The document discusses choice and voice for older people in aged care policy in Australia. It debates the benefits and risks of choice as the main policy mechanism, and whether choice alone is sufficient. It also examines the rise of the consumer model and assumptions about older people as consumers. The risks of individualized funding models are outlined, as well as the importance of collective voice mechanisms. Finally, the document calls for further research on the perspectives of diverse groups of older people regarding choice and voice.
Symposia and paper presented with my colleagues, Belinda Cash, Claudia Meyer, Joanne Mihelcic at the National Australian Association of Gerontology Conference in Alice Springs in November 205
Enhancing independence and person centred practice - A Pathway to implementin...Carrie Hayter
Paper presented on moving from person centred practice to consumer directed or self directed supports at the Better Practice Conference, Australia Aged Care Quality Agency in Sydney on 27 August 2015
Symposia and paper presented with my colleagues, Belinda Cash, Claudia Meyer, Joanne Mihelcic at the National Australian Association of Gerontology Conference in Alice Springs in November 205
Enhancing independence and person centred practice - A Pathway to implementin...Carrie Hayter
Paper presented on moving from person centred practice to consumer directed or self directed supports at the Better Practice Conference, Australia Aged Care Quality Agency in Sydney on 27 August 2015
Strengthening women's tenure and rights to forests and trees and their partic...CIFOR-ICRAF
Presented by Dr. Esther Mwangi on February 8, 2018, during the "More than a seat at the table: Strengthening women's tenure and rights to forests and trees and their participation in decision making" webinar, organized by the CGIAR Collaborative Platform for Gender Research and the CGIAR Research Program on Forests, Trees and Agroforestry (FTA) and the Center for International Forestry Research (CIFOR).
What: New Paradigms for Community Aging & Unique Contributions of Elders presented by Dr. Christopher Johnson, Clinical Professor of Sociology who developed America's first M.S. in Dementia and Aging Studies at Texas State University
When: September 24, 2015
Where: Westminster Retirement Community Auditorium Austin,TX
Who: Westminster residents, Austin's older adults, friends and family and investors, entrepreneurs, care providers interested in bridging gaps between seniors and innovation
In this presentation, Dr. Johnson discussed how the future of aging services must be community-based initiatives aimed to better understand the positive aspects of aging with dignity and independence by:
1. Meaningful Involvement
2. Aging in place
3. Respect and inclusion
4. Communication and information
5. Transportation and mobility
6. Health and well-being
Provided by: Aging2.0 Austin and Westminster Retirement Community
"Nothing about us, Without us" Stakeholder Engagement and GrantseekingLesa-kaye Holtham, MPH
Meaningful stakeholder engagement is the involvement of constituencies as integral partners in advancing the work of organizations and institutions. As more funders embrace stakeholder engagement in the grantmaking process, what does this mean for grant seeking process? In this webinar, we will explore why stakeholder engagement is integral to grant strategy and how grant professionals can help foster meaningful stakeholder engagement to support an organization’s development.
Learning objectives:
-Explore what is stakeholder engagement, its benefits, and the levels of engagement
-How stakeholder engagement supports an organization’s development as it pertains to grant seeking
-How to apply various stakeholder engagement activities from program design to maintaining relationships with funders
-Considerations when engaging stakeholders in the grant seeking process
-The role that grant professionals can play in fostering meaningful engagement
Talk given by Dr Simon Duffy to the Multicultural Community Council of South Australia, exploring the potential for empowerment and human rights in aged care services.
Strengthening women's tenure and rights to forests and trees and their partic...CIFOR-ICRAF
Presented by Dr. Esther Mwangi on February 8, 2018, during the "More than a seat at the table: Strengthening women's tenure and rights to forests and trees and their participation in decision making" webinar, organized by the CGIAR Collaborative Platform for Gender Research and the CGIAR Research Program on Forests, Trees and Agroforestry (FTA) and the Center for International Forestry Research (CIFOR).
What: New Paradigms for Community Aging & Unique Contributions of Elders presented by Dr. Christopher Johnson, Clinical Professor of Sociology who developed America's first M.S. in Dementia and Aging Studies at Texas State University
When: September 24, 2015
Where: Westminster Retirement Community Auditorium Austin,TX
Who: Westminster residents, Austin's older adults, friends and family and investors, entrepreneurs, care providers interested in bridging gaps between seniors and innovation
In this presentation, Dr. Johnson discussed how the future of aging services must be community-based initiatives aimed to better understand the positive aspects of aging with dignity and independence by:
1. Meaningful Involvement
2. Aging in place
3. Respect and inclusion
4. Communication and information
5. Transportation and mobility
6. Health and well-being
Provided by: Aging2.0 Austin and Westminster Retirement Community
"Nothing about us, Without us" Stakeholder Engagement and GrantseekingLesa-kaye Holtham, MPH
Meaningful stakeholder engagement is the involvement of constituencies as integral partners in advancing the work of organizations and institutions. As more funders embrace stakeholder engagement in the grantmaking process, what does this mean for grant seeking process? In this webinar, we will explore why stakeholder engagement is integral to grant strategy and how grant professionals can help foster meaningful stakeholder engagement to support an organization’s development.
