National Patient Experience Survey
Programme
Partnership Approach
Tracy O’Carroll and June Boulger
tocarroll@hiqa.ie /june.boulger2@hse.ie
December 8th 2016
Discussion
 Benefits
 International Findings / National Model
 Governance
 Project Overview
a near fatal car accident changed everything…
while I may have been the patient lying in the hospital bed, I was not the only one in
that Room who was suffering. The observations that I made truly inspired me and
helped me understand how important the role of communication is among the
patient, family, and health care provider. When I was able to learn how to talk again,
I soon discovered that the power of the voice is amplified when the message is of
gratitude, that a simple smile cannot be underestimated, and that body
language and tone of voice are critical components within the Hospital
room.
The Patient Experience: The Importance of Care, Communication, and Compassion in the
Hospital Room: Brian Boyle
Patient Satisfaction vs.
Patient Experience
Patient experience is more than satisfaction alone.
Embedded within patient experience is;
a focus on individualised care
tailoring of services to meet patient needs and
engage them as partners in their care.
Why Bother?
Research has consistently demonstrated that patient experience correlates with …better
health outcomes. For example, patients hospitalized for acute myocardial infarction (AMI)
who reported more problems with care had poorer outcomes both one month and twelve
months after discharge..
Patient experience is also positively correlated with:
 key financial indicators
 patient loyalty and retention
 reduced medical malpractice risk
 and increased employee Satisfaction.
doi: 10.1377/hlthaff.2010.0238 HEALTH AFFAIRS 29, NO. 5 (2010): 921–925
Benefits
Holistic way of hearing patients voice
Internationally: Best practice
Excellent proxy for quality and safety
Benefit – Patient
Engaged
Active
Informed
Benefit – Service Provider
 Identify areas for improvement of patient care in individual
units
 Provides assurance
 Benchmark care provided
Benefit – Regulator
 Informs quality and safety of care
 Informs risk analysis
 Drive Accountability
Benefit – Policy Developer
 National Policy and planning
 National Healthcare Quality Reporting System Service
Plan
currently there are no standardised comparable patient experience
surveys applied across the health sector; ..if you don't measure it,
you cannot improve it.
Ireland
Currently there is no standardized national comparable
patient experience survey applied across the health sector.
This is recognised as a significant gap.
International Findings
 Model Partnership model adopted
 Governance Strong Governance arrangements
 Scope: Scope of the Survey must be clear
 Survey Tool: Internationally recognised questions
 Data Protection: Not an issue internationally
 Communication: Robust
 Commitment: Capital and Operations, Financial, HR
https://www.hiqa.ie/publications/international-review-patient-experience-survey
Project Outline
1. Establish Governance Structure
2. Develop Survey Tool
3. Communication Tools / Guidance / Information Governance
documentation
4. Stakeholder Engagement
5. Managed Service
6. Outputs
Partnership Model
National Patient Experience Programme
Department of
Health
Health Information
and Quality
Authority
(LP)
Health Service
Executive
Patient
Representative
Formal Partnership - MoU
Roles and Responsibilities
Governance Structure
NPE Steering Group
NPE Delivery Group
NPE Advisory Group
Scope of NPE Survey
 Adult Acute Care
 18+
 Minimum stay = 1 night
Survey Tool Development
1. International Questions Set currently purchased from Picker
Institute Europe
2. Tested library of questions with 8 NPE Focus Groups
 6 with patients in: Galway, Limerick, Tralee, Mater, St.
James and Connolly
 2 with Data Users: Dublin and Cork
3. Delphi Study: 48 Participants
4. Consultation with International Experts: Picker Institute
Europe
Examples of Questions
Did the staff treating and examining you introduce themselves?
□ Yes, all of the staff introduced themselves
□ Some of the staff introduced themselves
□ Very few or none of the staff introduced themselves
□ Don’t know / can’t remember
Did you feel you were involved in decisions about your discharge from
hospital?
 Yes, definitely
 Yes, to some extent
 No
 I did not want to be involved
Communication
1. Branding
2. Guidance: FAQ for Patients
3. Website: http://www.patientexperience.ie
4. NPE Survey Pack
Output
What is measured must be reported on and
the findings must be used to improve the
services, quality and safety of care provided.
Output
Managed Service
 Software: Business Processes, RFT, Define Requirements
 Website: Devoted to NPE: Section for Patients and Section for Service
Providers
Key Points
 Partnership Approach
 Governance Structure
 Survey tool ready for finalisation
 Communicate tools
 Managed Service
MCG’s Neuroscience Center of
Excellence adult inpatient unit
 Length of stay in the neurosurgical unit decreased by 50%.
 Discharges (volume) increased 15.5%.
 The nursing staff vacancy rate fell from 7.5% to 0%
 Positive change in perceptions of the unit by faculty, staff
In Conclusion
“If patient engagement were a drug, it would be the blockbuster drug
of the century and malpractice not to use it.”
