The document discusses ADD International's work to promote independence, equality and opportunity for disabled people living in poverty. It focuses on four key areas: inclusive education, economic empowerment, access to services, and equality for women and girls. ADD International supports over 127 disability rights organizations globally through capacity building and influencing policies. Their goal is to empower disabled activists and strengthen the disability rights movement.
Women Social Organization-Pakistan is working n Punjab-Pakistan since 1990. WSO is working for women, children and youth foe empowerment through skill enhancement, education, awareness and advocacy.
The information worlds of non resident informal carers: stakeholder perceptionsSheila Webber
Presented by Sheila Webber and Dr Pamela McKinney at the conference Information Science Trends: Health Information Behavior, organised by the European Chapter of ASIS&T, on June 10 2020. The references are at https://docs.google.com/document/d/1ilCIpu7IWsRUhtWinPNuVetlrvkDxBN_lKTaV26yWAU/edit?usp=sharing
This document provides a guide for establishing community-based paralegal programs. It discusses how paralegals can help provide access to justice for poor and marginalized communities by using legal and non-legal tools to resolve common justice problems. The guide is based on experiences from paralegal programs in Sierra Leone and other countries. It aims to offer practical advice for developing, training, supporting, and evolving paralegal programs tailored to local needs in order to empower communities and promote access to justice.
Public Square Atlanta Homelessness WebinarJason Parker
This is the presentation used during PublicSquareAtlanta.org's "Homelessness Around Atlanta" webinar, which took place on Dec. 15, 2011. The bulk of the content was prepared by the Gateway Center and United Way of Metropolitan Atlanta for speakers Vince Smith and Phil Hunter, respectively.
The document discusses ADD International's work to promote independence, equality and opportunity for disabled people living in poverty. It focuses on four key areas: inclusive education, economic empowerment, access to services, and equality for women and girls. ADD International supports over 127 disability rights organizations globally through capacity building and influencing policies. Their goal is to empower disabled activists and strengthen the disability rights movement.
Women Social Organization-Pakistan is working n Punjab-Pakistan since 1990. WSO is working for women, children and youth foe empowerment through skill enhancement, education, awareness and advocacy.
The information worlds of non resident informal carers: stakeholder perceptionsSheila Webber
Presented by Sheila Webber and Dr Pamela McKinney at the conference Information Science Trends: Health Information Behavior, organised by the European Chapter of ASIS&T, on June 10 2020. The references are at https://docs.google.com/document/d/1ilCIpu7IWsRUhtWinPNuVetlrvkDxBN_lKTaV26yWAU/edit?usp=sharing
This document provides a guide for establishing community-based paralegal programs. It discusses how paralegals can help provide access to justice for poor and marginalized communities by using legal and non-legal tools to resolve common justice problems. The guide is based on experiences from paralegal programs in Sierra Leone and other countries. It aims to offer practical advice for developing, training, supporting, and evolving paralegal programs tailored to local needs in order to empower communities and promote access to justice.
Public Square Atlanta Homelessness WebinarJason Parker
This is the presentation used during PublicSquareAtlanta.org's "Homelessness Around Atlanta" webinar, which took place on Dec. 15, 2011. The bulk of the content was prepared by the Gateway Center and United Way of Metropolitan Atlanta for speakers Vince Smith and Phil Hunter, respectively.
Necesidades especiales, oportunidad y derechosMarta Montoro
This document discusses key concepts of the human rights-based approach to disability. It outlines how disability was historically viewed negatively and people with disabilities were segregated and excluded. The human rights model frames disability as a social relationship, where society must remove barriers to inclusion. Key concepts discussed are: disability as an interaction between personal and environmental factors; equal opportunity requiring accessibility and universal design; non-discrimination through reasonable accommodation; and independent living to replace institutionalization. The human rights approach transforms perceptions and actions to promote equal rights and participation of people with disabilities in society.
This document outlines guidelines for creating an age-friendly built environment and community. It discusses how outdoor spaces, buildings, transportation, housing, social participation, respect, civic participation, communication, and health services should be designed to be accessible, safe, and meet the needs of older residents. The goal is to promote active aging and ensure seniors can live independently with dignity and enjoyment.
Older People in the “Post-Truth” Era: Countering Ageism by Developing Age Fri...Sheila Webber
Presentation by Sheila Webber (University of Sheffield) &
Bill Johnston (Strathclyde University)
ECIL, September 2021
References are at http://tinyurl.com/bu422pjw
The Center for Independence of the Disabled, New York (CIDNY) aims to promote full integration and equal opportunities for people with disabilities. CIDNY serves over 19,000 New Yorkers with any type of disability through offices in Manhattan and Queens. Services include assistance with benefits, healthcare, housing, education, employment, income support, and advocacy to remove societal barriers. CIDNY staff are themselves peers with disabilities offering personalized support.
The UK experience of person-centred planning and self-directed supportCitizen Network
Dr Simon Duffy of Citizen Network spoke to Netzwerk Persönliche Zukunftsplanung (the germans speaking community for person-centred planning) at their gathering in Luxembourg 2019. He explored the interaction of person-centred planning with self-directed support and the challenges of implementing social innovations within a time of neoliberal thinking and austerity.
This document discusses the role of peer education in comprehensive HIV/AIDS care. It describes the work of Grassroots Alliance for Community Education (GRACE-Africa), an NGO that supports local organizations in Kenya, Malawi, Mozambique, Tanzania, and Ghana. GRACE works with a network of 100 community-based organizations and trains youth as peer educators. One such organization is Isiolo Youth Against AIDS and Poverty, which trains 16 peer educators to provide HIV testing, counseling, medical assistance, and support groups to HIV-positive clients in Isiolo, Kenya. Peer educators play important roles in disseminating information, establishing referral systems, assisting peers to access services, and advocating for issues affecting
GLOBAL YOUTH SERVICE DAY 2007 FINAL REPORT.Enyidado Ghana
This document provides an overview of the 8th annual Global Youth Service Day (GYSD) that took place from April 20-22, 2007. It summarizes that GYSD mobilized over 3.2 million young volunteers across 100 countries to complete thousands of community service projects. It highlights some of the largest projects in countries like Russia, Brazil, Taiwan, Colombia, France, and South Africa. The document also discusses the international coordination of GYSD, led by Youth Service America and the Global Youth Action Network, as well as the involvement of over 40 international partner organizations on the International Coordinating Committee.
