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I’m not Crazy, It’s the Situation
Coping with A Missing Loved One
Presented by:
Maureen Trask
For: 2016 Family Day
On: Sat. July 30, 2016
Presentation Outline
1. My Journey – with a Missing Son
2. The Learning – Ambiguous Loss
3. How to COPE with this Crazy Situation
2
3
Daniel Trask
Missing Nov. 3, 2011 Found May 24, 2015
My Search For Help
4
My search included seeking help from:
• Police, Family and Friends
• Other Families with Missing Loved Ones
• Grief and Loss Experts, Physician, Counsellors
• Support Groups and Peer Support Groups
• Victim Services, Trauma Informed Initiative
What I learned:
• No support services for families
with missing loved ones
Definitions
5
Harm or distress that comes
from losing something or
someone
The feeling of grief
after losing
something or someone
What is Ambiguous Loss?
Dr. Pauline Boss, principal theorist of the concept of Ambiguous Loss
6
Ambiguous loss differs from ordinary loss in that there is
no verification of death or no certainty that the person will
come back or return to the way they used to be.
www.ambiguousloss.com
Ambiguous Loss is:
 Externally Caused
 Unclear, Uncertain Loss
 Senseless/Traumatic Loss
 Lacks “Closure”
 No Verification
 Freezes the Grief Process
 Like being “Stuck in Limbo”
 Paralyzes Individual and Family Relationships
 A Unique Individual Journey to “Find Meaning”
Boss, P. (2009). The trauma and complicated grief of ambiguous loss. Pastoral Psych, 59(2), 137-145.
7
Types of Ambiguous Loss
1. Physically Absent-
Psychologically Present
2. Psychologically Absent-
Physically Present
 Adoption
 Migration
 Missing people
 Miscarriage and stillborn loss
 Natural disaster and
catastrophic tragedy
 Addictions
 Dementia and Alzheimer’s
 Mental health issues
 Separation/Divorce
 Traumatic brain injury or
coma
 There is no verification of death.
 There is no certainty that the person will come back
8
Effects of Ambiguous Loss
(This Crazy Situation)
 Emotional rollercoaster and physical stress
 Changes families, relationships, roles and identity
 Can change spiritual beliefs or shatter values
 Can cause the most stressful kind of loss
Goals – Learn to:
 Live with the emotional tidal waves and adapt to
the changes that come with the loss
 Live with the ambiguity by developing meaning*
* Boss, P. (1999). Ambiguous loss: learning to live with unresolved grief. Cambridge, MA: Harvard University Press 9
Ours is a Different Type
of Grief
 No language
 No mourning rituals for good-bye
 A loss that lacks social
acknowledgement
 No “closure”, no certainty
 Denied the known means
of coping and grieving
10
Frozen Grief is Different
11
Uncertainty makes it difficult to
grieve, you don’t know what you
are grieving, your grief is frozen,
like “living in limbo”.
Cope: Deal effectively with
something difficult.
Effective coping involves
oscillation between coping with
loss and coping with stress.
COPE – Pessimistic
Tending to see the worst aspect of things
or believe that the worst will happen
Change
Crippled, Confused, Cheated, Cheezed Off,
Complicated, Controlled, Closed, Critical,
Cynical, Crazy, Chaos, Cold
Our
Obsessed, Overanxious, Overloaded,
Outraged, Ornery, Oblivious, Odd, Off
Pessimistic
Panic, Pain, Pressure, Perturbed, Peeved,
Perplexed, Puzzled, Pulverized, Played,
Powerless, Punished
Emotions
Empty, Embarrassed, Emotional, Erratic,
Enraged, Exhausted, Extreme, Exposed 12
COPE - Optimistic
Hopeful and confident about the future
13
Change
Calm, Comfort, Cherish, Compassion,
Constructive, Control, Creative,
Continue, Caring, Centered, Cry
Our
Open minded, Okay, Objective, Organized,
Observant,
Pessimistic
Peace, Passionate, Plans, Patient, Persuasive,
Pleased, Powerful, Proactive, Productive,
Promise, Propelled, Practical
Emotions
Empowered, Effective, Elastic, Encouraged,
Energized, Engaged, Empathetic, Examine,
Enlightened
Ways to Cope
 Reach out to others
 Accept the uncertainty
 Care for yourself first
 Find balance in your life
 Think in a “both and” way
 Share your story, when you are ready
 Educate yourself, develop resiliency
 Maintain family relationships
 Continue to discover Hope 14
Triggers and Trauma
 “Having a missing loved one is the most painful
loss of all.” (Dr. Pauline Boss, 1999)
 The *Trauma Timeline is an important aspect when
assessing the implications of the loss
 Triggers can affect the emotional ups and downs
 The goal for all of us is to remain unflappable in the
midst of ambiguity, though no easy task.