Learning objectives:
-Explore what is stakeholder engagement, its benefits, and the levels of engagement
-How stakeholder engagement supports an organization’s development as it pertains to grant seeking
-How to apply various stakeholder engagement activities from program design to maintaining relationships with funders
-Considerations when engaging stakeholders in the grant seeking process
-The role that grant professionals can play in fostering meaningful engagement
Talk given by Dr Simon Duffy to the Multicultural Community Council of South Australia, exploring the potential for empowerment and human rights in aged care services.
Biotech Communications Workshop for Chinese Ministry of Agriculture and Triangle biotech professionals
Presented by Jason Delborne, GES Center, NC State University, jadelbor@ncsu.edu
Monday, 10/2/2017 (day 1)
Let's Talk Research Annual Conference - 24th-25th September 2014 (Sue Wood & ...NHSNWRD
"Reaching out to communities - promoting equal access to opportunities for public involvement in research": Sue Wood and Philip Bell discussed why we need to involve a more diverse population in health research; what the barriers were that prevented involvement in research; how these barriers are to be overcome, and how to involve those that find it more difficult to have their voice heard.
This brief summary of "Utilizing participatory approaches to inform a health impact assessment of a city's revitalization plan" was presented at the Annual Meeting of the American Public Health Association in San Francisco, California.
October 31st, 2012
Action Research Inquiry CycleINQUIRY CYCLE PHASE 2Implem.docxnettletondevon
Action Research Inquiry Cycle
INQUIRY CYCLE PHASE 2
Implement actions
and measure results
INQUIRY CYCLE PHASE 1
Plan for research and
addressing the problem
INQUIRY CYCLE PHASE 3
Evaluate and reflect
on results of actions
Assess the
Core Issues
1
Review the
Literature
2
Design the Projected
Intervention
3
Implement the
Intervention
4
Collect and
Analyze Data
5
Communicate Results
6
Evaluate
Outcomes
7
9
Recommend or Decide on
Next Steps
Reflect on and
Dialogue about
Results
8
Action Research Inquiry Cycle
INQUIRY CYCLE PHASE 2
Implement actions
and measure results
INQUIRY CYCLE PHASE 1
Plan for research and
addressing the problem
INQUIRY CYCLE PHASE 3
Evaluate and reflect
on results of actions
Assess the
Core Issues
1
Review the
Literature
2
Design the Projected
Intervention
3
Implement the
Intervention
4
Collect and
Analyze Data
5
Communicate Results
6
Evaluate
Outcomes
7
9
Recommend or Decide on
Next Steps
Reflect on and
Dialogue about
Results
8
9. Minkler M, Wallerstein N., eds. Community-Based Participatory Research for Health. San Francisco: Jossey-Bass; 2003.
10. Cargo M, Mercer SL. The value and challenges of participatory research: strengthening its practice. Annual Review of Public Health.
2008 April;29:325–50.
11. Devault M, Ingraham C. Metaphors of silence and voice in feminist thought. In: Devault M, ed. Liberating Method. Philadelphia, PA:
Temple University Press; 1999:175–86.
12. Bobo K, Kendall J, Max S. Organizing for Social Change. 3rd ed. Santa Ana, CA: Seven Locks Press; 2001.
13. Chambers E, Cowan MA. Roots for Radicals: Organizing for Power, Action, and Justice. New York: Continuum International Publishing
Group; 2003.
14. Lewin K. Resolving Social Conflicts and Field Theory in Social Science. Washington, DC: American Psychological Association; 1997.
15. Freire P. Pedagogy of the Oppressed. New York, NY: Continuum International; 1970.
16. Hacker K, Chu J, Leung C, Marra R, Pirie A, Brahimi M, English M, Beckmann J, Acevedo-Garcia D, Marlin RP. The impact of
Immigration and Customs Enforcement on immigrant health: perceptions of immigrants in Everett, Massachusetts, USA. Social Science &
Medicine. 2011 Aug;73(4):586–94.
17. Heller C, de Melo-Martin I. Clinical and translational science awards: can they increase the efficiency and speed of clinical and
translational research? Academic Medicine. 2009 Apr;84(4):424–32.
