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UPDATE-CLINICAL
CLASSIFICATIONS FOR
CEREBRAL PALSY Deborah Gaebler-Spira
XIII International ORITEL Conference
Foundational and First General Assembly
of the Latin American Academy on Child
Development and Disability
9/2/11
2 A Neural Interface for Artificial Limbs: Targeted Muscle Reinnervation
REHABILITATION INSTITUTE OF CHICAGO
2
OBJECTIVES
 CP - descriptors
 The context of the ICF
 Classifications and relationships
 How this moves us forward together
LET’S START
 What do parents ask about?
• Diagnosis - what does my child have?
• Function - what can my child do?
CEREBRAL PALSY-
DEFINITION-BAX-2001
 Disorder of movement and posture resulting from a
condition of non-progressive brain damage that occurred
in infancy
 Abnormality of tone
 Inclusive-many etiologies
 Brain lesion is static-musculoskeletal system changes
CLINICAL DESCRIPTION-START WITH
 Predominant tone abnormality
 Most children will have spasticity
 Many have mixed tone disorders
Dyskinetic: involuntary movement disorder
with varying tone
Mixed CP: combination of subtypes
Cerebral
Palsy
Spastic Dyskinetic Ataxic
Bilateral Unilateral Hypokinetic Hyperkinetic
Diplegic
Quadriplegic
Triplegic
Hemiplegic Dystonic Choreoathetosis
TOPOGRAPHY
 Hemiplegia
 Diplegia
 Quadraplegia
 Triplegia
DEFINITION OF CEREBRAL PALSY
 Cerebral palsy (CP) describes a group of permanent
disorders of the development of movement and posture,
causing activity limitation, that are attributed to non-
progressive disturbances that occurred in the developing
fetal or infant brain.
 The motor disorders of cerebral palsy are often
accompanied by disturbances of sensation, perception,
cognition, communication, and behavior, by epilepsy,
and by secondary musculoskeletal problems.
Rosenbaum, et al. (2007)
HOW THAT CHANGES THE PERSPECTIVE
 Creates an emphasis on activities, not just
impairments
 Creates the inclusion of sensory abnormalities
 Attributes co-morbidities as important factors in
prognosis
NEW/WHO/ICF
Health Condition
(disorder or disease)
Body Functions &
Structures
Activities Participation
Environmental
Factors
Personal Factors
Interactions between components of the ICF
9/2/11
2 A Neural Interface for Artificial Limbs: Targeted Muscle Reinnervation
GMFC-GROSS MOTOR FUNCTION CLASSIFICATION
GMFCS
 The Gross Motor Classification System
 Developed to classify severity of functional
limitation/disability in children with cerebral palsy.
 Ages birth to 12 years
 Not to be used as a diagnostic tool- describes gross motor
function with an emphasis on movement initiation, sitting
control and walking.
GMFCS
 Reliable method of classifying based on function
 Inherent meaning to families-therapists-physicans
 Usual performance
FUNCTIONAL CLASSIFICATION OF CP
GMFCS
 Stratification according to functional level
 Observed at ages 2-12
GMFCS E&R
GMFCS LEVELS
Level I: Walks without assistive
device indoors. Climbs stairs
without limitation. Able to run
and jump. Impaired speed,
balance, coordination.
GMFCS LEVELS
Level II: Children walk indoors
and climb stairs holding onto
railing. Difficulty with walking
on uneven surfaces and
inclines or within crowds or
confined spaces.
GMFCS LEVELS
Level III: Walks with assistive
mobility devices on level
surface. Limitations on uneven
surfaces or inclines. May
propel wheelchair manually.
May use wheelchair for long
distance transport.
GMFCS LEVELS
Level IV: Walks for short
distances on a walker.
Wheeled mobility for
outdoors, school and
community.
GMFCS LEVELS
Level V: All areas of motor
function are limited. No
independent mobility even
with assistive technology.
FUNCTIONAL MOBILITY SCALE
 Exercise
 Household
 Community
MACS-MANUAL ABILITY CLASSIFICATION
FINE MOTOR ARM PLACEMENT
MANUAL ABILITY CLASSIFICATION-MACS
 Children with cerebral palsy use their hands when
handling objects in daily activities
 Assesses typical, not optimal performance
 Ages 4-18 years
Eliasson et al. 2006
MACS
I. Handles objects easily and successfully
II. Handles most objects but with somewhat reduced quality and/or speed of
achievement
III. Handles objects with difficulty; needs help to prepare and/or modify activities. The
performance is slow and achieved with limited success regarding quality and quantity.
