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VISUAL
STORYTELLING:
Best Practices in
Translating
Health Research
Iris Thiele Isip Tan, MD, MSc
@endocrine_witch
Director, UP Manila Interactive Learning Center
Chief, UP Medical Informatics Unit
Professor, UP College of Medicine
WWW.FB.COM/ENDOCRINEWITCH
VISUAL
NARRATIVE
TO DISSEMINATE
RESEARCH
TO POPULARIZE
RESEARCH
Art does not
reproduce the
visible; rather,
it makes visible.
“
Red Balloon by Paul Klee
www.PaulKlee.net
Paul Klee, Creative Confession
DR. JOHN SNOW
MAP OF CHOLERA CASES IN 1850’S LONDON
VISUAL DATA STORY
Includes a set of story pieces
(specific facts backed up by data)
Bongshin Lee, Nathalie Henry Riche, Petra Isenberg, Sheelagh Carpendale, "More Than Telling a Story: Transforming Data into Visually
Shared Stories", IEEE Computer Graphics and Applications, vol. 35, no. , pp. 84-90, Sept.-Oct. 2015, doi:10.1109/MCG.2015.99
VISUAL DATA STORY
Story pieces are visualized
to support one or more intended messages
Bongshin Lee, Nathalie Henry Riche, Petra Isenberg, Sheelagh Carpendale, "More Than Telling a Story: Transforming Data into Visually
Shared Stories", IEEE Computer Graphics and Applications, vol. 35, no. , pp. 84-90, Sept.-Oct. 2015, doi:10.1109/MCG.2015.99
VISUAL DATA STORY
Story pieces are in meaningful order
or with connection between them to support goal
Bongshin Lee, Nathalie Henry Riche, Petra Isenberg, Sheelagh Carpendale, "More Than Telling a Story: Transforming Data into Visually
Shared Stories", IEEE Computer Graphics and Applications, vol. 35, no. , pp. 84-90, Sept.-Oct. 2015, doi:10.1109/MCG.2015.99
INFOGRAPHIC = INFORMATION GRAPHIC
http://infographiclist.com/tag/diabetes/
Figurative
graphics
Nonfigurative
graphics
Written text
VISUAL DATA STORYTELLING
Transforming data into visually shared stories
Bongshin Lee, Nathalie Henry Riche, Petra Isenberg, Sheelagh Carpendale, "More Than Telling a Story: Transforming Data into Visually
Shared Stories", IEEE Computer Graphics and Applications, vol. 35, no. , pp. 84-90, Sept.-Oct. 2015, doi:10.1109/MCG.2015.99
Stories package information into a
structure that is easily remembered.“ R Kosara, J Mackinlay. Computer 46 (5), 44-50
Picture credit: http://www.wadeharman.com/the-attention-economy-why-trigger-response-is-vital-marketing/
The ATTENTION ECONOMY is not growing,
which means we have to grab the attention
that someone else has today.
- Brent Leary, CRM Essentials Co-founder
GENRES OF NARRATIVE VISUALIZATION
Choosing what’s appropriate will depend on complexity
of data/story and the intended audience & medium
Heer, J., & Segel, E. (2010). Narrative Visualization: Telling Stories with Data. IEEE
Transactions on Visualization and Computer Graphics, 16, 1139-1148.
VISUAL
NARRATIVE
TO DISSEMINATE
RESEARCH
TO POPULARIZE
RESEARCH
INFOGRAPHIC VS CRITICAL APPRAISAL FORMAT
Preference for summarizing results from systematic reviews
Crick K, Hartling L (2015) Preferences of Knowledge Users for Two Formats of Summarizing Results from Systematic Reviews:
Infographics and Critical Appraisals. PLoS ONE 10(10): e0140029. doi:10.1371/journal.pone.0140029
INFOGRAPHIC VS CRITICAL APPRAISAL FORMAT
Preference for summarizing results from systematic reviews
Crick K, Hartling L (2015) Preferences of Knowledge Users for Two Formats of Summarizing Results from Systematic Reviews:
Infographics and Critical Appraisals. PLoS ONE 10(10): e0140029. doi:10.1371/journal.pone.0140029
51% preferred infographic
n = 59
67% (8/12) nurses
68% (15/22) physicians
Rated higher for clarity
Rated higher for aesthetic appeal
No difference between formats
for comprehensibility
Most useful for patients/caregivers
Most useful for professional roles
http://www.surgeryredesign.com/resources/
#VISUALABSTRACT
@andrewmibrahim
Visual summary of the information contained within an abstract
http://www.surgeryredesign.com/resources/
DESIGN PRINCIPLES FOR THE VISUAL ABSTRACT
Focus on the
user experience
Clarity of
purpose
Rapid
prototyping
Iterative
improvement
Thoughtful
restraint
Relevant
creativity
VISUAL
NARRATIVE
TO DISSEMINATE
RESEARCH
TO POPULARIZE
RESEARCH
TO INVESTIGATE STORYTELLING
as a tool to engage parents in communicating
research and health information
Hartling et al. Storytelling as a communication tool for health consumers: development of an intervention for
parents of children with croup. Stories to communicate health information. BMC Pediatrics 2010 10:64.