AMSHeR is a coalition of 17 organizations from 15 African countries that advocate for the health and human rights of men who have sex with men (MSM) in Africa. The coalition aims to (1) strengthen national efforts to improve policy and programming for MSM health; (2) increase visibility of MSM issues in policies, laws, communities, and services; and (3) identify and advocate for more resources for MSM access to prevention, treatment, care and support services. AMSHeR uses a human rights framework and has three key programs - law and human rights, health, and movement building - to work towards empowering and healthy lives for MSM through advocacy, capacity strengthening, and regional coordination.
This document provides an overview and summary of Handicap International's activities in China from 2009-2010. It discusses the organization's vision of an inclusive society for people with disabilities and its objectives in China. It then summarizes Handicap International's key projects in China, which focus on prevention of disabilities, physical rehabilitation, social inclusion, advocacy, and emergency support. Statistics on disability in China are also presented. The document provides details on projects implemented in various regions of China and highlights success stories of individuals supported.
The document summarizes VSO Namibia's work supporting HIV/AIDS programs and organizations in Namibia since 2000 through skilled volunteers. A 2006 program review identified the focus as improving access to prevention and treatment services for those infected/affected by HIV/AIDS and reducing the burden of care on communities. The program currently supports the Ministry of Health and Social Services HIV/AIDS treatment program and local organizations through volunteer placements, small grants, workshops and exchanges. There are currently 12 volunteers working with community groups to improve service delivery and organizational development.
Redeeming Our Communities (ROC) is a national charity founded in 2004 that works to transform communities through strategic partnerships between community groups, agencies, and volunteers. This approach has reduced crime, loneliness, and improved community cohesion across the UK. ROC brings groups together for practical on-the-ground change and enables thousands of volunteers to better serve community needs. ROC operates over 150 partnership projects and relocated its headquarters in 2014 to further expand its work.
Sightsavers' approach to inclusive eye health Sightsavers
This document outlines Sightsavers' approach to inclusive eye health. It begins by discussing relevant international frameworks that promote universal access to healthcare, including the UN conventions on disability rights, women's rights, and children's rights. It then explains how Sightsavers' social inclusion strategy aims to mainstream inclusion across its programs. Finally, it defines inclusive eye health as services that are accessible to all within a barrier-free environment. Sightsavers' goal is to improve eye health for vulnerable groups like people with disabilities and women through more inclusive health systems and by addressing barriers to access.
Sightsavers' approach to inclusive eye health Sarah Bourn
This document outlines Sightsavers' approach to inclusive eye health. It begins by discussing relevant international frameworks that promote health as a fundamental human right without discrimination, including the UN Convention on the Rights of Persons with Disabilities and the 2030 Agenda. It then explains how Sightsavers' social inclusion strategy aims to mainstream and empower people with disabilities. Sightsavers defines inclusive eye health as services that are accessible, inclusive by design, and sustainable. The document describes Sightsavers' goal of improving eye health for vulnerable groups and objectives around access, quality services, and an enabling environment through a systemic approach addressing leadership, infrastructure, human resources and more.
Digital Services Team & Strategic Commissioning Away Day
The speaker discussed the journey of digital and information services in Kent. Key points included:
1) The government's "digital by default" policy and the challenge of digital exclusion for 18% of Kent residents.
2) The team's work to develop an online "Tool for All" directory to simplify access to services based on user research and design principles.
3) The benefits of collaboration between Digital Services and Commissioning and an invitation to continue providing feedback to improve support for residents.
Co production with older people in residential aged care finalCarrie Hayter
Paper presented at the Better Practice Conference in Melbourne on 3 June 2016 on how to co-produce residential services with older citizens and their allies
This document discusses the need for and history of conventions on the rights of older persons. It notes that human rights of the elderly are being violated due to factors like nuclear families and lack of social security. A convention is needed to establish legal standards against ageism, clarify how rights apply to older adults, and ensure state accountability. An effective convention would prohibit age discrimination, articulate how rights apply at older ages, and provide strong implementation and monitoring. The focus would be persons over 60, as longevity is increasing worldwide. While interest is growing, age discrimination remains under-addressed. Future efforts should promote rights, implement national policies, potentially create a UN convention, and raise global awareness.
Human Rights-Based Approach to Social Protection, narratives around poverty, ...Lee Baker
Development Pathways' Senior Social Policy Specialist Alexandra Barrantes, speaking at the University of Oxford, set out the case for applying a human rights-based approach to social protection. She also explored narratives around poverty, and the implications for the design and implementation of schemes of pursuing an approach that has no shame or stigma attached.
Alexandra Barrantes is leading new training on Inclusive Social Protection: Making the Case. More details: inclusivesocialprotection.com
Dr Simon Duffy gave this talk at a seminar organised by the Erasmus+ funded project the SDS Network which shares expertise on self-directed support globally. The talk explains why human and disability rights support a shift towards Self-Directed Support.
Necesidades especiales, oportunidad y derechosMarta Montoro
This document discusses key concepts of the human rights-based approach to disability. It outlines how disability was historically viewed negatively and people with disabilities were segregated and excluded. The human rights model frames disability as a social relationship, where society must remove barriers to inclusion. Key concepts discussed are: disability as an interaction between personal and environmental factors; equal opportunity requiring accessibility and universal design; non-discrimination through reasonable accommodation; and independent living to replace institutionalization. The human rights approach transforms perceptions and actions to promote equal rights and participation of people with disabilities in society.
