Slides from CSIRO for the ANDS-Nectar-RDS webinar on 13th March 2018 where CSIRO shares their outcomes and learnings from their journey to achieve Core Trust seal certification for the CSIRO Data Access Portal.
Recordings and transcript available from the ANDS website: http://www.ands.org.au/news-and-events/presentations/2018.
Speakers from Australian Data Archive described their journey to become a trusted data repository certified with the CoreTrustSeal. Webinar given on 13th March 2018.
Recordings and transcript available from the ANDS website: http://www.ands.org.au/news-and-events/presentations/2018
Turning FAIR into Reality - Role for Libraries dri_ireland
Presentation by Dr. Natalie Harrower, Director Digital Repository of Ireland and European Commission FAIR data expert group member, on what role librarians can play in the FAIR ecosystem. "Applying the FAIR data principles in day-to-day library practice" session by the Research Data Management Working Group, LIBER Steering Committee Research Infrastructures, LIBER2019, Dublin, 26 June 2019
This document outlines a briefing on research data management (RDM) at LSBU. It defines RDM and research data, discusses why RDM has gained increased interest and attention due to factors like funder policies and legislative changes. It describes the benefits of RDM for researchers and institutions. It then outlines LSBU's RDM policy, which includes requirements for data management plans, data storage, sharing, and citation. The document discusses next steps for LSBU, including a survey of current practices, case studies, interviews, and launching an institutional data repository in 2016. It notes both opportunities, like training workshops, and challenges to implementing RDM, such as changing researcher behaviors and incentives.
Speakers from Australian Data Archive described their journey to become a trusted data repository certified with the CoreTrustSeal. Webinar given on 13th March 2018.
Recordings and transcript available from the ANDS website: http://www.ands.org.au/news-and-events/presentations/2018
Turning FAIR into Reality - Role for Libraries dri_ireland
Presentation by Dr. Natalie Harrower, Director Digital Repository of Ireland and European Commission FAIR data expert group member, on what role librarians can play in the FAIR ecosystem. "Applying the FAIR data principles in day-to-day library practice" session by the Research Data Management Working Group, LIBER Steering Committee Research Infrastructures, LIBER2019, Dublin, 26 June 2019
This document outlines a briefing on research data management (RDM) at LSBU. It defines RDM and research data, discusses why RDM has gained increased interest and attention due to factors like funder policies and legislative changes. It describes the benefits of RDM for researchers and institutions. It then outlines LSBU's RDM policy, which includes requirements for data management plans, data storage, sharing, and citation. The document discusses next steps for LSBU, including a survey of current practices, case studies, interviews, and launching an institutional data repository in 2016. It notes both opportunities, like training workshops, and challenges to implementing RDM, such as changing researcher behaviors and incentives.
A presentation to accompany a workshop I ran on behalf of UKOLN - http://www.ukoln.ac.uk/ - , University of Bath, at the Repositories Support Project Winter School in 2009 - http://www.rsp.ac.uk/. The workshop was designed to give repository managers an introduction to metadata as it related to their work.
Research Data Shared Service update at DPCJisc RDM
The document discusses the Jisc Research Data Shared Service (RDSS) and its role in coordinating the preservation and sharing of research data. RDSS aims to provide core functionality for researchers to deposit, describe, store, publish, and ensure the integrity of their research data. It will also offer advice and best practices for research data management. The service coordinates efforts across universities and involves partnerships with other organizations to develop shared technology solutions for preserving UK research outputs.
HL7 FHIR FoundationTopics for Non-DevelopersPeter Jordan
Delivered at an HL7 New Zealand Webinar on July 14 2020. Primarily aimed at business analysts struggling to get a 'foothold' on HL7 FHIR Implementation.
A presentation I gave on behalf of UKOLN - http://www.ukoln.ac.uk/ - at the 'Doing Things Differently' event run by the RSP - http://www.rsp.ac.uk/ . The presentation looked at where institutional repositories might go in the future, the practical and the dream scenarios.
Services for the use of human data in cross-border collaborations. Presentation at ECCB 2016 confenrence. Introducing outcomes of Nordic Tryggve project.
This document discusses archive and compliance services from Mainline Information Systems. It explains that Mainline can help organizations comply with regulations by defining what data needs to be archived, building compliance and archive policies, implementing archive solutions, and migrating applicable data. Mainline's archive and compliance service establishes a company-wide process for assessing regulations' IT impacts, identifying risks, defining owners and architecture, and acquiring archive storage solutions. The service is part of Mainline's larger storage assessment methodology, which can deliver related services together or individually.