Creative writer
interviewed parents.
Drafted stories
Stories edited to
incorporate
research evidence
Illustrator & graphic
designer developed
story booklets
Explore data Make a story Tell a story
Hartling et al. Storytelling as a communication tool for health consumers: development of an intervention for
parents of children with croup. Stories to communicate health information. BMC Pediatrics 2010 10:64.
CREATING THE STORY
for parents of children with croup
PARTICIPANT
FEEDBACK
Hartling et al. Storytelling as a communication tool for health consumers: development of an intervention for
parents of children with croup. Stories to communicate health information. BMC Pediatrics 2010 10:64.
Identify with stories
Easier to get
information compared
to a standard medical
information sheet
CHALLENGES
Hartling et al. Storytelling as a communication tool for health consumers: development of an intervention for
parents of children with croup. Stories to communicate health information. BMC Pediatrics 2010 10:64.
Staying true to story vs being
evidence-based
Use of internet by
consumers as a source of
health information
Balancing need to be
comprehensive while being
succinct
Story length, reading level,
graphics, layout etc.
What role did
information
visualization play in
the popularization of
the technical-
biomedical aspects of
the Ebola epidemic?
Miguel Alcíbar. Information visualisation as a resource
for popularising the technical-biomedical aspects of the
last Ebola virus epidemic: The case of the Spanish
reference press. Public Understanding of Science
2017:1-17
What technical-biomedical-related content associated
with Ebola is visually represented?
Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the
last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17
%
0 25 50 75 100
Epidemiological data56%
Prevention and control measures16.3%
12.4% Injurious effects
Therapies and treatments
Causes of infection
Viral life cycle
Viral load in body fluids
Molecular structure of the virus
Information on
ongoing Ebola epidemic
77.8%
Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the
last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17
SCENARIOS CREATED BY WRITTEN PRESS
to contextualize epidemiological information
Compare current
with previous Ebola
outbreaks
18.8%
Compare Ebola
outbreak with
different previous
viral epidemics
3.4%
Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the
last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17
Two newspapers paid less attention to information
on control & prevention measures.
Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the
last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17
SOURCES CITED BY JOURNALISTS
for their visual representations
Most frequently cited
71.8%
49.2% as sole source
79.4% with other sources
— Miguel Alcibar
… explore how visual representations
affect public awareness and
understanding of science.
Empirical studies of science literacy
have neglected, to a great extent,
the visual aspect of the public
communication of science.
”
“
Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the
last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17
Iterative participatory design
of infographics for engagement
of community members with varying
levels of health literacy
Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications
Preferred language
(English, Spanish)
Age group
(18–30, 31–60, >60 years)
Level of health literacy
(adequate, marginal,
inadequate).
Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications
RIGID LITERAL INTERPRETATIONS
Monotony in eating only fruits in icons
A whole pineapple?!
Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications
ICONS (to represent a general
class of things) reduced
comprehension
Running or jogging ONLY
instead of exercise in general
Stars nearly universally
understood to represent
abstract gradations
FAMILIAR ANALOGY
Simpler and more universally understood
Not favored because information-poor
Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications
Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications
FAMILIAR ANALOGY
Picture of BP measurement & figure illustrating
risks provide context for the viewer
Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications
SYMBOLIC & COLOR ANALOGIES
Stoplight color meanings where universally understood
Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications
ITERATIVE PARTICIPATORY DESIGN
Identify imagery: meaningful, culturally relevant and actionable
Visualizations based on
assumptions
May lead to wasted effort
Or be unintentionally
misleading
WHICH DESIGN COMPONENTS
of nutrition infographics make them
memorable and compelling?
Wansink B & Robbins R. Am J Health Behav. 2016;40(6):779-787

DOI: http://dx.doi.org/10.5993/AJHB.40.6.10
Healthy eating behavior for young
adults
Focus group discussions
Randomly assigned to ACTIVE vs
PASSIVE processing of infographics
Wansink B & Robbins R. Am J Health Behav. 2016;40(6):779-787

DOI: http://dx.doi.org/10.5993/AJHB.40.6.10
WHAT MAKES AN INFOGRAPHIC MEMORABLE?