This document outlines guidelines for creating an age-friendly built environment and community. It discusses how outdoor spaces, buildings, transportation, housing, social participation, respect, civic participation, communication, and health services should be designed to be accessible, safe, and meet the needs of older residents. The goal is to promote active aging and ensure seniors can live independently with dignity and enjoyment.
Older People in the “Post-Truth” Era: Countering Ageism by Developing Age Fri...Sheila Webber
Presentation by Sheila Webber (University of Sheffield) &
Bill Johnston (Strathclyde University)
ECIL, September 2021
References are at http://tinyurl.com/bu422pjw
The Center for Independence of the Disabled, New York (CIDNY) aims to promote full integration and equal opportunities for people with disabilities. CIDNY serves over 19,000 New Yorkers with any type of disability through offices in Manhattan and Queens. Services include assistance with benefits, healthcare, housing, education, employment, income support, and advocacy to remove societal barriers. CIDNY staff are themselves peers with disabilities offering personalized support.
The UK experience of person-centred planning and self-directed supportCitizen Network
Dr Simon Duffy of Citizen Network spoke to Netzwerk Persönliche Zukunftsplanung (the germans speaking community for person-centred planning) at their gathering in Luxembourg 2019. He explored the interaction of person-centred planning with self-directed support and the challenges of implementing social innovations within a time of neoliberal thinking and austerity.
This document discusses the role of peer education in comprehensive HIV/AIDS care. It describes the work of Grassroots Alliance for Community Education (GRACE-Africa), an NGO that supports local organizations in Kenya, Malawi, Mozambique, Tanzania, and Ghana. GRACE works with a network of 100 community-based organizations and trains youth as peer educators. One such organization is Isiolo Youth Against AIDS and Poverty, which trains 16 peer educators to provide HIV testing, counseling, medical assistance, and support groups to HIV-positive clients in Isiolo, Kenya. Peer educators play important roles in disseminating information, establishing referral systems, assisting peers to access services, and advocating for issues affecting
GLOBAL YOUTH SERVICE DAY 2007 FINAL REPORT.Enyidado Ghana
This document provides an overview of the 8th annual Global Youth Service Day (GYSD) that took place from April 20-22, 2007. It summarizes that GYSD mobilized over 3.2 million young volunteers across 100 countries to complete thousands of community service projects. It highlights some of the largest projects in countries like Russia, Brazil, Taiwan, Colombia, France, and South Africa. The document also discusses the international coordination of GYSD, led by Youth Service America and the Global Youth Action Network, as well as the involvement of over 40 international partner organizations on the International Coordinating Committee.
AMSHeR is a coalition of 17 organizations from 15 African countries that advocate for the health and human rights of men who have sex with men (MSM) in Africa. The coalition aims to (1) strengthen national efforts to improve policy and programming for MSM health; (2) increase visibility of MSM issues in policies, laws, communities, and services; and (3) identify and advocate for more resources for MSM access to prevention, treatment, care and support services. AMSHeR uses a human rights framework and has three key programs - law and human rights, health, and movement building - to work towards empowering and healthy lives for MSM through advocacy, capacity strengthening, and regional coordination.
This document provides an overview and summary of Handicap International's activities in China from 2009-2010. It discusses the organization's vision of an inclusive society for people with disabilities and its objectives in China. It then summarizes Handicap International's key projects in China, which focus on prevention of disabilities, physical rehabilitation, social inclusion, advocacy, and emergency support. Statistics on disability in China are also presented. The document provides details on projects implemented in various regions of China and highlights success stories of individuals supported.
The document summarizes VSO Namibia's work supporting HIV/AIDS programs and organizations in Namibia since 2000 through skilled volunteers. A 2006 program review identified the focus as improving access to prevention and treatment services for those infected/affected by HIV/AIDS and reducing the burden of care on communities. The program currently supports the Ministry of Health and Social Services HIV/AIDS treatment program and local organizations through volunteer placements, small grants, workshops and exchanges. There are currently 12 volunteers working with community groups to improve service delivery and organizational development.
Redeeming Our Communities (ROC) is a national charity founded in 2004 that works to transform communities through strategic partnerships between community groups, agencies, and volunteers. This approach has reduced crime, loneliness, and improved community cohesion across the UK. ROC brings groups together for practical on-the-ground change and enables thousands of volunteers to better serve community needs. ROC operates over 150 partnership projects and relocated its headquarters in 2014 to further expand its work.
Sightsavers' approach to inclusive eye health Sightsavers
This document outlines Sightsavers' approach to inclusive eye health. It begins by discussing relevant international frameworks that promote universal access to healthcare, including the UN conventions on disability rights, women's rights, and children's rights. It then explains how Sightsavers' social inclusion strategy aims to mainstream inclusion across its programs. Finally, it defines inclusive eye health as services that are accessible to all within a barrier-free environment. Sightsavers' goal is to improve eye health for vulnerable groups like people with disabilities and women through more inclusive health systems and by addressing barriers to access.
Sightsavers' approach to inclusive eye health Sarah Bourn
This document outlines Sightsavers' approach to inclusive eye health. It begins by discussing relevant international frameworks that promote health as a fundamental human right without discrimination, including the UN Convention on the Rights of Persons with Disabilities and the 2030 Agenda. It then explains how Sightsavers' social inclusion strategy aims to mainstream and empower people with disabilities. Sightsavers defines inclusive eye health as services that are accessible, inclusive by design, and sustainable. The document describes Sightsavers' goal of improving eye health for vulnerable groups and objectives around access, quality services, and an enabling environment through a systemic approach addressing leadership, infrastructure, human resources and more.
Digital Services Team & Strategic Commissioning Away Day
The speaker discussed the journey of digital and information services in Kent. Key points included:
1) The government's "digital by default" policy and the challenge of digital exclusion for 18% of Kent residents.
2) The team's work to develop an online "Tool for All" directory to simplify access to services based on user research and design principles.
