CYP IAPT 2014 National Conference This workshop will build on the learning of Young Minds Parents Say’s work around Parent Participation in CAMHS, exploring, through practical and live examples, some of the key issues emerging in relation to the tension between confidentiality and information sharing with parents.

1. Understanding the tension
between confidentiality and
information sharing
Damian Hart, YoungMinds
Jacqui Mann, Parent
Olga Hamer, Parent

2. The story so far…
“You build my
resilience and I
too can build
resilience in my
child.”

3. Overview
• Introductions
• Personal information exercise
• Feedback from the self assessments
• Communication & Expectations
• The policy framework
• Case study exercises

4. Sharing personal information
• Write something personal about you on a post
it note
• Put into the envelope & seal
• Mark the envelope
• How does it feel…?
• Return envelope

5. What are CAMHS doing: Communications

6. What are CAMHS doing: Service Development

7. Where has it worked well?
Where could it be improved?
Referrer Child /
Expectations
Young
Person
Parent CAMHS

8. Expectations
• Are they discussed?
• Aligned?
• Working together?
• What happens if not?
• Expectations: interventions, Confidentiality
and Information Sharing

9. Scenario 1
Parents ask for help from the clinician when the
child is self harming at home.
• Parents told that it can’t be discussed with
them.
• What are the challenges in supporting the
parent?

10. Scenario 2
The child is seeing the clinician for eating
disorder and they start to report everything is
fine. The mother has just become aware they
are visiting Pro.Ana websites and are on forums.
The child is discharged.
• What are the challenges in supporting the
parent?

11. Scenario 3
The parent wants to talk to the clinician
privately about the progress of the child. The
clinician only offers space with the child present.
• What are issues this can cause?
• What are the challenges in supporting the
parent?
• What could the impact on the family be?

12. Scenario 4
Parent receives a copy of a follow-up letter from
the clinician that has been sent to the child’s
school, GP and Social Care, which contains some
inaccurate facts.

13. Scenario 5
The parents of the children are separated, both
have parental responsibility. The mother brings the
children to appointments.
• In what circumstances and at what point should
the other parent be informed?

14. Scenario 6
The child has attended CAMHS and has been
referred to AMHS. The child no longer wants the
parent involved, but the parent has learned that
some information in the referral is inaccurate
and missing.
• What are the challenges in supporting the
parent?

15. Scenario 7
The CPA is being developed. The parents want
their wishes included.
• Are there any circumstances whereby this
could be problematic?

16. Scenario 8
A child who is 15 has been admitted to hospital
for overdose (this is the third occasion within 8
months) – they have been seeing CAMHS for
about 1 year.
The parents want information as to why this is
happening
• What they can do about this?
• What are the tensions in
supporting the parent?

17. YoungMinds is working with NHS England to
support the participation of parents and carers
in improving mental health services for children
and young people.
We are looking for parents to be involved in this
work with us to help us shape and inform what
we do.
www.youngminds.org.uk

18. Vision
Our vision is of a society which is active in building the emotional resilience of children and young people,
and which responds caringly and effectively when necessary so that we create emotionally strong, healthy,
contributing and independent adults, families and communities.
Mission
Improve the emotional resilience and mental health of children and young people throughout the UK by
informing and actively engaging with children, young people, parents, policymakers and professionals
Free, practical resources to help everyone in
the school community step up and support
pupils’ academic resilience.