An action-oriented title
Not humor or bright colors
@endocrine_witch

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Visual Storytelling: Best Practices for Translation of Health Research

  • 1. VISUAL STORYTELLING: Best Practices in Translating Health Research Iris Thiele Isip Tan, MD, MSc @endocrine_witch Director, UP Manila Interactive Learning Center Chief, UP Medical Informatics Unit Professor, UP College of Medicine
  • 3.
  • 5. Art does not reproduce the visible; rather, it makes visible. “ Red Balloon by Paul Klee www.PaulKlee.net Paul Klee, Creative Confession
  • 6. DR. JOHN SNOW MAP OF CHOLERA CASES IN 1850’S LONDON
  • 7. VISUAL DATA STORY Includes a set of story pieces (specific facts backed up by data) Bongshin Lee, Nathalie Henry Riche, Petra Isenberg, Sheelagh Carpendale, "More Than Telling a Story: Transforming Data into Visually Shared Stories", IEEE Computer Graphics and Applications, vol. 35, no. , pp. 84-90, Sept.-Oct. 2015, doi:10.1109/MCG.2015.99
  • 8. VISUAL DATA STORY Story pieces are visualized to support one or more intended messages Bongshin Lee, Nathalie Henry Riche, Petra Isenberg, Sheelagh Carpendale, "More Than Telling a Story: Transforming Data into Visually Shared Stories", IEEE Computer Graphics and Applications, vol. 35, no. , pp. 84-90, Sept.-Oct. 2015, doi:10.1109/MCG.2015.99
  • 9. VISUAL DATA STORY Story pieces are in meaningful order or with connection between them to support goal Bongshin Lee, Nathalie Henry Riche, Petra Isenberg, Sheelagh Carpendale, "More Than Telling a Story: Transforming Data into Visually Shared Stories", IEEE Computer Graphics and Applications, vol. 35, no. , pp. 84-90, Sept.-Oct. 2015, doi:10.1109/MCG.2015.99
  • 10. INFOGRAPHIC = INFORMATION GRAPHIC http://infographiclist.com/tag/diabetes/ Figurative graphics Nonfigurative graphics Written text
  • 11. VISUAL DATA STORYTELLING Transforming data into visually shared stories Bongshin Lee, Nathalie Henry Riche, Petra Isenberg, Sheelagh Carpendale, "More Than Telling a Story: Transforming Data into Visually Shared Stories", IEEE Computer Graphics and Applications, vol. 35, no. , pp. 84-90, Sept.-Oct. 2015, doi:10.1109/MCG.2015.99
  • 12. Stories package information into a structure that is easily remembered.“ R Kosara, J Mackinlay. Computer 46 (5), 44-50
  • 13.
  • 14. Picture credit: http://www.wadeharman.com/the-attention-economy-why-trigger-response-is-vital-marketing/ The ATTENTION ECONOMY is not growing, which means we have to grab the attention that someone else has today. - Brent Leary, CRM Essentials Co-founder
  • 15. GENRES OF NARRATIVE VISUALIZATION Choosing what’s appropriate will depend on complexity of data/story and the intended audience & medium Heer, J., & Segel, E. (2010). Narrative Visualization: Telling Stories with Data. IEEE Transactions on Visualization and Computer Graphics, 16, 1139-1148.
  • 17. INFOGRAPHIC VS CRITICAL APPRAISAL FORMAT Preference for summarizing results from systematic reviews Crick K, Hartling L (2015) Preferences of Knowledge Users for Two Formats of Summarizing Results from Systematic Reviews: Infographics and Critical Appraisals. PLoS ONE 10(10): e0140029. doi:10.1371/journal.pone.0140029
  • 18. INFOGRAPHIC VS CRITICAL APPRAISAL FORMAT Preference for summarizing results from systematic reviews Crick K, Hartling L (2015) Preferences of Knowledge Users for Two Formats of Summarizing Results from Systematic Reviews: Infographics and Critical Appraisals. PLoS ONE 10(10): e0140029. doi:10.1371/journal.pone.0140029 51% preferred infographic n = 59 67% (8/12) nurses 68% (15/22) physicians Rated higher for clarity Rated higher for aesthetic appeal No difference between formats for comprehensibility Most useful for patients/caregivers Most useful for professional roles
  • 20. http://www.surgeryredesign.com/resources/ DESIGN PRINCIPLES FOR THE VISUAL ABSTRACT Focus on the user experience Clarity of purpose Rapid prototyping Iterative improvement Thoughtful restraint Relevant creativity
  • 21.
