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Enabling Independence and Person 
Centred Approaches 
– Translating Research into Practice 
Celebrating Aged Care and Rehabilitation in 
South West Sydney and Beyond 
Conference 
16 December 2014 
Director 
Carrie Hayter Consulting 
15/12/2014 
Enhancing Independence and Person Centred Approaches © 
Carrie Hayter Consulting 
1
About Carrie Hayter Consulting 
• Personalisation 
15/12/2014 
– Translation Research and Evaluation 
– A Handbook for community care services , Empowering People, 
Enhancing Independence, Enriching Lives with Alt Beatty Consulting for 
NSW Government 
– Strategic Planning 
– Education, Coaching and Mentoring 
– Person Centred Practice and Thinking (managers and support workers) 
– Cultural Diversity and Cultural Competence 
– Ageing and Sexuality (managers & front line workers) 
– Consumer Directed Care (Managers and Support Workers) 
– Living Life my Way (Service Users) 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
2
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
3
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
4 
Huon Pine Picture
Introduction 
• Enhancing Independence & Personalisation 
– Policy Context 
– Research 
• Challenges & Opportunities 
– Older People and their allies 
– Frontline Practitioners 
– Managers & Senior Executives 
– Health Policy 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
5
Source: downloaded from http://lwdp.org.uk/more_info.asp?current_id=296 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
6
Shifting Policy Landscape – 
Personalisation 
Passive 
Clients 
Active 
Participants 
Block 
funding 
Individualised 
funding 
Rigid large 
inflexible, 
bureaucratic 
services 
Flexible 
responsive 
services 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
7
The rise of the ‘Consumer’ 
Consumer as 
Purchaser 
Client Citizen – 
Citizen 
Social and 
Economic political rights 
purchasing power 
Relationship 
between client and 
professional 
Consumer 
Active or 
passive 
subjects? 
Mechanisms for enacting ‘choice’ and ‘voice’ 
Market mechanisms 
via competition 
(LeGrand, 2007) 
Managing self 
interest 
(LeGrand, 2007) and 
voice mechanisms 
Enable ‘choice’ 
through ‘voice’ 
mechanisms 
(Simmons et al 2011) 
Diversity of 
policy 
mechanisms 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
8
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
15/12/2014 9 
Consulting
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
10 
Picture of Sick and Geriatric ageing 
centre of the Audrey Hawkins Centre
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
11
Personalisation Narratives 
• Personalisation works, transforming people’s 
lives for the better. 
• Personalisation saves money. 
• Person- centred approaches reflect the way 
that people live their lives. 
• Personalisation is applicable to everyone. 
• People are the experts in their own lives 
(Needham, 2011: pg 7). 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
12
The Lucky Ones 
Source: downloaded from https://au.tv.yahoo.com/x-factor/# 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
page1/? 15/12/2014 _s_ref=9JI102jjS&kw=x%20factor&creative=55215366484 13 
Consulting
FEAR 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
14
Visionary 
Leadership 
Creating Shared 
Values and Beliefs 
Outcomes for 
individuals 
Community 
Focus 
Empowered and 
Valued staff 
Individual and 
Organisational 
Learning 
Partnerships 
Source:Williams and Sanderson (2005) 
15/12/2014 Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
15 
Translating Research into Practice
Hearing Older Peoples’ Voices 
• Voice 
– Having more say in 
services and getting 
access to support 
– Individual or collective 
voice (Simmons et al, 
2011) 
– Voice can go beyond the 
confines of choice 
• Relationships 
• Connections (Simmons et 
al, 2011) 
• Voice mechanisms 
– Complaints 
– Surveys 
– Political activity through 
voting or lobbying 
– Participation in 
representative bodies or 
groups (Simmons et al, 
2011) 
– Creating engagement 
frameworks and 
structures 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
16
People Leading the Way 
Older People – 
Village to Village Network 
Boston 
Beacon Hill Village 
• Grass roots movement created by 
older for older people 
• Member based 
http://www.beaconhillvillage.org 
Village to Village Network 
http://www.vtvnetwork.org/ 
• Australia -Waverton 
http://wavertonhub.com.au/ 
People with a disability – 
My Choice Matters 
• Ideas and resources for 
people to have more voice, 
choice and control 
• Run my projects 
• Become a leader 
http://www.mychoicematters. 
