This document summarizes a research project that aims to explore effective care coordination for mental health service users through a user-led research approach. [1] The project will have 4 phases led by service users and carers to understand their experiences of care coordination. [2] It seeks to develop tools for best practices in care coordination by getting perspectives from stakeholders through a Delphi study and interviews. [3] The research questions how user involvement challenges established research approaches and whether prior political commitments or representation issues can be avoided.
Isn't this about me? The role of patients and the public in implementing evid...NEQOS
Master Class, led by Professor Richard Thomson- focusing on the role of patients and public in implementing evidence-based healthcare- including shared decision making
Isn't this about me? The role of patients and the public in implementing evid...NEQOS
Master Class, led by Professor Richard Thomson- focusing on the role of patients and public in implementing evidence-based healthcare- including shared decision making
Involucrar a los responsables políticos para priorizar proyectos de investiga...investenisciii
XVI Encuentro Internacional de Investigación en Cuidados
CONFERENCIA CLAUSURA:
Alba DiCenso: Involucrar a los responsables políticos para priorizar proyectos de investigación que influyan en las políticas de salud
Patient Engagement in Research: ISQua webinar July 2016Jennifer Zelmer
Patients, family, informal caregivers, and healthy individuals are experts in their own lived experience. Around the world, there is increasing focus on embedding this rich perspective throughout the research process – from research governance and priority setting to the design and conduct of research, as well as sharing its results. These slides, from an ISQua webinar provide an overview of this movement, as well as the why and how of such engagement. A series of resources designed to support those who wish to strengthen engagement in research are also included.
Welfare regimes and differences in the mental well-being of European employee...sophieproject
Welfare regimes and differences in the mental well-being of European employees with respect to gender and social class by Deborah De Moortel, Carme Borrell, Laia Palència, Lucia Artazcoz and Christophe Vanroelen.
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http://www.sophie-project.eu/newsletter/num2.htm
Questioning improvements in health going beyond averagesPrashanth N S
Presentation made at EQUILOGS, webinar hosted by Shree Chitra Institute. See http://www.healthinequity.com/event/webinar-“questioning-improvements-health-–-going-beyond-averages” for details.
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Winning Poster Prize of the BSA Medical Sociology Group Annual Conference 2012 - Trust me, I'm a researcher - The role of trust in the human research enterprise by Marilys Guillemir.
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Involucrar a los responsables políticos para priorizar proyectos de investiga...investenisciii
XVI Encuentro Internacional de Investigación en Cuidados
CONFERENCIA CLAUSURA:
Alba DiCenso: Involucrar a los responsables políticos para priorizar proyectos de investigación que influyan en las políticas de salud
Patient Engagement in Research: ISQua webinar July 2016Jennifer Zelmer
Patients, family, informal caregivers, and healthy individuals are experts in their own lived experience. Around the world, there is increasing focus on embedding this rich perspective throughout the research process – from research governance and priority setting to the design and conduct of research, as well as sharing its results. These slides, from an ISQua webinar provide an overview of this movement, as well as the why and how of such engagement. A series of resources designed to support those who wish to strengthen engagement in research are also included.
Welfare regimes and differences in the mental well-being of European employee...sophieproject
Welfare regimes and differences in the mental well-being of European employees with respect to gender and social class by Deborah De Moortel, Carme Borrell, Laia Palència, Lucia Artazcoz and Christophe Vanroelen.
Included in our 2nd newsletter (May 2014)
http://www.sophie-project.eu/newsletter/num2.htm
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Using programme theory for evaluation of complex health interventions at dist...Prashanth N S
In this presentation, we explain the process through which a realist evaluation could be conducted on complex interventions through the building and refining of programme theories of these interventions.
Presentation by Kate Spiegelhalter at Sociology of Mental Health Study Group symposium: What does sociology need to contribute towards or against the wellbeing agenda? on 10 June 2013.
Winning Poster Prize of the BSA Medical Sociology Group Annual Conference 2012 - Trust me, I'm a researcher - The role of trust in the human research enterprise by Marilys Guillemir.
The Potential of Autoethnography for Generating User/Survivor Knowledge by Dr Sarah Carr - a presentation from the symposium on social movements and their contributions to sociological knowledge on mental health at the University of Wolverhampton. Held on 13 June 2014.