18. Minkler M. Linking science and policy through community-based participatory research to study and address health disparities. American
Journal of Public Health. 2010 Apr 1;100 Suppl 1:S81–87.
19. Hacker K, Collins J, Gross-Young L, Almeida S, Burke N. Coping with youth suicide and overdose: one community’s efforts to
investigate, intervene, and prevent suicide contagion. Crisis. 2008;29(2):86–95.
20. Wallerstein N, Duran B. Community-based participatory research contributions to intervention research: the intersection .
Social Policy Responsiveness in Developed DemocraciesAu.docxgertrudebellgrove
Social Policy Responsiveness in Developed Democracies
Author(s): Clem Brooks and Jeff Manza
Source: American Sociological Review, Vol. 71, No. 3 (Jun., 2006), pp. 474-494
Published by: American Sociological Association
Stable URL: https://www.jstor.org/stable/30039000
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Social Policy Responsiveness
in Developed Democracies
Clem Brooks
Indiana University, Bloomington
Jeff Manza
Northwestern University
Do mass policy preferences influence the policy output of welfare states in developed
democracies? This is an important issue for welfare state theory and research, and this
article presents an analysis that builds from analytical innovations developed in the
emerging literature on linkages between mass opinion and public policy. The authors
analyze a new dataset combining a measure of social policy preferences with data on
welfare state spending, alongside controls for established causal factors behind social
policy-making. The analysis provides evidence that policy preferences exert a significant
influence over welfare state output. Guided also by statistical tests for endogeneity, the
authors find that cross-national differences in the level of policy preferences help to
account for a portion of the differences among social, Christian, and liberal welfare state
regimes. The results have implications for developing fruitful connections between
welfare state scholarship, comparative opinion research, and recent opinion/policy
studies.
Do mass policy preferences influence the
size and scope of social policy output in
democracies? Are cross-national differences in
the level of policy preferences a factor behind
comparative differences in developed welfare
states? These questions are fundamental ones for
empirical democratic theory, as the growth of
Direct correspondence to Clem Brooks,
Department of Sociology, Indiana University, 1020
E. Kirkwood Ave., Bloomington, IN 47405-7103
([email protected]). Data were provided by the
Organization for Economic Cooperation and
Development, the Inter-University Consortium for
Political and Social Research, and the Comparative
Welfare States Dataset was provided by Evelyne
Huber, Char ...
Presented by Kinde Getnet, Nancy Johnson, Jemimah Njuki, Don Peden and Katherine Snyder at the Nile Basin Development Challenge Science and Reflection Workshop, Addis Ababa, 4-6 May 2011.
Teen Girls Perspectives of Teen Dating ViolenceURGENT, Inc.
Emerging research on teen dating violence and abuse has limitedly been explored from the perspectives of African-American and Caribbean Black teen girls. The purpose of this research was to expand on the application of photovoice and PAR in exploring the issue of teen dating violence and abuse from the perspective of urban adolescent teens participating in a girls youth development program offered by a community-based organization in Miami, FL.
Similar to Is Choice the only Fruit? – Hearing Older People's Voices (20)
Co production with older people in residential aged care finalCarrie Hayter
Paper presented at the Better Practice Conference in Melbourne on 3 June 2016 on how to co-produce residential services with older citizens and their allies
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
Understanding the Challenges of Street ChildrenSERUDS INDIA
By raising awareness, providing support, advocating for change, and offering assistance to children in need, individuals can play a crucial role in improving the lives of street children and helping them realize their full potential
Donate Us
https://serudsindia.org/how-individuals-can-support-street-children-in-india/
#donatefororphan, #donateforhomelesschildren, #childeducation, #ngochildeducation, #donateforeducation, #donationforchildeducation, #sponsorforpoorchild, #sponsororphanage #sponsororphanchild, #donation, #education, #charity, #educationforchild, #seruds, #kurnool, #joyhome
ZGB - The Role of Generative AI in Government transformation.pdfSaeed Al Dhaheri
This keynote was presented during the the 7th edition of the UAE Hackathon 2024. It highlights the role of AI and Generative AI in addressing government transformation to achieve zero government bureaucracy
Jennifer Schaus and Associates hosts a complimentary webinar series on The FAR in 2024. Join the webinars on Wednesdays and Fridays at noon, eastern.
Recordings are on YouTube and the company website.
https://www.youtube.com/@jenniferschaus/videos
Russian anarchist and anti-war movement in the third year of full-scale warAntti Rautiainen
Anarchist group ANA Regensburg hosted my online-presentation on 16th of May 2024, in which I discussed tactics of anti-war activism in Russia, and reasons why the anti-war movement has not been able to make an impact to change the course of events yet. Cases of anarchists repressed for anti-war activities are presented, as well as strategies of support for political prisoners, and modest successes in supporting their struggles.
