Data protection ownership and portability a code of conduct for mHealth apps 3GDR
The document discusses data protection, ownership and portability in mHealth apps and whether current rules and regulations are fit for purpose. It provides an orientation on changing care models from hierarchical to integrated and from group-based to personalized. It reviews the history of mHealth and how technology is helping to achieve more affordable and personalized care. It then gives a status report on existing EU laws regarding medical devices, data protection and consumer rights as they apply to mHealth apps. It outlines member state actions and goals regarding mHealth as well as ongoing EU activities like a code of conduct and quality standards. Finally, it concludes that citizens must drive innovation, the digital divide must be avoided, and the legal framework works best with appropriate technology and governance.
The European BioSafety Association (EBSA) is a non-profit organization open to anyone working in biosafety that represents the European biosafety community. EBSA aims to establish best biosafety and biosecurity practices among its members through networking activities like training, information sharing, and advocating for emerging legislation. EBSA also works to enhance biosafety knowledge and competency through developing certification standards and curricula for biosafety professionals.
Work Package (WP) 12 – PEARL Barriers In search for an inventory and assessme...ExternalEvents
http://www.fao.org/about/meetings/wgs-on-food-safety-management/en/
International challenges regarding the future sharing of sequence data. Presentation from the Technical Meeting on the impact of Whole Genome Sequencing (WGS) on food safety management and GMI-9, 23-25 May 2016, Rome, Italy.
The document discusses moving forward with generic laboratory strengthening activities in the areas of laboratory quality and biosafety. It outlines proposed joint activities between ECDC and NMFPs, including developing project plans and collaboration proposals with partners like WHO Europe and EBSA. Feedback from NMFPs would be consolidated to secure funding for 2017-2018 activities. These may include training modules, workshops, and other capacity building opportunities to strengthen laboratory systems across Europe. NMFPs would provide input on the relevance and feasibility of the proposed activities to support public health microbiology in their countries.
This document summarizes Dr. Pamela Hepple's presentation on WHO's Better Labs for Better Health initiative. The initiative aims to strengthen national laboratory systems through improved policies, training, quality management, and infrastructure. It coordinates efforts across countries using international standards. Activities include training over 135 laboratory managers in quality systems and mentoring 24 countries as they implement quality management. The mentoring program supports laboratories in becoming accredited and building trust. Upcoming events will report on progress and share best practices between countries and partners supporting this work.
Data protection ownership and portability a code of conduct for mHealth apps 3GDR
The document discusses data protection, ownership and portability in mHealth apps and whether current rules and regulations are fit for purpose. It provides an orientation on changing care models from hierarchical to integrated and from group-based to personalized. It reviews the history of mHealth and how technology is helping to achieve more affordable and personalized care. It then gives a status report on existing EU laws regarding medical devices, data protection and consumer rights as they apply to mHealth apps. It outlines member state actions and goals regarding mHealth as well as ongoing EU activities like a code of conduct and quality standards. Finally, it concludes that citizens must drive innovation, the digital divide must be avoided, and the legal framework works best with appropriate technology and governance.
The European BioSafety Association (EBSA) is a non-profit organization open to anyone working in biosafety that represents the European biosafety community. EBSA aims to establish best biosafety and biosecurity practices among its members through networking activities like training, information sharing, and advocating for emerging legislation. EBSA also works to enhance biosafety knowledge and competency through developing certification standards and curricula for biosafety professionals.
Work Package (WP) 12 – PEARL Barriers In search for an inventory and assessme...ExternalEvents
http://www.fao.org/about/meetings/wgs-on-food-safety-management/en/
International challenges regarding the future sharing of sequence data. Presentation from the Technical Meeting on the impact of Whole Genome Sequencing (WGS) on food safety management and GMI-9, 23-25 May 2016, Rome, Italy.
The document discusses moving forward with generic laboratory strengthening activities in the areas of laboratory quality and biosafety. It outlines proposed joint activities between ECDC and NMFPs, including developing project plans and collaboration proposals with partners like WHO Europe and EBSA. Feedback from NMFPs would be consolidated to secure funding for 2017-2018 activities. These may include training modules, workshops, and other capacity building opportunities to strengthen laboratory systems across Europe. NMFPs would provide input on the relevance and feasibility of the proposed activities to support public health microbiology in their countries.
This document summarizes Dr. Pamela Hepple's presentation on WHO's Better Labs for Better Health initiative. The initiative aims to strengthen national laboratory systems through improved policies, training, quality management, and infrastructure. It coordinates efforts across countries using international standards. Activities include training over 135 laboratory managers in quality systems and mentoring 24 countries as they implement quality management. The mentoring program supports laboratories in becoming accredited and building trust. Upcoming events will report on progress and share best practices between countries and partners supporting this work.
ISPOR Eupati meeting - Dr Derick Mitchell - November 2017ipposi
This document discusses bringing patient education to the national level through establishing EUPATI National Platforms. It provides background on EUPATI and IPPOSI, and their role in establishing EUPATI National Platforms across Europe to address educational needs of patients and disseminate EUPATI resources at the national level. EUPATI National Platforms are intended to be patient-led, national networks that involve patients, academia, industry and other partners to identify educational opportunities at the national level using EUPATI materials and resources.
