mICF poster 3 (thomas) micf content specifications

1. This poster decribes the evidence-
based ICF-related content
specification of mICF.
The goal is to provide content based
on a bio-psycho-social-spiritual
approach in the context of an ethical,
human rights and legal framework.
The first service user journeys to be
tested are: older persons, adults with
chronic diseases, children and youth
with vulnerable conditions.
mICF Work Package 2
Content Specifications
17-23 October 2015
Manchester
United Kingdom
Poster Number: 000
WHO - FAMILY OF INTERNATIONAL CLASSIFICATIONS NETWORK ANNUAL MEETING 2015
Title
Objectives
Stakeholders must face a new reality of
service user-driven data, responding in
ways that address questions of ethics,
human rights and legislative discourse.
The task includes the following steps:
• Ensure content is aligned with
ethical and human right practices
• Investigate how mICF could
strengthen clinical practice,
especially how mICF will move
ethics, human rights and legislative
boundaries as the concept of service
user-driven data becomes reality
• Address ethical dilemmas relating to
the linking between the mICF and
traditional records systems
• Explore ethical and human right
issues relating to data security, data
sharing, big data, research, policy
development, continuity of service
provision and interprofessional
practice.
Conclusions
1MarselisborgCentre, Aarhus University and Central Denmark Region, Denmark; 2National Institute for Health and
Welfare, Finland; 3ESTeSC Coimbra Health School, Portugal; 4McMaster University, Canada; 5JAMK University of
Applied Sciences, Finland; 6University of Stellenbosch, South Africa; 7Communication Supports Inventory – Children
and Youth (CSI-CY), United States; 8World Confederation for Physical Therapy, United Kingdom
• Set up the natural language
collection system and market it to
users and professionals to get their
input of words, terms, synonyms
- link to
• Link natural language to ICF
- link to
• Enable continuous natural
language collection and analysis to
enhance the mICF
www.icfmobile.org
We present the development of the content for the mobile ICanFunction (mICF) solution.
This is the second work package (WP2) in the mICF innovation and research work program. WP2 entails
close interaction between professionals and service user representatives for research-informed and
ethical content development for all consortium languages.
Introduction
Maribo T1, Anttila H2, Martins A3, Kraus de Camargo O4, Paltamaa J5, Snyman S6,
Steiner SAM7, Sykes C8, on behalf of the International mICF Partnership
The objectives of the content
specifications are to:
• Ensure the content to be aligned
with the best ethics and human
rights practices
• Ensure that content complies with
legislation
• Develop and refine questions (i.e.
what to ask and how to ask it)
• Identify appropriate responses to
the potential answers to questions
• Select relevant person-reported
outcome measures (PROMs)
• Determine ways to use ICF and
PROMs in optimising a service
user’s assessment, enabling shared
decision-making and
interprofessional goal setting.
• Utilise technology to link the use of
natural language to ICF
• Translate the content
• Refine the content specifications
based on iterative development
cycles and feedback from the in-
market experimentation.
Task 1: Ethics, Human
Rights, Legislation and
Training
Task 2: Defining the
relevant ICF content
for patient journeys
• The starting point is existing ICF
code sets; relevant sets are to be
selected (i.e. what to describe)
• Develop and refine questions for the
selected codes
• Identify appropriate qualifiers (i.e.
how to answer)
• An iterative process of repeated
testing and assessments will ensure
relevance and quality
• Content is refined based on results
from “Disciplined in-market
experimentation”
- link to
Task 5: Translation
into other languages
Task 3: Selection of
PROMs for the mICF to
facilitate outcome
monitoring over time
• Identify relevant valid, reliable
and responsive PROMs
• Negotiate regarding use
agreements
• Link PROMs to ICF
• Refine PROM use based on results
of the disciplined in-market
experimentation - link to
Task 4: Utilise
technology linking
natural language to
ICF
• Translate content using
international guidelines
• Cognitive debriefing and pilot
testing
- link to
• Refine the final version
• Translations will ensure
implementation of the mICF in
Impact and in economic evaluation
- link to
The content specifications are
divided into five different tasks:
WP4
C
@ICFmobile
Abstract
WP4
WP3
WP5
WP5 WP6
WP3
WP4
WP5