Thumbnail picture is by MediaZona, you may read their report on anti-war arson attacks in Russia here: https://en.zona.media/article/2022/10/13/burn-map
Links:
Autonomous Action
http://Avtonom.org
Anarchist Black Cross Moscow
http://Avtonom.org/abc
Solidarity Zone
https://t.me/solidarity_zone
Memorial
https://memopzk.org/, https://t.me/pzk_memorial
OVD-Info
https://en.ovdinfo.org/antiwar-ovd-info-guide
RosUznik
https://rosuznik.org/
Uznik Online
http://uznikonline.tilda.ws/
Russian Reader
https://therussianreader.com/
ABC Irkutsk
https://abc38.noblogs.org/
Send mail to prisoners from abroad:
http://Prisonmail.online
YouTube: https://youtu.be/c5nSOdU48O8
Spotify: https://podcasters.spotify.com/pod/show/libertarianlifecoach/episodes/Russian-anarchist-and-anti-war-movement-in-the-third-year-of-full-scale-war-e2k8ai4
Presentation by Jared Jageler, David Adler, Noelia Duchovny, and Evan Herrnstadt, analysts in CBO’s Microeconomic Studies and Health Analysis Divisions, at the Association of Environmental and Resource Economists Summer Conference.
This session provides a comprehensive overview of the latest updates to the Uniform Administrative Requirements, Cost Principles, and Audit Requirements for Federal Awards (commonly known as the Uniform Guidance) outlined in the 2 CFR 200.
With a focus on the 2024 revisions issued by the Office of Management and Budget (OMB), participants will gain insight into the key changes affecting federal grant recipients. The session will delve into critical regulatory updates, providing attendees with the knowledge and tools necessary to navigate and comply with the evolving landscape of federal grant management.
Learning Objectives:
- Understand the rationale behind the 2024 updates to the Uniform Guidance outlined in 2 CFR 200, and their implications for federal grant recipients.
- Identify the key changes and revisions introduced by the Office of Management and Budget (OMB) in the 2024 edition of 2 CFR 200.
- Gain proficiency in applying the updated regulations to ensure compliance with federal grant requirements and avoid potential audit findings.
- Develop strategies for effectively implementing the new guidelines within the grant management processes of their respective organizations, fostering efficiency and accountability in federal grant administration.
A process server is a authorized person for delivering legal documents, such as summons, complaints, subpoenas, and other court papers, to peoples involved in legal proceedings.
MHM Roundtable Slide Deck WHA Side-event May 28 2024.pptx
Is Choice the only Fruit? – Hearing Older People's Voices
1. Is Choice the only Fruit? –
Hearing Older Peoples’ Voices
Australian Association of Gerontology 46th National Conference
November 2013
Caroline (Carrie) Hayter
PhD Candidate,
Faculty of Education and Social Work
University of Sydney,
Sydney
3. Purpose
• Debate the issue of choice and voice for older
people
– Benefits and risks
– Is choice the only fruit?
• Who is the ‘consumer’?
– Assumptions about the ‘consumer’
– What do we know about older people as
‘consumers’?
4. Purpose
• Policy mechanisms to enact ‘choice’ and
‘voice’
– Lessons from aged care policy history
• Further Research
5. Methodology
• Literature review for PhD
– Why choice emerged as a policy issue in
community aged care policy in Australia?
– Organised voices of older people
• Historical perspective
– What lessons can be learnt from history?
6. Aged Care System in Australia
• Mixed economy of care
• Hybrid system where informal supported by the formal
• Managed Market
– Hybrid and Competitive Tendering and Contracting
(Davidson, 2011/12)
• Limited choice and control for older people (Productivity
Commission, 2011)
• Power is vested in the provider
– Shifting with emergence of ‘consumer’ directed care
– Focus on ‘user pays’
8. The rise of the ‘consumer’
Consumer as
Purchaser
Citizen
Social and
political rightsEconomic
purchasing power
Relationship
between client and
professional
Client Citizen –
Consumer
Active or
passive
subjects?