Re-Conceptualising Adult Orphans: A Scoping Literature Review by Rosaline S Barbour, Carol Komaromy, Bethany Morgan-Brett and Michael Barbour a presentation from the BSA Sociology of Death, Dying and Bereavement Study Group Symposium on 15 November 2013.
“Had he had cancer I’d have been fine”: inequalities in care provision at the end of life by Emily Moran, Sue Boase, Brooke Swash and Stephen Barclay - a presentation at the BSA Death, Dying and Bereavement Study Group Conference in November 2014.
Exploring Implications of the Impact of Mental Health Issues on Those Experiencing Domestic Violence in Same Sex and/or Trans Relationships, Catherine Donovan - a presentation at the A Difficult Alliance? Making Connections between Mental Health and Domestic Violence Research and Practice Agendas on 7 June 2011
Commentary on identities and ideologies in the women’s and service user/survivor movements by Dr Lydia Lewis - a presentation from the symposium on social movements and their contributions to sociological knowledge on mental health at the University of Wolverhampton. Held on 13 June 2014.
Young People's Encounters with Death: A Normal or Troubling Childhood Experience? by Jane Ribbens McCarthy a presentation from the BSA Sociology of Death, Dying and Bereavement Study Group Symposium on 15 November 2013.
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Re-imagining occupational therapy clients as communities: Presenting the Comm...Nerida Hyett
Re-imagining occupational therapy clients as communities: Presenting the Community-Centred Practice Framework
Dr Nerida Hyett PhD, MHSc, B.OT
Prof Amanda Kenny, Dr Virginia Dickson-Swift, and Dr Carol McKinstry
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Twitter: @neridahyett
The leader of the TIHR Trauma Stream of work, Dr Milena Stateva recently presented an argument on the potential of action research to bring together evidence-based and value-based approaches to practice enhancement and policy making.
She was one of the key speakers at the Qualitative Research for Policy Making 2012 Conference, organised by ISCTE-IUL (Portugal) and Merlien Institute in May 2012. This highly interactive, cross-disciplinary conference brought together top policy researchers and practitioners to discuss best practices for delivering and interpreting qualitative research for policy making.
Milena’s presentation explores the tensions and possible links between value-based and evidence-based research and evaluation approaches, discusses the relevance of action research to policy making and evaluates the ability of action research to bring together these two perspectives through the case study of the Nottinghamshire County Council Fostering Futures Therapeutic Fostering Service.
KEYSTONE HPSR Initiative // Module 4: Health Policy & Systems Research frameworks // Slideshow 3: Health Policy & Systems Research Frameworks- 3
This is the third slideshow of Module 4: Health Policy and Systems Research Frameworks, of the KEYSTONE Teaching and Learning Resources for Health Policy and Systems Research
To access video sessions and slides for all modules copy and past the following link in your browser:
http://bit.ly/25vVVp1
Module 4: Health Policy & Systems Research frameworks
Health systems are knowable and researchable and their study calls for a range of inputs from different disciplines. Different questions and different understandings of health system problems lend themselves to different and complementary research approaches under the HPSR umbrella. Evolving concepts of ethics and rigour in HPSR are also delineated and knowledge translation as being integrated and continuous with the production of knowledge in HPSR is also considered.
There are 3 slideshow in this module.
Module 4: Health Policy & Systems Research frameworks
-Module 4 Slideshow 1: Health Policy and Systems Research Frameworks -1
-Module 4 Slideshow 2: Health Policy and Systems Research Frameworks - 2
-Module 4 Slideshow 3: Health Policy and Systems Research Frameworks - 3
The other modules in this series are:
Module 1: Introducing Health Systems & Health Policy
Module 2: Social justice, equity & gender
Module 3: System complexity
Module 5: Economic analysis
Module 6: Policy analysis
Module 7: Realist evaluation
Module 8: Systems thinking
Module 9: Ethnography
Module 10: Implementation research
Module 11: Participatory action research
Module 12: Knowledge translation
Module 13: Preparing a Research Plan
KEYSTONE is a collective initiative of several Indian health policy and systems research (HPSR) organizations to strengthen national capacity in HPSR towards addressing critical needs of health systems and policy development. KEYSTONE is convened by the Public Health Foundation of India in its role as Nodal Institute of the Alliance for Health Policy and Systems Research (AHPSR).