This document summarizes a presentation about open access policies on the national level. It discusses how organizations like EIFL advocate for open access policies from research funders, universities, and governments. It provides examples of funder mandates from organizations like Wellcome Trust and NIH. The document also discusses whether policies should mandate or just encourage open access, whether they should require deposit in repositories, journals, or both, and what materials should be deposited. It highlights open access progress in Africa through organizations and repositories.
First eStandards conference Panel of the European SDO Platformchronaki
Introduction to panel where Standards Developing Organization and National Competence Centers discuss the scope of the European SDO platform reflecting on earlier presentations.
The European Commission is working to improve open access to publicly funded research publications and data. It has established policies and initiatives to increase access, including guidelines for research funded by the European Research Council to be openly accessible within 6 months of publication. The Commission also reimburses open access publication fees for research funded under FP7. Most EU member states are pursuing open access activities but would benefit from more coordination and national strategies. Going forward, the Commission will monitor ongoing initiatives and work to establish policies for H2020 and help create a fifth freedom of knowledge movement in Europe.
Open Access Policies and Benefits, Oct 2014SPARC Europe
This document discusses open access policies and their benefits. The most effective open access policies are mandatory, require researchers to deposit peer-reviewed research in institutional repositories immediately upon acceptance, and connect repository deposits to research assessments. Such policies provide advantages to authors, institutions, and funders by increasing visibility, usage, and impact of research. Effective open access policies also allow institutions to demonstrate societal return and provide economic benefits through increased research funding.
The document discusses several actions that funders can take to promote open access (OA). It identifies areas like awareness raising, establishing legal and financial frameworks, and implementing OA policies. It also discusses establishing funds to cover publication fees, federating repositories to integrate research information, and supporting the transformation of journals to OA models. The document provides recommendations to funders on explaining the benefits of OA to researchers and developing transparent mechanisms for supporting publication costs.
The document discusses principles and best practices for open data policies. It outlines six responsibilities for scientists, research institutions, publishers, funding agencies, professional associations, and libraries to make data openly available. Open data should be the default, with limited exceptions for privacy, safety and commercial interests justified on a case-by-case basis. Effective open data policy development requires consideration of context, content and impact. Key pillars for sustainable open data programs include supporting infrastructure, easy access, user feedback channels, high-value datasets, data quality, and privacy protection.
This document discusses post-Brexit implications for research and cooperation in Europe. It outlines how Brexit may impact the movement of staff in research and health industries, future data protection and clinical trial frameworks, and authorization of new medicines. It also summarizes several ongoing EU research initiatives on neurodegenerative diseases, including the Joint Programme for Neurodegenerative Disease Research (JPND) and Innovative Medicines Initiative (IMI), and EU Joint Actions on Dementia.
This document outlines a project to provide nationwide remote access to medical databases and library resources for healthcare professionals in Trinidad and Tobago. A team formed that included librarians from the Ministry of Health and University of the West Indies to define, develop, and launch a pilot program powered by EBSCOhost. The project aimed to make up-to-date clinical information available nationwide to improve treatment and support research. Initial results showed usage of databases increasing after the national launch event, though challenges included uneven IT infrastructure and stakeholder involvement that need further work.
This document provides a roadmap for the Open Science Hardware (OScH) community to achieve their goal of making open science hardware ubiquitous by 2025. It outlines three key areas of focus: Learn, Support, and Grow. In the Learn section, it recommends establishing a collaborative research agenda on OScH and developing frameworks for evaluating OScH projects. The Support section discusses providing institutional support for OScH projects and communities. The Grow section focuses on increasing participation in and advocacy for the OScH community. The overall roadmap was developed through contributions from over 100 people in the global OScH community.
(1) The speaker discusses synergies between animal welfare research and education in North America and the European Union. (2) They represent a group of 50 scientists from 10 institutions across 9 countries funded by the EU to develop scientific indicators of animal welfare. (3) Their goal is to integrate fundamental and applied animal welfare research through innovative communication with stakeholders using new online tools and a global hub for research and education.
Linda kahl openmta an option for dissemination of giab samplesGenomeInABottle
The document discusses the need for a new option for transferring material research inputs called the OpenMTA. It summarizes current standard material transfer agreements (MTAs) that are limited to academic and non-profit use without commercial applications or transferring to third parties. These complex MTAs create high transaction costs and bottlenecks that frustrate sharing. The OpenMTA is presented as a simple, standardized legal tool that enables open sharing of materials for research and commercial use without restrictions on redistribution or third parties. It aims to reduce transaction costs while maintaining responsible practices and compliance with laws through terms addressing access, attribution, reuse, redistribution, and nondiscrimination.
Community and Governance Recommendations for the Future State of an e-infrast...e-ROSA
This document provides recommendations for developing an e-infrastructure to support open science in agri-food systems. It identifies key societal challenges around feeding the growing population, climate change, unhealthy diets, and environmental pressures. Three major trends are digital agriculture, new genetic techniques, and adopting a systems perspective. Recommendations focus on sharing data and models, connecting diverse data sources through standards, and facilitating collaboration across disciplines and sectors. Specific recommendations include establishing sustainable funding, aligning with the European Open Science Cloud, promoting open innovation, and developing large public-private partnerships for data-driven research. The overarching goal is to support evidence-based policymaking and address challenges through open, international cooperation.