org.au/ 
• Community Disability 
Alliance Hunter 
– Planning Cafes 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
15/12/2014 17 
Consulting
Hearing and Responding to Carers’ 
Voice 
• Formal care system would not exist without informal 
carers 
• Access to personalised budgets 
– Conservatism of carers and the risks of personalisation 
(Needham, 2011) 
– The traditional model gives them security and comfort 
• Choice and comfort for service users may not 
necessarily bring choice and comfort for carers 
• Voices of carers not being recognised and heard (Carers 
NSW, 2014) 
• Challenging, educating and supporting carers 
• Research on carer perspectives of enablement 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
18
Front-line Practitioners 
• Reflective Practice 
– Seeing older people as active participants 
– Small steps can bring systemic change 
– Educating and supporting carers 
• Planning 
– Whose plan is it? 
• Innovation 
– Test the boundaries 
• Research 
– Test out new ideas 
– Translate research into practice 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
19
Management 
• Get behind front-line staff 
– Support and encourage discussion 
• Navigate and challenge the hierarchy 
– ‘productive tension’ 
• Research 
– Attend conferences, network and share ideas 
– Initiate and participate in research 
• Lead by Example 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
20
Opportunities and Challenges 
– Policy 
• External policy changes in aged care and 
disability funding will impact on health policy 
and funding 
• Block funded and individualised funded 
operating in parallel universes 
– Can block funded services become more 
personalised? 
– Does a personalised budget mean personalised 
support? 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
21
Opportunities and Challenges- 
Commissioning Services 
• Shaping services to meet service users 
interests and preferences 
– What mechanisms are needed to enact this? 
– Partnerships and/or Co-operative Models 
– Service User led 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
22
Opportunities and Challenges – 
Engaging People who use Services 
• Co-Production or Co-design 
• Working with people for planning and designing or co-producing 
services 
– http://www.ndti.org.uk/uploads/files/Personalisation 
_-_dont_just_do_it_coproduce_it.pd 
• Engaging people who speak a language other 
than english 
• Challenges 
– Staff resistance 
– Engagement of people who use services 
– Power differences 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
23
Conclusion 
• Positive Ageing 
– Changes in systems to support front-line practitioners 
– Engage users of services 
– Professionals as vessels 
• Changing Organisational Culture 
– Management gets behind the front-line practitioner 
• Reflective Practice 
– Testing ideas and translation into practice 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
24
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
25
References 
Carers NSW. (2014). The NDIS One Year In - Experiences of the Carers in the Hunter trial Site Sydney Carers 
NSW 
Glendinning, C. (2008). Increasing Choice and Control for Older and Disabled People: A Critical 
Review of New Developments in England. Social Policy and Administration, 42(5), 451-469. doi: 
10.1111/j.1467-9515.2008.00617.x 
Le Grand, J. (2007). Choice and Competition In J. Le Grand (Ed.), Delivering Public Services 
through Choice and Competition - The Other Invisible Hand (pp. 38-62). New Jersey: Princeton 
University Press. 