Keeping FE on track and progressing, by Rob RawlinsonJisc
The document discusses Calderdale College's decision to work with Jisc to develop a new Technology Strategy. It describes Jisc facilitating a strategy development day to determine where the College is now, where it wants to go, and how to get there. The College engaged Jisc to conduct an infrastructure review covering areas like servers, security, backups, and the IT team. Using its expertise in the FE sector, compliance, and technical management, Jisc provides infrastructure reviews that identify risks, engage stakeholders, and offer ongoing support to help colleges make key decisions and get value for money.
The Tryggve project aims to strengthen Nordic biomedical research by facilitating the use of sensitive data in cross-border projects. It works on developing secure computing environments, improving interoperability between Nordic systems, establishing legal guidelines, implementing use cases, and communicating opportunities to Nordic research communities. The project is led by NeIC in collaboration with ELIXIR nodes in Denmark, Finland, Norway, and Sweden and builds on existing technical capacities in each country.
The Dutch National Institute for Public Health and the Environment (RIVM) has been operating since 1909 and is located in Bilthoven, Netherlands. RIVM conducts research, consulting, and project management with the aim of protecting public health. It provides policy support, coordinates national programs, conducts prevention and intervention research, and provides information to professionals and the public. RIVM collects national monitoring data on soil, groundwater, air quality and some health metrics. It uses this data along with external sources to support its work, though challenges include meeting a wide variety of user needs and integrating different databases.
'Making the case for a research data shared service' in the Measuring Success and Changing Culture session Presented during the National RDM Strategies session of the Göttingen-CODATA RDM Symposium 2018
The IG Working Group update discusses:
1) The Information Governance (IG) Working Group formed in 2013 to support those using NHS data in research, with over 100 members from universities and research organizations.
2) Recent meetings covered commissioning a secure cloud environment, resuming audits remotely, and developing use cases between the IG Working Group and other groups.
3) Future plans include more frequent virtual meetings focused on topics like information asset registers, guidance for new members, and maintaining a good relationship with NHS Digital.
The Tryggve project aims to strengthen Nordic biomedical research by facilitating the use of sensitive data in cross-border projects. It will build on existing secure computing resources in Nordic countries to provide services for processing sensitive research data. The project focuses on technical development of these resources, improving interoperability, assessing legal requirements, supporting specific use cases, and outreach. It seeks to empower Nordic research through joint use of secure systems and by addressing challenges around data access, movement, and analysis across borders.
This talk was given by Brianna Marshall and Ryan Schryver at a joint informational session hosted by the College of Letters & Science Pre-Award Services, the College of Agricultural and Life Sciences, the College of Engineering, and Research and Sponsored Programs.
Derilinx - Supporting Open Data PublicationDerilinx
This document discusses challenges to publishing open data and potential solutions. It notes that publishing open data requires resources like time, expertise, and political will. Existing audit tools were time-consuming and mainly used by those who already knew what data to publish. A new approach is proposed using data governance, discovery, profiling, enrichment, and sharing to make the process more efficient, standardized, convenient, and secure. This automated approach could replace much of the previously manual work involved in auditing and publishing open data.
Complying with EPSRC policy: An LSHTM case studyGarethKnight
Overview of LSHTM's approach to complying with EPSRC data management requirements, focussed on security requirements. Presented at Glasgow University on May 8th 2014
Cloud9 is a global provider of connected healthcare solutions that offers a suite of next-generation products serving the entire healthcare continuum. Their vision is to provide flexible solution architecture that allows existing systems and applications to contribute data to a central clinical data repository, while also utilizing next-generation applications to process and present filtered data in real time to provide clinical decision support. Their interoperable stack includes a cloud-based health information exchange, vendor neutral platform, and essential eHealth infrastructure components like an electronic master patient index and authentication services.
This document discusses things to consider before starting big data projects. It identifies key areas like infrastructure, licensing, development costs, talent acquisition, and change management. An effective big data team requires diversity of skills and a collaborative attitude. The document outlines components of a big data ecosystem including technology, talent, business processes, and governance. It emphasizes starting small, scaling projects gradually, and persevering through challenges.
Jisc is working to support funder compliance with metadata standards for research outputs. They have developed the RIOXX metadata application profile and guidelines in collaboration with RCUK and HEFCE. Implementing RIOXX will facilitate consistency in metadata fields, interoperability between systems, and reporting of research outputs from institutions to funders. Jisc is providing plugins, patches, and support to help institutional repositories implement RIOXX as recommended by RCUK.