3) The benefits of collaboration between Digital Services and Commissioning and an invitation to continue providing feedback to improve support for residents.
Co production with older people in residential aged care finalCarrie Hayter
Paper presented at the Better Practice Conference in Melbourne on 3 June 2016 on how to co-produce residential services with older citizens and their allies
This document discusses the need for and history of conventions on the rights of older persons. It notes that human rights of the elderly are being violated due to factors like nuclear families and lack of social security. A convention is needed to establish legal standards against ageism, clarify how rights apply to older adults, and ensure state accountability. An effective convention would prohibit age discrimination, articulate how rights apply at older ages, and provide strong implementation and monitoring. The focus would be persons over 60, as longevity is increasing worldwide. While interest is growing, age discrimination remains under-addressed. Future efforts should promote rights, implement national policies, potentially create a UN convention, and raise global awareness.
Human Rights-Based Approach to Social Protection, narratives around poverty, ...Lee Baker
Development Pathways' Senior Social Policy Specialist Alexandra Barrantes, speaking at the University of Oxford, set out the case for applying a human rights-based approach to social protection. She also explored narratives around poverty, and the implications for the design and implementation of schemes of pursuing an approach that has no shame or stigma attached.
Alexandra Barrantes is leading new training on Inclusive Social Protection: Making the Case. More details: inclusivesocialprotection.com
Dr Simon Duffy gave this talk at a seminar organised by the Erasmus+ funded project the SDS Network which shares expertise on self-directed support globally. The talk explains why human and disability rights support a shift towards Self-Directed Support.
Simon Duffy explores how the concept of citizenship can provide a valuable framework for understanding the meaning of deinstitutionalisation, self-directed support and welfare reform.
All Things Being Equal, perspectives on disability in developmentJonathan Flower
This document discusses perspectives on disability and development. It notes that an estimated 600 million people worldwide have disabilities, yet disabled people are often invisible and excluded from society. While international agreements have established disabled people's rights, in reality many social barriers prevent them from fully participating in community activities. The document calls for a more inclusive approach to development that sees disabled people as active participants rather than helpless recipients, and ensures their rights to participate in decisions, access appropriate care, and be included in everyday community activities.
A guide on how the common fund can be used for pw ds handoutspaulyeboah
The document provides information about accessing the 3% District Assembly Common Fund allocation for persons with disabilities in Ghana. It discusses that persons with disabilities have the right to access information, education, employment, healthcare, and transportation. It provides guidance on how to apply for funding from the 3% allocation to support improving access to rights and livelihoods. The guide aims to empower persons with disabilities to advocate for their rights and access available resources.
The document discusses the aging population trends in the UK and Newcastle, with the population of those over 65 expected to rise significantly. It outlines challenges like increasing needs for care and fewer working-age taxpayers. The author interviewed older adults and their care workers, finding that dignity, empathy, autonomy and having enough time were important. This suggests the need to define dignity, train workers, and ensure policies support invisible labor to meet both tangible and intangible needs of older adults.
This document discusses issues related to geriatric care and aging populations. It begins with an introduction to aging and key facts about the global aging situation. Population aging is increasing rapidly around the world, with the number of older persons expected to double by 2050. The document then discusses what aging and geriatrics are, as well as global and national initiatives to address aging populations, including the Madrid International Plan of Action on Aging. It outlines TARAQUI Association's role in aging issues and proposes ways forward, such as enhancing public-private partnerships and establishing an age-friendly society.
The document discusses the Madrid International Plan of Action on Ageing (MIPAA), which is an international agreement endorsed by the UN that recognizes the contributions of older people. It outlines three main objectives: equal rights for older citizens, fair access to resources, and inclusion in decision-making. The document also discusses various initiatives to review and implement MIPAA at national and local levels through partnerships among governments, organizations, and older adults.
Bakar Fakih and Mwifadhi Mrisho (2016). Hear my voice: old age and disability...Sightsavers
This document summarizes the findings of a participatory research study conducted in Tanzania with persons with disabilities and older persons. The study aimed to understand their experiences of inclusion and exclusion from their own perspectives. Key findings included challenges with access to education, health services, poverty due to lack of income, negative attitudes towards those with albinism, relationship and marriage issues, and sexual and physical violence against women with disabilities. Based on these findings, the peer researchers recommended empowering families, implementing disability policies, making infrastructure accessible, educating communities, and legislating policies to protect the rights of older persons and those with disabilities. The document concludes that when given a voice, these marginalized groups can identify important policy issues to promote their inclusion and
The document discusses disabilities and human rights for people with chronic dermatological diseases. It provides information on the Vitiligo Research Foundation's mission to help those with vitiligo. It discusses the UN's International Day of Persons with Disabilities and how the UN Economic and Social Council (ECOSOC) works to promote the rights of those with disabilities, including through the Convention on the Rights of Persons with Disabilities. It also lists international events related to disabilities and provides details on the Vitiligo Research Foundation's efforts to have World Vitiligo Day included in the UN calendar of disability events.
Slides from a day-long workshop with My Place - a leading personalised support organisation in Perth, WA. The workshop explores the meaning of inclusion and citizenship and the threats and opportunities that lie ahead of us.
This document summarizes Uganda's legal framework for protecting children's rights in accordance with international, regional, and domestic standards. It outlines the major international conventions and declarations related to children's rights, such as the Convention on the Rights of the Child. It also describes the institutional framework for monitoring children's rights, including the UN Special Rapporteur on the sale of children and the Committee on the Rights of the Child.
Similar to Amplifying Choice, Control and Human Rights for older people and their allies - Groundhog Day in Aged Care in Australia? (20)
This document provides information on unit costing in community care. It begins with learning outcomes, which include describing the differences between direct and indirect costs and the steps to develop unit costs. It then discusses why organizations need to understand unit costs, particularly with the introduction of individualized funding models. The document outlines the costing process, including defining different cost types. It includes activities for attendees to practice defining the service being costed and calculating a unit cost. Finally, it discusses using unit costs to consider strategic questions about price, quality and viability under different funding models like the NDIS.