Needham, C. (2011). Personalising Public Services Understanding the Personalisation Narrative 
Bristol, UK Policy Press 
Simmons, R. (2011). Leadership and Listening: The Reception of User Voice in Today's Public 
Services. Social Policy & Administration, 45(5), 539-568. doi: 10.1111/j.1467-9515.2011.00790.x 
` 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
26
References 
Moran, N., Glendinning, C., Wilberforce, M., Stevens, M., Nettens, N., Jones, K., Manthorpe, J., 
Knapp, M., Fernandez, J., Challis, D., & Jacobs, S. (2013) Older people’s experience of cash-for-care 
schemes: evidence from the English Individual Budget pilot projects, Ageing and Society 33, 
pp 826-851 
Needham, C. (2011). Personalising Public Services Understanding the Personalisation Narrative 
Bristol, UK Policy Press 
Simmons, R. (2011). Leadership and Listening: The Reception of User Voice in Today's Public 
Services. Social Policy & Administration, 45(5), 539-568. doi: 10.1111/j.1467-9515.2011.00790.x 
Simmons, R., Birchall, J., & Prout, A. (2011). User Involvement in Public Services: ‘Choice about 
Voice’. Public Policy and Administration, 27(1), 3-29. doi: 10.1177/0952076710384903 
Williams, R., & Sanderson, H., (2005) What are we learning about person centred organisations?, 
downloaded from Home Care today www.homecaretoday.org.au 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
27
More Information 
Carrie Hayter 
Email: Carriehayter@gmail.com 
Twitter@carriehayter 
Slideshare: Carrie Hayter 
Linked in http://au.linkedin.com/pub/carrie-hayter/ 
34/536/517/ 
15/12/2014 
Enhancing Independence and Person 
Centred Approaches © Carrie Hayter 
Consulting 
28

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Enabling Independence and Person Centred Care

  • 1. Enabling Independence and Person Centred Approaches – Translating Research into Practice Celebrating Aged Care and Rehabilitation in South West Sydney and Beyond Conference 16 December 2014 Director Carrie Hayter Consulting 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 1
  • 2. About Carrie Hayter Consulting • Personalisation 15/12/2014 – Translation Research and Evaluation – A Handbook for community care services , Empowering People, Enhancing Independence, Enriching Lives with Alt Beatty Consulting for NSW Government – Strategic Planning – Education, Coaching and Mentoring – Person Centred Practice and Thinking (managers and support workers) – Cultural Diversity and Cultural Competence – Ageing and Sexuality (managers & front line workers) – Consumer Directed Care (Managers and Support Workers) – Living Life my Way (Service Users) Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 2
  • 3. 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 3
  • 4. 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 4 Huon Pine Picture
  • 5. Introduction • Enhancing Independence & Personalisation – Policy Context – Research • Challenges & Opportunities – Older People and their allies – Frontline Practitioners – Managers & Senior Executives – Health Policy 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 5
  • 6. Source: downloaded from http://lwdp.org.uk/more_info.asp?current_id=296 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 6
  • 7. Shifting Policy Landscape – Personalisation Passive Clients Active Participants Block funding Individualised funding Rigid large inflexible, bureaucratic services Flexible responsive services 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 7
  • 8. The rise of the ‘Consumer’ Consumer as Purchaser Client Citizen – Citizen Social and Economic political rights purchasing power Relationship between client and professional Consumer Active or passive subjects? Mechanisms for enacting ‘choice’ and ‘voice’ Market mechanisms via competition (LeGrand, 2007) Managing self interest (LeGrand, 2007) and voice mechanisms Enable ‘choice’ through ‘voice’ mechanisms (Simmons et al 2011) Diversity of policy mechanisms 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 8
  • 9. Enhancing Independence and Person Centred Approaches © Carrie Hayter 15/12/2014 9 Consulting
  • 10. 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 10 Picture of Sick and Geriatric ageing centre of the Audrey Hawkins Centre
  • 11. 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 11
  • 12. Personalisation Narratives • Personalisation works, transforming people’s lives for the better. • Personalisation saves money. • Person- centred approaches reflect the way that people live their lives. • Personalisation is applicable to everyone. • People are the experts in their own lives (Needham, 2011: pg 7). 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 12
  • 13. The Lucky Ones Source: downloaded from https://au.tv.yahoo.com/x-factor/# Enhancing Independence and Person Centred Approaches © Carrie Hayter page1/? 15/12/2014 _s_ref=9JI102jjS&kw=x%20factor&creative=55215366484 13 Consulting
  • 14. FEAR 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 14
  • 15. Visionary Leadership Creating Shared Values and Beliefs Outcomes for individuals Community Focus Empowered and Valued staff Individual and Organisational Learning Partnerships Source:Williams and Sanderson (2005) 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 15 Translating Research into Practice