  • 23. TO INVESTIGATE STORYTELLING as a tool to engage parents in communicating research and health information Hartling et al. Storytelling as a communication tool for health consumers: development of an intervention for parents of children with croup. Stories to communicate health information. BMC Pediatrics 2010 10:64.
  • 24. Creative writer interviewed parents. Drafted stories Stories edited to incorporate research evidence Illustrator & graphic designer developed story booklets Explore data Make a story Tell a story Hartling et al. Storytelling as a communication tool for health consumers: development of an intervention for parents of children with croup. Stories to communicate health information. BMC Pediatrics 2010 10:64. CREATING THE STORY for parents of children with croup
  • 25. PARTICIPANT FEEDBACK Hartling et al. Storytelling as a communication tool for health consumers: development of an intervention for parents of children with croup. Stories to communicate health information. BMC Pediatrics 2010 10:64. Identify with stories Easier to get information compared to a standard medical information sheet
  • 26. CHALLENGES Hartling et al. Storytelling as a communication tool for health consumers: development of an intervention for parents of children with croup. Stories to communicate health information. BMC Pediatrics 2010 10:64. Staying true to story vs being evidence-based Use of internet by consumers as a source of health information Balancing need to be comprehensive while being succinct Story length, reading level, graphics, layout etc.
  • 27. What role did information visualization play in the popularization of the technical- biomedical aspects of the Ebola epidemic? Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17
  • 28. What technical-biomedical-related content associated with Ebola is visually represented? Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17 % 0 25 50 75 100 Epidemiological data56% Prevention and control measures16.3% 12.4% Injurious effects Therapies and treatments Causes of infection Viral life cycle Viral load in body fluids Molecular structure of the virus
  • 29. Information on ongoing Ebola epidemic 77.8% Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17 SCENARIOS CREATED BY WRITTEN PRESS to contextualize epidemiological information Compare current with previous Ebola outbreaks 18.8% Compare Ebola outbreak with different previous viral epidemics 3.4%
  • 30. Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17 Two newspapers paid less attention to information on control & prevention measures.
  • 31. Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17 SOURCES CITED BY JOURNALISTS for their visual representations Most frequently cited 71.8% 49.2% as sole source 79.4% with other sources
  • 32. — Miguel Alcibar … explore how visual representations affect public awareness and understanding of science. Empirical studies of science literacy have neglected, to a great extent, the visual aspect of the public communication of science. ” “ Miguel Alcíbar. Information visualisation as a resource for popularising the technical-biomedical aspects of the last Ebola virus epidemic: The case of the Spanish reference press. Public Understanding of Science 2017:1-17
  • 33. Iterative participatory design of infographics for engagement of community members with varying levels of health literacy Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications Preferred language (English, Spanish) Age group (18–30, 31–60, >60 years) Level of health literacy (adequate, marginal, inadequate).
  • 34. Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications RIGID LITERAL INTERPRETATIONS Monotony in eating only fruits in icons A whole pineapple?!
  • 35. Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications ICONS (to represent a general class of things) reduced comprehension Running or jogging ONLY instead of exercise in general Stars nearly universally understood to represent abstract gradations
  • 36. FAMILIAR ANALOGY Simpler and more universally understood Not favored because information-poor Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications
  • 37. Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications FAMILIAR ANALOGY Picture of BP measurement & figure illustrating risks provide context for the viewer
  • 38. Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications SYMBOLIC & COLOR ANALOGIES Stoplight color meanings where universally understood
  • 39. Arcia A, et al. J Am Med Inform Assoc 2016;23:174–183. doi:10.1093/jamia/ocv079, Research and Applications ITERATIVE PARTICIPATORY DESIGN Identify imagery: meaningful, culturally relevant and actionable Visualizations based on assumptions May lead to wasted effort Or be unintentionally misleading
  • 40. WHICH DESIGN COMPONENTS of nutrition infographics make them memorable and compelling? Wansink B & Robbins R. Am J Health Behav. 2016;40(6):779-787
 DOI: http://dx.doi.org/10.5993/AJHB.40.6.10 Healthy eating behavior for young adults Focus group discussions Randomly assigned to ACTIVE vs PASSIVE processing of infographics
  • 41. Wansink B & Robbins R. Am J Health Behav. 2016;40(6):779-787
 DOI: http://dx.doi.org/10.5993/AJHB.40.6.10 WHAT MAKES AN INFOGRAPHIC MEMORABLE? An action-oriented title Not humor or bright colors