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Fostering Social
    Emotional Skills &
    Academic Success for
    Students with FASD
Cheryl A. Wissick, Ph.D. University of South Carolina
           Trainer, SC FASD Collaborative
  Presentation Youth at Risk, Savannah GA, 3-4-13
     Presentation adapted from information from
Dan Dubovsky, FASD Specialist, FASD Center CFE, SAMHSA
     Roger Zoorob, M.D., Meharry Medical College
                   & Support from
          South Carolina Collaborative FASD
Resources
• FASD Center: FASDsoutheast.org
• Center for Excellence in FASD:
•FASDcenter.samsha.org
Scfasd.weebly.com
Resources for Presentation
        Wikispaces


        Behaviorsolutions



        Webtoolboxes
Objectives
•What do you know? Pre evaluation
•What do you want to know?
•Establish a goal for today
•FASD: overview and misconceptions
•Social Emotional Solutions
•Academic Solutions
FASD: Fast Facts
•FASD – 100% preventable, 0% curable
•If you are pregnant, don’t drink.
•If you drink, don’t get pregnant.
•Exposure to alcohol can affect the brain
 development at any time during
 pregnancy.
•FASD leading preventable cause of ID & DD
 in Western World
New Research                         YEA

 Scientists identify molecular events:
 1- Alcohol inhibits critical L1 cell adhesion
 form the brain & spinal cord
 2- Certain compounds can block alcohol’s
 inhibition
   1st Trimester         2nd Trimester         3rd Trimester
Alcohol interferes     Alcohol causes        Alcohol leads to
with organization    clinical features of   problems encoding
   of brain cells             FAS            visual & auditory
                                                information
Prevalence of Any Alcohol Use among Women
     Aged 18-44 Years – United States, 1991-2005


•High-risk drinking among women has not
 declined in the past decade
                     Behavioral Risk Factor Surveillance System, 1991-2005, United States
                     60

                     50
    Prevalence (%)




                     40

                     30

                     20

                     10

                      0




                                                         Not pregnant       Pregnant
High School girls 2011 data
70



60



50



40
                                                                                     Current

30                                                                                   Binge
                                                                                     Binge/alcohol

20



10



 0
     Total   White, non-   Black, non-   Hispanic   Other, non-   9   10   11   12
              Hispanic      Hispanic                 Hispanic†
Binge Drinking
         Binge Drinking Prevalence %
30

25

20

15

10

 5

0




 Age    Ethnicity             Education   Income
How much is too much alcohol
•What is a standard drink:
 • 12 oz. of beer
 • 5 oz. of wine
 • 4 oz. sherry
 • 1 ½ oz. of liquor
 • 12 oz wine spritzer

•NO alcohol in any form is safe during
 pregnancy.
FASD
•Fetal Alcohol Spectrum Disorders is
 not a diagnostic category, but rather
 an umbrella term describing the
 effects that can occur in a person
 whose mother drank alcohol during
 pregnancy.
•FASD is what a person
 has not what a person is.
Person First language
•FASD is what a person has not what a
 person is.
•Teenager with fetal alcohol spectrum
 disorders
•Student with a learning disability
•Man with red hat
•Can you think of one?
Misconception #1
You know a child has been affected by
  alcohol by the way he/she looks.
• Facial effects decrease as children age
• Full facial effects are only required for a
  diagnosis if one cannot substantiate that the
  mother drank during pregnancy.
• FASD is much broader than just FAS
• FAS has dysmorphic facial features, growth
  deficit and CNS abnormality
Misconception #2
Students with FASD all have severe
  intellectual disabilities

• Students with a FASD can have a range of
  abilities from severe intellectual disabilities
  to learning disabilities (IQ range 20-110)
• Students with a FASD can be labeled as
  having ADHD, ODD, Personality
  disorder, Learning Disability, Depression but
  FASD is the umbrella
• Leading cause of ID but only 25% have ID
Misconception #3
FASD is not as prevalent as Autism

• Estimates are that more children are affected
  by alcohol than the number of students
  identified as having autism spectrum
  disorders
• FASD is not as publicized due to stigma
• Good data are not collected on the incidence
  of FASD – only birth records of mothers
  “known” to drink are recorded.
Misconception #4
Alcohol does not cause as much damage as
  cocaine or heroin.


• Alcohol has long range effects on behavior and
  brain functioning.
• FASD is a lifelong disorder.
Misconception #5
If there is no cure, then why bother with
   identification.

• Early identification helps provide structure and a
  stable environment.
• Early identification can assist with strategies for
  instruction
Misconception #6
Only women who are alcoholics & have a low
 SES give birth to babies with a FASD.

