning – Free boards available from The ALS Association • Contact Alisa Brownlee: abrownlee@alsa-national.org – Purchase Boards: http://lowtechsolutions.org – Partner Assisted Scanning Video
  • 13. Low Tech AAC Kit • Laser Pointer Device – Instructions for making laser pointer: http://www.rcrv.org/community_projects.php? projID=393 – Laser pointers can also be purchased at Lowtechsolutions.org – Laser Pointer Device Video
  • 14. Low Tech AAC Kit • E-tran or EyeLink Board – Create own version of E-tran/EyeLink Board • Plexiglass cut to shape by plastic specialty vendor and utilize products from local craft store. Cost approx. $30/board plus time. • Sign Maker company can duplicate handmade board. Cost approx. $40/board. – E-tran Board Video – EyeLink Board Video
  • 15. Low Tech AAC Kit • E-tran Board – Purchase Board: http://lowtechsolutions.org • $140 and currently out of stock – Create Personalized Picture or Phrase Based Board with velcro and laminated picture/phrase quadrants – Mega Bee: video demo
  • 16. Low Tech AAC Kit • Partner Assisted Strategies – www.speakbook.org • Books can be printed and made by families or SLP serving family • Volunteers put books together for kits • Costs for materials approx. $25/book – Video Demo
  • 17. Low Tech AAC Kit • Writing Board – Boogie Board – Dry erase board – Paper & pen – Magna doodle
  • 18. Low Tech AAC Kit • Lessons Learned – Rolling Duffle Bag better than plastic totes – Lighter weight plexi-glass better than bullet proof plexi-glass for E-tran/EyeLink Boards – Some SLPs don’t have time to introduce and review these materials with families – Care Services staff need to introduce/offer at appropriate times – Families need help reviewing materials
  • 19. Low Tech AAC Kit • Lessons Learned – Continued outreach and education needed on low tech AAC options – Research on effectiveness of low tech AAC needed • Wish List for Low Tech Kit – Add playbook wrist tool – Add MegaBee to each kit

Editor's Notes

  1. From Journal of Hospice and Palliative Nursing Symptom Management of the Patient With Amyotrophic Lateral Sclerosis: A Guide for Hospice Nurses Gail Houseman, APRN, Regional Nurse Coordinator, ALS Association, Greater Philadelphia Chapter, Ambler, PA There seems to be a lack of consensus with regard to symptom management among neurologists who treat people with ALS. Forshew and Bromberg[9] queried principal neurologists from 61 ALS centers specifically about symptom management in a person with ALS. Of the 64% who replied to the questionnaire, the authors concluded that consensus for treatment of symptoms was rare and that efficacy of all treatments for symptom management was judged to be moderate at best.[9] Given the lack of research-based recommendations for the treatment of symptoms in the person with ALS, the following suggestions for care of the person with ALS on hospice is based primarily on the author's participation in a multidisciplinary team at a National ALS Association-certified ALS center in Philadelphia, PA.
  2. All three situations demonstrate the need to have no & lo-tech options in place