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Patient Partner

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BBMRI Stakeholder's Forum
BBMRI Stakeholder's Forum
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Patient Involvement in Clinical Research In Relationship with Biobanking BBMRI - 15 December 2009 Cor Oosterwijk Project Coordinator PatientPartner Dutch Genetic Alliance VSOP European Genetic Alliances’ Network EGAN
Challenges ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Public perception of clinical research
Added value of patient participation ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
PatientPartner ,[object Object],[object Object],[object Object],[object Object],[object Object]
PatientPartner ,[object Object],[object Object],[object Object],[object Object],[object Object]
Consortium ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
PatientPartner May 2008 – May 2011 ,[object Object],[object Object],[object Object],[object Object],[object Object]
Dissemination ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Biobanks, clinical research and PatientPartner ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Levels of Patient Participation in Clinical Research 30/12/09 Reviewer Co-researcher Driving force Research subject Information provider Advisor
30/12/09 Outcome PatientPartner survey Co-researcher Advisor Information Provider Research subject Driving Force Reviewer
 
Patient entrepreneurship in biobanking
Genetic Alliance BioBank Functioning ,[object Object],[object Object],[object Object],[object Object],www.biobank.org By: Patrick F. Terry ©
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
PatientPartner preliminary findings ,[object Object],[object Object],[object Object],[object Object],[object Object]
PatientPartner preliminary outcomes ,[object Object],[object Object],[object Object],[object Object],[object Object]
Take home message ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
www.patientpartner-europe.eu www.enpcrtest.forumotion.com www.biomedinvo4all.com BBMRI Patient Working Group and PatientPartner can work together on recommendations related to the role of p.o. in biobanks for (pre)clinical research.

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Patient Partner

  • 1. Patient Involvement in Clinical Research In Relationship with Biobanking BBMRI - 15 December 2009 Cor Oosterwijk Project Coordinator PatientPartner Dutch Genetic Alliance VSOP European Genetic Alliances’ Network EGAN
  • 2.
  • 3. Public perception of clinical research
  • 4.
  • 5.
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  • 7.
  • 8.
  • 9.
  • 10.
  • 11. Levels of Patient Participation in Clinical Research 30/12/09 Reviewer Co-researcher Driving force Research subject Information provider Advisor
  • 12. 30/12/09 Outcome PatientPartner survey Co-researcher Advisor Information Provider Research subject Driving Force Reviewer
  • 13.  
  • 15.
  • 16.
  • 17.
  • 18.
  • 19.
  • 20. www.patientpartner-europe.eu www.enpcrtest.forumotion.com www.biomedinvo4all.com BBMRI Patient Working Group and PatientPartner can work together on recommendations related to the role of p.o. in biobanks for (pre)clinical research.

Editor's Notes

  1. Alle algemene problematiek van klinische research komt samen in pediatrische research