Nothing about us without us - older citizens and their allies co-producing co...Carrie Hayter
This document discusses co-producing community care with older citizens and their allies. It outlines six key steps for service providers to engage in co-production: 1) start with why and engage people in issues and solutions, 2) build connections and relationships, 3) create a culture of engagement and participation, 4) empower and educate frontline staff, 5) foster reflective practice and curiosity, and 6) reflect through research. The document also discusses principles of co-production, critiques, examples, and implications for policy and research around meaningful engagement and participation of older people.
Nothing about us without us making consumer directed care work for you and ...Carrie Hayter
The document discusses consumer directed care and how to make it work for individuals and their allies. It provides 4 key steps: 1) educate yourself about the system, 2) know what you and your allies want from the system, 3) connect with people in similar situations, and 4) engage with the system by tracking budgets, getting advocates, and pushing limits. The purpose is to empower individuals to be in charge of their supports and funding.
A critical consideration of choice, voice and decision making for policy make...Carrie Hayter
The document discusses consumer-directed care for older Australians and the concepts of choice and voice in policy. It analyzes tensions between choice as empowerment versus as a neo-liberal concept. While choice mechanisms aim to empower individuals, they risk disempowering older people without resources and information. Voice mechanisms allow collective input but providers may not listen to older adults. Both choice and voice mechanisms are needed, along with advocacy and effective information access, to achieve meaningful participation.
Symposia and paper presented with my colleagues, Belinda Cash, Claudia Meyer, Joanne Mihelcic at the National Australian Association of Gerontology Conference in Alice Springs in November 205
Implementing Wellness, Reablement and Restorative Support with Older People Carrie Hayter
The document outlines seven key steps for implementing wellness, reablement, and restorative support with older people. The steps include: starting a conversation to get everyone on the same page; critically reading research and sharing it with the team; engaging older people by following the principle of "nothing about me without me"; getting behind front-line staff; connecting people into the community; forming partnerships; and being curious and testing ideas. The presenter discusses challenges service providers face and opportunities to improve support for older people through strength-based and person-centered approaches.
Enhancing independence and person centred practice - A Pathway to implementin...Carrie Hayter
Paper presented on moving from person centred practice to consumer directed or self directed supports at the Better Practice Conference, Australia Aged Care Quality Agency in Sydney on 27 August 2015
Implementing wellness, reablement and restorative approaches practical steps ...Carrie Hayter
This document discusses implementing wellness, reablement, and restorative approaches in aged care services. It provides practical steps and resources for these approaches, drawing from literature on adaptive leadership. Key elements of adaptive leadership discussed include getting on the balcony, giving the work back, thinking politically, orchestrating conflict, managing hungers, and anchoring oneself. The document encourages engaging service users, finding partners, acknowledging losses, and modeling desired behaviors to support staff through the changes required by these new approaches.
Reablement and Wellness for Regional Assessment Services in Australia - A Tec...Carrie Hayter
This document discusses reablement and wellness programs for regional assessment services in Australia. It addresses whether implementing these programs poses a technical problem or an adaptive leadership challenge. Research shows reablement reduces dependence on supports and improves outcomes, but further research is still needed, especially for those with dementia. Implementing reablement requires shifting from a dependency to a wellness model, which involves learning new approaches and changing long-held values across stakeholders. As such, it presents an adaptive leadership challenge requiring orchestrating conflict, engaging all parties in solutions, and managing the losses of change.
Older People and Personalisation in Australia - More Choice and Voice?Carrie Hayter
This document discusses the changing role of older people in Australia's aged care system, which is moving towards a model of "personalization." While proponents argue this provides more choice and control, critics contend that too much choice can overwhelm users and lead to marketization of services. The research questions examine the risks of mechanisms promoting choice and voice for older community care users. There is debate around what choice truly means for vulnerable users and whether voice mechanisms are more important than choice. The discussion suggests Australia needs more discussion on how to promote the voices of older users in policy design.
Enhancing Independence and Person Centred Approaches 15 December 2014Carrie Hayter
The document discusses a conference on enhancing independence and person-centered approaches in aged care. It provides an overview of Carrie Hayter Consulting and their work in areas such as personalization, education and training, and person-centered practice. The document also discusses challenges and opportunities in shifting policies around personalization, consumerism, hearing voices of older people and carers, and translating research into practice for frontline workers and managers.
This document provides an overview of a workshop on implementing consumer directed care. The workshop aims to describe the key principles of consumer directed care, discuss the policy context in Australia, and provide strategies for supporting consumers from diverse backgrounds. It also outlines activities to help participants apply the principles of consumer directed care and develop individualized budgets. The workshop covers topics such as cultural competence, person-centered thinking, empowering consumers, and the systems and processes needed to support consumer directed care.
Enabling Independence and Person Centred ApproachesCarrie Hayter
This document summarizes a presentation on enabling independence and person-centered approaches. The presentation covers key topics like person-centered thinking, developing individualized budgets, and transitioning service models to be more enabling and person-centered. It provides tools and examples to help participants apply person-centered principles in their own practice and organizations. The goal is for participants to learn how to promote independence, focus on individual goals, and implement person-centered thinking and reviews.
Riding the wave of the future consumer directed social support august 2014Carrie Hayter
The document summarizes a presentation by Carrie Hayter on consumer directed social support. It discusses the transition to more personalized support services with greater choice, control and participation from service users. Consumer directed care models give individuals more control over their budgets and resources to better meet their individual needs and priorities. The National Disability Insurance Scheme and Home Care Packages in Australia are moving towards more consumer directed models. Service providers need to assess how prepared they are to transition their practices to be more consumer directed and identify any changes needed to policies, staff skills, community partnerships or marketing.