A research institution's view of their role in OA mandates and policies: Usin...enlightenrepository
Brief presentation on Insitutional and Funder Mandates as part of the Berlin 7 Session: Practical challenges in moving to Open Access: a focus on research funders and universities
Global Dementia Legacy Event: Canada & France: Dr Etienne Hirsch & Dr Yves Jo...Department of Health
Session Five: The next goal – towards Canada, France, Japan and the United States.
Canada & France: Dr Etienne Hirsch, Director, Institute for Neurosciences, Cognitive sciences, Neurology and Psychiatry at INSERM and the French alliance for life and health science Aviesan & Dr Yves Joanette CIHR, Scientific Director, Canadian Institutes of Health Research (CIHR), Institute of Aging & World Dementia Council Member
OpenAIRE Dashboard for Research Communities - Poster at Open Science Conferen...OpenAIRE
OpenAIRE Dashboard for Research Communities: Enabling Open Science publishing for Research Communities and Research Infrastructures.
Poster presented at the Open Science Conference 2019, 19 March, Berlin, Germany.
Open Science as-a-Service for research communities: OpenAIRE-Connect project ...OpenAIRE
"Open Science as-a-Service for research communities: OpenAIRE-Connect project"
Presentation by Pedro Príncipe from University of Minho at the OYSTER2019, Cádiz, Spain. OpenAIRE-Connect Workshop - EuroMarine Young Scientist Working Group (Jan. 28, 2019)
The document discusses potential areas of collaboration between the EOSC-hub and OpenAIRE projects, including governance and sustainability, outreach and training, and integrated service provision. Three task forces were formed to identify gaps and overlaps between the projects and opportunities for synergies. The task forces will analyze the common stakeholders, opportunities for collaboration, and gaps and overlaps for each area. A draft joint work plan with proposed joint activities, outputs and timeline will be developed by December 2017 and revised in January 2018. A collaboration agreement between the projects is planned to be signed in March 2018 after drafting and revision. The goal is to facilitate interoperability, publishing and exchange of research products through the projects' services.
Opening remarks: Open access and the developing world BioMedCentral
This document discusses how open access to research can help expand knowledge access in developing regions like Africa. It notes that while internet connectivity in Africa is improving, access barriers still exist. Open access publishing removes barriers by making research freely available online. The document outlines how BioMed Central, the largest open access publisher, works to increase access in Africa through fee waivers, conferences, and collaborating with institutions and repositories to automate open access sharing. Open access is positioned to help achieve UN development goals by more broadly disseminating research on issues like health that are most relevant to developing areas.
EPIS meeting - Dr Derick Mitchell - October 2017ipposi
Derick Mitchell gave a talk on sustaining patient engagement resources through public-private platforms. Some key points:
1. He discussed IPPOSI, a patient-led organization that advocates for patient involvement in health innovation and research.
2. Patient organizations and industry can interact by moving past compliance and instead measuring the value of their interactions through trust and transparency.
3. Generating patient-based evidence through patient registries, mobile apps, and other tools can provide cost-effective, patient-relevant data to inform decision making.
The document discusses the European Union's support for animal welfare research through its Framework Programme funding. It provides an overview of funded projects from FP5 to FP7 that aim to improve welfare assessment, understand the impacts of upgraded standards, and exchange knowledge between stakeholders. Recent and planned calls focus on indicators for small ruminants, equids and turkeys, networking European researchers, and understanding stress responses and coping behaviors in farmed fish.
ISPOR Eupati meeting - Dr Derick Mitchell - November 2017ipposi
This document discusses bringing patient education to the national level through establishing EUPATI National Platforms. It provides background on EUPATI and IPPOSI, and their role in establishing EUPATI National Platforms across Europe to address educational needs of patients and disseminate EUPATI resources at the national level. EUPATI National Platforms are intended to be patient-led, national networks that involve patients, academia, industry and other partners to identify educational opportunities at the national level using EUPATI materials and resources.
This document summarizes a presentation about open access policies on the national level. It discusses how organizations like EIFL advocate for open access policies from research funders, universities, and governments. It provides examples of funder mandates from organizations like Wellcome Trust and NIH. The document also discusses whether policies should mandate or just encourage open access, whether they should require deposit in repositories, journals, or both, and what materials should be deposited. It highlights open access progress in Africa through organizations and repositories.
First eStandards conference Panel of the European SDO Platformchronaki
Introduction to panel where Standards Developing Organization and National Competence Centers discuss the scope of the European SDO platform reflecting on earlier presentations.
The European Commission is working to improve open access to publicly funded research publications and data. It has established policies and initiatives to increase access, including guidelines for research funded by the European Research Council to be openly accessible within 6 months of publication. The Commission also reimburses open access publication fees for research funded under FP7. Most EU member states are pursuing open access activities but would benefit from more coordination and national strategies. Going forward, the Commission will monitor ongoing initiatives and work to establish policies for H2020 and help create a fifth freedom of knowledge movement in Europe.