Activities are performed independently if they have been set up or adapted.
IV. Handles a limited selection of easily managed objects in adapted situations. Performs
parts of activities with effort and with limited success. Requires continuous support
and assistance and/or adapted equipment, for even partial achievement of the activity.
V. Does not handle objects and has severely limited ability to perform even simple
actions. Requires total assistance
GMFCS DOES NOT PREDICT MACS
Cooley Hidecker et al., 2009
VIKING SPEECH SCALE
 Speech is not affected by motor disorder.
 Speech is imprecise but usually understandable to unfamiliar listeners. Loudness of speech is
adequate for one to one
 Conversation. Voice may be breathy or harsh sounding but does not impair intelligibility.
Articulation is imprecise; most consonants are produced, but deterioration is noticeable in longer
utterances. Although difficulties are noticeable, speech is usually understandable to unfamiliar
listeners out of context.
 Speech is unclear and not usually understandable to unfamiliar listeners out of context. Difficulties
controlling breathing for speech – can produce one word per utterance and/or speech is
sometimes too loud or too quiet to be understood. Voice may be harsh sounding; pitch may
change suddenly. Speech may be markedly hyper nasal. A very small range of consonants are
produced. The severity of the difficulties makes the speech difficult to understand out of context.
 No understandable speech.
WHY ARE THEY IMPORTANT
 Meant to discriminate and categorize rather than 'assess’ (Damiano et
al.,2006)
 Easily applied, simple and quick classifications which may be performed by
a physical therapist, the family or a related person, and provide information
about the functional level of the child with CP (Morris et al., 2004b; Eliasson
et al., 2006, Mutlu et al., 2010)
 fulfill each other for a total and whole classification of children with CP
(Morris et al.,2006; Kerem-Gunel et al., 2009)
 Universal, translated and studied on many different languages
(www.canchild.ca)
EDACS
 I - Eats safely and efficiently
 II - Eats and drinks safely but have limitations to efficiency
 III - Eats and drinks safely but have limitations to efficiency
and safety
 IV - Eats and drinks with significant safety issues
 V - Unable to eat safely-G tube
9/2/11
2 A Neural Interface for Artificial Limbs: Targeted Muscle Reinnervation
Is the individual
able to swallow
food and drink
without risk of
aspiration?Is the individual able
to bite and chew on
hard lumps of food
without a risk of
choking?
Is the individual
able to eat a meal
in the same time
as peers?
Level I
Eats and drinks
safely and
efficiently
Level IV
Eats and drinks with
significant
limitations to safety.
Level V
Unable to eat or
drink safely – tube
feeding may be
considered to
provide nutrition.
Can risks of
aspiration be
managed to
eliminate harm to
the individual?
No
Yes No
Yes No
Yes
Eating and Drinking Ability Classification System - Algorithm
Yes No
Level II
Eats and drinks
safely but with
some limitations
to efficiency.
Level III
Eats and drinks
with some
limitations to
safety; there maybe
limitations to
efficiency.
ICF
Environmental Factors Personal Factors
Body Function & Structure
(Impairment)
Muscle strength (muscle test,
dynamometer)
Spasticity(M.Ashworth, Tardieu)
ROM(Goniometry )
Selective motor control (SCALE-TASC
Tests )Perception, cognition
Postural problems
Activity
(Limitation)
GMFCS,FMS
MACS
,CFCS,EADSC,.
Participation
(Restriction)
Daily Living activities,
Social roles in
community (children,
student, friends,etc.)
WeeFIM
PEDI etc.