Consumer Directed Care - More Choice or Voice for Older People?Carrie Hayter
This document summarizes a presentation on consumer directed care and whether it provides more choice or voice for older people. It discusses the assumptions and benefits of consumer directed care, such as choice and control, but also notes risks like assumptions about choice and mechanisms for voice. It examines what choice and voice mean for different stakeholders and whether voice mechanisms can increase choice. The document concludes that choice alone is not enough and voice is important to have a say in services. It identifies implications for policy, research, and practice around supporting diversity in models of care and ensuring the voices of older people are heard.
Mental Health and well-being Presentation. Exploring innovative approaches and strategies for enhancing mental well-being. Discover cutting-edge research, effective strategies, and practical methods for fostering mental well-being.
R3 Stem Cell Therapy: A New Hope for Women with Ovarian FailureR3 Stem Cell
Discover the groundbreaking advancements in stem cell therapy by R3 Stem Cell, offering new hope for women with ovarian failure. This innovative treatment aims to restore ovarian function, improve fertility, and enhance overall well-being, revolutionizing reproductive health for women worldwide.
This particular slides consist of- what is hypotension,what are it's causes and it's effect on body, risk factors, symptoms,complications, diagnosis and role of physiotherapy in it.
This slide is very helpful for physiotherapy students and also for other medical and healthcare students.
Here is the summary of hypotension:
Hypotension, or low blood pressure, is when the pressure of blood circulating in the body is lower than normal or expected. It's only a problem if it negatively impacts the body and causes symptoms. Normal blood pressure is usually between 90/60 mmHg and 120/80 mmHg, but pressures below 90/60 are generally considered hypotensive.
TEST BANK FOR Health Assessment in Nursing 7th Edition by Weber Chapters 1 - ...rightmanforbloodline
TEST BANK FOR Health Assessment in Nursing 7th Edition by Weber Chapters 1 - 34.
TEST BANK FOR Health Assessment in Nursing 7th Edition by Weber Chapters 1 - 34.
TEST BANK FOR Health Assessment in Nursing 7th Edition by Weber Chapters 1 - 34.
English Drug and Alcohol Commissioners June 2024.pptxMatSouthwell1
Presentation made by Mat Southwell to the Harm Reduction Working Group of the English Drug and Alcohol Commissioners. Discuss stimulants, OAMT, NSP coverage and community-led approach to DCRs. Focussing on active drug user perspectives and interests
As Mumbai's premier kidney transplant and donation center, L H Hiranandani Hospital Powai is not just a medical facility; it's a beacon of hope where cutting-edge science meets compassionate care, transforming lives and redefining the standards of kidney health in India.
At Malayali Kerala Spa Ajman, Full Service includes individualized care for every client. We specifically design each massage session for the individual needs of the client. Our therapists are always willing to adjust the treatments based on the client's instruction and feedback. This guarantees that every client receives the treatment they expect.
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Amplifying Choice, Control and Human Rights for older people and their allies - Groundhog Day in Aged Care in Australia?
1. Amplifying Choice, Control and Human Rights for
older people and their allies - Groundhog Day in
Aged Care in Australia?
1
Nothing about me without me www.carriehayter.com
Carrie Hayter,
Managing Director
7th Annual MARC Symposium
Reforming Ageing and Aged Care
Pathways to success
15 September 2021
2. • We would like to acknowledge the traditional
owners of the Land, the Gadigal People of the
Eora Nation and
• Always was and always will eb Aborigibnal Land to pay our
respects to Elders past and present
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Image credit – David Foster downloaded from
https://www.australiangeographic.com.au/topics/history-culture/2016/04/speaking-up-australian-aboriginal-languages/
3. About Carrie Hayter
3
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Empowering people
who use social care to
be in charge of their
funding and supports
Amplifying the
voices of older
people, people with
disability and their
allies in research
and service
systems
5. Introduction
• Explore issue of choice and human rights for older people and
their allies who use aged care services
– Tensions between the mechanisms to enable choice and
human rights
• What are the lessons from the history of aged care policy in
Australia?
• What are opportunities for consumers, researchers, providers
and policy makers?
5
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7. History Matters
• Over 40 parliamentary inquiries, government
commissioned inquiries into aged care funding and
policy in Australia since the 1970’s.
– Persistent stories of abuse and neglect of older people
– Underfunding of care
• Why does the issue of choice and human rights for
older people feel like ground hog day in aged care
policy?
7
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8. Institutionalist Framework
Historical Institutionalists
Analyse institutional
configurations and explore
critical junctures and long-
term processes across
institutions (Thelen 1999,
Pierson & Skocpol, 2002,
Meyer et al, 2020)
Discursive
Institutionalists
Discourse and language and
how issues are framed, rather
than just focusing on
institutions, they see
opportunities for resistance
from individuals
(Schmidt, 2008, 2016)
15 September 2021 8
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9. History of rights of people using
aged care
• Late 1970s and early 1980’s stories of mistreatment
and neglect of residents living in nursing homes
(Gibson, 1998)
• Emergence of state-based complaints units and a
Charter of Residents Rights and Responsibilities in
nursing homes and hostels 1991 from the Ronald
Report (Gibson, 1998)
• Creation of Aged Care Advisory Councils and
consumer groups to inform government policy in the
early 1990’s (Gibson, 1998)
15 September 2021 9
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10. History of the rights of people
using aged care
• Statement of Rights and Responsibilities HACC
1990-1991
– Client rights
• Aged Care Quality Standards (2019) & Aged
Care Charter of Rights (2019)
– More personalised language
– Are were there yet?
15 September 2021 10
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11. Choice and Human Rights –
Competing tensions?