DIRISA aims to build a national data infrastructure in South Africa with tiered data services. It will maintain Tier 1 data nodes with 8PB of storage and provide research data management services. DIRISA also focuses on developing skills through training programs. Its goals are to support open data and open science by enabling data preservation, sharing and processing in a reliable and controlled manner.
Learn how our Advisory Services team guides customers through two critical processes. The first is the process of assessing where you are today and the second is the process of building a stronger privacy program for tomorrow customized to your organization.
A presentation to accompany a workshop I ran on behalf of UKOLN - http://www.ukoln.ac.uk/ - , University of Bath, at the Repositories Support Project Winter School in 2009 - http://www.rsp.ac.uk/. The workshop was designed to give repository managers an introduction to metadata as it related to their work.
Research Data Shared Service update at DPCJisc RDM
The document discusses the Jisc Research Data Shared Service (RDSS) and its role in coordinating the preservation and sharing of research data. RDSS aims to provide core functionality for researchers to deposit, describe, store, publish, and ensure the integrity of their research data. It will also offer advice and best practices for research data management. The service coordinates efforts across universities and involves partnerships with other organizations to develop shared technology solutions for preserving UK research outputs.
HL7 FHIR FoundationTopics for Non-DevelopersPeter Jordan
Delivered at an HL7 New Zealand Webinar on July 14 2020. Primarily aimed at business analysts struggling to get a 'foothold' on HL7 FHIR Implementation.
A presentation I gave on behalf of UKOLN - http://www.ukoln.ac.uk/ - at the 'Doing Things Differently' event run by the RSP - http://www.rsp.ac.uk/ . The presentation looked at where institutional repositories might go in the future, the practical and the dream scenarios.
Services for the use of human data in cross-border collaborations. Presentation at ECCB 2016 confenrence. Introducing outcomes of Nordic Tryggve project.
This document discusses archive and compliance services from Mainline Information Systems. It explains that Mainline can help organizations comply with regulations by defining what data needs to be archived, building compliance and archive policies, implementing archive solutions, and migrating applicable data. Mainline's archive and compliance service establishes a company-wide process for assessing regulations' IT impacts, identifying risks, defining owners and architecture, and acquiring archive storage solutions. The service is part of Mainline's larger storage assessment methodology, which can deliver related services together or individually.
Keeping FE on track and progressing, by Rob RawlinsonJisc
The document discusses Calderdale College's decision to work with Jisc to develop a new Technology Strategy. It describes Jisc facilitating a strategy development day to determine where the College is now, where it wants to go, and how to get there. The College engaged Jisc to conduct an infrastructure review covering areas like servers, security, backups, and the IT team. Using its expertise in the FE sector, compliance, and technical management, Jisc provides infrastructure reviews that identify risks, engage stakeholders, and offer ongoing support to help colleges make key decisions and get value for money.
The Tryggve project aims to strengthen Nordic biomedical research by facilitating the use of sensitive data in cross-border projects. It works on developing secure computing environments, improving interoperability between Nordic systems, establishing legal guidelines, implementing use cases, and communicating opportunities to Nordic research communities. The project is led by NeIC in collaboration with ELIXIR nodes in Denmark, Finland, Norway, and Sweden and builds on existing technical capacities in each country.
The Dutch National Institute for Public Health and the Environment (RIVM) has been operating since 1909 and is located in Bilthoven, Netherlands. RIVM conducts research, consulting, and project management with the aim of protecting public health. It provides policy support, coordinates national programs, conducts prevention and intervention research, and provides information to professionals and the public. RIVM collects national monitoring data on soil, groundwater, air quality and some health metrics. It uses this data along with external sources to support its work, though challenges include meeting a wide variety of user needs and integrating different databases.
'Making the case for a research data shared service' in the Measuring Success and Changing Culture session Presented during the National RDM Strategies session of the Göttingen-CODATA RDM Symposium 2018
The IG Working Group update discusses:
1) The Information Governance (IG) Working Group formed in 2013 to support those using NHS data in research, with over 100 members from universities and research organizations.
2) Recent meetings covered commissioning a secure cloud environment, resuming audits remotely, and developing use cases between the IG Working Group and other groups.
3) Future plans include more frequent virtual meetings focused on topics like information asset registers, guidance for new members, and maintaining a good relationship with NHS Digital.