OPTIMIZES MANAGEMENT
 Sharpens aligns focus on function versus impairments
 More useful than severity, type and distribution
INTERVENTION PLANNING
 Assists with realistic goal therapy setting
 Children with GMFCS 3 –community wheelchair
 GMFCS 3,4-use walker part time
 GMFCS 5 limited self mobility
GROSS MOTOR CURVES AND GMFCS
90% of final GMF achieved
THERAPY INTERVENTIONS
 Secondary impairments vary with GMFCS level
 Endurance, fatigue, weakness –can target better
interventions for groups
 Supports evidence based research
VARIATIONS IN MEDICAL AND SURGICAL NEEDS
Hip pathology increases with GMFCS level
Use of G-tube and co-morbidities increase with GMFCS
levels
IN A VARIABLE DISORDER-ALLOWS-CLINICIANS-
PARENTS
 Common language
 Common groupings
 Common Goals

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Actualizaciones en la clasificación de Parálisis Cerebral Infantil y su relevancia en el pronóstico. Dra. Deborah Gaebler

  • 1. UPDATE-CLINICAL CLASSIFICATIONS FOR CEREBRAL PALSY Deborah Gaebler-Spira XIII International ORITEL Conference Foundational and First General Assembly of the Latin American Academy on Child Development and Disability
  • 2. 9/2/11 2 A Neural Interface for Artificial Limbs: Targeted Muscle Reinnervation REHABILITATION INSTITUTE OF CHICAGO 2
  • 3. OBJECTIVES  CP - descriptors  The context of the ICF  Classifications and relationships  How this moves us forward together
  • 4. LET’S START  What do parents ask about? • Diagnosis - what does my child have? • Function - what can my child do?
  • 5. CEREBRAL PALSY- DEFINITION-BAX-2001  Disorder of movement and posture resulting from a condition of non-progressive brain damage that occurred in infancy  Abnormality of tone  Inclusive-many etiologies  Brain lesion is static-musculoskeletal system changes
  • 6. CLINICAL DESCRIPTION-START WITH  Predominant tone abnormality  Most children will have spasticity  Many have mixed tone disorders
  • 7.
  • 8. Dyskinetic: involuntary movement disorder with varying tone Mixed CP: combination of subtypes Cerebral Palsy Spastic Dyskinetic Ataxic Bilateral Unilateral Hypokinetic Hyperkinetic Diplegic Quadriplegic Triplegic Hemiplegic Dystonic Choreoathetosis
  • 9. TOPOGRAPHY  Hemiplegia  Diplegia  Quadraplegia  Triplegia
  • 10. DEFINITION OF CEREBRAL PALSY  Cerebral palsy (CP) describes a group of permanent disorders of the development of movement and posture, causing activity limitation, that are attributed to non- progressive disturbances that occurred in the developing fetal or infant brain.  The motor disorders of cerebral palsy are often accompanied by disturbances of sensation, perception, cognition, communication, and behavior, by epilepsy, and by secondary musculoskeletal problems. Rosenbaum, et al. (2007)
  • 11. HOW THAT CHANGES THE PERSPECTIVE  Creates an emphasis on activities, not just impairments  Creates the inclusion of sensory abnormalities  Attributes co-morbidities as important factors in prognosis
  • 12. NEW/WHO/ICF Health Condition (disorder or disease) Body Functions & Structures Activities Participation Environmental Factors Personal Factors Interactions between components of the ICF
  • 13. 9/2/11 2 A Neural Interface for Artificial Limbs: Targeted Muscle Reinnervation GMFC-GROSS MOTOR FUNCTION CLASSIFICATION
  • 14. GMFCS  The Gross Motor Classification System  Developed to classify severity of functional limitation/disability in children with cerebral palsy.  Ages birth to 12 years  Not to be used as a diagnostic tool- describes gross motor function with an emphasis on movement initiation, sitting control and walking.
  • 15. GMFCS  Reliable method of classifying based on function  Inherent meaning to families-therapists-physicans  Usual performance
  • 16. FUNCTIONAL CLASSIFICATION OF CP GMFCS  Stratification according to functional level  Observed at ages 2-12
  • 18. GMFCS LEVELS Level I: Walks without assistive device indoors. Climbs stairs without limitation. Able to run and jump. Impaired speed, balance, coordination.
  • 19. GMFCS LEVELS Level II: Children walk indoors and climb stairs holding onto railing. Difficulty with walking on uneven surfaces and inclines or within crowds or confined spaces.
  • 20. GMFCS LEVELS Level III: Walks with assistive mobility devices on level surface. Limitations on uneven surfaces or inclines. May propel wheelchair manually. May use wheelchair for long distance transport.
  • 21. GMFCS LEVELS Level IV: Walks for short distances on a walker. Wheeled mobility for outdoors, school and community.
  • 22. GMFCS LEVELS Level V: All areas of motor function are limited. No independent mobility even with assistive technology.