Human Rights Perspective
• Empowerment
• Response to failures of
welfare states in meeting
individual needs
• Consumer rights/
citizenship movements
(Moffatt et al, 2011, Clark,
2006),
Neo-liberal Economic
Perspective
• Choice as agency
• Efficiency and
effectiveness
• Rational actors choosing
and arranging care –
clients become customers
(Osborne and Gaebler, 1993,
Greener, 2008)
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12. Pivotal Turn - Aged Care Act 1997
• Embedded the principles of new public
management into aged care policy (Hayter,
2008)
– Clients become customers
– Creating a market of care
– Capital funding of residential aged care was
outsourced via the payment of bonds
– Funder/ provider split
15 September 2021 12
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13. 15 September 2021 13
Destination
“Consumers, their families and carers are
proactive in preparing for their future care
needs and are empowered to do so”
(Aged Care Sector Committee, 2016)
“A single aged care and support system
that is market based and consumer driven,
with access based on assessed need”
(Aged Care Sector Committee, 2016)
Nothing about me without me www.carriehayter.com
15. What are the current discourses in
aged care policy?
• Discourse on ageism
– COVID 19 pandemic and reporting via the media
– Does our aged care system reproduce ageism?
• Marketisation discourse
– Older people as ‘customers’ operating in a market of choice and
control
– Magic pill of marketisation swallowed by policy actors and providers
• Emerging human rights discourse
– Abuse and neglect stories from the Royal Commission into Aged Care
Quality and Safety
– See, hear and acknowledge the person, people first
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16. Opportunity of the COVID 19
Pandemic
• Resurgence of Keynesian economics and ‘state
intervention’.
• Older people across the world who have been
disproportionately impacted by the pandemic
(United Nations, 2020).
• Repositioning of people not as ‘consumers’ in a
market-place but citizens with human rights?
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17. Moving out of Ground Hog Day – Embedding
Human Rights in Aged Care
A new Aged Care Act
• What are the principles we want embedded in
the Act?
– Whose voices are being heard in development of
the new Act?
– What UN Conventions can we use to frame the
new Aged Care Act?
• United Nations Sustainable Development Goals (United Nations)
• Decade of Healthy Ageing (World Health Organisation, 2021)
15 September 2021 17
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18. 18
UN Convention on the Rights of
Persons with Disabilities 2006
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Purpose of Convention – Article 1
To promote, protect and ensure the full and equal
enjoyment of all human rights and fundamental
freedoms by all persons with disabilities, and to
promote respect for their inherent dignity
Source: Downloaded from https://www.un.org/development/desa/disabilities/convention-on-the-
rights-of-persons-with-disabilities.html
19. UN Convention on the rights of
older people
The Global Alliance for the rights of older people is advocating for a convention on the
rights of older people. The benefits may include:
• act as an anti-discriminatory tool to challenge prevailing stereotypes about old age
• require governments to collect data, develop indicators and other supporting
instruments to underpin the monitoring process
• refocus the existing human rights obligations of Member States taking into account
the challenges of people while they age and improve state accountability
• generate clarity and guidance with which civil society can work alongside the
government to implement
• increase visibility of older persons in societies
(source: Global Alliance for the Rights of Older People downloaded from
https://rightsofolderpeople.org/).
19
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20. A human right-based approach –
PANEL Principles
• Participation – People should be active participants in how their support and care is received
and provided (eg Consumer Engagement Framework, Supported Decision Making
framework)
• Accountability- Accountability requires effective monitoring of human rights standards as
well as effective remedies for human rights breaches (eg Elder Abuse protocols, open
disclosure and complaints processes)
• Non-discrimination and equality - all forms of discrimination in the realisation of rights must
be prohibited, prevented and eliminated (eg policies and practices of LGBTI inclusive practice
or Culturally and Linguistically Diverse communities, Cultural respect for Aboriginal and
Torres Strait Islander Elders )
• Empowerment - individuals and communities should know their rights (Aged Care Charter of
Rights and the role of Older People’s Advocacy Network (OPAN))
• Legality - recognition of rights as legally enforceable entitlements and is linked in to national
and international human rights law.
(Source: Care and Rights (2019), What are human rights? Downloaded from
http://careaboutrights.scottishhumanrights.com)
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21. Ageism, Know it, Name it
“Discrimination and stereotyping on the basis of a
person’s age” (Applewhite, 2016, pg 8)
Discrimination against our future selves.
Ageism Awareness Day – 1 October 2021
https://www.everyagecounts.org.au/ageism_awareness_day_2021
Policies, practices and language that challenges ageism
21
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22. Aged Care Policy
• Aged care is health care
– Increasing vulnerability of older people living in residential
aged care
– Two tiered system, COVID Pandemic brought this into the
public eye
• Funding and resourcing
– $17.2 billion dollar investment from the Australian
Government is a start but not enough
– Superannuation or Medicare levy to fund aged care?
– Increasing pay rates for frontline staff
22
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23. Policy makers and policy actors
• Ageing and aged care should be a higher priority for
Government
– Older people and their families vote
• Complexity of choice and control
– Individualisation of funding to embed choice and control
for older people is a blunt instrument
– Block funding of CHSP has supported older people and
their allies during the pandemic? Why change it?
• Bundle services and flexibility for providers to partner with older
people and their allies
23
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24. Policy makers and policy actors
• Interdependence and adaptive ageing
– Relationships and connections as we age, it takes a village
• Outsourcing of Aged Care Assessment Teams
– Where is the evidence? Who benefits? (Sydney Morning Herald, 6
September 2021)
– Neo-liberal view of funder/ provider split
• Leadership and forums where we bring together policy makers,
consumers and researchers together
– Fierce debates about evidence and who benefits?
– Australian Association of Gerontology, Australian and New Zealand
Society for Geriatric Medicine, Older People’s Groups and Industry
24
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25. Aged Care Providers
• Proportionality of response to COVID 19
–Balancing safety with dignity of risk
–Rapid Antigen Testing
• Fair Approach to Human Rights
–Thinking it through – Scottish Human
Rights Commission
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26. 26
FAIR Approach to Human Rights – Thinking it through
Facts
What is the experience of the individual? Is the individual being
heard and if not, do they require support to do so?