The Tryggve project aims to strengthen Nordic biomedical research by facilitating the use of sensitive data in cross-border projects. It will build on existing secure computing resources in Nordic countries to provide services for processing sensitive research data. The project focuses on technical development of these resources, improving interoperability, assessing legal requirements, supporting specific use cases, and outreach. It seeks to empower Nordic research through joint use of secure systems and by addressing challenges around data access, movement, and analysis across borders.
This talk was given by Brianna Marshall and Ryan Schryver at a joint informational session hosted by the College of Letters & Science Pre-Award Services, the College of Agricultural and Life Sciences, the College of Engineering, and Research and Sponsored Programs.
Derilinx - Supporting Open Data PublicationDerilinx
This document discusses challenges to publishing open data and potential solutions. It notes that publishing open data requires resources like time, expertise, and political will. Existing audit tools were time-consuming and mainly used by those who already knew what data to publish. A new approach is proposed using data governance, discovery, profiling, enrichment, and sharing to make the process more efficient, standardized, convenient, and secure. This automated approach could replace much of the previously manual work involved in auditing and publishing open data.
Complying with EPSRC policy: An LSHTM case studyGarethKnight
Overview of LSHTM's approach to complying with EPSRC data management requirements, focussed on security requirements. Presented at Glasgow University on May 8th 2014
Cloud9 is a global provider of connected healthcare solutions that offers a suite of next-generation products serving the entire healthcare continuum. Their vision is to provide flexible solution architecture that allows existing systems and applications to contribute data to a central clinical data repository, while also utilizing next-generation applications to process and present filtered data in real time to provide clinical decision support. Their interoperable stack includes a cloud-based health information exchange, vendor neutral platform, and essential eHealth infrastructure components like an electronic master patient index and authentication services.
This document discusses things to consider before starting big data projects. It identifies key areas like infrastructure, licensing, development costs, talent acquisition, and change management. An effective big data team requires diversity of skills and a collaborative attitude. The document outlines components of a big data ecosystem including technology, talent, business processes, and governance. It emphasizes starting small, scaling projects gradually, and persevering through challenges.
Jisc is working to support funder compliance with metadata standards for research outputs. They have developed the RIOXX metadata application profile and guidelines in collaboration with RCUK and HEFCE. Implementing RIOXX will facilitate consistency in metadata fields, interoperability between systems, and reporting of research outputs from institutions to funders. Jisc is providing plugins, patches, and support to help institutional repositories implement RIOXX as recommended by RCUK.
DIRISA aims to build a national data infrastructure in South Africa with tiered data services. It will maintain Tier 1 data nodes with 8PB of storage and provide research data management services. DIRISA also focuses on developing skills through training programs. Its goals are to support open data and open science by enabling data preservation, sharing and processing in a reliable and controlled manner.
Learn how our Advisory Services team guides customers through two critical processes. The first is the process of assessing where you are today and the second is the process of building a stronger privacy program for tomorrow customized to your organization.
The document summarizes initiatives across four key areas for the President's Management Agenda: IT modernization, shared services, data accountability and transparency, and workforce. For IT modernization, efforts include implementing new laws, protecting federal networks and data, and investing in modernization through projects, emerging technologies, and shared services adoption. For shared services, standards are being established, a governance framework implemented, and common services delivered across areas like assisted acquisition, travel, and real property management. For data accountability, delivering on the 2020 Federal Data Strategy action items, operationalizing governance, and expanding public engagement are priorities. And for the workforce, initiatives focus on reskilling, recruiting, and retaining employees with skills in areas such as cybersecurity
This document provides information about developing a data management plan for grant proposals. It discusses the goals of the workshop which are to learn about data management planning, available resources, develop a draft plan, and receive feedback. It then covers what good data management involves, who requires data management plans, examples of requirements from agencies like NSF, and parts of a generic data management plan. Finally, it discusses resources available for creating plans like the DMPTool.
The document discusses challenges trainers may face when training researchers on data management planning and potential strategies to address these challenges. It identifies six common challenges: 1) researchers not understanding the need for data management planning, 2) researchers being unfamiliar with the concept of research data, 3) researchers not knowing how to describe their data, 4) researchers not thinking ethics and legal compliance applies to their work, 5) the complexity of data privacy and GDPR topics, and 6) researchers not understanding documentation and metadata. The document provides examples and explanations to help trainers overcome these challenges and motivate researchers on the importance of data management planning and its components.