Leonard Kish on August 28, 2012
www.hl7standards.com/blog/2012/08/28/drug-of-the-century/
To be successful in the new era of health reform,
organizations will have to take engagement to a new
level and consider patients central to the care
Team.
2014
How does patient experience fit into the overall
healthcare picture? Patient Experience Journal
Karen Luxford BSc(Hons), PhD, FAIM, FAAQHC, Director, Patient Based Care, Clinical Excellence Commission, NSW, Australia
Sue Sutton RN, PhD, FHIMSS, President & CEO, Tower Strategies, ssutton@towerstrategies.com
Questions

Patient Safety Conf 081216

  • 1.
    National Patient ExperienceSurvey Programme Partnership Approach Tracy O’Carroll and June Boulger tocarroll@hiqa.ie /june.boulger2@hse.ie December 8th 2016
  • 2.
    Discussion  Benefits  InternationalFindings / National Model  Governance  Project Overview
  • 3.
    a near fatalcar accident changed everything… while I may have been the patient lying in the hospital bed, I was not the only one in that Room who was suffering. The observations that I made truly inspired me and helped me understand how important the role of communication is among the patient, family, and health care provider. When I was able to learn how to talk again, I soon discovered that the power of the voice is amplified when the message is of gratitude, that a simple smile cannot be underestimated, and that body language and tone of voice are critical components within the Hospital room. The Patient Experience: The Importance of Care, Communication, and Compassion in the Hospital Room: Brian Boyle
  • 4.
    Patient Satisfaction vs. PatientExperience Patient experience is more than satisfaction alone. Embedded within patient experience is; a focus on individualised care tailoring of services to meet patient needs and engage them as partners in their care.
  • 5.
    Why Bother? Research hasconsistently demonstrated that patient experience correlates with …better health outcomes. For example, patients hospitalized for acute myocardial infarction (AMI) who reported more problems with care had poorer outcomes both one month and twelve months after discharge.. Patient experience is also positively correlated with:  key financial indicators  patient loyalty and retention  reduced medical malpractice risk  and increased employee Satisfaction. doi: 10.1377/hlthaff.2010.0238 HEALTH AFFAIRS 29, NO. 5 (2010): 921–925
  • 6.
    Benefits Holistic way ofhearing patients voice Internationally: Best practice Excellent proxy for quality and safety
  • 7.
  • 8.
    Benefit – ServiceProvider  Identify areas for improvement of patient care in individual units  Provides assurance  Benchmark care provided
  • 9.
    Benefit – Regulator Informs quality and safety of care  Informs risk analysis  Drive Accountability
  • 10.
    Benefit – PolicyDeveloper  National Policy and planning  National Healthcare Quality Reporting System Service Plan currently there are no standardised comparable patient experience surveys applied across the health sector; ..if you don't measure it, you cannot improve it.
  • 11.
    Ireland Currently there isno standardized national comparable patient experience survey applied across the health sector. This is recognised as a significant gap.
  • 12.
    International Findings  ModelPartnership model adopted  Governance Strong Governance arrangements  Scope: Scope of the Survey must be clear  Survey Tool: Internationally recognised questions  Data Protection: Not an issue internationally  Communication: Robust  Commitment: Capital and Operations, Financial, HR https://www.hiqa.ie/publications/international-review-patient-experience-survey
  • 13.
    Project Outline 1. EstablishGovernance Structure 2. Develop Survey Tool 3. Communication Tools / Guidance / Information Governance documentation 4. Stakeholder Engagement 5. Managed Service 6. Outputs
  • 14.
    Partnership Model National PatientExperience Programme Department of Health Health Information and Quality Authority (LP) Health Service Executive Patient Representative
  • 15.
  • 16.
  • 17.
    Governance Structure NPE SteeringGroup NPE Delivery Group NPE Advisory Group
  • 18.
    Scope of NPESurvey  Adult Acute Care  18+  Minimum stay = 1 night
  • 19.
    Survey Tool Development 1.International Questions Set currently purchased from Picker Institute Europe 2. Tested library of questions with 8 NPE Focus Groups  6 with patients in: Galway, Limerick, Tralee, Mater, St. James and Connolly  2 with Data Users: Dublin and Cork 3. Delphi Study: 48 Participants 4. Consultation with International Experts: Picker Institute Europe
  • 20.
    Examples of Questions Didthe staff treating and examining you introduce themselves? □ Yes, all of the staff introduced themselves □ Some of the staff introduced themselves □ Very few or none of the staff introduced themselves □ Don’t know / can’t remember Did you feel you were involved in decisions about your discharge from hospital?  Yes, definitely  Yes, to some extent  No  I did not want to be involved
  • 21.
    Communication 1. Branding 2. Guidance:FAQ for Patients 3. Website: http://www.patientexperience.ie 4. NPE Survey Pack
  • 22.
