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CAN SOCIAL MEDIA
CHANGE HEALTH
BEHAVIOR?
IRIS THIELE ISIP TAN MD, MSC
Professor, UP College of Medicine
Chief, UP Medical Informatics Unit
Director, UP Manila Interactive Learning Center
@endocrine_witch
I have nothing to disclose
www.fb.com/endocrinewitch
www.dokbru.endocrine-witch.net
POTENTIAL
EVIDENCE
STRATEGY
FUTURE
Patients are increasingly using online social networks to
connect with other patients and healthcare professionals
PEER-TO-PEER HEALTHCARE
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
CAN SOCIAL MEDIA CHANGE HEALTH BEHAVIOR?
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
People can participate as part of their
usual social media routine
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
Social media facilitates
self-help behavior
Logan A. Community hypertension programs in the age of mobile
technology & social media. Am J Hypertension 2014;27(8): 1033-1035
Berkman L, Glass T. (2000) Social integration, social networks, social support and health
SOCIAL INFLUENCE
How the presence,
actions or expectations
of others influence the
way one behaves
SOCIAL ENGAGEMENT
& ATTACHMENT
Berkman L, Glass T. (2000) Social integration, social networks, social support and health
How social network structure
affects access to resources
SOCIAL RECOMMENDATIONS
Berkman L, Glass T. (2000) Social integration, social networks, social support and health
SOCIAL CONTAGION
How health behaviours
may be ‘transmitted’ by
‘person-to-person spread’
across social networks Berkman L, Glass T. (2000) Social integration,
social networks, social support and health
SOCIAL SUPPORT
Emotional, functional and informational
assistance influences health Berkman L, Glass T. (2000) Social integration,
social networks, social support and health
POTENTIAL
EVIDENCE
STRATEGY
FUTURE
Social media in communicating health information:
an analysis of Facebook groups related to hypertension
Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265. DOI: http://dx.doi.org/10.5888/ pcd12.140265.
187 FB groups
8,966 Facebook users
1 to 2,161 individuals/group
Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
FACEBOOK GROUPS ON HYPERTENSION
Objective
Main topic
No. of members
Geographic
boundaries
Level of activity
Type of user-generated
content on wall
Likes & comments
Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
PRIMARY OBJECTIVE
Awareness creation 60%
Providing support to patients and caregivers 11%
Sharing disease experiences and life stories 11%
Fund raising for relevant organisations 8%
Product or service promotion 4%
THEME OF TOP-DISPLAYED RECENT WALL POST
Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
Product or service promotion 21%
Sharing hypertension
awareness-related
information 20%
Sharing external web
address related to health
13%
Query to members for
particular information 10%
Despite their small number and low activity level, the
hypertension-related Facebook groups provide a sounding
board for those affected …
Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
Any report of the status of a
patient’s health condition that
comes directly from the
patient, without interpretation
of the response by a clinician
or anyone else
PATIENT-REPORTED OUTCOME
Kear et al. J Am Soc Hypertens 2015;9(9):725–734
https://www.patientslikeme.com/
https://www.openresearchexchange.com/
Kear et al. J Am Soc Hypertens 2015;9(9):725–734
Develop a patient-reported hypertension instrument
using PRO data that incorporate patients’
experiences and feedback
Measures attitudes, lifestyle behaviors, adherence,
and barriers to hypertension management
SOCIAL MEDIA
VS
SOCIAL NETWORK
Social media is much broader than the concept of social
networking sites, and also includes blogs, discussion
boards, and wikis, among others.
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256. doi:10.1136/amiajnl-2014-002841
Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours:
a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926.
RCTs of social media interventions promoting
healthy diet and exercise behaviors
Interventions using social media, alone or
as part of a complex intervention
Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours:
a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926.
Williams G,Hamm MP, Shulhan J, et al. BMJ Open 2014;4:e003926.
Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours:
a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926.
Dietary fat consumption decreased significantly among
participants exposed to social media
Williams G,Hamm MP, Shulhan J, et al. BMJ Open 2014;4:e003926.