• We cannot predict how much alcohol exposure
  will lead to a FASD.
• What constitutes one drink is much smaller than
  what we usually consider.
• FASD is more prevalent in middle to upper class
  situations than lower class.
Misconception #7
If I use evidence based practices the student
   will respond, otherwise the student is not
   trying.

•Students do not respond to typical
 language-based approaches.
•We have to shift thinking to what is wrong
 with the curriculum and not what what is
 wrong with the student.
So when to consider a FASD & try
           other techniques?
•Students or clients who do not
 respond to Research & Evidence based
 strategies
•Students or clients do not respond to
 typical rewards and consequences
•Students or clients who appear to be
 unmotivated and unresponsive
Why? Brain disorder
              creates gaps




Chart of age level functioning

                                 Source:
Consider FASD as the
      umbrella
Strengths Based Approach
•What do they do well?
•What do they like to do?
•What are their best qualities?
•What are your funniest experiences with
 them?
•Identify strengths in
 family, teachers, community, school
•Always focus on the individual first
“Typical” strengths
• Friendly      • Determined
• Likeable      • Have points of
                  insight
• Verbal
                • Good with younger
• Helpful         children or elderly
• Caring
• Hard Worker
Barriers
Do not learn by experiencing
consequences of their behavior.
•Act oppositional & have outbursts .
•Keep breaking the rules.
•Problems with lying or filling in the truth.
•Only respond to immediate rewards and
 consequences.
•Difficulty with social situations & friends
Techniques: Consequences
•Do not use natural consequences and make
 all consequence short term – (1 day max)
•USE positive reinforcement – immediately
•Do not take away what they like to do as a
 consequence for their behavior.
Techniques: Lying
•Discover the “purpose” of the lying, a
 behavior analysis
•Verify the person’s story from credible
 sources, not always peers.
•Not always a connect between what they
 feel to how they act so they might “look”
 like lying.
Techniques: Social
•Provide Social skills training & model with
 peers. Keep them actively involved
•Work on Strengths and help foster
 relationships with positive peers.
•Provide positive mentors
•Social skill training so that others do not
 see them as weird, strange, being
 inappropriate
Techniques: Rules
•Make sure rules are simple, be positive
 Have students explain what the rule means
 and not just repeat the rule
•Act out the rules or see if they can provide
 a Not-Example
•Provide reasons for rules
Techniques: Outbursts
•Look for signs of stress
•Provide quiet environments for chill out
•Ask if they need help
•Be there to provide assistance
•Provide second chances
•Check our expectations
•Be consistent & calm
Barriers to Learning
Attention
•Coming to attention
•Filtering out other distractions
•Staying on task for long periods
•Shifting attention
Barriers to learning
Verbal Reception
•Verbal expressive ability is much more
 advanced than verbal receptive skills or
 ability to produce written products.
•Can’t process several directions at once
•Can SAY what they need to do but they
 cannot show they can do it
Barriers to Learning

Working memory
•Problems with Storage and retrieval
•Inability to hold information in memory
 while performing a mental operation
 Cannot keep track of multiple plans to
 remember what they were supposed to
 do when
Barriers to Learning
Impaired Number Sense
•Difficulty with concepts*:
 telling time, money, measurement
•Difficulty with time as a function of retelling
 events, Impaired sense of timeline
•Difficulty planning and mental manipulation
Barrier to learning
Abstract Concepts
•Slow Processing rate
•Difficulty with prediction
•Difficulty making links or forming
 associations
•Problems making generalizations
•Literal thinking
Overall Strategies
•Simplify & structure the environment
•Use a lot of repetition & rephrasing
•Provide one direction or rule at a time.
•De-stress situations as it creates cortisol in
 their brain.
•Be consistent!!
Take home information
•We can’t change behavior of the damaged
 brain but we can change our approach or
 environment.
•Consider their point of view as they learn
 and see things differently
Remember
LISTEN… when they tell you that they cannot
do something but they are trying as they do
get frustrated: like trying to put together
something from IKEA every day!
Other resources from
   ScFASD.weebly.com
Do2Learn
http://edmontonfetalalcoholnetwork.org
Resources to teach
    students
Help spread the word
       with the FASD Knot


Can you follow the picture directions to make
an FASD knot?
Cheryl Wissick cwissick@sc.edu
Or Drwissickusc@gmail.com
http://behaviorsolutions.wikispaces.com
•All images of Lego from the Morgue File
•http://www.morguefile.com/

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FASD Social Emotional Interventions