Mechanisms for enacting ‘choice’ and ‘voice’
Market mechanisms
via competition
(LeGrand, 2007)
Managing self
interest
(LeGrand, 2007) and
voice mechanisms
Enable ‘choice’
through ‘voice’
mechanisms
(Simmons et al 2011)
Diversity of
policy
mechanisms
10. Risks of ‘choice’ mechanisms
• Older people as ‘consumers’
– Disempowers service users (Barnes and Prior, 1995)
– Access to economic resources and information
(Glendinning, 2008, Le Grand, 2007)
• Marketisation via individualised packages
– Access and equity
– Individualised budgets low take up by older people in
the UK (Glendinning et al 2008, Moran et al, 2013)
– Privatisation of care and outsourcing of risks to
individuals
– Undermines the functions of the welfare state
11. What does having a ‘voice’ mean?
• Voice
– Having more say in
services
– Individual or collective
voice (Simmons et al,
2011)
– Voice can go beyond the
confines of choice
• Relationships
• Connections (Simmons et
al, 2011)
– Exit (Hirschman, 1970)
• Voice mechanisms
– Complaints
– Surveys
– Political activity through
voting or lobbying
– Participation in
representative bodies or
groups (Simmons et al,
2011)
12. The political spectrum of ‘voice’
Liberty -
Liberal prioritising of rights
minimum state interference
State fulfils basic needs
Source: Greener, (2008)
Right wing Left wing
Liberty based on
prioritising of need
Increased reliance on self help
Individual
‘Active citizens’
Collective Interests
13. Voice mechanisms in aged care in
Australia
• Aged care system dominated by interests of
professionals, providers and government (Sax,
1990, Gibson, 1998)
• Emergence of voice mechanisms in the late 1980s
early 1990s
– User rights strategies through National Standards
– Limited awareness and impact on older people
(Gibson, 1998, House of Representatives Standing
Committee on Community Affairs, 1994)
– Structures for older people in policy processes (Howe,
1992) and hearing older people’s voice
14. Voice mechanisms in aged care in
Australia
• Organised voice of older people through
‘consumer’ groups
– Will this translate into changes in practice?
• Challenging staff attitudes to ageing
• Structures to hear the voices of older people (Barnes &
Bennett, 1998)
• Appropriate structures for different groups of older
people
15. Benefits of ‘voice’ mechanisms
• Citizenship
– Individual and collective mechanisms (Simmons et al,
2011)
– Vehicle for politicising older people
• Opportunity for engagement
– Explore depth of feeling (Simmons et al, 2011)
– Collective or group response (Barnes & Bennett, 1998)
• Partnerships
– Older people and providers co-produce outcomes
16. Risks of ‘voice’ mechanisms
• Voice alone wont change behaviour of
providers (Le Grand, 2007)
• Providers may not ‘hear’ the voices of older
people
– Ignores power differences between older people
and providers (Ottmann et al, 2011).
• ‘Organised voice’ of older people
– Diversity of interests
17. Choice and Voice
• Moving beyond the ‘consumer as chooser’
• Choice about voice
– Reflect the diversity of service users (Simmons et
al, 2011)
• Parameters of choice
– Who, what, when and how (Le Grand, 2007)
• Mechanisms for older people
– Political structures
– Vulnerability of some older people
18. Further Research
• Research on the perspectives of older people
– How different cohorts of older people respond to
different choice and voice mechanisms?
– Expectations of different older people
• Older people from Culturally and Linguistically Diverse
(CALD) backgrounds
• Aboriginal and Torres Strait Islander older people
20. References
Barnes, M. (2009). Authoritative Consumers or Experts by Experience? User Groups in Health and Social Care In R. Simmons,
Powell, M., & Greener, I., (Ed.), The Consumer in Public Services, Choice, Values and Difference, . Bristol: The Policy Press
Barnes, M., & Bennett, G. (1998). Frail bodies, courageous voices: older people influencing community care. Health & Social Care
in the Community, 6(2), 102-111. doi: 10.1046/j.1365-2524.1998.00105.x
Barnes, M., & Bennett, G. (1998). Frail bodies, courageous voices: older people influencing community care. Health & Social Care
in the Community, 6(2), 102-111. doi: 10.1046/j.1365-2524.1998.00105.x
Beresford, P. (2009). Differentiated Consumers? A Differentiated View from a Service User Perspective In R. Simmons, Powell, M.,
& Greener, I., (Ed.), The Consumer in Public Services, Choice, Values and Difference
Davidson (2011/12) Contesting Markets, Journal of Political Economy, 68 , Summer 2011/ 2012
Glendinning, C., Challis, D., Fernández, J., Jacobs, S., Jones, K., Knapp, K., Wilberforce, M. (2008). Evaluation of the Individual
Budgets Pilot Program York: Social Policy Research Unit
Glendinning, C. (2009). The Consumer in Social Care In R. Simmons, Powell, M., & Greener, I., (Ed.), The Consumer in Public
Services, Choice, Values and Difference Bristol The Policy Press
Hirschman, A. (Ed.). (1970). Exit, Voice and Loyalty Responses to the Decline in Firms, Organisations and States Cambridge
Massachusetts: Harvard University Press
Greener, I. (2008). Choice and Voice – A Review. Social Policy and Society, 7(02), 255-265. doi: doi:10.1017/S1474746407004204