The inaugural KEYSTONE short course was conducted in New Delhi from 23 February – 5 March 2015. In the process of delivering the inaugural course, a suite of teaching and learning materials were developed under Creative Commons license, and are being made available as open access resources. The KEYSTONE teaching and learning resources include 38 videos and 32 slide presentations organized into 13 modules. These materials cover foundational concepts, common approaches used in HPSR, and guidance for preparing a research plan.
These resources were created and are made available through support and funding from the Alliance for Health Policy & Systems Research (AHPSR), WHO for the KEYSTONE initiative.
New trends and directions in risk communication: combating disease threats at...Csdi Initiative
New trends and directions in risk communication: combating disease threats at the animal-human-ecosystem interface
Keynote presentation by
Thomas Abraham
Director, Public Health Communications Programme,
The University of Hong Kong
New trends and directions in risk communication: combating disease threats at...FAO
New trends and directions in risk communication: combating disease threats at the animal-human-ecosystem interface
Keynote presentation by
Thomas Abraham
Director, Public Health Communications Programme,
The University of Hong Kong
Community engagement in public health interventions for disadvantaged groups:...Health Evidence™
Health Evidence hosted a 60 minute webinar examining the effectiveness of community engagement in public health interventions for disadvantaged groups. Click here for access to the audio recording for this webinar: https://youtu.be/tUZ-u7QbMCY.
Alison O'Mara-Eves, Senior Researcher, University College London, EPPI-Centre and Ginny Brunton, Senior Health Researcher, University College London, EPPI-Centre presented findings from their review:
O'Mara-Eves A., Brunton G., Oliver S., Kavanagh J., Jamal F., & Thomas J. (2015). The effectiveness of community engagement in public health interventions for disadvantaged groups: A meta-analysis . BMC Public Health, 15, 129.
Community engagement is becoming an increasingly popular component included in the development and implementation of public health interventions. Involved community members take on roles that range from merely being informed, to being consulted, to collaborating or leading on the design, delivery and evaluation of public health strategies. This review examines the use of public health interventions with a community engagement component, particularly for its use in reducing health inequities among disadvantaged populations. Findings of the review suggest community engagement in public health interventions has an effect on several health outcomes, including health behaviours and self-efficacy. This webinar will examine the effectiveness and components of public health interventions that include community engagement and the impact on health outcomes.
Health Services Research UK 2019 Public InvolvementSimon Denegri
Presentation by Simon Denegri on public perspectives on the impact of health research and issues with understanding the impact of public involvement in research
Fidelity assessment in cluster randomized trials of public health interventio...valéry ridde
Presentation by Nanor Minoyan and Myriam Cielo (Université de Montréal).
Global Health Workshop: Methods For Implementation Science in Global Health.
http://www.equitesante.org/implementation-science-methods-in-global-health/
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É fornecido um conjunto abrangente de recomendações para cuidados durante o período puerperal, com ênfase nos cuidados essenciais que todas as mulheres e recém-nascidos devem receber, e com a devida atenção à qualidade dos cuidados; isto é, a entrega e a experiência do cuidado recebido. Estas diretrizes atualizam e ampliam as recomendações da OMS de 2014 sobre cuidados pós-natais da mãe e do recém-nascido e complementam as atuais diretrizes da OMS sobre a gestão de complicações pós-natais.
O estabelecimento da amamentação e o manejo das principais intercorrências é contemplada.
Recomendamos muito.
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Esta publicação só está disponível em inglês até o momento.
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Protect yourself and your loved ones by getting vaccinated. Together, we can help keep Bangalore healthy and safe this flu season. For more information on vaccination centers and schedules, residents can visit the Karnataka Health Department’s official website or follow their social media pages.
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Hill m &_wood_o_service_user_led_research_ne_med_soc
1. SERVICE-USER LED RESEARCH: A
REFLECTION UPON POLITICAL/ETHICAL
‘VIRTUES’ AND METHODOLOGICAL
AFFINITIES.
Dr. Mick Hill (Northumbria University) and Oliver Wood, Service User /
Researcher.
