A poster by Patricia F. Anderson, MILS and Marisa L. Conte, MLIS for the 2017 Annual Meeting of the Medical Library Association

1. Raising awareness of personalized genomics
for healthcare consumers and providers
Introduction and project description
Personalized genomics is increasingly important to both current clinical practice and emerging initiatives in precision medicine. The appearance of
direct-to-consumer (DTC) personal genomics services present new opportunities for patients, providers and researchers. These same resources have the
potential to complicate patient-provider relationships.
To address this issue, we developed and conducted training sessions for consumers and clinicians. We tailored the sessions around different goals and
provided different levels of information for patients and providers.
Shared themes
1) Strengths and weaknesses of direct-to-consumer (DTC)
personal genomics services
2) Awareness of data formats, and tools available for
analysing personal genomics reports and findings
3) Awareness of major debates regarding DTC personal
genomics risks/benefits
4) Options and appropriate strategies for communication
and clinical integration of patient-supplied data from
DTC personal genomics services.
Pilot sessions, next steps
We piloted the consumer version at a local public library to an audience of 20+ college-educated women, many of whom were experienced in this
domain. The session, originally scheduled for 90 minutes, was well-received and lasted nearly 4 hours due to questions and conversation. Content
included context, ethics, data export and analysis, and how to initiate a conversation with your clinician. We’ve been encouraged to schedule another
session at the public library.
We piloted the provider version on campus to faculty. Content included the ethics of and challenges with students using their own genomic data in higher
education, and identifying other sources for genomic data in a learning environment. Attendees were also interested in open educational resources on
personal genomics.
In addition to pursuing additional opportunities to teach the consumer version, we plan to market the provider content in our health system. We’ve also
developed a multi-unit curriculum for integration into health sciences curricula. We’re exploring relationships with stakeholders leading precision
medicine initiatives at UM. Finally, we’ll develop a Research Guide on personal genomics with content for both providers and consumers.
Patricia F. Anderson, MLIS; Marisa L. Conte, MLIS
Taubman Health Sciences Library, University of Michigan, Ann Arbor, MI
Sample content for consumers
This sequence of slides utilizes relatable metaphor to introduce consumers to the
personal genomics and appropriate use of the information and its interpretation
Consumer version: https://www.slideshare.net/umhealthscienceslibraries/dna-an-exploration-of-23andme-for-health
Provider Version: https://www.slideshare.net/umhealthscienceslibraries/enriching-scholarship-personal-genomics-presentation