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From Sufferer to Art Maker-
How art therapy can help Individuals with
      Chronic Fatigue Syndrome
              By Eileen Cheong
Chronic Fatigue Syndrome

    Definition

    Symptoms

    Population

    Quality of Life

    Art Therapy with Patients who have CFS
What is Chronic Fatigue Syndrome or myalgic
encephalomyetis?
Clinically defined by:
       −   severe disabling fatigue
       −   impaired concentration
       −   “ “ short term memory
       −   sleep disturbances
       −   musculoskeletal pain
M.E. Defined

    The term M.E. was
    coined in 1956 and
    means: My = muscle,
    Algic = pain,
    Encephalo = brain,
    Mye = spinal cord, Itis
    = inflammation.
How do we define fatigue?

Fatigue as defined by       Prolonged fatigue-
  mental or physical          lasting at least one
  exhaustion not              month
  attributed to exertion or chronic fatigue-
  diagnosable disease.        persistent or relapsing
                              for six or more
                              consecutive months
Who is affected by ME/CFS?


    Chronic fatigue syndrome is a common chronic health
    condition, especially for women, occurring across ethnic
    groups

    There are cases of CFS in children younger than 12

    Before onset of illness, patients report busy lives occupied by
    jobs, recreational activities, frequent exercise
Quality of life

    Loss of adult roles       
                                  No drug cure

    Limited to activities     
                                  Susceptible to mental
    that are not physically       health illness such as
    or mentally taxing            Depression

    Severe cases can result   
                                  Less opportunities for
    in being homebound or         intimacy
    even bedridden for        
                                  Stigma
    years
How art therapy can help

    Many leisure occupations require far too much
    cognitive and physical resource such as reading or
    writing

    Art-making initially offers controllable
    opportunities for making small, easily handled
    items, during short periods of activity.
What is Art Therapy?

    Use of art making to   
                               Used with a variety of
    reduce stress
                               populations and

    Pain relief                settings including

    Processing of trauma       mental health clinics,
                               geriatric centers,

    Foster confidence          schools and more

    Healing
Benefits of Art Therapy

    Enjoyment of daily life   
                                  Assists with

    Builds self-esteem            acceptance of having a
                                  long-term chronic

    Solitary or group             illness

    Offers Validation         
                                  Focus on positive

    Provides internal locus       thinking
    of control
Testimony from People with CFS/ME


    Looking at ME through artistic expression


        http://www.youtube.com/watch?v=ea7lGfaVcX8
Why is an art therapy program
                 needed?


    Therapeutic benefits

    Artistic potential

    Imagine the possibilities
Doing this [art] has given me a sense of richness of my
immediate environment (including the room I’ m usually
   stuck in) which I did not have before. This layer of
 texture and detail – heightening – has been a factor in
          still surviving ME (written account).
                                                - (Reynolds
                    et al., 2008, p 1285)
Resources
Author Unknown (2010) Sometimes I Feel Like A Ghost http://moonwillowstudio.blogspot.com/

Crowhurst, L. (2007) Art & M.E. http://www.youtube.com/watch?v=ea7lGfaVcX8

Fukuda, K., Straus, S., Hickie, I., Sharpe, M., Dobbins, J., & Komaroff, A. (1994). The chronic fatigue syndrome: A comprehensive approach to
its definition and study. Annals of Internal Medicine, 121(12), 953–959.

Jason, L.A., Richman, J.A., Rademaker, A.W., Jordan, K.M., Plioplys, A.V., Taylor, R.R., McCready, W., (...), (1999) Plioplys, S. A community-
based study of chronic fatigue syndrome
 Archives of Internal Medicine, 159 (18), pp. 2129-2137. doi: 10.1001/archinte.159.18.2129

Larun, L., Malterud, K. (2007) Identity and coping experiences in Chronic Fatigue Syndrome:
A synthesis of qualitative studies Patient Education and Counseling 69 20–28

Reynolds, F. & Vivat, B. (2010). Art-making and identity work: A qualitative study of women living with chronic fatigue syndrome/myalgic
encephalomyelitis. Arts and Health, 2 (1), 67-80. doi:10.1080/17533010903-495306

Reynolds, F., Vivat, B. (2006) Narratives of art-making in chronic fatigue syndrome/myalgic encephalomyelitis: Three case studies The Arts in
Psychotherapy 33 435–445

Reynolds, F., Vivat, B., Prior, S. (2008) Women’s experiences of increasing subjective well-being in CFS/ME Disability and Rehabilitation
30(17): 1279 – 1288

Seppa, N. (2011) Tired, sure, but is it from Lyme disease or chronic fatigue?A scan of spinal fluid proteins reveals distinct signatures for two
conditions. Science News Vol.179 #7 (p. 12)

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Treatment of Chronic Fatigue Syndrome