Take a deep breath, pick yourself up, dust yourself off, and start all over again.
*Supporting those who are left behind, Australian Federal Police (Sarah Wayland), 2007 15
What Helped Me
 Connecting with other families with a missing loved one
 Learning about Ambiguous Loss
 Sharing my story
 Knowing I’m not Crazy, it’s the Situation!
16
Living and Learning on my
Journey of Uncertainty
“Loss of a missing loved one is often a lonely
and an untrodden path for each of us who
has to walk it.” *
 Accept and find meaning
in my uncertainty.
 Care for myself first.
 Learn to develop resilience.
 Continue to discover Hope.
17* Living in Limbo: Five Years On, Missing People UK, 2013
From me to each of you:
18

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I'm not Crazy, It's the Situation - Coping with a Missing Loved One July 30 2016

  • 1. I’m not Crazy, It’s the Situation Coping with A Missing Loved One Presented by: Maureen Trask For: 2016 Family Day On: Sat. July 30, 2016
  • 2. Presentation Outline 1. My Journey – with a Missing Son 2. The Learning – Ambiguous Loss 3. How to COPE with this Crazy Situation 2
  • 3. 3 Daniel Trask Missing Nov. 3, 2011 Found May 24, 2015
  • 4. My Search For Help 4 My search included seeking help from: • Police, Family and Friends • Other Families with Missing Loved Ones • Grief and Loss Experts, Physician, Counsellors • Support Groups and Peer Support Groups • Victim Services, Trauma Informed Initiative What I learned: • No support services for families with missing loved ones
  • 5. Definitions 5 Harm or distress that comes from losing something or someone The feeling of grief after losing something or someone
  • 6. What is Ambiguous Loss? Dr. Pauline Boss, principal theorist of the concept of Ambiguous Loss 6 Ambiguous loss differs from ordinary loss in that there is no verification of death or no certainty that the person will come back or return to the way they used to be. www.ambiguousloss.com
  • 7. Ambiguous Loss is:  Externally Caused  Unclear, Uncertain Loss  Senseless/Traumatic Loss  Lacks “Closure”  No Verification  Freezes the Grief Process  Like being “Stuck in Limbo”  Paralyzes Individual and Family Relationships  A Unique Individual Journey to “Find Meaning” Boss, P. (2009). The trauma and complicated grief of ambiguous loss. Pastoral Psych, 59(2), 137-145. 7
  • 8. Types of Ambiguous Loss 1. Physically Absent- Psychologically Present 2. Psychologically Absent- Physically Present  Adoption  Migration  Missing people  Miscarriage and stillborn loss  Natural disaster and catastrophic tragedy  Addictions  Dementia and Alzheimer’s  Mental health issues  Separation/Divorce  Traumatic brain injury or coma  There is no verification of death.  There is no certainty that the person will come back 8
  • 9. Effects of Ambiguous Loss (This Crazy Situation)  Emotional rollercoaster and physical stress  Changes families, relationships, roles and identity  Can change spiritual beliefs or shatter values  Can cause the most stressful kind of loss Goals – Learn to:  Live with the emotional tidal waves and adapt to the changes that come with the loss  Live with the ambiguity by developing meaning* * Boss, P. (1999). Ambiguous loss: learning to live with unresolved grief. Cambridge, MA: Harvard University Press 9
  • 10. Ours is a Different Type of Grief  No language  No mourning rituals for good-bye  A loss that lacks social acknowledgement  No “closure”, no certainty  Denied the known means of coping and grieving 10
  • 11. Frozen Grief is Different 11 Uncertainty makes it difficult to grieve, you don’t know what you are grieving, your grief is frozen, like “living in limbo”. Cope: Deal effectively with something difficult. Effective coping involves oscillation between coping with loss and coping with stress.