Open Access Policies and Benefits, Oct 2014SPARC Europe
This document discusses open access policies and their benefits. The most effective open access policies are mandatory, require researchers to deposit peer-reviewed research in institutional repositories immediately upon acceptance, and connect repository deposits to research assessments. Such policies provide advantages to authors, institutions, and funders by increasing visibility, usage, and impact of research. Effective open access policies also allow institutions to demonstrate societal return and provide economic benefits through increased research funding.
The document discusses several actions that funders can take to promote open access (OA). It identifies areas like awareness raising, establishing legal and financial frameworks, and implementing OA policies. It also discusses establishing funds to cover publication fees, federating repositories to integrate research information, and supporting the transformation of journals to OA models. The document provides recommendations to funders on explaining the benefits of OA to researchers and developing transparent mechanisms for supporting publication costs.
The document discusses principles and best practices for open data policies. It outlines six responsibilities for scientists, research institutions, publishers, funding agencies, professional associations, and libraries to make data openly available. Open data should be the default, with limited exceptions for privacy, safety and commercial interests justified on a case-by-case basis. Effective open data policy development requires consideration of context, content and impact. Key pillars for sustainable open data programs include supporting infrastructure, easy access, user feedback channels, high-value datasets, data quality, and privacy protection.
This document discusses post-Brexit implications for research and cooperation in Europe. It outlines how Brexit may impact the movement of staff in research and health industries, future data protection and clinical trial frameworks, and authorization of new medicines. It also summarizes several ongoing EU research initiatives on neurodegenerative diseases, including the Joint Programme for Neurodegenerative Disease Research (JPND) and Innovative Medicines Initiative (IMI), and EU Joint Actions on Dementia.
This document outlines a project to provide nationwide remote access to medical databases and library resources for healthcare professionals in Trinidad and Tobago. A team formed that included librarians from the Ministry of Health and University of the West Indies to define, develop, and launch a pilot program powered by EBSCOhost. The project aimed to make up-to-date clinical information available nationwide to improve treatment and support research. Initial results showed usage of databases increasing after the national launch event, though challenges included uneven IT infrastructure and stakeholder involvement that need further work.
This document provides a roadmap for the Open Science Hardware (OScH) community to achieve their goal of making open science hardware ubiquitous by 2025. It outlines three key areas of focus: Learn, Support, and Grow. In the Learn section, it recommends establishing a collaborative research agenda on OScH and developing frameworks for evaluating OScH projects. The Support section discusses providing institutional support for OScH projects and communities. The Grow section focuses on increasing participation in and advocacy for the OScH community. The overall roadmap was developed through contributions from over 100 people in the global OScH community.
(1) The speaker discusses synergies between animal welfare research and education in North America and the European Union. (2) They represent a group of 50 scientists from 10 institutions across 9 countries funded by the EU to develop scientific indicators of animal welfare. (3) Their goal is to integrate fundamental and applied animal welfare research through innovative communication with stakeholders using new online tools and a global hub for research and education.
Linda kahl openmta an option for dissemination of giab samplesGenomeInABottle
The document discusses the need for a new option for transferring material research inputs called the OpenMTA. It summarizes current standard material transfer agreements (MTAs) that are limited to academic and non-profit use without commercial applications or transferring to third parties. These complex MTAs create high transaction costs and bottlenecks that frustrate sharing. The OpenMTA is presented as a simple, standardized legal tool that enables open sharing of materials for research and commercial use without restrictions on redistribution or third parties. It aims to reduce transaction costs while maintaining responsible practices and compliance with laws through terms addressing access, attribution, reuse, redistribution, and nondiscrimination.
Community and Governance Recommendations for the Future State of an e-infrast...e-ROSA
This document provides recommendations for developing an e-infrastructure to support open science in agri-food systems. It identifies key societal challenges around feeding the growing population, climate change, unhealthy diets, and environmental pressures. Three major trends are digital agriculture, new genetic techniques, and adopting a systems perspective. Recommendations focus on sharing data and models, connecting diverse data sources through standards, and facilitating collaboration across disciplines and sectors. Specific recommendations include establishing sustainable funding, aligning with the European Open Science Cloud, promoting open innovation, and developing large public-private partnerships for data-driven research. The overarching goal is to support evidence-based policymaking and address challenges through open, international cooperation.
A research institution's view of their role in OA mandates and policies: Usin...enlightenrepository
Brief presentation on Insitutional and Funder Mandates as part of the Berlin 7 Session: Practical challenges in moving to Open Access: a focus on research funders and universities
Global Dementia Legacy Event: Canada & France: Dr Etienne Hirsch & Dr Yves Jo...Department of Health
Session Five: The next goal – towards Canada, France, Japan and the United States.
Canada & France: Dr Etienne Hirsch, Director, Institute for Neurosciences, Cognitive sciences, Neurology and Psychiatry at INSERM and the French alliance for life and health science Aviesan & Dr Yves Joanette CIHR, Scientific Director, Canadian Institutes of Health Research (CIHR), Institute of Aging & World Dementia Council Member
OpenAIRE Dashboard for Research Communities - Poster at Open Science Conferen...OpenAIRE
OpenAIRE Dashboard for Research Communities: Enabling Open Science publishing for Research Communities and Research Infrastructures.