  • 16. Hearing Older Peoples’ Voices • Voice – Having more say in services and getting access to support – Individual or collective voice (Simmons et al, 2011) – Voice can go beyond the confines of choice • Relationships • Connections (Simmons et al, 2011) • Voice mechanisms – Complaints – Surveys – Political activity through voting or lobbying – Participation in representative bodies or groups (Simmons et al, 2011) – Creating engagement frameworks and structures 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 16
  • 17. People Leading the Way Older People – Village to Village Network Boston Beacon Hill Village • Grass roots movement created by older for older people • Member based http://www.beaconhillvillage.org Village to Village Network http://www.vtvnetwork.org/ • Australia -Waverton http://wavertonhub.com.au/ People with a disability – My Choice Matters • Ideas and resources for people to have more voice, choice and control • Run my projects • Become a leader http://www.mychoicematters. org.au/ • Community Disability Alliance Hunter – Planning Cafes Enhancing Independence and Person Centred Approaches © Carrie Hayter 15/12/2014 17 Consulting
  • 18. Hearing and Responding to Carers’ Voice • Formal care system would not exist without informal carers • Access to personalised budgets – Conservatism of carers and the risks of personalisation (Needham, 2011) – The traditional model gives them security and comfort • Choice and comfort for service users may not necessarily bring choice and comfort for carers • Voices of carers not being recognised and heard (Carers NSW, 2014) • Challenging, educating and supporting carers • Research on carer perspectives of enablement 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 18
  • 19. Front-line Practitioners • Reflective Practice – Seeing older people as active participants – Small steps can bring systemic change – Educating and supporting carers • Planning – Whose plan is it? • Innovation – Test the boundaries • Research – Test out new ideas – Translate research into practice 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 19
  • 20. Management • Get behind front-line staff – Support and encourage discussion • Navigate and challenge the hierarchy – ‘productive tension’ • Research – Attend conferences, network and share ideas – Initiate and participate in research • Lead by Example 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 20
  • 21. Opportunities and Challenges – Policy • External policy changes in aged care and disability funding will impact on health policy and funding • Block funded and individualised funded operating in parallel universes – Can block funded services become more personalised? – Does a personalised budget mean personalised support? 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 21
  • 22. Opportunities and Challenges- Commissioning Services • Shaping services to meet service users interests and preferences – What mechanisms are needed to enact this? – Partnerships and/or Co-operative Models – Service User led 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 22
  • 23. Opportunities and Challenges – Engaging People who use Services • Co-Production or Co-design • Working with people for planning and designing or co-producing services – http://www.ndti.org.uk/uploads/files/Personalisation _-_dont_just_do_it_coproduce_it.pd • Engaging people who speak a language other than english • Challenges – Staff resistance – Engagement of people who use services – Power differences 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 23
  • 24. Conclusion • Positive Ageing – Changes in systems to support front-line practitioners – Engage users of services – Professionals as vessels • Changing Organisational Culture – Management gets behind the front-line practitioner • Reflective Practice – Testing ideas and translation into practice 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 24
  • 25. 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 25
  • 26. References Carers NSW. (2014). The NDIS One Year In - Experiences of the Carers in the Hunter trial Site Sydney Carers NSW Glendinning, C. (2008). Increasing Choice and Control for Older and Disabled People: A Critical Review of New Developments in England. Social Policy and Administration, 42(5), 451-469. doi: 10.1111/j.1467-9515.2008.00617.x Le Grand, J. (2007). Choice and Competition In J. Le Grand (Ed.), Delivering Public Services through Choice and Competition - The Other Invisible Hand (pp. 38-62). New Jersey: Princeton University Press. Needham, C. (2011). Personalising Public Services Understanding the Personalisation Narrative Bristol, UK Policy Press Simmons, R. (2011). Leadership and Listening: The Reception of User Voice in Today's Public Services. Social Policy & Administration, 45(5), 539-568. doi: 10.1111/j.1467-9515.2011.00790.x ` 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 26
