This document discusses early suggestions for patient and public engagement (PPE) in the South East Coast Strategic Clinical Networks. It provides 5 suggestions: 1) Support established partnership and other key groups during the first year; 2) Think of communities of interest as a "people bank"; 3) Integrate inclusion and PPE agendas; 4) Develop a "Third Sector Local"; and 5) Train, sustain, and grow user leaders. The recommendations aim to make PPE appropriate for the population and geography, aligned with work plans, and avoid duplication by coordinating with other local involvement systems in the region.

1. Maxine Bullen
Independent PPE Facilitator
Sarah Amani
Youth Mental Health Network Lead
Early suggestions - Patient and Public
Engagement in South East Coast Strategic
Clinical Networks

3. Three cornerstones of engagement

4. NHS England Draft Principles of
Meaningful Engagement
• We will think creatively and holistically about all
the strengths and assets we have in our people
and our place
• We will build an equal, sustainable and
reciprocal relationship
• We will build shared purpose and responsibility
• We will take time to plan well
• We will start engagement as early in the process
as possible

5. Principles cont..
• We will start with learning from the past and
understanding the current context
• We will develop and use active listening skills
and emotionally intelligent behaviour
• We will respect and encourage diversity and
difference
• We will build in training and development and
ensure we have the right kind of leadership
approach

6. Principles cont…
 We will recognise, record and reward
contributions
• We will build in feedback and responsiveness to
the process
• We will use open and transparent
communication and information

7. South East Coast
3,600 square miles 4.5 million people
Our PPI model and processes need to;
• be appropriate for our population and geography
• aligned to work plans and championed by
clinicians and managers
• make sense to users and to professionals
• only do what is best done by networks
• avoid duplication, co-ordinate and integrate with
other local involvement systems

8. 5 early suggestions

9. 1.Support Established Partnership and
Other Key Groups during year 1
• Makes sense to those already involved and
allows time for the NHS to settle
• Give mandate to Partnership Groups to
transform/evolve over the period of 1 year
• Allows Cancer, Cardiovascular, Maternity and to
some extent, Mental Health to tap into existing
PPE structures for year 1 work plans
• Allows effort to be focused on less developed
PPE structures in other SCNs

10. 2. PPE in work plans:
Think in terms of communities of interest within a
‘people bank’.
• Communities of interest may be;
▫ condition specific
▫ geographical
▫ shared themes
• Collaborate co-ordinate and share with;
• Third Sector to extend reach
• Academic Health Science Network and Health
Education Kent Surrey and Sussex
• CCGs , AT, Healthwatch and other engagement
systems

11. Think in terms of communities of interest
within a people bank
CIO
COI
COI
CIO

12. People Bank - You can get involved in
different ways
• Level 4 Being a user leader
• Level 3 Involvement forums – MSLCs,
partnership groups, project groups
• Level 2 Discussion groups – focus groups,
workshops
• Level 1 Armchair involvement – surveys,
newsletters

13. Integrate the Inclusion and PPI Agenda
• Develop an inclusion group to act as a
filter/sounding board/ advisory group to the
Senate and SCNs
• Recruit from the SEC People Bank and
supplement where necessary by commissioning
• Of interest to other NHS organisations to
collaborate?

14. 3.Integrate the Inclusion and PPE
Agenda
CIO
COI
COI
CIO

15. 4.Develop a ‘Third Sector Local’
• Opportunities to tap into and develop
involvement
• Several Third Sector Involvement Co-ordinators
keen to collaborate in SEC already
• Charities support user groups, grow new ones
and identify geographical gaps. Cancer Voices,
Hearty Voices, Learning Disabled training etc
• Propose learning set to develop ‘Third Sector
Local’ SEC involvement – to create collaborative
involvement mechanism/shared learning

17. 5. Train, sustain and grow user leaders
• We have some fantastic patient/carer
representatives with many years experience
who bring a constituency, skills and insights we
could not buy
• We need to sustain that leadership
• We need to grow the next generation of user
leaders
• Let’s work with the user leaders we have to co-
create this agenda

18. Summary of early recommendations
• Integrate the Inclusion, Stakeholder and PPI
agenda
• Think in terms of communities of interest within
a people bank
• Develop a ‘Third Sector Local’
• Support current effective Partnership and other
key user groups for one year
• Train, Sustain and Grow User Leaders

19. Next steps
Develop
• Conversations with people who have shown
interest in being involved
• PPE Strategy
• Realistic and meaningful patient and carer
involvement in year 1
• Collaborate and co-ordinate with emerging PPE
systems in AHSN, HEKSS, CCGs, AT,
Healthwatch and others

20. And now…..

21. Youth Mental Health Network
Participation

22. Engaging Youth

23. Disease Burden across Age

24. The Youth Mental Health Network is led by
young people, families, researchers, clinicians
& strategists in support for evidence based
service provision for children and young
people’s mental health and wellbeing.

27. Youth Mental Health Network On Twitter
@Time4Recovery

28. “No Decision About Me Without Me”
What do children & young people tell us?

29. People in your community (including those with
Protected characteristics) are on these sites right now.
Community outreach.

30. Community Health Ambassadors
Mary Seacole Award 2011

31. 41% of online users have read someone
else’s commentary or experience about
health issues on an online portal.
SOURCE: PEW RESEARCH PRESENTATION ''THE SOCIAL LIFE OF HEALTH INFORMATION''

32. They want to share
videos about health.

38. Questions?
For more information on Collective Impact, please visit www.fsg.org.This work is licensed under a Creative Commons
Attribution-NoDerivs 3.0 Unported License.Please contact info@fsg.org with requests or questions.
Thank You