Poster presented at the Open Science Conference 2019, 19 March, Berlin, Germany.
Open Science as-a-Service for research communities: OpenAIRE-Connect project ...OpenAIRE
"Open Science as-a-Service for research communities: OpenAIRE-Connect project"
Presentation by Pedro Príncipe from University of Minho at the OYSTER2019, Cádiz, Spain. OpenAIRE-Connect Workshop - EuroMarine Young Scientist Working Group (Jan. 28, 2019)
The document discusses potential areas of collaboration between the EOSC-hub and OpenAIRE projects, including governance and sustainability, outreach and training, and integrated service provision. Three task forces were formed to identify gaps and overlaps between the projects and opportunities for synergies. The task forces will analyze the common stakeholders, opportunities for collaboration, and gaps and overlaps for each area. A draft joint work plan with proposed joint activities, outputs and timeline will be developed by December 2017 and revised in January 2018. A collaboration agreement between the projects is planned to be signed in March 2018 after drafting and revision. The goal is to facilitate interoperability, publishing and exchange of research products through the projects' services.
Opening remarks: Open access and the developing world BioMedCentral
This document discusses how open access to research can help expand knowledge access in developing regions like Africa. It notes that while internet connectivity in Africa is improving, access barriers still exist. Open access publishing removes barriers by making research freely available online. The document outlines how BioMed Central, the largest open access publisher, works to increase access in Africa through fee waivers, conferences, and collaborating with institutions and repositories to automate open access sharing. Open access is positioned to help achieve UN development goals by more broadly disseminating research on issues like health that are most relevant to developing areas.
EPIS meeting - Dr Derick Mitchell - October 2017ipposi
Derick Mitchell gave a talk on sustaining patient engagement resources through public-private platforms. Some key points:
1. He discussed IPPOSI, a patient-led organization that advocates for patient involvement in health innovation and research.
2. Patient organizations and industry can interact by moving past compliance and instead measuring the value of their interactions through trust and transparency.
3. Generating patient-based evidence through patient registries, mobile apps, and other tools can provide cost-effective, patient-relevant data to inform decision making.
The document discusses the European Union's support for animal welfare research through its Framework Programme funding. It provides an overview of funded projects from FP5 to FP7 that aim to improve welfare assessment, understand the impacts of upgraded standards, and exchange knowledge between stakeholders. Recent and planned calls focus on indicators for small ruminants, equids and turkeys, networking European researchers, and understanding stress responses and coping behaviors in farmed fish.
EU Clinical Trials Regulation - IPPOSI perspectiveipposi
IPPOSI CEO, Dr Derick Mitchell delivered a presentation on the EU Clinical Trials Regulation from the patients' perspective at the 20th International Conference on Pharmaceutical Medicine, Athens, Greece.
Presentation in the framework of the International Conference "10th anniversary of the Spanish Network of Health Technology Assessment Agencies. Towads patient and public engagement in HTA" Zaragoza 27-28 April 2017
The document discusses EU funding opportunities for health research and innovation under Horizon 2020. Horizon 2020 is the EU's 2014-2020 program for research and innovation, with €80 billion allocated. It focuses on three priorities: excellent science, industrial leadership, and societal challenges. In the area of health, challenges include aging populations, disease burden, and pressure on healthcare systems. The goals are to translate science into benefits, improve outcomes, support healthcare sectors, and promote healthy aging. The document provides details on past funding amounts under FP7 and lists several international consortia supported. It outlines the structure and goals of the International Rare Diseases Research Consortium to develop 200 new therapies and means to diagnose rare diseases by 2020.
The document outlines a proposed project called "Feeding Knowledge" which aims to create an international network to promote research and innovation on food security. The project would establish an international scientific network, train young experts, develop policies to meet Third World country needs, and create an international technology platform as a hub for collaboration. The platform would collect and organize data, build knowledge, develop networks to understand and solve issues, and integrate people, tools and information through various functions and tools. The project's governance structure and costs are also summarized.
The document summarizes the post-Memorandum of Understanding (MoU) landscape between the European Union and United States on eHealth cooperation. Key areas supported by the ARGOS project include interoperability, skills development, and benchmarking of eHealth benefits. Strong cooperation exists with the National Institutes of Health. The European Commission will work to achieve widespread deployment of telemedicine in Europe by 2020 and a minimum common set of patient data by 2011.
eStandards: eHealth Standards & Profiles in Action for Europe and beyondchronaki
The document discusses the eStandards project which aims to advance the use of eHealth standards in Europe and globally. The key goals are to:
1) Build consensus on eHealth standards among stakeholders and create a roadmap for aligning, consolidating, and adopting standards.
2) Support large-scale eHealth deployments across regions, countries, and borders through quality management and testing of systems.
3) Advance global cooperation on eHealth standards through relationships like the EU-US Memorandum of Understanding.
NordForsk Open Access Reykjavik 14-15/8-2014: H2020NordForsk
This document summarizes the European Commission's policies on open access to research data and publications in Horizon 2020. Key points include:
1) Horizon 2020 will require open access to publications and encourage open access to research data through a pilot program. Projects will need to submit a data management plan and may need to deposit data in a repository.
