Carers NSW
Young Carer Program
www.youngcarersnsw.asn.au
    1800 242 636
Who are Young Carers?
Young carers are children and young
   people under the age of 26 who
   care for and support a family
   member who has a disability,
   chronic condition, terminal
   illness, mental illness or who has
   a drug or alcohol dependency.

The person they help care for may be
   a parent, sibling, grandparent,
   other relative, or friend.
Statistics
 There are approximately 304,800* young carers (1 out of every 20
  people under 25) in Australia.
 Approximately 100,200* young carers under 25 live in NSW.
 Carers NSW Young Carers Program currently has 3,233 Young Carer
  members throughout NSW.
   *(SDAC 2009)
What are some of the things
          Young Carers do?
Personal Care        Household Care   Emotional Support
 Feeding             Shopping        Listen
 Bathing             Cleaning        Provide encouragement
 Dressing            Paying bills    Attend appointments
 Medication
  management          Repairs         Monitor moods and behaviours
 Lifting / moving    Gardening
 Toileting           Cooking
 Grooming            Washing
The impacts of caring
•   PHYSICAL Heavy lifting and carrying out
    household tasks like cooking and
    cleaning, can put strain on developing
    bodies.

•   EMOTIONAL Young Carers might feel
    worried, anxious or stressed out when
    they are with, or away from, the person
    they care for. They may also feel guilt,
    anger, trapped, isolated or
    misunderstood.

•   SOCIAL Young Carers may not have time
    to hang out with friends and take part in
    after school activities and are at higher
    risk of being bullied.

•   EDUCATIONAL Young Carers are at
    higher risk of not completing their
    education and therefore face more
    obstacles when entering the workforce.
Positive aspects of caring
•   CARING SKILLS Young Carers
    develop caring skills which they often
    use in future employment, for
    example, social work or nursing.

•   MATURITY Young Carers are often
    very mature for their age.

•   CLOSE FAMILY BONDS Young
    Carers are often very close to the
    family members they care for.
HIDDEN CARERS
 Looking behind the BEHAVIOUR
    to see the YOUNG CARER
LAZY?
Looks like….
• Falling asleep
  in class

• Hasn’t done homework

• Attention
  wandering

• Finding it difficult
  to concentrate

• Poor attendance
LAZY?
Looks like….                     Could be….
• Falling asleep                 • Up all night taking care
  in class                         of a sick sibling
                                 • Has to cook, clean,
• Hasn’t done homework             prepare lunches and
                                   get siblings ready for
• Attention                        school every day
  wandering                      • Parent has depression
                                   and won’t let young
• Finding it difficult             carer leave home to go
  to concentrate                   to school
                                 • Has to take on an after
• Poor attendance                  school job in order to
                                   help support the family
                                   financially
SHOW OFF?
Looks Like….
•   Attention seeking

•   Ambitious

•   Class clown

•   Bullying
SHOW OFF?
Looks Like….              Could Be….
•   Attention seeking     •   Sibling with a disability
                              needs extra parental
•   Ambitious                 attention

•   Class clown           •   Own needs not being
                              acknowledged at
•   Bullying                  home

                          •   Anticipatory grief for
                              terminally ill family
                              member
LONER?
Looks like….
•   Not included in peer
    activities

•   Victim of bullying

•   Works/sits alone

•    Doesn’t have friends
    over to the house
LONER?
Looks like….                         Could be….
                                     •   Never learnt how to
•   Not included in peer                 relate to own age group
    activities
                                     •   Fear of being teased
                                         about mum who has a
•   Victim of bullying                   mental illness
                                     •   Doesn’t know how to
•   Works/sits alone                     assert own needs
                                     •   Has had no opportunity
•    Doesn’t have friends                to learn social skills
    over to the house
                                     •   Too embarrassed to
                                         invite friends home
NEGLECTED?
Looks Like….
•   Unclean clothing