Le Grand, J. (2007). Choice and Competition In J. Le Grand (Ed.), Delivering Public Services through Choice and Competition - The
Other Invisible Hand (pp. 38-62)
21. References
Moran, N., Glendinning, C., Wilberforce, M., Stevens, M., Nettens, N., Jones, K., Manthorpe, J., Knapp, M., Fernandez, J., Challis,
D., & Jacobs, S. (2013) Older people’s experience of cash-for-care schemes: evidence from the English Individual Budget pilot
projects, Ageing and Society 33, pp 826-851
Ottmann, G., Laragy, C., Allen, J., & Feldman, P. (2011). Coproduction in Practice: Participatory Action Research to Develop a
Model of Community Aged
Care. Systemic Practice and Action Research, 24(5), 413-427. doi: 10.1007/s11213-010-9181-5
http://dx.doi.org/10.1007/s11213-011-9192-x
Productivity Commission. (2011 ). Caring for Older Australians, Report no 53, Final Inquiry Report Canberra Australian
Government
Sax, S. (1990). Development of Public Policy for the Aged. In H. M. Kendig, J (Ed.), Grey Policy, Australian Policies for an ageing
society (pp. 23-40). Sydney: Allen & Unwin
Schwartz, B. (2004). The paradox of choice - When more is less? New York Harper Collins Publishers
Simmons, R. (2009). Understanding the Differentiated Consumer in Public Services In R. Simmons, M. Powell & I. Greener (Eds.),
The Consumer in Public Services, Choice, Values and Difference Bristol The Policy Press.
Simmons, R., Birchall, J., & Prout, A. (2011). User Involvement in Public Services: ‘Choice about Voice’. Public Policy and
Administration, 27(1), 3-29. doi: 10.1177/0952076710384903
Wilberforce, M., Glendinning, C, Challis, D, Fernandex, J-L, Jacobs, S., Jones, K., Knapp, M, Manthorpe, J., Moran, N., Netten, A., &
Stevens, M., (2011) ‘Implementing Consumer Choice in Long-Term Care: The Impact of Individual Budgets on Social Care Providers
in England’, Social Policy & Administration, 45 (5), 593-612
I would like to acknowledge the Gadigal people of the Euroa nation whose land we meet on today and pay my respects to elders past and present.
I would also like to acknowledge my co-presenters in this symposium who have assisted me in the development of this presentation.
The title of my paper “Is choice the only fruit? –Hearing Older People’s Voices questions whether the current focus on policy directions in aged care policy in Australia is focusing too much on ‘choice’ at the possible expense of the policy mechanisms that could promote the voice of older people.
In this paper I will refer to the voices of older people because there is no one voice or organised voice that represents the interests of older people.
I want everyone to imagine that you have this enormous fruit platter sitting in front of you.
Some people in the room will choose to eat the strawberries because this is what they prefer.
Other people will eat pieces of lots of different types of fruit.
Some people may be struggle to make a choice because of the fruit that is on offer. Others may ask where are the tropical fruits like mangos, or stone fruits, whereas others will just accept what is served and dished up to them.
Some people argue that choosing community care is just about expressing preferences like eating fruit. When we look at the issue of choice and voice – is it as simple as choosing a piece of fruit from a fruit platter?
In todays paper I want to explore some of the tensions that emerge in the conceptualisation of choice and voice. I will touch on some of the issues and criticisms of the issue of choice as a means for introducing the idea and concept of voice.
As part of this debate I will explore this vexed issue of the emergence and rise of the ‘consumer’ as a central figure in the reform of aged care policy in Australia. In focusing on this area I hope to question some of the ideological and political assumptions that underpin how older people as ‘consumers’ are being described in Australia.
What are the risks and benefits of different policy mechanisms that promote choice and voice? Who benefits? Who does not benefit? What are the risks of particular mechanisms and how does this effect the historical institutional structures upon which Australia’s aged care system is based.
I will also pose questions for future research that focus on the interests, preferences and voices of older people and for researching the impact of changes in policy mechanisms that aim to promote choice and voice for older people.
This paper is based on the literature review I have been completing for my PhD research which is examining why choice emerged as a policy issue in community aged care from a historical perspective and how the voice(s) of older people were represented in the construction of the community aged care system in Australia at key policy turning points between 1975 and 2011.
From a historical perspective, I am interested in exploring how choice emerged as a policy issue and what are some of the lessons from looking at key policy turning points in aged care policy history. I am interested in exploring how older people’s voices have been represented and the emergence and construction of the ‘consumer’.