ICRISAT Global Planning Meeting 2019: Research Data Management by Abhishek Ra...ICRISAT
ICRISAT has developed various data management and sharing platforms for better pedigree management, breeding practice analysis, survey management, climate prediction activities and the like, for better data management and to maximize the benefits of these research data as long term assets of ICRISAT and the global scientific community.
This document summarizes a presentation given by ORCID staff at a JISC Consortium Member Event. It discusses ORCID's activities over the last 12 months, including a focus on adding trusted affiliation assertions from research organizations and launching new outreach resources. It provides statistics on ORCID membership and notes upcoming developments like the launch of API version 3.0 with new affiliation types, and vendor integration updates. Challenges of integrating HR systems and collecting information in a centralized manner are also discussed. The presentation concludes by taking questions from attendees.
Using strategy to drive ICT innovation – One not-for-profit's journey - Paul ...Connecting Up
The document summarizes the strategy development process undertaken by AFAC, the peak body for fire and emergency services in Australasia, to drive ICT innovation. It discusses AFAC considering its services, staff, and infrastructure needs to develop its initial 2011-2013 strategy. The strategy focused on improving video conferencing, developing a new website, implementing a CRM, and moving to cloud-based solutions. It then outlines AFAC's implementation process and current 2013 strategy focusing on responsive websites, collaboration tools, BYOD, and preparing infrastructure for the NBN.
Jisc is a UK nonprofit that provides digital services and solutions for higher education, operating shared infrastructure like the Janet network and negotiating deals, with the goals of implementing an enterprise information strategy including improving data quality, governance and management through initiatives like a data warehouse and SharePoint upgrades.
The document discusses tips and recommendations for accelerating an organization's path to General Data Protection Regulation (GDPR) compliance by May 25, 2018. It emphasizes demonstrating compliance efforts through documented privacy programs, legal basis for data processing activities, ongoing data lifecycle management, data consents, monitoring data flows and audit trails, privacy impact assessment procedures, incident response plans, privacy audits, and budgeting for ongoing privacy controls. It also stresses completing readiness actions like appointing a Data Protection Officer, updating subject rights procedures, records of processing activities, consent procedures, privacy notices, and contracts by the deadline.
Good systems development often depends on multiple data management disciplines that provide a solid foundation. One of these is metadata. While much of the discussion around metadata focuses on understanding metadata itself along with its associated technologies, this perspective often represents a typical tool-and-technology focus, which has not achieved significant results to date. A more relevant question when considering pockets of metadata is whether to include them in the scope of organizational metadata practices. By understanding what it means to include items in the scope of your metadata practices, you can begin to build systems that allow you to practice sophisticated ways to advance their data management and supported business initiatives. After a bit of practice in this manner you can position your organization to better exploit any and all metadata technologies in support of business strategy.
Takeaways:
Metadata value proposition: How to leverage metadata in support of your business strategy
Understanding foundational metadata concepts based on the DAMA DMBOK
Guiding principles & lessons learned
A data safe haven is defined as a data access broker that maintains stringent security standards required by data providers, while enforcing access restrictions on researchers. It provides expertise in information governance, security, and data management that most research groups lack. A data safe haven structurally separates duties, requires access approval, and maintains private dedicated resources and automated auditing. It allows access to data not otherwise available and provides a secure platform for sensitive data sharing, research, and collaboration at an expert level that individual projects cannot achieve alone.
Research Data Management: An Introductory Webinar from OpenAIRE and EUDATTony Ross-Hellauer
OpenAIRE and EUDAT co-present this webinar which aims to introduce researchers and others to the concept of research data management (RDM). As well as presenting the benefits of taking an active approach to research data management – including increased speed and ease of access, efficiency (fund once, reuse many times), and improved quality and transparency of research – the webinar will advise on strategies for successful RDM, resources to help manage data effectively, choosing where to store and deposit data, the EC H2020 Open Data Pilot and the basics of data management, stewardship and archiving.
Webinar recording available: http://www.instantpresenter.com/eifl/EB57D6888147
Research Data Management: An Introductory Webinar from OpenAIRE and EUDATOpenAIRE
OpenAIRE and EUDAT co-present this webinar which aims to introduce researchers and others to the concept of research data management (RDM). As well as presenting the benefits of taking an active approach to research data management – including increased speed and ease of access, efficiency (fund once, reuse many times), and improved quality and transparency of research – the webinar will advise on strategies for successful RDM, resources to help manage data effectively, choosing where to store and deposit data, the EC H2020 Open Data Pilot and the basics of data management, stewardship and archiving.