•   Lack of / ill-fitting
    uniform or suitable
    clothing

•   Inadequate food

•   No finances for
    excursions, etc
•   Unkempt appearance
NEGLECTED?
Looks Like….                  Could Be….
                              •   Demands of caring role
•   Unclean clothing              means there is no time to
                                  do washing
•   Lack of / ill-fitting
                              •   Cost of medication results
    uniform or suitable           in financial hardship
    clothing
                              •   Parent with back injury
•   Inadequate food               can’t do the shopping

                              •   High needs of disabled
•   No finances for               sibling means no attention
    excursions, etc               given to needs of young
                                  carer
•   Unkempt appearance
PRECOCIOUS?
Looks like....
• Talks in an adult way

• Used to taking control

• Has a lot of knowledge
  about disability/illness

• Is said to have a “caring
  nature”
PRECOCIOUS?
Looks like....                Could be....
                              • Used to liaising with
• Talks in an adult way         service providers at
                                home

• Used to taking control      • May have to take on
                                some responsibilities
                                that are considered
• Has a lot of knowledge        ‘parental’
  about disability/illness
                              • Used to taking the lead
                                in decision making
• Is said to have a “caring
  nature”                     • May have to make
                                important medical
                                decisions on behalf of
                                parent
DRAMA QUEEN?
Looks Like….
•   Crying

•   Over-reacting

•   Anger

•   Moodiness

•   Teen angst
DRAMA QUEEN?
Looks Like….         Could be….
•   Crying           •   Not coping with caring
                         responsibilities
•   Over-reacting
                     •   Worried/anxious about
                         person requiring care
•   Anger
                     •   Too embarrassed to ask
•   Moodiness            for help

•   Teen angst       •   Guilt about wanting
                         own life
                     •   Depression about future
What does the Young Carer Team do?
The NSW Young Carer Program was created to:
• be a central point of contact for young carers to access information and be
   referred to appropriate services.
• support young carers through counselling, either on the telephone or
   face-to-face.
• keep young carers informed via the young carer website and through the
   quarterly newsletter YC News and monthly YC E-News.
• raise public awareness of young carer issues and help to educate people
   about what it means to be a young carer.
• develop networks throughout the state and
   nationally to improve services for young carers and
   their families.
• Offer opportunities and training to young carers who
   want to advocate for and raise awareness of young
   carers as a Young Carer Representative
Young Carer Program: Age Ratio
            1%
                                 <8
                 17%
  42%
                                 8-12



                       40%       13-17



                                 18-25
Young Carer Program: Cultural
  5%                       Unknown
        7%
                 47%
                           Australian

41%
                           ATSI



                           CALD
Young Carer Program: Region
                       Central Coast
                       Central West
                       Cumberland/prospect
                       Far North Coast
                       Hunter
                       Illawarra
                       Inner West
                       Mid North Coast
                       Nepean
                       New England
                       North Sydney
                       Orana Far West
                       Riverina Murray
                       Sth East Sydney
                       Sth West Sydney
                       Southern Highlands
                       Other
Young Carer Program: Caring Situation
                       Autism                                 Cancer
                       Cerebral Palsy                         Chrinic Fatigue Syndrome
           14%         Chronic Illness                        Dementia/Alzheimers

                       Diabetes                               Disability Developmental
                  7%   Disability Physical                    Emphysema

                       Head Injury (traumatic brain injury)   Hearing impairment

                       Heart Problems                         HIV/AIDS

                       Huntingtons Disease                    Incontinence

   27%                 Intellectual Disability                Kidney problems

                       Mental Illness                         Motor Neurone Disease

                       Multiple Sclerosis                     Muscular Dystrophy
             7%        Non-traumatic brain injury             Pallative Care

                       Parkinsons Disease                     Spinal Cord Injury

                       Stroke                                 Visual Impairment

                       Other
Young Carer Website
            www.youngcarersnsw.asn.au
•   Join the YC Club
•   YC Chat (discussion room)
•   Ask a question
•   Post a story or poem
•   News - activities & supports
•   Media stories about young carers
•   Young carer fact sheets
•   Useful contact numbers
YC News
YC News is sent out every 3 months by post and includes:

• News updates
• Young carer stories
• Competitions
• Photos
• Quick and easy recipes
• Stories about types of illness
 or disabilities
• Counselling information
• And much more!!!
Young Carer E-News
YC E-News is sent out monthly via email and includes:

• News updates
• Media releases
• Upcoming young carer activities
• Upcoming young carer camps
• Young carer support groups
• Other young carer events
• Young carer research
• Competitions
• And much more!!!
Thank you
For more information, or to register a young
  carer, contact the Young Carer Team on
            1800 242 636
 To register for E-News visit the website at
www.youngcarersnsw.asn.au
            Any questions?

