This presentation describes the Clinical Studies Directory at the University of Southern California. It was presented to the national Clinical and Translational Science Awards (CTSA) Recruitment and Retention Working Group.

1. Connecting Patients and
Clinical Trials Digitally
Katja Reuter, PhD; Francis Ukpolo, MBA; Praveen Angyan, MS
Presented at: Recruitment and Retention Working group conference call, Clinical and
Translational Science Awards (CTSA), February 1, 2016

2. Why the Focus on Digital?
Patients, caregivers, and disease
advocates can be found and
engaged digitally.

3. Digital Trends by the Numbers
Increased use of the Internet as a top source for clinical
research information
Harris-Interactive, 2004. Study by The Center for Information & Study on Clinical Research
Participation, 2013.
46%
Of those on the Web are seeking healthcare information,
and half of health information searches within the U.S. are on
behalf of someone else
Pew Internet & American Life Project, 2010.
80%
Of the public reports that they have used social media to
learn about clinical research
The Perceptions and Insights Study: Report on Clinical Trial Information Seekers. The
Center for Information & Study on Clinical Research Participation, 2013.
40%

4. The Clinical Studies Directory at USC
http://clinicaltrials.keckmedicine.org

5. Automated Integration with Different
Data Sources
 ClinicalTrials.gov via REST API
 Internal institutional data sources, e.g., IRB via
SOAP (Simple Object Access Protocol)
 Local research expert finder system (Profiles
research networking system)

6. Features
http://clinicaltrials.keckmedicine.org
To assist external partners, e.g.,
patients, caregivers, physicians

7. Search Supports Different Information
User Types
Google-like search with
type-ahead support
Site location filter

8. Search Supports Different Information
User Types
Browse by
disease
category

9. Search Results Page
Highlights the responsible Principal Investigator (PI) for each clinical trial
Trial
information
PI
information

10. Individual Clinical Trial Page

11. Compliant Contact Form

12. Optimized for Mobile Devices

13. Why participate? A Video Invitation
https://www.youtube.com/watch?v=3H_wAQ2rYNg

14. Features
http://clinicaltrials.keckmedicine.org
To support external PIs and
research teams

15. Supporting Research Teams
 Automated page generation
 Possibility to use clinical trial page as study recruitment
page
 Tool is search engine optimized to increase the
exposure of the clinical trials online

16. Performance Insights
 Launch at USC: Feb 9, 2015
 Number of total sessions since launch: 8,313
 Average time spent on site: 2:21 min
 Number of times contact form was used to connect with the study
team: 97
 Top five organic keywords bringing users to the site: USC clinical
trials, Keck School Clinical Trials, Norris Cancer Center, USC
Sleep Apnea Trial, Allo Medicine for Alzheimer's

17. Ongoing Work & Future Features
Integration with local CTMS
Inclusion of study results
Inclusion of other non-clinical
research studies/data sources
Ongoing Coming Soon
Editing feature
Alerts/updates feature
Free downloadable
code package
Automated promotion via
social media (opt in – Twitter
and Facebook)

18. Thank You
SC CTSI | www.sc-ctsi.org Phone: (323) 442-4032 Email: info@sc-ctsi.org Twitter: @SoCalCTSI