  • 27. References Moran, N., Glendinning, C., Wilberforce, M., Stevens, M., Nettens, N., Jones, K., Manthorpe, J., Knapp, M., Fernandez, J., Challis, D., & Jacobs, S. (2013) Older people’s experience of cash-for-care schemes: evidence from the English Individual Budget pilot projects, Ageing and Society 33, pp 826-851 Needham, C. (2011). Personalising Public Services Understanding the Personalisation Narrative Bristol, UK Policy Press Simmons, R. (2011). Leadership and Listening: The Reception of User Voice in Today's Public Services. Social Policy & Administration, 45(5), 539-568. doi: 10.1111/j.1467-9515.2011.00790.x Simmons, R., Birchall, J., & Prout, A. (2011). User Involvement in Public Services: ‘Choice about Voice’. Public Policy and Administration, 27(1), 3-29. doi: 10.1177/0952076710384903 Williams, R., & Sanderson, H., (2005) What are we learning about person centred organisations?, downloaded from Home Care today www.homecaretoday.org.au 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 27
  • 28. More Information Carrie Hayter Email: Carriehayter@gmail.com Twitter@carriehayter Slideshare: Carrie Hayter Linked in http://au.linkedin.com/pub/carrie-hayter/ 34/536/517/ 15/12/2014 Enhancing Independence and Person Centred Approaches © Carrie Hayter Consulting 28

Editor's Notes

  1. I would like to acknowledge the traditional owners of the land and pay my respects to elders past and present. I would like to thank the Sydney South West Local Health District for the opportunity to present today and also acknowledge the extraordinary depth of talent and knowledge that we have in this room today. I am very privileged to be sharing this stage with international and national leaders in their field. I have had the privilege to work with many colleagues from south west Sydney throughout my career and many of whom have lead the work in working in the context of ageing and diversity. This paper reflects on the work I have undertaken in my consulting work over the last ten years. In this work I have had the privledge of working alongside small, medium and large organisations , their staff and volunteers to transform them from being service centric to focusing on service users. As part of this journey I have also been privledged in working with service users including older people, people with disabilities and their allies. In this work I have learnt so much from the people I have worked alongside. During this presentation I may also switch hats and wear a service user or carer hat in honour of my father who recently passed away from a neuro-degenerative disease, multiple system atrophy. The journey with my father taught me a lot about the importance of early intervention, rehabilitation and the role of allied health in this journey. It also taught me the importance of considering This presentation is on slideshare www.slideshare
  2. I have worked in the human services sector primarily in the ageing and disability service sectors for over 25 years. I have degrees in social work and economics. During this time I have worked at the front-line as a case manager, managed support staff, worked in the NSW Government in policy and funding of disability service programs, worked in the advocacy sector for people with disabilities, worked in the UK for 4 years for local service departments, for an aged care industry body. For the last 9 years I have run a consulting and training business that supports stakeholders to move to a more personalised world of social care. I do this through research, evaluation, training and education, strategic planning and mentoring. In that time I have worked with small, medium and large organisations including government and non-government agencies in both the disability services and aged care sector. I have also worked with a range of health services and allied health professionals in both Australia and the United Kingdom.
  3. I have just been privileged to spend three weeks in Tasmania exploring the beauty of the east coast and the west coast wilderness. I wandered through the wild forest of the Gordon-Franklin, made famous by activists who saved it from being dammed. As I was wondering through these magnificent forests produced over millions of years I was thinking about this presentation. Nature has a way of producing extraordinary things with different parts of the environment playing to come together. What are the lessons that can be learnt from these old growth forests? What can we as health professionals do to change systems so that older people are put at the heart of their support? If it was not for the foresight and fierce determination of activists this large tract of wilderness would have been dammed and not enjoyed by future generations. Sometimes it is the small steps of people who have vision, foresight and determination that can bring about change. For everyone in this audience who has the privilege to work alongside older people you have the potential to make a difference in people’s lives in every day.
  4. There were many things that I learnt while in Tasmania , particularly about the Huon Pine. Huon Pines only grow one millimitre a year. When Huon Pine trees fall to the ground they don’t die what happens is new Huon pines can grow on these trees and develop new forest I thought about the Huon Pine I thought about our health systems and how a move or shift of a millimitre or more could just be a start of a whole system of change? Is this the story of what happens in the health care system, one limb falls like a Huon pine tree and then it starts to grow and evolve in different direction.?