Young carers nsw program

  • 1.
    Carers NSW Young CarerProgram www.youngcarersnsw.asn.au 1800 242 636
  • 2.
    Who are YoungCarers? Young carers are children and young people under the age of 26 who care for and support a family member who has a disability, chronic condition, terminal illness, mental illness or who has a drug or alcohol dependency. The person they help care for may be a parent, sibling, grandparent, other relative, or friend.
  • 3.
    Statistics  There areapproximately 304,800* young carers (1 out of every 20 people under 25) in Australia.  Approximately 100,200* young carers under 25 live in NSW.  Carers NSW Young Carers Program currently has 3,233 Young Carer members throughout NSW. *(SDAC 2009)
  • 4.
    What are someof the things Young Carers do? Personal Care Household Care Emotional Support  Feeding  Shopping  Listen  Bathing  Cleaning  Provide encouragement  Dressing  Paying bills  Attend appointments  Medication management  Repairs  Monitor moods and behaviours  Lifting / moving  Gardening  Toileting  Cooking  Grooming  Washing
  • 5.
    The impacts ofcaring • PHYSICAL Heavy lifting and carrying out household tasks like cooking and cleaning, can put strain on developing bodies. • EMOTIONAL Young Carers might feel worried, anxious or stressed out when they are with, or away from, the person they care for. They may also feel guilt, anger, trapped, isolated or misunderstood. • SOCIAL Young Carers may not have time to hang out with friends and take part in after school activities and are at higher risk of being bullied. • EDUCATIONAL Young Carers are at higher risk of not completing their education and therefore face more obstacles when entering the workforce.
  • 6.
    Positive aspects ofcaring • CARING SKILLS Young Carers develop caring skills which they often use in future employment, for example, social work or nursing. • MATURITY Young Carers are often very mature for their age. • CLOSE FAMILY BONDS Young Carers are often very close to the family members they care for.
  • 7.
    HIDDEN CARERS Lookingbehind the BEHAVIOUR to see the YOUNG CARER
  • 8.
    LAZY? Looks like…. • Fallingasleep in class • Hasn’t done homework • Attention wandering • Finding it difficult to concentrate • Poor attendance
  • 9.
    LAZY? Looks like…. Could be…. • Falling asleep • Up all night taking care in class of a sick sibling • Has to cook, clean, • Hasn’t done homework prepare lunches and get siblings ready for • Attention school every day wandering • Parent has depression and won’t let young • Finding it difficult carer leave home to go to concentrate to school • Has to take on an after • Poor attendance school job in order to help support the family financially
  • 10.
    SHOW OFF? Looks Like…. • Attention seeking • Ambitious • Class clown • Bullying
  • 11.
    SHOW OFF? Looks Like…. Could Be…. • Attention seeking • Sibling with a disability needs extra parental • Ambitious attention • Class clown • Own needs not being acknowledged at • Bullying home • Anticipatory grief for terminally ill family member
  • 12.
    LONER? Looks like…. • Not included in peer activities • Victim of bullying • Works/sits alone • Doesn’t have friends over to the house
  • 13.
    LONER? Looks like…. Could be…. • Never learnt how to • Not included in peer relate to own age group activities • Fear of being teased about mum who has a • Victim of bullying mental illness • Doesn’t know how to • Works/sits alone assert own needs • Has had no opportunity • Doesn’t have friends to learn social skills over to the house • Too embarrassed to invite friends home
  • 14.
    NEGLECTED? Looks Like…. • Unclean clothing • Lack of / ill-fitting uniform or suitable clothing • Inadequate food • No finances for excursions, etc • Unkempt appearance
  • 15.