2. SERVICE USER INVOLVEMENT IN HEALTH AND SOCIAL
CARE RESEARCH
• Increasingly extolled as a virtue (Department of Health, 2006);
• Accorded a methodologically mainstream status of insofar as guidance is
extensively available (Hanley et al., 2004; Telford et al., 2004);
• Most usually moral and political precepts are advanced as a rationale (Entwistle et
al., 1998; Beresford, 2002).
E.G.
• Service user involvement is a matter of citizenship [The Council of Europe, 2000]
• Enhances the integrity and accountability of research [Department of Health,
2006].
Officially sanctioned / encouraged and YET POTENTIALLY DISRUPTIVE (or at least
difficult to reconcile) with established empirical traditions in health research.
3. [CLAIMED] POLITICAL / ETHICAL VIRTUES
Beresford and Wallcraft (1997) suggested:
• A concern with changing and equalising relationships between researchers and
‘research subjects’;
• A challenge to the hegemony of professional ‘expertise’;
• An egalitarian political commitment – inherently empowering and reciprocal;
• Affording priority to service user/carer agendæ, both in terms of methods and
outcomes;
• Desirability in terms of both ‘process’ and ‘outcome’;
• Enhanced capability in generating solutions to practical problems;
• Increased subsequent service user/carer involvement in service delivery.
All (to a greater or lesser extent) emblematic of ‘standpoint epistemologies’.
4. DEGREES OF INVOLVEMENT
DEGREE OF NAME OF LEVEL LEVEL
‘INVOLVEMENT’
•Citizen control 8
DEGREES OF CITIZEN POWER •Delegated power 7
•Partnership 6
•Placation 5
DEGREES OF TOKENISM •Consultation 4
•Informing 3
NON PARTICIPATION •Therapy 2
•Manipulation 1
Arnstein (1969: 216) ‘participation without redistribution of power is an empty and frustrating process
for the powerless.’
NB the ‘Realpolitik’ of service-user involvement in mental health research!
5. METHODOLOGICAL AFFINITIES: [1] SOCIOLOGICAL
CONCERNS WITH REPRESENTATION.
Williams (2000:73) – reports a long history within sociology in attempting to
clarify the ambivalent relationship between professional and lay
understandings of social reality, variously through:
• Direct representation and/or ‘reflexive’ interpretation; and,
• dialogical analysis, co-authorship and ‘respondent verification’.
However, in both circumstances professional researchers retain authorial
control in selectively determining what appears (and how it appears) in the
final text.
Also, both strategies imply that some special (professional) competence is
required in order to understand the ‘true’ meaning of the vernacular voice.
6. SOME METHODOLOGICAL AFFINITIES: [2] ODD BEDFELLOWS -
LYNCH AND ‘NORMAL SCIENCE’ METHODOLOGY
Lynch (1993:205) reported the virtues of ‘primitive natural science’ in
which the relevant techniques for the replication of scientific
‘discoveries’ were (by-in-large) considered as non-specialised
matters – and suggested ‘normal science’ methodology as a de-
privileging [palliative] equivalent approach in contemporary social
research.
Normal Science’ methodology:
‘nothing fancy’ but the ‘juxtaposition of (arguably) comparable
cases, citing testimonies and reports, drawing out common
themes, noting relevant discrepancies and trends, and [especially]
appealing to common intuitions and judgements.’ (Lynch,
1993:304).
7. SOME METHODOLOGICAL AFFINITIES: [2] ODD BEDFELLOWS -
LYNCH AND ‘NORMAL SCIENCE’ METHODOLOGY
Key principles / instructions include:
• Empirical investigation that is not the exclusive preserve of professional sociologists
(Lynch, 1993:300);
• Existing histories, philosophies, and sociologies remain significant to the extent that
findings are not pre-judged through the lenses of grand theories [AND / OR
EXISTING PROFESSIONAL DISCOURSES]; (Lynch ibid.: 301);
• Rather, the am is to create an ‘academic conversation’ by relating findings back to
the classic literatures. Lynch (1993: 306-7) asserted that ‘particular findings are likely
to hold differentiating and therapeutic implications for CLASSIC EPISTEMOLOGICAL
AND METHODOLOGICAL VERSIONS’.