  • 1. From Sufferer to Art Maker- How art therapy can help Individuals with Chronic Fatigue Syndrome By Eileen Cheong
  • 2. Chronic Fatigue Syndrome  Definition  Symptoms  Population  Quality of Life  Art Therapy with Patients who have CFS
  • 3. What is Chronic Fatigue Syndrome or myalgic encephalomyetis? Clinically defined by: − severe disabling fatigue − impaired concentration − “ “ short term memory − sleep disturbances − musculoskeletal pain
  • 4. M.E. Defined  The term M.E. was coined in 1956 and means: My = muscle, Algic = pain, Encephalo = brain, Mye = spinal cord, Itis = inflammation.
  • 5. How do we define fatigue? Fatigue as defined by Prolonged fatigue- mental or physical lasting at least one exhaustion not month attributed to exertion or chronic fatigue- diagnosable disease. persistent or relapsing for six or more consecutive months
  • 6. Who is affected by ME/CFS?  Chronic fatigue syndrome is a common chronic health condition, especially for women, occurring across ethnic groups  There are cases of CFS in children younger than 12  Before onset of illness, patients report busy lives occupied by jobs, recreational activities, frequent exercise
  • 7. Quality of life  Loss of adult roles  No drug cure  Limited to activities  Susceptible to mental that are not physically health illness such as or mentally taxing Depression  Severe cases can result  Less opportunities for in being homebound or intimacy even bedridden for  Stigma years
  • 8. How art therapy can help  Many leisure occupations require far too much cognitive and physical resource such as reading or writing  Art-making initially offers controllable opportunities for making small, easily handled items, during short periods of activity.
  • 9. What is Art Therapy?  Use of art making to  Used with a variety of reduce stress populations and  Pain relief settings including  Processing of trauma mental health clinics, geriatric centers,  Foster confidence schools and more  Healing
  • 10.
  • 11. Benefits of Art Therapy  Enjoyment of daily life  Assists with  Builds self-esteem acceptance of having a long-term chronic  Solitary or group illness  Offers Validation  Focus on positive  Provides internal locus thinking of control
  • 12. Testimony from People with CFS/ME  Looking at ME through artistic expression http://www.youtube.com/watch?v=ea7lGfaVcX8
  • 13. Why is an art therapy program needed?  Therapeutic benefits  Artistic potential  Imagine the possibilities
  • 14. Doing this [art] has given me a sense of richness of my immediate environment (including the room I’ m usually stuck in) which I did not have before. This layer of texture and detail – heightening – has been a factor in still surviving ME (written account). - (Reynolds et al., 2008, p 1285)
  • 15. Resources Author Unknown (2010) Sometimes I Feel Like A Ghost http://moonwillowstudio.blogspot.com/ Crowhurst, L. (2007) Art & M.E. http://www.youtube.com/watch?v=ea7lGfaVcX8 Fukuda, K., Straus, S., Hickie, I., Sharpe, M., Dobbins, J., & Komaroff, A. (1994). The chronic fatigue syndrome: A comprehensive approach to its definition and study. Annals of Internal Medicine, 121(12), 953–959. Jason, L.A., Richman, J.A., Rademaker, A.W., Jordan, K.M., Plioplys, A.V., Taylor, R.R., McCready, W., (...), (1999) Plioplys, S. A community- based study of chronic fatigue syndrome Archives of Internal Medicine, 159 (18), pp. 2129-2137. doi: 10.1001/archinte.159.18.2129 Larun, L., Malterud, K. (2007) Identity and coping experiences in Chronic Fatigue Syndrome: A synthesis of qualitative studies Patient Education and Counseling 69 20–28 Reynolds, F. & Vivat, B. (2010). Art-making and identity work: A qualitative study of women living with chronic fatigue syndrome/myalgic encephalomyelitis. Arts and Health, 2 (1), 67-80. doi:10.1080/17533010903-495306 Reynolds, F., Vivat, B. (2006) Narratives of art-making in chronic fatigue syndrome/myalgic encephalomyelitis: Three case studies The Arts in Psychotherapy 33 435–445 Reynolds, F., Vivat, B., Prior, S. (2008) Women’s experiences of increasing subjective well-being in CFS/ME Disability and Rehabilitation 30(17): 1279 – 1288 Seppa, N. (2011) Tired, sure, but is it from Lyme disease or chronic fatigue?A scan of spinal fluid proteins reveals distinct signatures for two conditions. Science News Vol.179 #7 (p. 12)

Editor's Notes

  1. Art-making provides contact with the healthy outside world
  2. ‘‘ If I managed to prepare dinner, I could not manage to sit at the table and eat it. I could not lift my arm holding the fork before having rested.’’ Descriptions for what is like: The fuse is blown the battery is empty The body controls and betrays me
  3. Statistics vary May affect 1% of world population Prevalence as much as 200 in 100,000 in major U.S. metropolises
  4. (job, parenting, member of society) Some hide their illness from co-workers for as long as possible for fear of their lack of understanding ‘‘ If I managed to prepare dinner, I could not manage to sit at the table and eat it. I could not lift my arm holding the fork before having rested.’’ Descriptions for what is like: The fuse is blown the battery is empty The body controls and betrays me
  5. Art-making provides contact with the healthy outside world Art-making encourages hope for the future
  6. Healing from the impact of illness
  7. Sometimes I Feel Like A Ghost by artist with ME “ It (art-making) has made a difference to my life. It was as though someone, the door was ajar and suddenly someone flung it open and said ‘this is it’ . . . that’s the way forward . . . I’ve got something else to turn to, rather than just looking at the things that I can’t do.” - Julia, 16 years with ME “ I seemed to have gained a perspective about myself and a kinder understanding and acceptance of my limitations without subjecting myself to constant criticism as I did in the past. I no longer worry what other people think. I know the truth of the situation regarding my health and this creativity I have tapped in to is a joyous kernel of something that can’t be taken away from me”
  8. Capable of completing task Can find the Art process pleasurable Distract from focus on illness Externalize feelings- validates emotions Adaptable to variety of personalities Treatment does not interfere with medication Can improve psychological functioning i.e. lower depression Authenticity Develop identity as a creative person
  9. Not all people feel creatively inclined Or are fortunate to be exposed to the arts Without offering them the possibility of creative expression, they may never know the benefits of art therapy Ability to focus on projects that would be both manageable yet meaningful within their physical constraints.