    NEGLECTED? Looks Like…. Could Be…. • Demands of caring role • Unclean clothing means there is no time to do washing • Lack of / ill-fitting • Cost of medication results uniform or suitable in financial hardship clothing • Parent with back injury • Inadequate food can’t do the shopping • High needs of disabled • No finances for sibling means no attention excursions, etc given to needs of young carer • Unkempt appearance
  • 16.
    PRECOCIOUS? Looks like.... • Talksin an adult way • Used to taking control • Has a lot of knowledge about disability/illness • Is said to have a “caring nature”
  • 17.
    PRECOCIOUS? Looks like.... Could be.... • Used to liaising with • Talks in an adult way service providers at home • Used to taking control • May have to take on some responsibilities that are considered • Has a lot of knowledge ‘parental’ about disability/illness • Used to taking the lead in decision making • Is said to have a “caring nature” • May have to make important medical decisions on behalf of parent
  • 18.
    DRAMA QUEEN? Looks Like…. • Crying • Over-reacting • Anger • Moodiness • Teen angst
  • 19.
    DRAMA QUEEN? Looks Like…. Could be…. • Crying • Not coping with caring responsibilities • Over-reacting • Worried/anxious about person requiring care • Anger • Too embarrassed to ask • Moodiness for help • Teen angst • Guilt about wanting own life • Depression about future
  • 20.
    What does theYoung Carer Team do? The NSW Young Carer Program was created to: • be a central point of contact for young carers to access information and be referred to appropriate services. • support young carers through counselling, either on the telephone or face-to-face. • keep young carers informed via the young carer website and through the quarterly newsletter YC News and monthly YC E-News. • raise public awareness of young carer issues and help to educate people about what it means to be a young carer. • develop networks throughout the state and nationally to improve services for young carers and their families. • Offer opportunities and training to young carers who want to advocate for and raise awareness of young carers as a Young Carer Representative
  • 21.
    Young Carer Program:Age Ratio 1% <8 17% 42% 8-12 40% 13-17 18-25
  • 22.
    Young Carer Program:Cultural 5% Unknown 7% 47% Australian 41% ATSI CALD
  • 23.
    Young Carer Program:Region Central Coast Central West Cumberland/prospect Far North Coast Hunter Illawarra Inner West Mid North Coast Nepean New England North Sydney Orana Far West Riverina Murray Sth East Sydney Sth West Sydney Southern Highlands Other
  • 24.
    Young Carer Program:Caring Situation Autism Cancer Cerebral Palsy Chrinic Fatigue Syndrome 14% Chronic Illness Dementia/Alzheimers Diabetes Disability Developmental 7% Disability Physical Emphysema Head Injury (traumatic brain injury) Hearing impairment Heart Problems HIV/AIDS Huntingtons Disease Incontinence 27% Intellectual Disability Kidney problems Mental Illness Motor Neurone Disease Multiple Sclerosis Muscular Dystrophy 7% Non-traumatic brain injury Pallative Care Parkinsons Disease Spinal Cord Injury Stroke Visual Impairment Other
  • 25.
    Young Carer Website www.youngcarersnsw.asn.au • Join the YC Club • YC Chat (discussion room) • Ask a question • Post a story or poem • News - activities & supports • Media stories about young carers • Young carer fact sheets • Useful contact numbers
  • 26.
    YC News YC Newsis sent out every 3 months by post and includes: • News updates • Young carer stories • Competitions • Photos • Quick and easy recipes • Stories about types of illness or disabilities • Counselling information • And much more!!!
  • 27.
    Young Carer E-News YCE-News is sent out monthly via email and includes: • News updates • Media releases • Upcoming young carer activities • Upcoming young carer camps • Young carer support groups • Other young carer events • Young carer research • Competitions • And much more!!!
  • 28.
    Thank you For moreinformation, or to register a young carer, contact the Young Carer Team on 1800 242 636 To register for E-News visit the website at www.youngcarersnsw.asn.au Any questions?