Lynch’s claims are, of course, predicated upon ‘ethnomethodological
respecification’.
9. WORK IN PROGRESS: AN EXAMPLE OF USER-LED
RESEARCH
“Is there a pathway to recovery through care coordination?
Emancipatory action research with mental health service
users, carers, and professionals”.
Seeks to explore and reach a consensus around what
constitutes ‘effective’ care coordination and
‘recovery’ with service users, carers, professionals
and academics as researchers.
10. PROJECT STRUCTURE / PHASES
The project has 4 distinct phases - the intention being to be led by the voices, experiences and opinions of
mental health service users and carers at all stages from conception, planning, execution, analysis and the
final ‘application’ stage of the research project.
PHASE 1: Joining an existing mental health service user group. Discussion of previous
experiences of research. Members generate and finalise potential research topic.
Service-user / Carer Research course.Training Manual Final Version 2011.pdf
PHASE 2: Delphi study of stakeholders in the locality from health and social care in both
statutory and voluntary sectors. The results from the Delphi will feed into the
AUDIT
development of a topic guide and care coordination tools to be used in the next phase.
PHASE 3: Biographical narrative interviews with service users, carers and professionals
around ‘good practice’ in care coordination. Both phases 2 and 3 will feed into the next
phase.
PHASE 4: The development of a tool kit for best practice in care coordination.
11. REFLECTIONS (AND QUESTIONS)
Meaningful service-user involvement in mental health research presents challenges –
not only for positivist psychiatric discourse – but also for established positions
in social research / theory. For example:
• Do a priori political commitments matter beyond a broad egalitarian disposition in the
research process?
• Do ethnomethodologists have a monopoly on ‘indifferent scepticism’ towards professional
[both psychiatric AND sociological] versions of events?
• Research Training – empowerment / familiarisation OR indoctrination towards ‘professional
versions’?
• Can service-user led research circumvent the problem of ‘representation’ in professional
sociological accounts?
• Does a prior commitment to ‘knowledge-for-application’ necessarily result in changes in
practice?
12. REFERENCES AND BIBLIOGRAPHY
Arnstein, S (1969) ‘A Ladder of Citizens Participation’ Journal of American Institute of Planners, 7: 216-224.
Beresford, P. (2002) User involvement in research and evaluation: liberation or regulation? Social Policy and Society, 12: 95 - 101.
Beresford, P & Wallcraft, J. (1997) ‘Psychiatric System Survivors and Emancipatory Research: Issues, Overlaps and Differences’. In Doing
Disability Research IN Barnes, C & Mercer,G. [EDS.] Leeds: The Disability Press.
Council of Europe (2000) The development of structures for citizen and patient participation in the decision-making process affecting health
care. Recommendation (2000)5 adopted by the Committee of Ministers of the Council of Europe on 24 February 2000, Strasbourg: Council
of Europe, Department of Health.
Department of Health (2006) Best Research for Best Health: A New National Health Research Strategy. London: Department of Health.
Entwistle, V.A., Renfrew, M.J., Yearley, S., Forrester, J. & Lamont, T. (1998) ‘Lay perspectives: advantages for health research’. British Medical
Journal, 316, 463–466.
Hanley, B. Bradburn, J. Barnes, M. Evans, C. Goodare, H. Kelson, M. Kent, A. Oliver, S. Thomas, C. & Wallcraft, J. (2004) Involving the Service
User in NHS, Service User Health, and Social Care Research: Briefing Notes for Researchers. Eastleigh: INVOLVE. Available at
http://www.invo.org.uk (Accessed on 12 February 2012).
Lynch, M. (1993) Scientific practice and ordinary action. Ethnomethodology and social studies of science. Cambridge: Cambridge University Press.
Mental Health Providers Forum, (2008) Mental Health Recovery Star, User Guide. Available from
http://www.mhpf.org.uk/RecoveryStarResources.asp (Accessed 15th. February 2012)
Telford, R., Boote, J. & Cooper, C. (2004) What does it mean to involve consumers successfully in NHS research? A consensus study. Health
Expectations, 7, 209–220.
Williams, R. (2000) ‘Sociology and the vernacular voice: text, context, and the sociological imagination’, History of the Human Sciences, 13 (4):
73-95.