Voluntary recruitment may have resulted in increased
participant motivation and selection bias
Losses to follow-up were very high [challenges of adherence
and keeping participants engaged]
LIMITATIONS
Participants mostly female, Caucasian
of higher socioeconomic status
Evaluate the use and effectiveness of interventions using
social networking sites (SNSs) to change health behaviors
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256. doi:10.1136/amiajnl-2014-002841
Meta-analysis
8 RCTs
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256
FACEBOOK
HEALTH-SPECIFIC
TWITTER
social network sites
12 studies (n=7411)
8 RCTs
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256
Slight positive effect of SNS interventions on health
behavior-related outcomes
Considerable heterogeneity
Low-cost opportunity to virally spread health information
PUBLIC HEALTH IMPACT
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256
SNSs may be used in a synergistic way with personal
health records and mobile devices
POTENTIAL
EVIDENCE
STRATEGY
FUTURE
The new challenge for hypertension programs is
maintaining community interest while reiterating the
same health messages.
“
Logan A. Community hypertension programs in the age of mobile
technology & social media. Am J Hypertension 2014;27(8): 1033-1035
HOW TO PACKAGE
MESSAGES ON
SOCIAL MEDIA
Logan A. Community hypertension programs in the age of mobile
technology & social media. Am J Hypertension 2014;27(8): 1033-1035
DEFINE PARAMETERS
Modality
Purpose
Community type
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
Behavior
counseling
Supplemental
information
Maximize attendance
& retention
Place to
connect
PURPOSE
PLATFORM
SELECTION
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
TARGET POPULATION
Platform users
Non-users
User of any platform
RECRUITMENT
Social media
Local
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
CONTENT CONVERSION/DEVELOPMENT
CONTENT LIBRARY
Pagoda S. et al. Adapting Behavioral Interventions for Social
Media Delivery J Med Internet Res 2016;18(1):e24
Web page conversion
Posts
Curated online content
ENGAGEMENT PLAN Group chats
Micro-
counseling
Pagoda S. et al. Adapting Behavioral Interventions for Social
Media Delivery J Med Internet Res 2016;18(1):e24
TRAINING
Interventionist
Participant Pagoda S. et al. Adapting Behavioral Interventions for Social
Media Delivery J Med Internet Res 2016;18(1):e24
How to
maximize
experience
Pagoda S. et al. Adapting Behavioral Interventions for Social
Media Delivery J Med Internet Res 2016;18(1):e24
REPORTING
How many likes?
How many replies?
How many posts did participants make?
POTENTIAL
EVIDENCE
STRATEGY
FUTURE
What is the optimal size for an online network
for a behavioral intervention?
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
What is the ideal structure of a group intervention?
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
WHAT IS MEANINGFUL
ENGAGEMENT?
FOR
WHOM?
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
IRIS THIELE ISIP TAN MD, MSC
Professor, UP College of Medicine
Chief, UP Medical Informatics Unit
Director, UP Manila Interactive Learning Center
@endocrine_witch

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Can social media change health behavior?

  • 1. CAN SOCIAL MEDIA CHANGE HEALTH BEHAVIOR? IRIS THIELE ISIP TAN MD, MSC Professor, UP College of Medicine Chief, UP Medical Informatics Unit Director, UP Manila Interactive Learning Center @endocrine_witch
  • 2. I have nothing to disclose
  • 6. Patients are increasingly using online social networks to connect with other patients and healthcare professionals PEER-TO-PEER HEALTHCARE Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 7. CAN SOCIAL MEDIA CHANGE HEALTH BEHAVIOR? Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 8. People can participate as part of their usual social media routine Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 9. Social media facilitates self-help behavior Logan A. Community hypertension programs in the age of mobile technology & social media. Am J Hypertension 2014;27(8): 1033-1035
  • 10. Berkman L, Glass T. (2000) Social integration, social networks, social support and health SOCIAL INFLUENCE How the presence, actions or expectations of others influence the way one behaves
  • 11. SOCIAL ENGAGEMENT & ATTACHMENT Berkman L, Glass T. (2000) Social integration, social networks, social support and health
  • 12. How social network structure affects access to resources SOCIAL RECOMMENDATIONS Berkman L, Glass T. (2000) Social integration, social networks, social support and health
  • 13. SOCIAL CONTAGION How health behaviours may be ‘transmitted’ by ‘person-to-person spread’ across social networks Berkman L, Glass T. (2000) Social integration, social networks, social support and health
  • 14. SOCIAL SUPPORT Emotional, functional and informational assistance influences health Berkman L, Glass T. (2000) Social integration, social networks, social support and health
  • 16. Social media in communicating health information: an analysis of Facebook groups related to hypertension Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265. DOI: http://dx.doi.org/10.5888/ pcd12.140265. 187 FB groups 8,966 Facebook users 1 to 2,161 individuals/group
  • 17. Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265. FACEBOOK GROUPS ON HYPERTENSION Objective Main topic No. of members Geographic boundaries Level of activity Type of user-generated content on wall Likes & comments