Webinar recording available: http://www.instantpresenter.com/eifl/EB57D6888147
Research Data Management Introduction: EUDAT/Open AIRE Webinar| www.eudat.eu | EUDAT
This webinar discusses research data management. It explains why managing data is important for reproducibility, avoiding data loss, and meeting funder requirements. It outlines Horizon 2020's requirements for open data and describes services from EUDAT and OpenAIRE that can help with the entire data lifecycle from creation to long-term preservation and sharing. The webinar covers best practices like creating data management plans, metadata, using standards, licensing, and selecting repositories to archive and share research data.
InfoFort provides comprehensive digital transformation solutions that help organizations modernize, digitize, automate and secure their information management processes. They offer solutions such as document scanning and capture, electronic document management, workflow automation, business intelligence, cloud backup, records management, and consulting services. InfoFort has over 20 years of experience serving a wide range of industries across the Middle East, Africa and Asia from its 22 locations.
This is an updated version of my ‘Introducing INSPIRE’ presentation.
The slides cover: the what/why/how of INSPIRE, the UK Location Information Infrastructure, and what you need to do to comply.
Both the slides and associated notes are available (click the "notes on slide x" at the top of the comments section of the page)
The JISC Continuing Access and Digital Preservation Strategy 2002-5, presentation to the 2004 JISC-CNI conference, Brighton UK is the fifth of 12 presentations I have selected to mark 20 years in Digital Preservation.
This presentation from 2004 is important largely for the legacy of the Strategy that established bodies such as the Digital Preservation Coalition and the Digital Curation Centre, which still have a major influence today.
The presentation sets out the context and rationale for the Strategy including the predicted growth of electronic publications, scientific data, and data curation. The implications of that growth were seen as:
• Core funding for institutions would not grow in line with information growth;
• A need for more automation and tools;
• A need for new shared services and information infrastructure;
• A significant need for R&D and investment to prepare for this.
Therefore the objectives of the Strategy were:
• As an advocacy document to secure additional funding of £6m over 3 years (2002-5) for new programmes in electronic records management and digital preservation;
• Justify the accompanying implementation plan;
• Provide a longer-term framework and rationale for activity extending beyond 2005.
Similar to Csiro 20180313 tdr_ands_webinar-data access portal (20)
Presentation by Dr Steve McEachern, ADA, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Presentation by Hugo Leroux and Liming Zhu, CSIRO, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
The document summarizes plans by the Australian Government to establish new legislation and institutions to streamline access to and use of public sector data. Key points include:
- A new Commonwealth Data Sharing and Release Act will be introduced in 2019 to provide consistent rules for sharing data and establish a National Data Commissioner to oversee the system.
- The National Data Commissioner will ensure transparency, accountability, security, and appropriate risk management in data sharing.
- New rules will focus on enabling data to be shared for purposes like research and policy-making, while protecting privacy and building public trust in data use.
- The government will continue consulting stakeholders on the legislation to address concerns and help the public understand the reforms.
Presentation by Prof Chris Rowe, ADNet, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Investigator-initiated clinical trials: a community perspectiveARDC
Presentation by Miranda Cumpston, ACTA, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Presentation by Dr Merran Smith, PHRN, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
International perspective for sharing publicly funded medical research dataARDC
Presentation by Olivier Salvado, CSIRO, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Presentation by Prof Lisa Askie, ANZCTR, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Presentation by Dr Davina Ghersi, NHMRC, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
Presentation by Dr Adrian Burton, ARDC, to the 'Unlocking value from publicly funded Clinical Research Data' workshop, cohosted by ARDC and CSIRO at ANU on 6 March 2019.
FAIR for the future: embracing all things dataARDC
FAIR for the future: embracing all things data - Natasha Simons, Keith Russell and Liz Stokes, presented at Taylor & Francis Scholarly Summits in Sydney 11 Feb 2019 and Melbourne 14 Feb 2019.
How to make your data count webinar, 26 Nov 2018ARDC
This document outlines the Make Data Count (MDC) initiative to standardize and promote the tracking of research data usage metrics. MDC has developed a Code of Practice for data usage logs, built an open hub to aggregate standardized usage data, and implemented tracking and display of usage metrics at their own repositories. They encourage other repositories to follow five simple steps to Make Their Data Count: 1) Read the Code of Practice, 2) Process usage logs, 3) Send logs to the hub, 4) Pull usage metrics from the hub, and 5) Display metrics. Future work includes outreach, iteration on implementations, and expanding metrics beyond DOIs.