What are the important facts to understand?
Analysis of Rights at stake
What are the human rights or issues at stake?
Is the right to life or the right not to be subjected to inhuman or
degrading treatment at stake? If so, these rights are absolute and
cannot be restricted.
Can the right be restricted? What is the justification for restricting
the right?
Is the restriction of the right ‘proportionate’?
Identification of shared responsibilities
What changes are necessary?
Who has responsibilities for helping to make the necessary changes?
Review actions
Have the actions taken been recorded and reviewed and has the
individual affected been involved
(Source: Care and Rights (2019), What are human rights? Downloaded from http://careaboutrights.scottishhumanrights.com)
27. Engagement and involvement of
older people and their allies
• Engagement and involvement is an ongoing process
• Engagement Tool kit, developed for aged care providers to develop
effective engagement and involvement mechanisms
– Organisational resources
– Staff Tool
– Guide to engagement methods
• Creative common license owned by the University of Queensland
https://nmsw.uq.edu.au/client-engagement-toolkit
• COTA QLD
– https://www.cotaqld.org.au/information/consumer-
engagement/resources-for-enhancing-consumer-engagement-in-aged-
care/
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28. Supported Decision Making and
Engagement
PRINCIPLE 1: All adults have an equal right to make decisions that affect their
lives and to have those decisions respected;
PRINCIPLE 2: Persons who require support in decision making must be
provided with access to the support necessary for them to make,
communicate and participate in decisions that affect their lives;
PRINCIPLE 3: The will, preferences and rights of persons who may require
decision-making support must direct decisions that affect their lives; and
PRINCIPLE 4: Laws and legal frameworks must contain appropriate and
effective safeguards in relation to interventions for persons who may require
decision-making support, including to prevent abuse and undue influence
(source: Sinclair, C., Field, S., & Blake, M. (2018). Supported decision-making in aged care: A policy development guideline for
aged care providers in Australia. (2nd Edition) Sydney: Cognitive Decline Partnership Centre downloaded from
https://cdpc.sydney.edu.au/research/planning-decision-making-and-risk/supported-decision-making/)
28
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30. Building the capacity of older
people as researchers
• How do we bring clinicians, researchers and
consumers together so they can work collaboratively
on research and understand each other?
• How can we involve consumers in clinical trials,
providing plain English information and support?
• Supporting consumer researchers, people with lived
experience as equal partners in our research
30
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31. 15 September 2021 31
Breaking the groundhog day?
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32. 15 September 2021 32
Human Rights and Older People
online discussion group
Source: https://slack.com
Australian Association of Gerontology and
other academic and policy forums
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33. References
Aged Care Sector Committee (2016), Aged Care Roadmap, Aged Care Sector Committee
Aged Care Quality and Safety Commission (2019), Aged Care Quality Standards downloaded from
https://www.agedcarequality.gov.au/providers/standards
Aged Care Quality and Safety Commission (2019), Aged Care Charter of Rights (2019) downloaded
https://www.agedcarequality.gov.au/consumers/consumer-rights
Applewhite, A., (2016) This Chair Rocks – A Manifesto against Ageism, Melville House, America
Clarke, J. (2006). Consumerism and the remaking of state-citizen relations in the UK. In G. Marston & C. McDonald (Eds.),
Analysing Social Policy - A Governmental Approach. UK: Edward Elgar.
Every Age Counts (2021), Ageism Awareness Day, https://www.everyagecounts.org.au/ageism_awareness_day_2021
Gibson, D. (1998). Aged Care, Old Policies New Problems. Australia: Cambridge University Press.
Global Alliance for the Rights of Older People downloaded from https://rightsofolderpeople.org/).
Greener, I. (2008). Choice and Voice – A Review. Social Policy and Society, 7(02), 255-265. doi:doi:10.1017/S1474746407004204
Hayter, C., (2008) Funding and Regulation of Residential Aged Care Services in Australia and the Aged Care Act 1997- Turning
Knights into Knaves, Honours thesis submitted for Masters of Economics, University of Sydney
15 September 2021 33
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Talk about Italy
How the pandemic has played out
Rates of death of older people living in long term care in Italy, Spain, America and Australia. In in six deaths in Australia is an aged care resident and up to 70% of deaths in Canada are older people living in Long Term Care.
Services need to support innovation by staff
Many service providers already do a lot to support and facilitate effective engagement, including specifically designed activities and projects. However, these projects are often quite ad hoc and tend to be poorly documented and conducted without clear guidelines or support. This leads to duplication and to missed opportunities for learning and service development within organisations and across the sector.
Having clear guidelines and tools can help service providers and staff to achieve this in the constantly changing service environment. Some tools exist but either focus on one engagement strategy or dimension, or not specific to aged care
Researcher from The University of Queensland got a Australian Research Council Discovery Early Career Researcher Award to investigate the processes guiding consumer engagement in the Australian aged care context and to create resources to support staff to develop their practice.
This was an action research project in which multiple workshops and working group meetings were conducted over a period of 18 months
Two service provider organisations participated in the project – 1 faith based NFP, one private
Four working groups were formed, two in each organisation
4 key priority areas for the groups were: staff skills & knowledge (focus on communication); engagement with & support for residents’ families; emerging issues for case managers; and building skilled, empowered, functional care teams. So the groups all discussed client engagement, but with different foci
Staff involved were in a range of roles including managers and floor staff, all different aspects of care - Clinical, facility, and operations managers, admin assistants, personal carers, lifestyle, food, cleaning, case managers and co-ordinators
The groups of staff designed and implemented projects, and we used the learnings from their process plus evidence from other research to develop the Toolkit.
The toolkit contains the following elements
Organisational resources
Staff Tools
Guide to engagement methods
The Toolkit is about addressing some of the roadblocks and concerns raised earlier by creating a simple process that steps through each issue that can come up.
The Toolkit will help providers with the issues/challenges regarding consumer engagement that they have identified.