  5. The purpose of this paper is to explore some of the challenges in translating the research on improving the independence of older people into practice. I am locating the changes in focusing on enhancing independence within the broader policy context of ‘personalisation’ of support for older people. The external policy landscape for both carers, older people and people with disabilities is changing. We are going through a period of extroardinary change and transformation as part of personalising care and support for older people, people with disabilities and their carers. As part of these changes there are both challenges and opportunities for front---line Practitioners, Leaders, Managers, Chief Executive Officers. There are also significant challenges for health care policy and systems in shifting to be really put the user of health services at the centre of practice and design of systems
  6. Personalisation is a contested term. It means different things to different people and actors. However, within these debates there some agreements. Needham (2011) for example argues that personalisation is “public service delivery mechanisms that aim to modify the service to meet the specific circumstances facing individual users. Such mechanisms could include individual budgets, personalised assessment mechanisms and new forms of conditionality. She contends that personalisation in social care encompasses a broad agenda of approaches that come under the banner of person centred planning and self directed support (pg 31). Two of the central themes of personalisation are choice and control for service users and trying to design service systems that move away from being service centric to focusing on the users of services. It is also based on a principle that service users know what they need and the role of the allied health professional is to empower and support the person to get the best possible outcomes. You could argue that enhancing and improving the function of older people, including giving them more power, voice, choice and control within the primary and acute care health care systems aligns with some of the principles of personalisation.
  7. There are significant changes happening in the policy landscape in age care, disability policy which will influence health care policy in Australia as part of the agenda of personalisation. The assumptions that underpin these shifts include the changing role of people who use public services shifting from being ‘passive’ clients to ‘active consumers’. It is assumed that people who use health services or aged care services will become active ‘consumers’. Rather than being passive clients relying on professionals for support and advice people are assumed to be active engaged ‘consumers’ who will make informed choices about their care. Flowing from this assumption is the need for changes in the how agencies are funded from block funded to individually funded. It is assumed that individualised funding will provide more mechanisms for service users to get their needs met. We are seeing this funding system emerging as part of the launch sites of the NDIS as well as the emergence of the concept of ‘consumer directed care’ in packaged care in aged care in Australia. As part of this changing landscape there are significant challenges for local health districts in terms of how they will respond to these changing external landscapes. There will be questions emerging about how all of this will effect health care policy in Australia particularly the positioning of older people and their allies in both the funding and delivery of health care in Australia.
  8. The ‘consumer’ or service user has become a central figure in the implementation of personalisation through the concepts of choice and voice. The positioning of the service user can be placed on a spectrum with different language to describe people who use services and the mechanisms used to promote ‘choice’ and control or hearing the ‘voice’ of older people For those who argue that people who use public services are ‘consumers’ then they favour the creation of markets through the introduction of competition to drive efficiency and effectiveness and services to be more responsive to the needs of consumers. In this economic framework there is also the possibility of co-production where purchasers and producers co-produce outcomes for the interests of service users For those that describe people who use public services as clients. The policy mechanisms are about managing the perceived self interest of the bureaucracy and challenging the paternalism of the welfare state. This can be achieved through competition and the creation of markets but also through voice mechanisms For those who conceptualise service users as citizens the focus moves away from purchasing power to notions of social and political rights and for people to have choice about the voice mechanisms that are introduced. There are questions about how older people will be positioned in this debate particularly as health care consumers and way in which acute care and allied health services for older people will respond to these changing roles. In response to some of this we are already seeing more personalised health care systems through the piloting and testing of individualised budgets in the United Kingdom ( need to read some of the evidence about this).