  • 1. Fostering Social Emotional Skills & Academic Success for Students with FASD Cheryl A. Wissick, Ph.D. University of South Carolina Trainer, SC FASD Collaborative Presentation Youth at Risk, Savannah GA, 3-4-13 Presentation adapted from information from Dan Dubovsky, FASD Specialist, FASD Center CFE, SAMHSA Roger Zoorob, M.D., Meharry Medical College & Support from South Carolina Collaborative FASD
  • 2. Resources • FASD Center: FASDsoutheast.org • Center for Excellence in FASD: •FASDcenter.samsha.org
  • 4. Resources for Presentation Wikispaces Behaviorsolutions Webtoolboxes
  • 5. Objectives •What do you know? Pre evaluation •What do you want to know? •Establish a goal for today •FASD: overview and misconceptions •Social Emotional Solutions •Academic Solutions
  • 6. FASD: Fast Facts •FASD – 100% preventable, 0% curable •If you are pregnant, don’t drink. •If you drink, don’t get pregnant. •Exposure to alcohol can affect the brain development at any time during pregnancy. •FASD leading preventable cause of ID & DD in Western World
  • 7. New Research YEA Scientists identify molecular events: 1- Alcohol inhibits critical L1 cell adhesion form the brain & spinal cord 2- Certain compounds can block alcohol’s inhibition 1st Trimester 2nd Trimester 3rd Trimester Alcohol interferes Alcohol causes Alcohol leads to with organization clinical features of problems encoding of brain cells FAS visual & auditory information
  • 8. Prevalence of Any Alcohol Use among Women Aged 18-44 Years – United States, 1991-2005 •High-risk drinking among women has not declined in the past decade Behavioral Risk Factor Surveillance System, 1991-2005, United States 60 50 Prevalence (%) 40 30 20 10 0 Not pregnant Pregnant
  • 9. High School girls 2011 data 70 60 50 40 Current 30 Binge Binge/alcohol 20 10 0 Total White, non- Black, non- Hispanic Other, non- 9 10 11 12 Hispanic Hispanic Hispanic†
  • 10. Binge Drinking Binge Drinking Prevalence % 30 25 20 15 10 5 0 Age Ethnicity Education Income
  • 11. How much is too much alcohol •What is a standard drink: • 12 oz. of beer • 5 oz. of wine • 4 oz. sherry • 1 ½ oz. of liquor • 12 oz wine spritzer •NO alcohol in any form is safe during pregnancy.
  • 12. FASD •Fetal Alcohol Spectrum Disorders is not a diagnostic category, but rather an umbrella term describing the effects that can occur in a person whose mother drank alcohol during pregnancy. •FASD is what a person has not what a person is.
  • 13. Person First language •FASD is what a person has not what a person is. •Teenager with fetal alcohol spectrum disorders •Student with a learning disability •Man with red hat •Can you think of one?
  • 14. Misconception #1 You know a child has been affected by alcohol by the way he/she looks. • Facial effects decrease as children age • Full facial effects are only required for a diagnosis if one cannot substantiate that the mother drank during pregnancy. • FASD is much broader than just FAS • FAS has dysmorphic facial features, growth deficit and CNS abnormality
  • 15. Misconception #2 Students with FASD all have severe intellectual disabilities • Students with a FASD can have a range of abilities from severe intellectual disabilities to learning disabilities (IQ range 20-110) • Students with a FASD can be labeled as having ADHD, ODD, Personality disorder, Learning Disability, Depression but FASD is the umbrella • Leading cause of ID but only 25% have ID
  • 16. Misconception #3 FASD is not as prevalent as Autism • Estimates are that more children are affected by alcohol than the number of students identified as having autism spectrum disorders • FASD is not as publicized due to stigma • Good data are not collected on the incidence of FASD – only birth records of mothers “known” to drink are recorded.
  • 17. Misconception #4 Alcohol does not cause as much damage as cocaine or heroin. • Alcohol has long range effects on behavior and brain functioning. • FASD is a lifelong disorder.
  • 18. Misconception #5 If there is no cure, then why bother with identification. • Early identification helps provide structure and a stable environment. • Early identification can assist with strategies for instruction
  • 19. Misconception #6 Only women who are alcoholics & have a low SES give birth to babies with a FASD. • We cannot predict how much alcohol exposure will lead to a FASD. • What constitutes one drink is much smaller than what we usually consider. • FASD is more prevalent in middle to upper class situations than lower class.
  • 20. Misconception #7 If I use evidence based practices the student will respond, otherwise the student is not trying. •Students do not respond to typical language-based approaches. •We have to shift thinking to what is wrong with the curriculum and not what what is wrong with the student.
  • 21. So when to consider a FASD & try other techniques? •Students or clients who do not respond to Research & Evidence based strategies •Students or clients do not respond to typical rewards and consequences •Students or clients who appear to be unmotivated and unresponsive
  • 22. Why? Brain disorder creates gaps Chart of age level functioning Source:
  • 23. Consider FASD as the umbrella
  • 24. Strengths Based Approach •What do they do well? •What do they like to do? •What are their best qualities? •What are your funniest experiences with them? •Identify strengths in family, teachers, community, school •Always focus on the individual first
