This document discusses involving members of the public in disseminating research findings. It aims to explain why public involvement is important, what the benefits and challenges are, and how they can be involved. Examples are provided of past studies that engaged the public, such as creating films about a clinical trial from the perspectives of participants, doctors, and advocates. The document also provides links to resources on developing dissemination strategies and training for public involvement.

1. Let’s Share Research!
Public involvement in the
dissemination of research

2. Aims
• Aims:
• Why do members of the public need to
be involved in dissemination?
• What are the issues, benefits and
challenges of involving members of the
public in sharing research findings?
• How can they be involved?

3. Introductions

4. Your experiences
• Have you shared research findings with the
public?
• Have you involved patients and members of the
public when disseminating research findings?
• How did you do this?
• What worked well?
• Were there any difficulties?

5. Why involve the public in
dissemination?
• Ethical reasons
• Help summarise research findings in clear
user-friendly language
• Ensure that information is accessible to a
public audience
• Think of creative ways to engage the public
• Share results with their networks
• ‘Be noisy’ – create demand

6. How can I involve the public?
• Actively involve and engage with people throughout the research
process:
• Ownership
• Knowledge
• Include funding for public involvement in dissemination in grant
application
• Allocate funding for summaries and postage in grant application
• Developing dissemination and impact plans
• Presenting at conferences
• Speaking to patients, support groups and service providers
• Co-authors
• Acknowledge contribution
• Provide appropriate training and support

7. • PROUD Study – PrEP as a public health
intervention for gay men
• Two films:
• Interviews with people who took part in the
trial, doctors, scientists, public health experts
and community advocates
• 'Voices of the Participants' exploring the
experiences of three of the participants
http://www.ctu.mrc.ac.uk/news/2015/proud_film_premiere_02072015

8. • University of Leeds initiative
• Research journals hard to access, cost, specialised
language
• Aims to improve communication of medical research
to non-specialists:
• Reviewing what is good/bad about how existing
research is communicated (e.g. newspapers,
videos on internet)
• Compiling new and better ways to communicate
research

9. Other examples….
• PAtient-Centred Trials (PACT)
• CHOICE

10. Scenarios
• Two scenarios
• Use the dissemination planner to develop a
dissemination strategy

11. Useful links and resources
• Involving members of the public in disseminationINVOLVE Briefing note eight:
Disseminating research http://www.invo.org.uk/posttypecycle/disseminating/
In the Loop https://sites.google.com/site/intheloopleeds/
PROUD study http://www.ctu.mrc.ac.uk/news/2015/proud_film_premiere_02072015
• Involving members of the public as co-authorshttp://emahsn.org.uk/images/resource-
hub/PPI%20documents/How%20to%20guidance/How_to_involve_people_as_co-
authors.pdf
• Plain English summaries http://www.invo.org.uk/resource-centre/plain-english-
summaries/
• Developing a dissemination
strategyhttps://depts.washington.edu/ccph/pdf_files/CARE_Dissemination_Strategies_
FINAL_eversion.pdf
http://www.innovations.ac.uk/btg/resources/publications/dissemination.pdf
• Training and support
NIHR Research Design Service North West: http://www.rds-nw.nihr.ac.uk
http://www.salford.ac.uk/onecpd/courses/preparing-for-patient-and-public-
involvement-in-research

12. North West People in Research Forum
contact details
Email:
nwpirf@researchnorthwest.nhs.uk
Phone:
0161 935 8433
Website:
www.northwestpeopleinresearchforum.org
Twitter:
@nwpirf