Main Java[All of the Base Concepts}.docxadhitya5119
This is part 1 of my Java Learning Journey. This Contains Custom methods, classes, constructors, packages, multithreading , try- catch block, finally block and more.
How to Setup Warehouse & Location in Odoo 17 InventoryCeline George
In this slide, we'll explore how to set up warehouses and locations in Odoo 17 Inventory. This will help us manage our stock effectively, track inventory levels, and streamline warehouse operations.
it describes the bony anatomy including the femoral head , acetabulum, labrum . also discusses the capsule , ligaments . muscle that act on the hip joint and the range of motion are outlined. factors affecting hip joint stability and weight transmission through the joint are summarized.
A review of the growth of the Israel Genealogy Research Association Database Collection for the last 12 months. Our collection is now passed the 3 million mark and still growing. See which archives have contributed the most. See the different types of records we have, and which years have had records added. You can also see what we have for the future.
Walmart Business+ and Spark Good for Nonprofits.pdfTechSoup
"Learn about all the ways Walmart supports nonprofit organizations.
You will hear from Liz Willett, the Head of Nonprofits, and hear about what Walmart is doing to help nonprofits, including Walmart Business and Spark Good. Walmart Business+ is a new offer for nonprofits that offers discounts and also streamlines nonprofits order and expense tracking, saving time and money.
The webinar may also give some examples on how nonprofits can best leverage Walmart Business+.
The event will cover the following::
Walmart Business + (https://business.walmart.com/plus) is a new shopping experience for nonprofits, schools, and local business customers that connects an exclusive online shopping experience to stores. Benefits include free delivery and shipping, a 'Spend Analytics” feature, special discounts, deals and tax-exempt shopping.
Special TechSoup offer for a free 180 days membership, and up to $150 in discounts on eligible orders.
Spark Good (walmart.com/sparkgood) is a charitable platform that enables nonprofits to receive donations directly from customers and associates.
Answers about how you can do more with Walmart!"
How to Manage Your Lost Opportunities in Odoo 17 CRMCeline George
Odoo 17 CRM allows us to track why we lose sales opportunities with "Lost Reasons." This helps analyze our sales process and identify areas for improvement. Here's how to configure lost reasons in Odoo 17 CRM
This presentation was provided by Steph Pollock of The American Psychological Association’s Journals Program, and Damita Snow, of The American Society of Civil Engineers (ASCE), for the initial session of NISO's 2024 Training Series "DEIA in the Scholarly Landscape." Session One: 'Setting Expectations: a DEIA Primer,' was held June 6, 2024.
1. CSIRO Data Access Portal
Trusted Data Repository Project
INFORMATION MANAGEMENT AND TECHNOLOGY
Mikaela Lawrence
Data Librarian
13 March 2018
Janet Applegate
Data Librarian
Sue Cook
Data Librarian
Susan McMaster
Senior Legal Counsel
David Lemon
Group Leader, Land and
Water
2. Overview
• Aims of the Trusted Data Repository (TDR) project
• Data Access Portal (DAP) background
• Requirements for self-assessment as a TDR
• Gathering the evidence
• Applying for certification
• Hosting externally owned data
TDR Project | Mikaela Lawrence and Janet Applegate2 |
3. Aims of the Trusted Data Repository Project
• To investigate certifying the Data Access Portal as a Trusted Data
Repository
• To develop a plan to implement changes to policies and
procedures to support CSIRO business requirements and
certification
• To develop a plan to implement systems changes that may be
required to the DAP infrastructure
• To engage with external entities to host externally owned data as a
test case
• To prepare an application for certification
TDR Project | Mikaela Lawrence and Janet Applegate3 |
4. Data Access Portal Background
TDR Project | Mikaela Lawrence and Janet Applegate4 |
data.csiro.au
5. Requirements for self-assessment as a Trusted
Data Repository
• Core Trust Seal publish completed applications on their website
• Helpful to read other published applications
• Data Archiving Networked Services (DANS)
• UK Data Archive
• Analysed evidence from published applications against the
requirements to inform next process of gathering evidence
• Our report to ANDS will be available on their website with a list
of references we found helpful
• Helpful extended guidance document and webinar available on
the Core Trust Seal website
TDR Project | Mikaela Lawrence and Janet Applegate5 |
6. Gathering the evidence
REQUIREMENT EVIDENCE NEW OR EXISTING PUBLIC OR INTERNAL CSIRO DEPARTMENT
R1. Mission and
scope
Mission statement New Public Research Data
Support
R2. Licences Licence deeds Existing Public Legal
R3. Continuity of
access
IMT Business
continuity plan
Existing Internal Information
Management and
Technology
R4. Confidentiality
and ethics
Data deposit
checklist
