Enzyme, Pharmaceutical Aids, Miscellaneous Last Part of Chapter no 5th.pdf
Presentation 201 a krista strait higgins-low tech aac project-advocacy education and support
1. Low Tech AAC Project:
Advocacy, Education and Support
Presenter:
Krista Strait-Higgins, LISW, ACSW
Care Services Manager
2. Low Tech AAC Kit
Origin
• Why: pALS Communication Needs
– High Tech not always best AAC intervention
• High Tech AAC Repair need or technical difficulties
• Emergency Hospitalizations
• Power outage
• Travel
• Bathing
• Transferring
3. Low Tech AAC Kit
Origin
• How: Speech Therapist Collaboration
– Collaboration with Sara Stewart, MA, CCC-SLP,
Floyd County Hospital
• Introduction to other low tech AAC options
• Collaboration in creating “new and improved” AAC board
– Collaboration with Rockwell Collins Retired
Volunteer Program
• Making and improving laser pointer devices
• Donated time/material costs
4. Low Tech AAC Kit
Origin
• How: Speech Therapist Education
– Education on Low Tech AAC options and Iowa
Chapter Resources
• SLP Conferences
• Published article in Iowa Speech & Hearing
Association newsletter
• Encourage low tech introduction simultaneous to
high tech introduction
• Offered Education at Universities with SLP
Programs
5. Low Tech AAC Kit
Origin
• How: Identified SLP Roadblocks
– Limited time to evaluate and educate
– Limited funds and resources
• Limited access to materials for evaluation
• No funding source for provision of Low Tech AAC
options to pALS
– Awareness of low tech AAC options
6. Low Tech AAC Kit
Origin
• How: Collaborative Solution
– Create kits with multiple low tech materials
– Identify education avenues for SLPs and
families on utilizing low tech tools
• You tube videos
• Written instruction
• Educational Trainings
• Support Group Demonstration
• Instruction at Universities
• SLP introduction to pALS at ALS clinic
7. Low Tech AAC Kit
Origin
• How: Collaborative Solution
– Offer delivery of kits statewide to SLPs
working with ALS clients and/or directly to
pALS home
– Partner with Equipment Loan Program vendor
to deliver low tech AAC kits statewide
– Budget to fund kits and purchase low tech
AAC items for pALS
– Created video to educate on independently
developed E-tran/EyeLink Board
8. Communication
Guide
• Yes/No /Maybe System
• Partner assisted
Scanning and
Communication
Strategies
• ETRAN or Eyelink Board
• Head Mouse
• Laser Pointer Device
• Eye Gaze AAC
• Yes/No/Maybe
• Partner
assisted
scanning
• ETRAN or
Eyelink
• Eye Gaze AAC
• Brain Computer
Interface
No Upper
Extremity
Movement
Locked-In
Syndrome
Upper
Extremity and
Head
Movement
• Yes/No/Maybe System
• Partner assisted
scanning w/ letter or
picture board
• Writing
• Personal Computer
with voice output
• Tablet with text to
speech app
9. Low Tech AAC Kit
• Communication Boards: picture and
letter
– Free boards available from The ALS
Association
• Contact Alisa Brownlee:
abrownlee@alsa-national.org
– Purchase Economy Assessment Kit Boards:
http://lowtechsolutions.org
• assessment kits for $150
10. Low Tech AAC Kit
• Communication Boards: picture and
letter
– Vidatak EZ communication board
• http://www.vidatak.com/ (approx. $12)
– Create personalized free picture boards
• Picto-Selector: http://pictoselector.eu/index.php
• ConnectABILITY:
http://connectability.ca/visuals-engine/
11. Low Tech AAC Kit
• Communication Boards: picture and
letter
– Purchase Programs to create personalized
boards:
• Boardmaker: http://www.mayer-johnson.com
• Pogoboards: http://www.pogoboards.com/
• Alternative Pointer Options
– http://amyandpals.com/
12. Low Tech AAC Kit
• Partner Assisted Scanning
– Free boards available from The ALS
Association
• Contact Alisa Brownlee:
abrownlee@alsa-national.org
– Purchase Boards: http://lowtechsolutions.org
– Partner Assisted Scanning Video
13. Low Tech AAC Kit
• Laser Pointer Device
– Instructions for making laser pointer:
http://www.rcrv.org/community_projects.php?
projID=393
– Laser pointers can also be purchased at
Lowtechsolutions.org
– Laser Pointer Device Video
14. Low Tech AAC Kit
• E-tran or EyeLink Board
– Create own version of E-tran/EyeLink Board
• Plexiglass cut to shape by plastic specialty vendor
and utilize products from local craft store. Cost
approx. $30/board plus time.
• Sign Maker company can duplicate handmade
board. Cost approx. $40/board.
– E-tran Board Video
– EyeLink Board Video
15. Low Tech AAC Kit
• E-tran Board
– Purchase Board: http://lowtechsolutions.org
• $140 and currently out of stock
– Create Personalized Picture or Phrase Based
Board with velcro and laminated
picture/phrase quadrants
– Mega Bee: video demo
16. Low Tech AAC Kit
• Partner Assisted Strategies
– www.speakbook.org
• Books can be printed and made by families or
SLP serving family
• Volunteers put books together for kits
• Costs for materials approx. $25/book
– Video Demo
18. Low Tech AAC Kit
• Lessons Learned
– Rolling Duffle Bag better than plastic totes
– Lighter weight plexi-glass better than bullet
proof plexi-glass for E-tran/EyeLink Boards
– Some SLPs don’t have time to introduce and
review these materials with families
– Care Services staff need to introduce/offer at
appropriate times
– Families need help reviewing materials
19. Low Tech AAC Kit
• Lessons Learned
– Continued outreach and education needed
on low tech AAC options
– Research on effectiveness of low tech AAC
needed
• Wish List for Low Tech Kit
– Add playbook wrist tool
– Add MegaBee to each kit
Editor's Notes
From Journal of Hospice and Palliative Nursing
Symptom Management of the Patient With Amyotrophic Lateral Sclerosis: A Guide for Hospice Nurses
Gail Houseman, APRN, Regional Nurse Coordinator, ALS Association, Greater Philadelphia Chapter, Ambler, PA
There seems to be a lack of consensus with regard to symptom management among neurologists who treat people with ALS. Forshew and Bromberg[9] queried principal neurologists from 61 ALS centers specifically about symptom management in a person with ALS. Of the 64% who replied to the questionnaire, the authors concluded that consensus for treatment of symptoms was rare and that efficacy of all treatments for symptom management was judged to be moderate at best.[9] Given the lack of research-based recommendations for the treatment of symptoms in the person with ALS, the following suggestions for care of the person with ALS on hospice is based primarily on the author's participation in a multidisciplinary team at a National ALS Association-certified ALS center in Philadelphia, PA.
All three situations demonstrate the need to have no & lo-tech options in place