  • 12. COPE – Pessimistic Tending to see the worst aspect of things or believe that the worst will happen Change Crippled, Confused, Cheated, Cheezed Off, Complicated, Controlled, Closed, Critical, Cynical, Crazy, Chaos, Cold Our Obsessed, Overanxious, Overloaded, Outraged, Ornery, Oblivious, Odd, Off Pessimistic Panic, Pain, Pressure, Perturbed, Peeved, Perplexed, Puzzled, Pulverized, Played, Powerless, Punished Emotions Empty, Embarrassed, Emotional, Erratic, Enraged, Exhausted, Extreme, Exposed 12
  • 13. COPE - Optimistic Hopeful and confident about the future 13 Change Calm, Comfort, Cherish, Compassion, Constructive, Control, Creative, Continue, Caring, Centered, Cry Our Open minded, Okay, Objective, Organized, Observant, Pessimistic Peace, Passionate, Plans, Patient, Persuasive, Pleased, Powerful, Proactive, Productive, Promise, Propelled, Practical Emotions Empowered, Effective, Elastic, Encouraged, Energized, Engaged, Empathetic, Examine, Enlightened
  • 14. Ways to Cope  Reach out to others  Accept the uncertainty  Care for yourself first  Find balance in your life  Think in a “both and” way  Share your story, when you are ready  Educate yourself, develop resiliency  Maintain family relationships  Continue to discover Hope 14
  • 15. Triggers and Trauma  “Having a missing loved one is the most painful loss of all.” (Dr. Pauline Boss, 1999)  The *Trauma Timeline is an important aspect when assessing the implications of the loss  Triggers can affect the emotional ups and downs  The goal for all of us is to remain unflappable in the midst of ambiguity, though no easy task. Take a deep breath, pick yourself up, dust yourself off, and start all over again. *Supporting those who are left behind, Australian Federal Police (Sarah Wayland), 2007 15
  • 16. What Helped Me  Connecting with other families with a missing loved one  Learning about Ambiguous Loss  Sharing my story  Knowing I’m not Crazy, it’s the Situation! 16
  • 17. Living and Learning on my Journey of Uncertainty “Loss of a missing loved one is often a lonely and an untrodden path for each of us who has to walk it.” *  Accept and find meaning in my uncertainty.  Care for myself first.  Learn to develop resilience.  Continue to discover Hope. 17* Living in Limbo: Five Years On, Missing People UK, 2013
  • 18. From me to each of you: 18

Editor's Notes

  1. Introductions
  2. - I’m here to share my journey of ambiguous loss, with having had a missing son for 3 ½ years. Daniel had set me on this path, which was new to me, but I learning lots about strength, resiliency, and never giving up. As a parent, no one prepares you for this type of grief and loss. Through this presentation, I will share my challenges in finding community supports for people in my situation and how information sources can be enhanced to include information classification to make it easier for families to access. But first, a brief explanation of ambiguous loss which explains my experience. So, as a Mom left behind, living in limbo, frozen in grief, not knowing what I was grieving or how to deal with this loss. More questions than answers. My journey was over 3 ½ years. Many have endured this path on their own, for far too many years. ‘The heartache of having a missing loved one is overwhelming as days turn into weeks, then months, then years. Each search or new lead sets us up for hopeful answers, but also painful disappointments. It’s an emotional rollercoaster that is difficult to describe let alone understand. There is so much uncertainty. Our family has experienced death of loved ones and the grieving process associated with this type of loss. But how do you grieve someone who is missing? How do you grieve when you don’t know if they are alive or dead? How do you carry on with the demands of life, and at the same time deal with the emotional turmoil? This is our reality. Naturally, one will seek out support services to help cope, seek out those who can help us deal with the uncertainty.’ Maureen Trask, mother of Daniel Trask This poem “When Someone you love goes missing”, by Tom M. Brown, speaks to this journey. (read poem)
  3. Dr. Pauline Boss presented the theory of ambiguous loss in 1999 (book). She has also applied her theory by facilitating support for families in numerous disasters including 9/11, Thailand tsunami, and Malaysian air crash. When I learned of her work, I read her books and immediately connected with what I was experiencing, it made sense. It wasn’t me, it was the situation. I contacted her to learn more and determine if support material or services were available for families such as mine, very little in Canada. Pauline has written subsequent books on Loss, Trauma and Resilience (2006) and Dementia (2011), building on research and clinical experience of ambiguous loss. In Loss, Trauma, and Resilience, Boss provides the therapeutic insight and wisdom that aids mental health professionals in not "going for closure," but rather building strength and acceptance of ambiguity. What readers will find is a concrete therapeutic approach that is at once directive and open to the complex contexts in which people find meaning and discover hope in the face of ambiguous losses. In Loving Someone Who Has Dementia, Boss builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