There are significant changes happening in the policy landscape in age care and disability policy in Australia as part of the agenda of personalisation. The assumptions that underpin these shifts include the changing role of people who use public services shifting from being ‘passive’ clients to ‘active consumers’. It is assumed that people who use public services or aged care services will become active ‘consumers’. Rather than being passive clients relying on professionals for support and advice people are assumed to be active engaged ‘consumers’ who will make informed choices about their care.
Flowing from this assumption is the need for changes in the how agencies are funded from block funded to individually funded. It is assumed that individualised funding will provide more mechanisms for service users to get their needs met. We are seeing this funding system emerging as part of the launch sites of the NDIS as well as the emergence of the concept of ‘consumer directed care’ in packaged care in aged care in Australia.
While there is evidence of some of the benefits of personalisation from different stakeholders including older people, people with disabilities and their carers. There are also some significant risks and areas of evidence which are contestable and disputed, particularly some of the assumptions about ‘choice’ and ‘voice’ and the mechanisms that promote choice for service users.
The policy mechanisms for enacting the issue of ‘choice’ are framed by how we view people are ‘service users’. For those who argue that people who use public services are ‘consumers’ then they favour the creation of markets through the introduction of competition to drive efficiency and effectiveness and services to be more responsive to the needs of consumers. In this economic framework there is also the possibility of co-production where purchasers and producers co-produce outcomes for the interests of service users
For those that describe people who use public services as clients. The policy mechanisms are about managing the perceived self interest of the bureaucracy and challenging the paternalism of the welfare state. This can be achieved through competition and the creation of markets but also through voice mechanisms
For those who conceptualise service users as citizens the focus moves away from purchasing power to notions of social and political rights and for people to have choice about the voice mechanisms that are introduced.
There is also the hybrid citizen –consumer whose relationship with public services can change over time. People can be both active and passive subjects and there needs to be a diversity of policy mechanisms not just those that shift the user of public services to be a ‘consumer’.
The concept of choice is a politically loaded topic because choice can mean different things to different people.
If we think about the different stakeholders in aged care, choice means different things to the different actors
For older people who are service users it may be about having respect or being able to make decisions about what matters most for them to have a good life. This may include choice of staff, service, provider and the type of supports that are provided.
For service providers– choice may mean having the right staff, having mechanisms to hear the voice of older people. It may also be about delivering a return on investment to share holders at the end of the year and making a profit in a marketised economy.
For government, they often seen choice as a vehicle to drive efficiency and effectiveness, however, framed in a human rights discourse. While the policy discourse talks about ‘choice’ and ‘control’ for older people, the underlying agenda is an economic argument about the costs of care. In this there can be the merging of the interests of service users interested in dismantling welfare paternalism which works to further the ‘choice’ agenda.
There are a number of risks of ‘choice’ mechanisms.
Some argue that the move from citizen to consumer can work to disempower service users. The ability to act as an informed consumer is conditional on information as well as having access to economic resources to make systems work in your interests
The issue of shifting to a more individualised approach can lead to issues of access and equity. There can be significant differences between people in terms of who gets what and how these are delivered. Research from the evaluation of individualised budgets identified there was low take up by older people. This begs the question as to why we are implementing this model in Australia
There is the potential within a more marketised and individualised world of the further privatisation of care and outsourcing of the risk for the management of packages to individuals. This can therefore undermine the collective social interests of the functions of the welfare state.
Given the risks of mechanisms promoting choice then perhaps it is about focusing on voice. What does voice mean?
Simmons argues that voice is about ‘giving users a more effective say in the direction of services, by means of representative bodies, complaints mechanisms and surveys of individual preferences.
According to Hirschman it can also be about exit whereby people choose to exit a service because they are dissatisfied. This, however, is tricky in aged care because there is often nowhere else for people to exit.
Voice can also have a political focus through expressing wishes and preferences through voting or participation in political parties or representative bodies.
Simmons argues that voice can go beyond the confines of choice because it allows people to express their preferences or feelings about a particular issue. This can also be undertaken as part of the membership of a group which can increase the impact on political processes and outcomes.
Rather than being a consumer who expresses their individual preferences in the market, people can express their preferences through relationships with other people, providers and groups. It concept of voice and the mechanisms to promote voice are therefore often aligned with the concept of citizenship.
There is also a political spectrum of the concept of voice.
At one end of the political spectrum the concept of voice is based on liberty and freedom based on the assumptions of ‘active citizens’. This perspective actually argues for minimal state interference and increased reliance on self help.
At the other end of the political spectrum voice is based on the concept of liberty but about prioritising need. It is the role of the state to intervene and fulfil the basic needs of people.
