2. Aims of the session
• To identify the potential challenges for MS nurses
• To provide tips on managing and improving consultations
• To share ideas on managing time and admin
• To explore ways of balancing DMT monitoring and symptom
management
• To identify ways to develop and maintain your expertise
• To share sources of support
4. What are the challenges for MS
nurses?
Group exercise
5. What MS nurses tell us
Overwhelming
Pulled in to many
directions
Exhausting
DistressingToo much to
learn
Juggling
actDifficult to
manage
personalities
with MDT’s
6. Diagnosis is
not always
straight
forward
Help
patients face
fear for the
future
Deal with
the
uncertainty
of MS
New
treatments
available
No cure
Managing
side effects
and relapses
Managing
transition into
secondary
progressive MSBlood
monitoring
8. Right patient, right person, right time
Location –
clinic or
home?
Joint clinics
eg.
continence
Group/self
management
sessions
Could
someone
else help?
10. Things to think about
Set the scene:
•Let the patient know how long you have with them
•Agenda setting - what’s their priority
•We have 5 minutes left…
•Bring a list?
•Be realistic- can you do a full assessment?
•New patients, Home care paperwork, baseline
assessments ? Double slot ? Home visit
•Separate monitoring and symptom management
appointments
11. Things to think about
•Ask specific questions.
•Stop consultation at relevant points?
•Can I just take us back to your point about …?
•Being more specific … Type of pain …Frequency …
Duration … How much of a problem?
•Feeding back to the patient - Have I understood
correctly…?
•Agreed course of action, care plan, management plan,
13. Managing patient
Dependence
How do pts contact you?
Can we become “too” available?
Do we create dependence?
How can we reduce dependency?
14. How can we reduce
dependence?
Promoting Self Management at onset
Realistic expectations
Consider putting on phone message ‘may
not be able to return your call on the
same day’
15. Managing Expectations
Building the Relationship
Gaining Trust
Honesty
Education
Dispelling Myths
Appropriate Support
Shared Decision Making
Sometimes saying “No”
Consistency
16. End of Consultation
Shared Decision Making
Agreement
Care plan or Management Plan
MS Society (2016)-83% of people living with MS
didn’t have a care plan.
17. KEYPOINTS
• Can we be too available?
• Can we promote self
management?
• Shared Decision Making
• Prioritize appropriately
• Manage our time effectively
• Plan treatment in agreement
with patient
• Get pts to be specific
• Get them back on track
• Work within our own roles and
know when to refer on and to
whom
• End the consultation on a
positive note
• Build the relationship
• Be reflective practitioners
• Know when to ask for
help/advice
• Say “NO”
• Know which consultation slot is
most appropriate
• Balance between building trust
and not creating dependence
20. “Organisation is like exercise, its
not very effective if you do it only
once. You have to keep at it”
(Jill Pollack 2011)
21. Tips to becoming an organised Specialist
• Remember you cannot add hours to the day
• Set your goals
• Prioritise
• ? Benefits of multi-tasking
• Delegate where possible
• Don’t suffer from inbox congestion
• Treat phone calls like meetings
• Know yourself
• Review of your day
23. Audit
NHS England states that:
• Clinical audit is a way to find out if healthcare is being provided in line with
standards and lets care providers and patients know where their service is
doing well, and where there could be improvements.
Different types of audit: - standards-based
audit - patient surveys
Liaise with audit department for support and help
Utilise existing tools, don’t reinvent the wheel
24.
25. What to Audit and why?
• Identifies good practice and
demonstrates effective service
• Lead to service improvements
• Improve working relationships
• Patient satisfaction
• Service standards e.g.
response times
• Service against national
guidelines or standards
• MS patient admissions
26.
27. Changing Landscape
• Increase in demand for our time
• Treatment monitoring v holistic MS care
• Reducing cost but improving quality
• Need to work smarter
• Need for expertise in other disease areas:
haematology, endocrinology, dermatology
• Increase need for knowledge of current and
emerging therapies
29. Personal and Professional
Development
MS Trust / MS Society Study Days
Journals
Competencies
Pharma Sponsored courses
Neuro skills assessment course Manchester
Non medical prescribing
MS Nurse International Certification Exam
MS Pro http://www.msnursepro.org/
MS Trust map of services
Preceptorship
30. Using modern technology
• Apps for smart phones
• Twitter/Facebook/social media
• RSS feeds
• Managing social media
appropriately
Introduce self and Emma
Other members of UKMSSNA make yourselves known
Introduce themselves
name
where they work
community/acute, specialist centre
length of time in post
Liz tips and admin
Emma audit, being a specialist and support
Please be interactive, we may not have the answers you may
Each service will be unique, not one answer will fit all
Length of time slot in letter
Some patients you know will take longer book double slots or I put them at the end of clinic
New patients have double slots
Some services run sessions to discuss DMDs to a group of patients rather than seeing people on a one to one basis
Be clever with your limited time
HV for those unable to get to clinic, although have transport issues
Think of ways you can end your consultation in a professional and thoughtful way ‘I realise we have not addressed everything today shall we book another appointment to cover your other concerns?’
Summing up can be a useful tool
Sometimes you just have to get up and open the door, standing up is helpful, closing the file, putting pen down
Sometimes closed questions are good, yes/no answers
Use motivational interviewing techniques shared decision making, advise attending local course, good for goal orientated client centred care
We all have patients that contact us all the time but in my experience most patients don’t contact you unless it is really important to them or you have asked them. Getting to know your case load really helps
Usually patients have a unique selling point to help you remember you they are
Flexible Email, phone, drop in clinics
Plus care plan so patients know when to contact you and when to contact others
I now have 1 day a month where I work form home and do all the tedious admin/paperwork projects e.g. teaching sessions, online training, write policy etc. this way when projects come in I know I have set time to complete them
I work best one by completing one task at a time
Can be auditing a standard or about a problem you are facing and planning a change
Great idea to audit your service before setting up the service as then will have comparison of effectiveness of the service
Keep audit small and doable
Ensure you complete the circle and implement change then audit the change
Liaise with audit departments for support and help
Utilise existing tolls, don’t reinvent the wheel
Use of GEMMS survey tool, compares your service against national MS services
NICE guidelines 2014 have audit on line for you to complete to see how your service is doing against this guideline, what improvements need to be made
?remove
UKMSSNA care manual working on competencies with MS trust
Identify own gaps in knowledge may be IT skills, presentation skills, motivational interviewingetc