2) The goals are to optimize the impact of publicly-funded research, enable better science, and promote economic growth and broader access.
3) Support for open access includes funding for e-infrastructure projects, training, helpdesks and guidelines on open data management.
2018 03-01 International Conference on Perspectives in Precision Medicine, Co...Alain van Gool
This keynote lecture reviews the historical and ongoing investments in public-private partnerships related to precision medicine and the related technological infrastructures. It served as example to the Danish community how translational biomarkers in precision medicine can be organised, as basis for further collaboration between Denmark and Netherlands.
The PPT describes about the healthcare issues in Europe and how eHealth is becoming a solution for those issues. Also the policy for eHealth in Europe. For more information visit: http://www.transformhealth-it.org/
Peter van der hijden at unica, brussels, 8 may 2013Anneliesvub
This document summarizes information presented about research and innovation programs in Europe. It discusses the Europe 2020 strategy, which aims to increase R&D investment to 3% of GDP. It outlines the Innovation Union initiative and goals of establishing a European Research Area with free circulation of researchers, knowledge and technology. Finally, it provides details about the new Horizon 2020 program, which consolidates previous EU funding programs and focuses on research addressing societal challenges through priority areas like health, energy, transport and climate action.
Introduction to the workshop and EUPATI updateEUPATI
The European Patients' Academy (EUPATI) project aims to educate patients and the public about medical research and development. It provides training to help patients become experts who can actively partner with researchers. The project is led by patients and involves various stakeholders. It has made progress in developing educational materials in multiple languages and establishing national networks. The first training course for patient experts recently began. EUPATI seeks to build understanding and empower patients to more actively engage in research.
Connected health data meets the people: Diversity, Standards, and Trustchronaki
Using health data in a connected world requires new competencies, a personal digital health compass calibrated to individual personalities and needs. Patients and clinicians able to collect and manage data, data-operational informatics professionals able to analyze data, and cutting-edge researchers, innovators, and educators able to apply knowledge, will take learning health systems to the next level.
In this EFMI-HL7 event using innovative technology and surprises to engage the audience, we will discuss strategies for empowering and activating people to engage, share and use their health data. We will point to diversity, trust and open standards like HL7 FHIR to open up access and capacities to manage data safely for patients, care-givers, and the health system.
The Maturing Telemedicine Infrastructure in Denmark: Building the Human Capital, Morten Bruun-Rasmussen, CEO MEDIQ
Health Professional Education in Biomedical & Health Informatics: the EFMI AC2 approach, Professor John Mantas, University of Athens, Greece, EFMI Past President
Digital health literacy: a necessity for Activating Citizens, Professor Anne Moen, University of Oslo, Norway, VP for IMIA, European Federation for Medical Informatics
“Internet of People”: Elements of Trust and Risk, Eva Turk, DNVGL.
Workforce meets volumes of electronic information: Why and how HL7 FHIR creates value for stakeholders in learning health systems. Doug Fridsma, President and CEO, American Medical Informatics Association, US
The document provides an overview of the ITU/WHO Focus Group on AI for Health (FG-AI4H). It discusses how AI has potential to benefit public and clinical health but also faces challenges regarding trustworthy and unbiased models. It describes the goals and activities of FG-AI4H including developing standards, guidelines and best practices through working groups and collaborations. It also outlines software and benchmarking initiatives to facilitate the safe and effective development and use of AI for health.
PanCareSurPass @SIOP Europe/CCI Europe Meeting 2021, Riccardo HauptKylieOBrien10
Research Manager Dr. Riccardo Haupt presented the PanCareSurPass project at the ‘PanCare and ELTEC – Late effects’ session of the SIOP Europe/CCI Europe Meeting 2021 on 28th April 2021.
PanCareSurPass has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 89999. The material presented and views expressed here are the responsibilities of the author(s) only. The EU Commission takes no responsibility for any use made of the information set out.
Similar to EU-US Cooperation in eHealth policy and Research (20)
Multidisciplinary care: a perspective from diagnosis and treatment of rare cancers. Casali P. Technical Conference: Multidisciplinary Care in Cancer as a model of health care quality (Madrid: Ministry of Health and Social Policy, 2010)
La mejor evidencia junto a la mejor organización: el reto de la coordinación profesional en atención oncológica. Sánchez de Toledo J. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
La mejor evidencia junto a la mejor organización: el reto de la coordinación profesional en atención oncológica. Ortiz H. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
La mejor evidencia junto a la mejor organización: el reto de la coordinación profesional en atención oncológica. Barnadas A. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
Experiencias y percepción de la atención integral de los pacientes con cáncer. Oriol Díaz de Bustamante I. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
Experiencias y percepción de la atención integral de los pacientes con cáncer. Moreno Marín P. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
La mejor evidencia junto a la mejor organización: el reto de la coordinación profesional en atención oncológica. Medina JA. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
Experiencias y percepción de la atención integral de los pacientes con cáncer. Fisas Armengol A. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
Este documento describe la atención oncológica multidisciplinar y la gestión de casos como un modelo de calidad asistencial. Explica que la gestión de casos implica coordinar y facilitar el acceso a los servicios sanitarios adecuados para cada paciente. Además, describe el rol de la enfermera gestora de casos en unidades oncológicas, cuyas funciones principales son coordinar el plan de tratamiento del paciente y servir de referente para el paciente y el equipo médico. Finalmente, concluye que la gestión de casos contribuye
La mejor evidencia junto a la mejor organización: el reto de la coordinación profesional en atención oncológica. Díaz Mediavilla J. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
La mejor evidencia junto a la mejor organización: el reto de la coordinación profesional en atención oncológica. Ignacio A. Jornada Técnica: Atención Multidisciplinar en Cáncer como modelo de calidad asistencial (Madrid: Ministerio de Sanidad y Política Social, 2010)
The power of lifestyle interventions to prevent cardiovascular diseases. Tuomilehto J. Conference on Cardiovascular Diseases (Madrid: Ministry of Health and Social Policy; 2010).
