The document summarizes efforts to improve patient and public engagement and experience in the NHS, specifically for stroke care. It describes how the South Central Cardiovascular Network developed a model for meaningful involvement through a "people bank" to recruit and train patient representatives. It also highlights a resource directory for stroke patients and families developed in Shropshire, and a three-year project working with stroke survivors and carers to develop an engagement charter.

1. NHS
NHS Improvement
Stroke
SPOTLIGHT ON:
PATIENT AND PUBLIC
ENGAGEMENT AND
EXPERIENCE
Central to the work of NHS Improvement is the delivery and design of health services around the
needs of patients and carers. The way to achieve this is through meaningful involvement and the
development of partnerships between patients, carers and healthcare staff to shape current and
future service delivery.
Working with clinical networks and NHS organisations across England, we support clinical teams and
managers, providing practical tools and techniques that transform, deliver and build lasting improvements
across care pathways. Improvements that make a difference to patients, services and staff not only stroke but
also in cancer, diagnostics, heart, and lung services, meeting the quality, innovation, productivity and
prevention goals as part of the QIPP agenda.
This is a snapshot of some of the excellent work that continues across the country, for further details and
more examples go to: www.improvement.nhs.uk/pee
Patient and Public Engagement (PPE) in South Central - A Step Change
In 2011, South Central Cardiovascular Network were Key learning
aware that their work to date on PPE was not as robust • Recruit, train and support people to work with you
as it could be. They had a vision and ambition that: • Design and deliver a training programme that’s flexible
where healthcare staff and patients learn together
• PPE should not be lip service • Provide people with a range of involvement opportunities
• Work undertaken is based on real patient and • Regular dialogue to maintain momentum
carer experience • Feedback on impact of involvement
• PPE becomes an integral part of work taken • To start a conversation about improving quality means
forward by trusts. being transparent about the data, the outcomes people
are achieving and managing expectations.
The Stroke Association were commissioned to deliver
an engagement project employing two patient and For further information contact the South Central
carer involvement coordinators. With leadership from Cardiovascular Network.
the network director and mentorship and coaching
provided by Wendy Gray from NHS Improvement, a
model was developed. One of the main outputs of the
model was the creation of a people bank to enable
Cardiovascular
them to involve people who have experience of using Steering Group
health and social care services and their family and Stroke Steering
carers in everything they do. A patient representative Group
development programme is provided to all people on
the bank. A range of opportunities is then open to
Peer
members on the bank: Reviews
UIGs
PATIENT
• Taking part in events and panels
CARER
• Co producing information BANK
• Peer review of services
• Staff training.
Engagements
Panels
Consultations

2. SPOTLIGHT ON: NHS
PATIENT AND PUBLIC NHS Improvement
ENGAGEMENT AND Stroke
EXPERIENCE
Shropshire and Staffordshire
Heart and Stroke Network
A resource for patients, carers, family
and friends affected by stroke
Directory of Services in Shropshire.
Shropshire and Staffordshire Heart and Stroke
Network have developed and published an
excellent resource for patients, family and
friends affected by stroke. Its aim is to provide
help, advice and support to allow individuals to self
care. Research shows that supporting self care can
improve health outcomes and increase patient
satisfaction.
The handbook has been produced in collaboration between NHS staff working in stroke
services, patients and carers across Shropshire and is supported by Shropshire County PCT.
To view the booklet in full go to: www.networks.nhs.uk/nhs-networks/shropshire-and-staffordshire-
heart-and-stroke/patient-public/DOS%20Final%20March%202012v2.pdf
Stroke Association Community Voices
A three year project funded by the Department of
Health, Community Voices involved working closely
with stroke survivors and carers, NHS Improvement,
stroke networks, regional Stroke Association staff
and other health and social care professionals to
encourage survivors and carers to engage with
commissioners and providers. A key outcome of the
work is the development of The Stroke Involvement
Charter. The charter lays out what stroke survivors and
carers need in order to make the engagement they are
involved in effective.
Community Voices was an England only project and
focused on engagement with the NHS. However we
believe that these materials are useful to anyone who
wants to use their experiences to improve the way that
care and services are commissioned, planned and
delivered.
For further information and to download the
publications go to:www.stroke.org.uk/involved/
help-improve-stroke-care-and-services