  4. I would like to note that I will be using the term “traditional loss” to refer to loss from a death that is followed by a funeral or formal ceremony to mark the death (celebration of life). Externally Caused- external circumstances and situations cause the loss rather than individual pathology This situation has caused sadness in my life. But, I’m not crazy, or depressed – I’m heart broken. Unclear, uncertain Loss- the loss is unclear because the relationship is not completely gone. Rather a part of the loved one is still very present yet the other part of them is gone which I will further discuss in a moment. Senseless Loss- the loss is confusing and incomprehensible due to the many uncertainties and unanswered questions. Traumatic Loss - typically with ambiguous loss the loss comes from a traumatic experience. Lacks closure- I researched what closure was because I wondered is closure ever possible with any loss. Some of the definitions I got where: an often comforting or satisfying sense of finality, bringing to an end, and a conclusion. From this, I decided that full closure was never possible with any loss because you can never shut the doors on the memories, relationship, love and the bond, which can never be erased. In other words, while death does bring finality to one’s life. Complete closure is not possible with any loss because loss is never satisfying. However, with ambiguous loss there is absolutely no closure because there is no verification of death, no real goodbye rituals such as and burial. With ambiguous loss, there is no finality, but rather ongoing uncertainties, which deny any small sense of closure that, allow people to try to go on, not move on but go on with the sadness. This leads me to the next point… Frozen grief / like being Stuck in limbo- ambiguous loss freezes the grief process because not all is fully lost, there is no finality, and it does not feel right to fully mourn. It is an on-hold, frozen grief. It is essentially as though being stuck in limbo. A unique, individual journey- much like a traditional loss, each person’s grief journey is unique and individual. While two people may experience ambiguous loss for the same reasons, their journey will always be different. Having said that it is very important for those experiencing ambiguous loss to have a community connection with others experiencing the same thing as it helps to normalize the emotions, and the feeling connected helps to find the needed meaning. Further on closure: Closure is a Myth (even with Death). Closure is not part of the grieving process. Nor is it necessary for healing. A connection formed in LOVE can’t be closed. (The Grief Toolbox) Is closure a myth? Ambiguous loss defies closure even with healthy families as discussed by Pauline Boss and Donna Carnes, in Family Process article, 2012. I agree with their summary that ambiguous loss with its lack of closure makes immense demands on the human capacity to cope and grieve. So to me, there will be no closure for me. Even though Daniel was found deceased, I agree that my connection formed in LOVE can’t be closed. This too is being questioned in traditional loss. Closure is a word I really, really do not like, which is true of others with missing loved ones. Instead, I prefer to say it’s answers I need. If answers are not available, then I need to find comfort in the uncertainty, some sense of meaning from this, peace, but certainly not “Closure”. Families will never have closure, the best we can get is answers.
  5. Two types of ambiguous loss… Psychologically absent- Physically present The loved one is physically present however; they are cognitively and emotionally absent. Physically absent- Psychologically present The loved one is physically absent but remains psychologically present. Missing People (for example disappeared, kidnapped, missing in action, or mass disasters such as 9/11) It is also possible to be experiencing both at the same time as I am with a missing son and a mother with dementia. As you can see with all of these examples there is no real goodbye to the relationship and roles, no farewell ritual, and yet someone is lost and something remains creating ambiguity.