Voice can be a means of expressing the individual and collective or organised voice of older people.
Australia’s aged care system was created largely in the interests of professionals, providers and government and has a legacy of older people being seen but not heard.
During the mid to late 1980s there was the awareness of the need to engage with older people. Some of this was largely in response to the abuse of older people in nursing homes.
As part of this process there was the introduction of national standards in nursing homes and community care programs. This included the development of user rights strategies by government and statements of rights and responsibilities in the Home and Community Care program. However, evaluations of these strategies identified that they had little impact on older people. The reasons for this are not clear, however, perhaps this was because they were implemented by government ‘to protect’ older people rather than older people demanding some of these changes.
During the mid to late 1980s and early 1990s there was the establishment of consumer consultative forums. These structures were created by government to hear the voices of older people and this included the creation of Offices of Ageing to raise the profile of issues of ageing within government and in the community. This was a period of significant shift, however, there is some debate about the impact of these structures on policy outcomes for older people
There is an increasing awareness and activism in terms of the organised voice of older people as a political force, however, this needs to translate into changing how agencies work with older people.
I think there have been some significant changes, however, there is more work to be undertaken. Research by Barnes which examined creating user groups for older people in Scotland highlighted the benefit of connecting older people via organised groups. This research highlighted the resistance of providers in hearing the feedback from this group of service users about how the local home support service was provided.
While consultative structures can be created the extent that providers and government with entrenched interests want to hear the voice of older people may be debated. There are also differences in power between providers and older people and this needs to be considered when looking at appropriate voice mechanisms.
There needs to be a diversity of mechanisms to reflect the diversity of older people. The mechanisms to engage and hear the voice of Aboriginal people or older people who identify as LGBTI may require a different approach.
The concept of voice is based on the idea of citizenship and that older people have social, economic and political rights. It can therefore be a mechanism for older people to express both their individual preferences and their views in terms of collective groups or interests.
In this sense, it views older people as part of the social, economic and political life rather than being reduced to a person who purchases services in the market that tends to downplay the collective interests and responsibilities of older people.
Some people argue that this move towards consumer directed care presents an opportunity for older people and the agencies that support them to work together to co-produce outcomes.
However, others such as Barnes remind us of the importance of understanding how service users, particularly older people, may not see themselves as equal partners with agencies that support them.
There are some risks of relying on voice mechanisms.
Le Grand (2007) argues that because of the entrenched self interest of providers, voice mechanisms alone will not change the behaviour of providers. In order to change the behaviour there needs to be external incentives including competition between providers for funding to ensure they respond to the interests and wishes of service users.
In terms of aged care in Australia, it has only been recently that consumer directed care has emerged largely in response to government policy changes rather than the demands from service users. Perhaps this suggests that voice alone wont change behaviour.
While providers and government may create structures to engage with older people, this may not necessarily translate into actual changes in practice or policy. If mechanisms to encourage the voice of older people are to be considered then there needs to be consideration of the power imbalance between people who use services and those who provide them.
Australia has a long history of active engagement of organisations in the political and lobbying process over the history of aged care policy in Australia. Some of these organisations have been instrumental in advocating for significant policy changes, however, there may be questions about whose these groups represent. There may not be one voice but many voices and ensuring these voices are heard is important. Older people are diverse and having a range of organisations that represent the diversity of older people is an important consideration.
Given the limitations of choice and voice.
Perhaps it is about ‘choice’ about ‘voice’ and the use of diversity of policy mechanisms
Le Grand (2007) has developed a schema for some of the parameters of choice in terms of service provision including the who, what, when and how of choice to provide some control or option for service users
We also need to really examine the mechanisms for older people to participate both as service users but also as citizens and recognising for some older people the nature of being a ‘service user’ may be a point of vulnerability.
There is certainly more research that needs to happen to understand how older people experience some of the proposed changes in relation to personalisation.
For example are there differences between different cohorts of older people including people that are 80 years old and those who are 65 years old. The life experiences of these older people can be quite diverse
What does some of these changes mean for people form different cultural and language groups and for Aboriginal and Torres Strait Islander older people.
Choice is not the only fruit
Voice can be a mechanism for more ‘choice’
Given the historical institutional structures of the aged care system in Australia perhaps there needs to be more discussion about the mechanisms that promote the voice while encouraging people to have a more constrained choice.
Perhaps it is the case that people need to have ‘choice’ about their ‘voice’. Policy dialogues need to ensure that the mechanisms enacted can respond to the diversity of service users and not just focus on the assumption of the service user as ‘consumer’.
We need to be clear about what are the trade offs in the pursuit of providing more ‘choice’ or ‘voice’ for older people as service users.