This document discusses the concepts of meta-design, participatory design, and the maker movement in the context of digital health technologies and patient-centered design. It provides examples of how patients and caregivers have used open-source code and platforms like Nightscout to design innovations for diabetes management. The document advocates letting patients and caregivers participate directly in the design process through modular tools that allow for remixing and recreating of solutions. It concludes by thanking contributors to the continuous glucose monitoring in the cloud community.

1. Joyce Lee, MD, MPH
http://www.doctorasdesigner.com/
Twitter: @joyclee
Patient Experts,
Digital Technology and
the Maker Movement

2. Disclosures
JAMA Pediatrics
Unitio
Verily
Samuelsson Associates

3. Professional
Design
Participatory
Design
Human-
Centered
Design
Meta-
Design
(Maker
Movement)
Blaming
the User
Design in Healthcare

4. Professional
Design
Participatory
Design
Human-
Centered
Design
Meta-
Design
(Maker
Movement)
Blaming
the User
Design in Healthcare
Meta-design
“Design for designers”
Users become co-designers
and co-developers
Maker Movement
Do It Yourself (DIY)
Learning by Doing
Peer-to-Peer
http://bit.ly/2g2w6b3

5. http://bit.ly/2ggadbu

12. Open Source Code

14. 21,000 + 12,187 = 33,187
US 31 countries

15. 19%
51%
15%
15%
0-5 yrs
6-12 yrs
13-17 yrs
18 + yrs
n=724
Nightscout Users

16. 78%
29%
78%
51%
24%
79%
5%
28%
55%
67%
79%
79%
Work
Other (specify)
Travel
Sporting Events
School
Nighttime
Children Adults
Purpose of NS Use for Adults and Kids

17. 9%
1%
2%
1%
2%
19%
6%
13%
2%
3%
3%
6%
8%
8%
14%
15%
24%
25%
55%
79%
93%
Spouse/Significant Other
Stepmom
Stepdad
Friend
Teacher/Daycare Provider
Other
Sibling
Grandpa
Coach
Grandma
Nurse
Individual
Dad
Mom
Children Adults
Who is Viewing NS Data for <18 yrs

27. Meta-Design in Healthcare
Learn from patient/caregiver innovations
that have been created
Create modular tools to allow users to
remix and recreate
Let Patients and Caregivers Design!

28. CGM in the Cloud Community
Ben West, Dana Lewis, John Costik, James
Wedding, Weston Nordgren
Emily Hirschfeld, Ashley Garrity, Preciosa Choi,
Sarah Clark, Peter Honeyman, Nancy Benovich
Gilby, Liz Kaziunas, Mark Newman
Twitter: @joyclee
http://www.doctorasdesigner.com
Thank you