  • 18. Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265. PRIMARY OBJECTIVE Awareness creation 60% Providing support to patients and caregivers 11% Sharing disease experiences and life stories 11% Fund raising for relevant organisations 8% Product or service promotion 4%
  • 19. THEME OF TOP-DISPLAYED RECENT WALL POST Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265. Product or service promotion 21% Sharing hypertension awareness-related information 20% Sharing external web address related to health 13% Query to members for particular information 10%
  • 20. Despite their small number and low activity level, the hypertension-related Facebook groups provide a sounding board for those affected … Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
  • 21. Any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the response by a clinician or anyone else PATIENT-REPORTED OUTCOME Kear et al. J Am Soc Hypertens 2015;9(9):725–734
  • 24. Kear et al. J Am Soc Hypertens 2015;9(9):725–734 Develop a patient-reported hypertension instrument using PRO data that incorporate patients’ experiences and feedback Measures attitudes, lifestyle behaviors, adherence, and barriers to hypertension management
  • 25. SOCIAL MEDIA VS SOCIAL NETWORK Social media is much broader than the concept of social networking sites, and also includes blogs, discussion boards, and wikis, among others. Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256. doi:10.1136/amiajnl-2014-002841
  • 26. Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926. RCTs of social media interventions promoting healthy diet and exercise behaviors Interventions using social media, alone or as part of a complex intervention
  • 27. Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926.
  • 28. Williams G,Hamm MP, Shulhan J, et al. BMJ Open 2014;4:e003926.
  • 29. Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926. Dietary fat consumption decreased significantly among participants exposed to social media
  • 30. Williams G,Hamm MP, Shulhan J, et al. BMJ Open 2014;4:e003926. Voluntary recruitment may have resulted in increased participant motivation and selection bias Losses to follow-up were very high [challenges of adherence and keeping participants engaged] LIMITATIONS Participants mostly female, Caucasian of higher socioeconomic status
  • 31. Evaluate the use and effectiveness of interventions using social networking sites (SNSs) to change health behaviors Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256. doi:10.1136/amiajnl-2014-002841 Meta-analysis 8 RCTs
  • 32. Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256 FACEBOOK HEALTH-SPECIFIC TWITTER social network sites 12 studies (n=7411) 8 RCTs
  • 33. Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256 Slight positive effect of SNS interventions on health behavior-related outcomes Considerable heterogeneity
  • 34. Low-cost opportunity to virally spread health information PUBLIC HEALTH IMPACT Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256 SNSs may be used in a synergistic way with personal health records and mobile devices
  • 36. The new challenge for hypertension programs is maintaining community interest while reiterating the same health messages. “ Logan A. Community hypertension programs in the age of mobile technology & social media. Am J Hypertension 2014;27(8): 1033-1035
  • 37. HOW TO PACKAGE MESSAGES ON SOCIAL MEDIA Logan A. Community hypertension programs in the age of mobile technology & social media. Am J Hypertension 2014;27(8): 1033-1035
  • 38. DEFINE PARAMETERS Modality Purpose Community type Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 39. Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24 Behavior counseling Supplemental information Maximize attendance & retention Place to connect PURPOSE
  • 40. PLATFORM SELECTION Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 41. Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24 TARGET POPULATION Platform users Non-users User of any platform
  • 42. RECRUITMENT Social media Local Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 43. Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24 CONTENT CONVERSION/DEVELOPMENT
  • 44. CONTENT LIBRARY Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24 Web page conversion Posts Curated online content
  • 45. ENGAGEMENT PLAN Group chats Micro- counseling Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 46. TRAINING Interventionist Participant Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24 How to maximize experience
  • 47. Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24 REPORTING How many likes? How many replies? How many posts did participants make?
  • 49. What is the optimal size for an online network for a behavioral intervention? Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 50. What is the ideal structure of a group intervention? Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 51. Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24 WHAT IS MEANINGFUL ENGAGEMENT?
  • 52. FOR WHOM? Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
  • 53. IRIS THIELE ISIP TAN MD, MSC Professor, UP College of Medicine Chief, UP Medical Informatics Unit Director, UP Manila Interactive Learning Center @endocrine_witch