    Output What is measuredmust be reported on and the findings must be used to improve the services, quality and safety of care provided.
  • 23.
  • 24.
    Managed Service  Software:Business Processes, RFT, Define Requirements  Website: Devoted to NPE: Section for Patients and Section for Service Providers
  • 25.
    Key Points  PartnershipApproach  Governance Structure  Survey tool ready for finalisation  Communicate tools  Managed Service
  • 26.
    MCG’s Neuroscience Centerof Excellence adult inpatient unit  Length of stay in the neurosurgical unit decreased by 50%.  Discharges (volume) increased 15.5%.  The nursing staff vacancy rate fell from 7.5% to 0%  Positive change in perceptions of the unit by faculty, staff
  • 27.
    In Conclusion “If patientengagement were a drug, it would be the blockbuster drug of the century and malpractice not to use it.” Leonard Kish on August 28, 2012 www.hl7standards.com/blog/2012/08/28/drug-of-the-century/ To be successful in the new era of health reform, organizations will have to take engagement to a new level and consider patients central to the care Team. 2014 How does patient experience fit into the overall healthcare picture? Patient Experience Journal Karen Luxford BSc(Hons), PhD, FAIM, FAAQHC, Director, Patient Based Care, Clinical Excellence Commission, NSW, Australia Sue Sutton RN, PhD, FHIMSS, President & CEO, Tower Strategies, ssutton@towerstrategies.com
  • 28.

Editor's Notes

  • #7 Baseline data from a representative sample of patients across all acute services Both reliable and valid and point us in the direction of shaping meaningful and focused improvement work / priorities across the system We lag behind other countries internationally for not have a consistent systematic approach to measuring patient feedback in a scientific and robust way and therefore this project, this partnership with our colleagues from both HIQA and the DOH is especially welcome. The leadership and support from all stakeholders is of particular importance. It is the first step in ensuring that Patient Experience is high on agenda of the DG, CEO HIQA and Office of Patient Safety in DOH. Constructive picture of what the key issues are. Imagine you are the patient and you are filling out the questionnaire. Overall score provides a generic rating, however the results of the specific areas are of particular interest. Dignity and respect. Involvement in decision making. The analysis from this survey will provide us with Insight about what matters to patients, forming the agenda for PPI and QI priorities at local level.
  • #8 MCGHealth (MCG Medical Center and MCG Children's Medical Center), Augusta, Georgia Patient satisfaction increased from 10th to 95th percentile. Neurosurgery length of stay decreased by 50%. Reduction in medical error by 62%. Number of patients discharged increased by 15.5%. Positive change in perceptions of the unit by doctors, staff, and house staff. The empowered and involved patient. Providing feedback. Involved in decision making, valued for the shared expertise –has better outcomes in healthcare. Supports a cultural shift which we are embracing here today, the culture of patients as partners in their care, patients as partners in the design and delivery of healthcare services in ireland. Shared decision making –shared expertise which exists between patients and healthcare providers
  • #9 QI Priorities which supports Healthcare services to objectively identify what matters to patients in their areas and how best to address same. Buy-in support and leadership of Group CEOs – short, medium and long-term plans Board to ward strategy for improvement which highlights the roles of all stakeholders to embed and support this work Evaluate this work , Process, Impact, Outcomes, ultimately –follow-up patient surveys will demonstrate improvement Opportunity to mould the work, priorities and agenda of patient forum groups across the country. Benchmark against the standards Provide assurance that services are listening, responding and improving based on what matters most to patients Representative feedback-objective data Challenges the media profiling of healthcare services, which is mostly negative and fails to capture the real picture / constructive and representative picture of what happens across the system and on an hourly/ daily basis
  • #10 Regulator Huge potential in identifying the key issues in an objective way which in turn may enhance or strengthen the work which is carried out in relation to assessments against the standards or highlighting areas of risk Potential here in the analysis of qualitative data which participants are invited to provide as part of the questionnaire, Benefits of analysing this data against a validated taxonomy which enables, Assessment of risk Themed analysis of the issues described Driving accountability and a learning culture which supports and enables services to improve pat. Experience and overall outcomes of care Direct correlation between mortality and severity of feedback
  • #11 Review of literature by the Kingsfund highlighted that policy as a driver for change and as a way of improving pat. Experience cannot be underestimated. December 2015. Insight and Influence-leadership Great opportunity with the Launch of the Pat. Safety Office, to shape policy which will positively influence overall pat. Experience. Ensuring that pat experience is strategically positioned on everyone’s agenda starts with our leaders. Evidence and findings of the NPESP on the agenda of all team meeting, from Board to ward, supported by more qualitative examples of patient stories help to ensure that the meetings, discussions, agendas and decision making prioritises the real-issues, what really matters, every day, every where. Patients.