The document discusses the need for change regarding dementia care and support in the UK. It notes that 850,000 people have dementia, with many undiagnosed or without adequate support. Dementia costs the UK economy £26.3 billion per year. Surveys found that over half of people with dementia do not feel they receive enough government support and many do not feel treated with dignity in hospitals. The document proposes a new deal to transform dementia support through increased community support, societal understanding and acceptance, and investment in research to improve care and find a cure.

1. New Deal on
Dementia
Bernadine
McCrory
Operations
Director

2. The need for
change
2
850,000 people with dementia in the UK, around a third of
whom do not have a diagnosis and may be coping alone
without information about their condition, or care and support
that would improve their quality of life and keep them well and
independent for longer.
At least 25% of hospital beds are occupied by people with
dementia, with some hospitals saying that 40 to 50% of their
patients have dementia
Up to 70% of care home residents have dementia; over 60%
of people receiving homecare have some form of dementia.
Dementia costs the UK economy £26.3bn a year – that’s
enough to pay every household energy bill in the country
for a year

3. The need for
change
Living with
Dementia
3
• 68% of people survey said that they felt they
were living well with dementia.
• 53% of people said they had felt anxious or
depressed recently. 49% of respondents said
their carer did not receive help. 39% said they
did and 12% said they didn't know.
• Half of people (49%) of people with dementia
said they were not getting enough support from
the government.
• 75% of people said that they had another health
condition in addition to dementia.

4. The need for
change
Care
4
• Half of GPs (50%) don't think their patients with
dementia get enough support from the NHS and two
thirds (67%) don't think their patients with dementia get
enough support from social services.
• 60% of people felt the person with dementia they know
wasn’t treated with dignity or understanding while in
hospital.
• 92% of people said hospital environments are
frightening for the person with dementia they know.
• 90% of people said the person with dementia they
know became more confused while in hospital.
• On average, people with dementia in hospital stay
more than twice as long as other patients aged
over 65.

5. The need for
change
Public Attitudes
5

6. TO TRANSFORM THE LANDSCAPE OF
DEMENTIA FOREVER. UNTIL THE DAY WE
FIND A CURE, WE WILL STRIVE TO CREATE A
SOCIETY WHERE THOSE AFFECTED BY
DEMENTIA ARE SUPPORTED AND
ACCEPTED, ABLE TO LIVE IN THEIR
COMMUNITY WITHOUT FEAR OR PREJUDICE.
6
2017 - 2020

7. A New Deal On
Support
7
We want people with dementia, their family, friends and
carers, to know that they are not alone.
Our ambition, by 2022, is to reach out to everyone from the
time of diagnosis to offer help, and deliver a universally
accessible support and advice service.

8. A New Deal On
Society
8
We want everyone affected by dementia to know that
we are making change happen nationally and locally,
galvanising all those who want to achieve change and
joining them in the dementia movement.
Our ambition, by 2022, is to change the conversation on
dementia. More people in 2022 living with dementia will say
they live in communities that support them. We will have
increased public awareness and understanding of dementia,
ending the stigma associated with the condition today.

9. A New Deal On
Research
9
We want everyone affected by dementia to know that our
researchers are leading the way. They are finding answers
that will make sure we better understand dementia, how to
prevent it, improve care today and, ultimately, find a cure.
Our ambition by 2022 is to have made our biggest ever
investment in dementia prevention, care and cure research.
This will transform the landscape of dementia research, home
and abroad.

10. Articulating the
voice of people
with dementia
10
State of the Nation
▪ Online survey of 500 carers of people with dementia
▪ Online survey of general public with over 2000 respondents
▪ 60-90 minute in-depth interviews with 30 people with
dementia
▪ Quantitative survey of 1000 people with dementia
I Statements
▪ 15 groups with people with dementia asking about the tone,
language and structure of the current statements
▪ Key themes were identified as care, carers, research,
community, independence, and identity.
▪ Consensus event for people with dementia, carers and
organisations to sign off the final statements on 5th April
▪ Launched in Dementia Awareness Week