  • 25. “Typical” strengths • Friendly • Determined • Likeable • Have points of insight • Verbal • Good with younger • Helpful children or elderly • Caring • Hard Worker
  • 26. Barriers Do not learn by experiencing consequences of their behavior. •Act oppositional & have outbursts . •Keep breaking the rules. •Problems with lying or filling in the truth. •Only respond to immediate rewards and consequences. •Difficulty with social situations & friends
  • 27. Techniques: Consequences •Do not use natural consequences and make all consequence short term – (1 day max) •USE positive reinforcement – immediately •Do not take away what they like to do as a consequence for their behavior.
  • 28. Techniques: Lying •Discover the “purpose” of the lying, a behavior analysis •Verify the person’s story from credible sources, not always peers. •Not always a connect between what they feel to how they act so they might “look” like lying.
  • 29. Techniques: Social •Provide Social skills training & model with peers. Keep them actively involved •Work on Strengths and help foster relationships with positive peers. •Provide positive mentors •Social skill training so that others do not see them as weird, strange, being inappropriate
  • 30. Techniques: Rules •Make sure rules are simple, be positive Have students explain what the rule means and not just repeat the rule •Act out the rules or see if they can provide a Not-Example •Provide reasons for rules
  • 31. Techniques: Outbursts •Look for signs of stress •Provide quiet environments for chill out •Ask if they need help •Be there to provide assistance •Provide second chances •Check our expectations •Be consistent & calm
  • 32. Barriers to Learning Attention •Coming to attention •Filtering out other distractions •Staying on task for long periods •Shifting attention
  • 33. Barriers to learning Verbal Reception •Verbal expressive ability is much more advanced than verbal receptive skills or ability to produce written products. •Can’t process several directions at once •Can SAY what they need to do but they cannot show they can do it
  • 34. Barriers to Learning Working memory •Problems with Storage and retrieval •Inability to hold information in memory while performing a mental operation Cannot keep track of multiple plans to remember what they were supposed to do when
  • 35. Barriers to Learning Impaired Number Sense •Difficulty with concepts*: telling time, money, measurement •Difficulty with time as a function of retelling events, Impaired sense of timeline •Difficulty planning and mental manipulation
  • 36. Barrier to learning Abstract Concepts •Slow Processing rate •Difficulty with prediction •Difficulty making links or forming associations •Problems making generalizations •Literal thinking
  • 37. Overall Strategies •Simplify & structure the environment •Use a lot of repetition & rephrasing •Provide one direction or rule at a time. •De-stress situations as it creates cortisol in their brain. •Be consistent!!
  • 38. Take home information •We can’t change behavior of the damaged brain but we can change our approach or environment. •Consider their point of view as they learn and see things differently
  • 39. Remember LISTEN… when they tell you that they cannot do something but they are trying as they do get frustrated: like trying to put together something from IKEA every day!
  • 40. Other resources from ScFASD.weebly.com
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  • 45. Resources to teach students
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  • 47. Help spread the word with the FASD Knot Can you follow the picture directions to make an FASD knot? Cheryl Wissick cwissick@sc.edu Or Drwissickusc@gmail.com http://behaviorsolutions.wikispaces.com
  • 48. •All images of Lego from the Morgue File •http://www.morguefile.com/

Editor's Notes

  1. College of Cognitive and Linguistic Sciences at Brown University, Providence, RI.
  2. MMWR website (http://www.cdc.gov/mmwr) Morbidity and Mortality weekly report, Jan 8 2013
  3. Brain might be overloaded so reduce loadSet alarms, timers or remindersWork on one goal at a time Use of texting for young adults
  4. Be careful of specific directions, they will do what they are told.Do not use sarcasm, joking, similes, metaphors, proverbs, idiomatic expressions. Explain & consider misinterpretations of words Do not give multiple directions at once or too much verbal information at a time
  5. Provide one direction at a time. (hint: Student with ODD still won’t comply but a child with FASD will complete task.)Create visual task analysis charts -Interactive Excel chartProvide a checklist Reduce Cognitive Load
  6. Adding counting into physical activity.Use charts and visuals to link time to a concrete Teach underlying skills directlyProvide manipulatives Teach time by associationUse concrete examplesProvide support for shopping with a peer to help with money
  7. Role play to act out conceptsDo a task analysis of a skill, do not assume that the students will fill in a stepProvide Examples & NOT-examples Have them complete an example Provide guided practiceFind out if student understands the directions and can do the academic task