  • 23. FUNCTIONAL MOBILITY SCALE  Exercise  Household  Community
  • 25. MANUAL ABILITY CLASSIFICATION-MACS  Children with cerebral palsy use their hands when handling objects in daily activities  Assesses typical, not optimal performance  Ages 4-18 years
  • 27. MACS I. Handles objects easily and successfully II. Handles most objects but with somewhat reduced quality and/or speed of achievement III. Handles objects with difficulty; needs help to prepare and/or modify activities. The performance is slow and achieved with limited success regarding quality and quantity. Activities are performed independently if they have been set up or adapted. IV. Handles a limited selection of easily managed objects in adapted situations. Performs parts of activities with effort and with limited success. Requires continuous support and assistance and/or adapted equipment, for even partial achievement of the activity. V. Does not handle objects and has severely limited ability to perform even simple actions. Requires total assistance
  • 28. GMFCS DOES NOT PREDICT MACS
  • 29. Cooley Hidecker et al., 2009
  • 30. VIKING SPEECH SCALE  Speech is not affected by motor disorder.  Speech is imprecise but usually understandable to unfamiliar listeners. Loudness of speech is adequate for one to one  Conversation. Voice may be breathy or harsh sounding but does not impair intelligibility. Articulation is imprecise; most consonants are produced, but deterioration is noticeable in longer utterances. Although difficulties are noticeable, speech is usually understandable to unfamiliar listeners out of context.  Speech is unclear and not usually understandable to unfamiliar listeners out of context. Difficulties controlling breathing for speech – can produce one word per utterance and/or speech is sometimes too loud or too quiet to be understood. Voice may be harsh sounding; pitch may change suddenly. Speech may be markedly hyper nasal. A very small range of consonants are produced. The severity of the difficulties makes the speech difficult to understand out of context.  No understandable speech.
  • 31. WHY ARE THEY IMPORTANT  Meant to discriminate and categorize rather than 'assess’ (Damiano et al.,2006)  Easily applied, simple and quick classifications which may be performed by a physical therapist, the family or a related person, and provide information about the functional level of the child with CP (Morris et al., 2004b; Eliasson et al., 2006, Mutlu et al., 2010)  fulfill each other for a total and whole classification of children with CP (Morris et al.,2006; Kerem-Gunel et al., 2009)  Universal, translated and studied on many different languages (www.canchild.ca)
  • 32. EDACS  I - Eats safely and efficiently  II - Eats and drinks safely but have limitations to efficiency  III - Eats and drinks safely but have limitations to efficiency and safety  IV - Eats and drinks with significant safety issues  V - Unable to eat safely-G tube
  • 33. 9/2/11 2 A Neural Interface for Artificial Limbs: Targeted Muscle Reinnervation Is the individual able to swallow food and drink without risk of aspiration?Is the individual able to bite and chew on hard lumps of food without a risk of choking? Is the individual able to eat a meal in the same time as peers? Level I Eats and drinks safely and efficiently Level IV Eats and drinks with significant limitations to safety. Level V Unable to eat or drink safely – tube feeding may be considered to provide nutrition. Can risks of aspiration be managed to eliminate harm to the individual? No Yes No Yes No Yes Eating and Drinking Ability Classification System - Algorithm Yes No Level II Eats and drinks safely but with some limitations to efficiency. Level III Eats and drinks with some limitations to safety; there maybe limitations to efficiency.
  • 34. ICF Environmental Factors Personal Factors Body Function & Structure (Impairment) Muscle strength (muscle test, dynamometer) Spasticity(M.Ashworth, Tardieu) ROM(Goniometry ) Selective motor control (SCALE-TASC Tests )Perception, cognition Postural problems Activity (Limitation) GMFCS,FMS MACS ,CFCS,EADSC,. Participation (Restriction) Daily Living activities, Social roles in community (children, student, friends,etc.) WeeFIM PEDI etc.
  • 35. OPTIMIZES MANAGEMENT  Sharpens aligns focus on function versus impairments  More useful than severity, type and distribution
  • 36. INTERVENTION PLANNING  Assists with realistic goal therapy setting  Children with GMFCS 3 –community wheelchair  GMFCS 3,4-use walker part time  GMFCS 5 limited self mobility
  • 37. GROSS MOTOR CURVES AND GMFCS 90% of final GMF achieved
  • 38. THERAPY INTERVENTIONS  Secondary impairments vary with GMFCS level  Endurance, fatigue, weakness –can target better interventions for groups  Supports evidence based research
  • 39. VARIATIONS IN MEDICAL AND SURGICAL NEEDS Hip pathology increases with GMFCS level Use of G-tube and co-morbidities increase with GMFCS levels
  • 40. IN A VARIABLE DISORDER-ALLOWS-CLINICIANS- PARENTS  Common language  Common groupings  Common Goals