Alcohol and chronic diseases: complex relations. Guillemont J. Conference on Cardiovascular Diseases (Madrid: Ministry of Health and Social Policy; 2010).
Risk Assessment and Management of Cardiovascular Diseases - an English Approach. Lynam E. Conference on Cardiovascular Diseases (Madrid: Ministry of Health and Social Policy; 2010).
Cardiovascular disease inequalities: causes and consequences. Capewell S. Conference on Cardiovascular Diseases (Madrid: Ministry of Health and Social Policy; 2010).
Addressing cardiovascular disease at EU level: tangible plans for the future. Hübel M. Conference on Cardiovascular Diseases (Madrid: Ministry of Health and Social Policy; 2010).
1) Denmark aimed to create common processes and data structures across 13 municipalities and multiple medical vendors from 2002-2007, but faced issues with too many concurrent users and high data transmission.
2) From 2007-2012, Denmark established a shared medication record and common database to address prior issues.
3) The document discusses various roles that medical intermediaries can play, including consumer/professional content aggregation, patient management, records management, physician career services, and more. It also covers intermediation theory and the challenges in Europe.
The impact of eHealth on Healthcare Professionals and Organisations: The Impact of ICT at Kaiser Permanente. Wiesenthal A. eHealth week 2010 (Barcelona: CCIB Convention Centre; 2010)
Congestive Heart failure is caused by low cardiac output and high sympathetic discharge. Diuretics reduce preload, ACE inhibitors lower afterload, beta blockers reduce sympathetic activity, and digitalis has inotropic effects. Newer medications target vasodilation and myosin activation to improve heart efficiency while lowering energy requirements. Combination therapy, following an assessment of cardiac function and volume status, is the most effective strategy to heart failure care.
- Video recording of this lecture in English language: https://youtu.be/Pt1nA32sdHQ
- Video recording of this lecture in Arabic language: https://youtu.be/uFdc9F0rlP0
- Link to download the book free: https://nephrotube.blogspot.com/p/nephrotube-nephrology-books.html
- Link to NephroTube website: www.NephroTube.com
- Link to NephroTube social media accounts: https://nephrotube.blogspot.com/p/join-nephrotube-on-social-media.html
Computer in pharmaceutical research and development-Mpharm(Pharmaceutics)MuskanShingari
Statistics- Statistics is the science of collecting, organizing, presenting, analyzing and interpreting numerical data to assist in making more effective decisions.
A statistics is a measure which is used to estimate the population parameter
Parameters-It is used to describe the properties of an entire population.
Examples-Measures of central tendency Dispersion, Variance, Standard Deviation (SD), Absolute Error, Mean Absolute Error (MAE), Eigen Value
The biomechanics of running involves the study of the mechanical principles underlying running movements. It includes the analysis of the running gait cycle, which consists of the stance phase (foot contact to push-off) and the swing phase (foot lift-off to next contact). Key aspects include kinematics (joint angles and movements, stride length and frequency) and kinetics (forces involved in running, including ground reaction and muscle forces). Understanding these factors helps in improving running performance, optimizing technique, and preventing injuries.
Giloy in Ayurveda - Classical Categorization and SynonymsPlanet Ayurveda
Giloy, also known as Guduchi or Amrita in classical Ayurvedic texts, is a revered herb renowned for its myriad health benefits. It is categorized as a Rasayana, meaning it has rejuvenating properties that enhance vitality and longevity. Giloy is celebrated for its ability to boost the immune system, detoxify the body, and promote overall wellness. Its anti-inflammatory, antipyretic, and antioxidant properties make it a staple in managing conditions like fever, diabetes, and stress. The versatility and efficacy of Giloy in supporting health naturally highlight its importance in Ayurveda. At Planet Ayurveda, we provide a comprehensive range of health services and 100% herbal supplements that harness the power of natural ingredients like Giloy. Our products are globally available and affordable, ensuring that everyone can benefit from the ancient wisdom of Ayurveda. If you or your loved ones are dealing with health issues, contact Planet Ayurveda at 01725214040 to book an online video consultation with our professional doctors. Let us help you achieve optimal health and wellness naturally.