  9. One of the challenges of personalisation is to appreciate and understand the historical forces or structures that have created the different service systems in this country. If you look at history we have come a long way, however, we are in the process of dismantling a whole service infrastructure and moving from a block funded to individualised funding system with different stages occurring for older people, people with disabilities and their carers. This picture shows some of the drivers of personalisation for older people in Australia. It contends that for older people they were largely invisible and the system was created in the interests of professionals, providers and with older people institutionalised. However, with the economic costs of ageing combined with the changing expectations and the emergence of the concept of active ageing we are seeing changing models. However, moving from the Old to New system takes time is a complex process of dismantling and transitioning not only funding but the practices, values of people in your organisations. It also requires people to lead organisations through significant changes
  10. Since the mid 1970’s there have been some extraordinary changes in aged care policy in Australia. This plaque is now on the site of a healthy ageing centre which is a hive of activity of older people connecting and exercising. This plaque was taken next to a healthy ageing centre which was a hive of activity of older people exercising, lifting weights and being supported by personal trainers. I watched people connecting, sharing stories about their lives. If we compare this to the plaque where this was located on the same site – we have seen a small revolution in the way that we view older people though the concept of positive ageing . This is in part because of the work of health professionals and researchers challenging many of the assumptions and entrenched attitudes about ageing.
  11. However have we gone too far with positive ageing? Has all the images and the stories in the media of older people sky diving or swimming the cole classic actually working to objectify older people? In this I am borrowing this idea from Stella Young a disability activitist who died suddenly last week. I heard Stella speak at the TED conference in Sydney at the Opera House last year. She spoke about how people with disabilities have become objects of inspiration a term she called ‘disability porn’. What she means is that people with disabilities become objects of inspiration by non-disabled people. Her presentation and commentary got me thinking – it this what happens to older people? While the message of positive ageing is to promote positive images of older people , have we turned a different corner and know all we see are images of older people doing inspirational things so they become objects or ‘ageing porn’. In promoting these images are we romanticising the issue of ageing. Perhaps we are feeding people overly optimistic messages of what is possible when things in your body are not working as well as they could be. However, the opposite of this is not wanted either where people don’t see any possibility of supporting you to maintain your independence and well-being. How do we as professionals maintain this delicate balance.
  12. One of the challenges in this space is there are some dominant narratives being played out in the policy space both nationally and internationally Needham (2011) who has researched the narratives that have influenced policy debates in the personalisation of social care in the UK contends that are five key narratives that have emerged as part of the policy landscape in the UK. These include the following: Personalisation works , transforming people’s lives for the better Personalisation saves money Person – centred approaches reflect the way that people live their lives Personalisation is applicable to everyone People are the experts in their own lives One of the interesting things is that we are seeing these narratives emerging in debates in Australia particularly with the actual implementation of the NDIS which had a much more grass roots campaign.Some of these narratives fundamentally challenge the role of professionals and the way in which health care systems have worked or viewed older people and their allies. Some of these narratives are also hugely contested.
  13. There are two ways these issues are played out. The first way is people seeing themselves as being lucky and fortunate and these policy changes are extremely beneficial. For service users this could be a narrative of we are lucky, we can manage our own money. As one service user said to me, a man in his late 50s who had a spinal injury through work – After 17 years I am actually being asked what I want. We are seeing service users both older people and people with disabilities creating organisations and structures so they can lead projects and changes. For some staff they are embracing this changes to work in a different way and to actually be flexible and responsive. As one Aboriginal worker said to me “so you mean that know I am actually encouraged to break the rules, after all these years of breaking the rules and just not telling management”. Some social workers have said to me Hellalujah…. you mean I can actually implement the Social Work Code of Practice…. Thank godness for this.
  14. For others including some service users, carers and providers it is fear. It is fear about moving from a block funded model to individualised funding. What does this mean for my son, daughter, father and mother. For staff, it may mean what does this mean for their work and how they view older people? As one support worker said to me in a workshop – if I encourage older people to be independent then I wont have a job? If people do more for themselves then I may not have as much work as I like. For case managers or support facilitators many like to be the professional and ‘tell people how to live their lives”. As one allied health professional said to me “the allied health people come together and do the planning before we meet the person”. When I asked do people actually implement their plan if they are not involved in the decision making, she looked at me and said “my plans always work”. One of the things that people say why they cannot change is because of funding, time and it is all too hard so we will just let government drive the agenda. However, as leaders of organisations it is important to start different conversations in your organisations. The conversations may shift people’s thinking of what is possible.