Osvaldo Bernardo Muchanga-GASTROINTESTINAL INFECTIONS AND GASTRITIS-2024.pdfOsvaldo Bernardo Muchanga
GASTROINTESTINAL INFECTIONS AND GASTRITIS
Osvaldo Bernardo Muchanga
Gastrointestinal Infections
GASTROINTESTINAL INFECTIONS result from the ingestion of pathogens that cause infections at the level of this tract, generally being transmitted by food, water and hands contaminated by microorganisms such as E. coli, Salmonella, Shigella, Vibrio cholerae, Campylobacter, Staphylococcus, Rotavirus among others that are generally contained in feces, thus configuring a FECAL-ORAL type of transmission.
Among the factors that lead to the occurrence of gastrointestinal infections are the hygienic and sanitary deficiencies that characterize our markets and other places where raw or cooked food is sold, poor environmental sanitation in communities, deficiencies in water treatment (or in the process of its plumbing), risky hygienic-sanitary habits (not washing hands after major and/or minor needs), among others.
These are generally consequences (signs and symptoms) resulting from gastrointestinal infections: diarrhea, vomiting, fever and malaise, among others.
The treatment consists of replacing lost liquids and electrolytes (drinking drinking water and other recommended liquids, including consumption of juicy fruits such as papayas, apples, pears, among others that contain water in their composition).
To prevent this, it is necessary to promote health education, improve the hygienic-sanitary conditions of markets and communities in general as a way of promoting, preserving and prolonging PUBLIC HEALTH.
Gastritis and Gastric Health
Gastric Health is one of the most relevant concerns in human health, with gastrointestinal infections being among the main illnesses that affect humans.
Among gastric problems, we have GASTRITIS AND GASTRIC ULCERS as the main public health problems. Gastritis and gastric ulcers normally result from inflammation and corrosion of the walls of the stomach (gastric mucosa) and are generally associated (caused) by the bacterium Helicobacter pylor, which, according to the literature, this bacterium settles on these walls (of the stomach) and starts to release urease that ends up altering the normal pH of the stomach (acid), which leads to inflammation and corrosion of the mucous membranes and consequent gastritis or ulcers, respectively.
In addition to bacterial infections, gastritis and gastric ulcers are associated with several factors, with emphasis on prolonged fasting, chemical substances including drugs, alcohol, foods with strong seasonings including chilli, which ends up causing inflammation of the stomach walls and/or corrosion. of the same, resulting in the appearance of wounds and consequent gastritis or ulcers, respectively.
Among patients with gastritis and/or ulcers, one of the dilemmas is associated with the foods to consume in order to minimize the sensation of pain and discomfort.
STUDIES IN SUPPORT OF SPECIAL POPULATIONS: GERIATRICS E7shruti jagirdar
Unit 4: MRA 103T Regulatory affairs
This guideline is directed principally toward new Molecular Entities that are
likely to have significant use in the elderly, either because the disease intended
to be treated is characteristically a disease of aging ( e.g., Alzheimer's disease) or
because the population to be treated is known to include substantial numbers of
geriatric patients (e.g., hypertension).
STUDIES IN SUPPORT OF SPECIAL POPULATIONS: GERIATRICS E7
EU-US Cooperation in eHealth policy and Research
1. EU-US Cooperation in eHealth policy
and Research
Ilias Iakovidis, PhD
Acting Head of Unit -ICT for Health,
DG Information Society and Media
European Commission
2. eHealth in EU
1) Individual Member States'
eHealth policy strategies
www.ehealth-era.org
2) EU wide strategy
• EC Research (FP) and Innovation
programmes 450 projects, €1 Billion
• eHealth Action plan (2004)
• Lead Market Initiative (2007)
• EC Recommendation on EHR
Interoperability (2008)
• Telemedicine Action Plan (2008)
3. EU-US Cooperation in eHealth
Policy and support to deployment
• Benchmarking/ assessment of benefits
• Interoperability
• why: safety, efficacy, continuity of care, defragmentation of global market: competition
better quality at lower price
• What: global approach to standardisation (PS 27 17/3) ,
• interoperability testing, certification
Relevant EU Project: www.epsos.eu
• Re-use of health data for public health, education and research
• why: safety, efficacy, continuity of care, defragmentation of global market: competition
better quality at lower price
• What: converging standards, interoperability testing, certification
Example project: www.transformproject.eu
• EU-US Cooperation in eHealth
• www.eurorec.org/RD/ARGOS.cfm
4. The Virtual Physiological Human (VPH)
International Initiative
The Virtual Physiological Human is a
methodological and technological framework
that once established will enable the
investigation of the human body as a single
complex system.
The VPH research roadmap developed by
project STEP in 2007: www.europhysiome.org
Relevant EU Project:
www.vph-Noe.eu
5. EU-US Cooperation on VPH
WHAT
• Cooperation with NIH
http://www.nibib.nih.gov/Funding/MultiscaleModeling, http://www.cancer.gov/
and in particular in IMAG group activities http://www.imagwiki.org/mediawiki/
• Some cooperation with Japan and China
• International organizations to our VPH projects (5 new
contracts start now with partners from US in 2010)
• Current call on VPH is open and encourages US partners
• The call in 2012 will have dedicated budget to US, CA, NZ,
Chna partners
Conferences with participation of US and EU projects
• ICT-BIO 2006 and 2008
• IMAG symposium: http://www.siam.org/meetings/ls08/index.php
• Healthgrid conferences
• VPH 2010 29-30 October 2010, Brussels