  15. In order to translate some of the evidence from the research there needs to be a change in how we view practice. There are a number of key elements that form part of this translation process. Perhaps the answers for front-line managers, middle management and chief executive officers is striving for person centred management. . The elements of this are Visionary Leadership, by being clear about the direction of the organisation, motivating people and aligning the direction with actual implementation. All these areas are important, however, one area I think that agencies could improve is for management to get behind the front-line staff. They are your most important asset the markets what your service does.
  16. One area that practitioners and health care systems, particularly in their work with older people could improve is hearing and responding to the voices of older people. Too often we forget to involve older people or the people that use and commission services in the development, planning and design of support. There are a range of mechanisms by which this can occur both individually or collectively. Older people and their allies are diverse so it is important to have a diverse range of structures that respond to this diversity. For example, with people who speak a language other than English engaging the specific cultural community through bi-lingual workers and promoting information in language and culturally specific means.
  17. As part of these changes there are examples of communities and service users coming together to create structures to support them through this transformation process. For older people there is a self help movement through the Village to Village network which encourages people living in local communities to create their own organisations. Originating in Boston, older people are coming together to create their own structures, the organisations are member based and designed to connect older people to age well in their community. These models have been expanded for all members of the community. For example the Waverton Hub one of the first examples in Australia . It could be accessing a range of activities in the local community. It would be interesting to see how these ideas and concepts could work in a health care context.
  18. We also need to consider the interests and perspective s of carers which may be fundamentally different from the people they care for. The research from the UK, particularly in relation to personalised budgets highlights that carers may have a different perspective to how they should be used and the conservatism of carers. Recent research completed by carers NSW on the experiences of carers in the Hunter in the pilot of the NDIS highlighted the some of the perspectives and voices of carers have not been heard. We need to think about how we bring along carers to educate and support them to understand how to enhance a person’s independence as well as providing as much information as well. More research is also needed in this area
  19. In my experience of having worked alongside many health care professionals a key principle that needs to be embraced by all front-line practitioners is reflective practice. This means reflecting on our work, our values and an how we view and work with older people. As health professionals we can all have blinkers and get entrenched in doing things a particular way because we have always ‘done it this way’. A key area is planning and engaging people in the development of plans so they own the plan rather than it being driven by the health professional The health system needs to allow professionals the space to be creative and test out new ideas about practice and challenge the boundaries. This could include doing research and involving older people in this process/
  20. I think it is important for middle management to get behind their front-line staff and support them to navigate the system to get outcomes for older people. There is an idea of productive tension whereby middle managers agitate for change and influence senior management. Research and sharing ideas such as this conference and testing new ideas and implementing these changes if they work.
  21. Currently in the different support streams for carers we have a mix of block and individualised funding . The changes in aged care and disability services will effect health funding and policy There are some challenges in operating block funded and individualised funding models at the same time. I think it is possible for block funded services like what we have operating in health to become more personalised. I also think we need some caution with this move to personalisation and particularly individualised budget – having a personalised budget does not automatically translate into a personalised support? Some staff are self interested and it is how we juggle these competing priorities
  22. I think there are challenges in the commission of health services given that historically they are largely driven by the interests of professionals. Exploring the possibility of partnerships, co-operative models and service user lead models requires a lot more thinking and work.
  23. Need to support front line practitioners and design systems that support them to bet the best they can be to get the outcomes they can with older people Engaging older people in a way that has meaning and respects their journey through whatever challenges has been thrown at them. Not romanticising ageing but gently encouraging and prompting people and acknowledging that the process of ageing can challenge people’s identity their concept of self as well as the people around them who support them on this journey. For managers and senior executives, I say to you in the last week what did you do to support your front-line staff? What are you planning to do in the next 6 months? How will you get input and feedback from the front-line about whether this is working? For all people in this room, take time out to think, write and reflect. Engage your colleagues the people you work alongside including older people and listen and learn from them. Some of the most challenging situations or people we work with are fantastic opportunities for learning. Embrace and lean into this and learn from it.
  24. Small changes like the growth of the Huon Pine can make a difference. Don’t be afraid to question systems or practice if they appear to be driven by the interest of professionals rather than the users. Sometimes you need a small part of a Huon Pine to drop to the forest floor, for new growth to emerge and a whole new forest starts to grow. But the forest needs to be protected and allowed to grow in its own way.