Existing Internal Legal
Business
Development
Ethics committee
R5. Funding and
staffing
IMT Strategy 2020 Existing Internal Information
Management and
Technology
R6. Expert guidance DAP user guide Existing Internal Information
Management and
Technology
TDR Project | Mikaela Lawrence and Janet Applegate6 |
7. Applying for certification
• Data Seal of Approval ceased applications October 2017
• Our application was submitted with Core Trust Seal February
2018
• Our application will be processed when the Core Trust Seal legal
entity is finalised
• Currently waiting for this to pay the administration fee 1,000
EUR
• Getting an account with the application management tool
provides access to a staff member who promptly answers your
questions
• One thing to note is that once the application is submitted it is
locked
TDR Project | Mikaela Lawrence and Janet Applegate7 |
8. Hosting externally owned data
• Investigated policies, procedures and system changes to host
externally owned data
• Why was it part of our strategy
• Developed Collection Development Principles
• https://confluence.csiro.au/display/daphelp/Data+Collection+Development+Principles
• Developed Data Deposit Conditions and Data Deposit Form
• https://confluence.csiro.au/display/daphelp/External+Data+Applications
• System changes identified for future DAP development
• Significant input by staff from Legal, Information Management and
Technology, and researchers
TDR Project | Mikaela Lawrence and Janet Applegate8 |
9. This project is supported by the Australian National Data Service (ANDS)
ANDS is supported by the Australian Government through the National Collaborative
Research Infrastructure Strategy Program
10. Information Management and
Technology
Mikaela Lawrence
Data Librarian
t +61 8 8303 8439
e Mikaela.lawrence@csiro.au
w www.csiro.au
Information Management and
Technology
Janet Applegate
Data Librarian
t +61 8 9333 6046
e janet.applegate@csiro.au
w www.csiro.au
INFORMATION MANAGEMENT AND TECHNOLOGY
Thank you
Editor's Notes
This background information of the repository provides context and relates to the first section of the application.
Institutional repository
Deposit is by self-service and is accessible to CSIRO staff using their institutional username and login
Publicly available collections 2,100 and storage of over 1PB of data
The subject matter includes a broad range of sciences with 17/22 Field of Research Codes represented
Software and storage infrastructure of the DAP are developed and managed by CSIRO Information Management and Technology
A deposit checklist ensures depositors consider key quality and legal issues prior to deposit
A Science Leader approves the collection after assessing it for quality and legal issues prior to publishing
The repository offers a few different curation levels based on depositor needs
Content is distributed as deposited
Basic curation (brief checking or addition of basic metadata or documentation)
Enhanced curation (conversion to new formats)
Designated community includes:
Researchers
Industry
Policy makers
General public
Students
Data users can download the majority of collections without a user login. A smaller number of collections require registration to access the files.
To help with understanding the 16 requirements of the self-assessment we found reading through other’s applications and considering the evidence they had used was helpful.
Applications with the Core Trust Seal are now open with certified repositories applications being published on their website.
Applications that were useful
Data Archiving Networked Services (DANS) – Is part of the Secretariat of the Core Trust Seal and have been involved in developing the trusted repository requirements.
UK Data Archive – had a well organised application with detailed evidence.
To help with the next step of gathering and determining what evidence to use for CSIRO an analysis was undertaken of the types of evidence used in a few of the published applications.
We have included a list of references we used to inform our understanding of the requirements in the appendix of our report to ANDS. This will be published on the ANDS website.
There is a helpful extended guidance document and webinar available on the Core Trust Seal website that discusses the requirements and reviewer’s expectations.
The certifying body have a preference for evidence that is public and we found this a major challenge.
In this table are examples of some of the evidence we used for the organisational requirements from R1 to R6.
It gives an idea of new evidence we developed such as the mission statement. Also the difficulty with providing publicly available evidence. It also provides information about the departments we consulted for expert guidance within our organisation such as legal, business development and staff from within our own department of information management and technology.
We have attempted to overcome the challenge with providing public evidence with the development of the Collection Development Principles, Preservation Principles and an update of the data management LibGuide. These provide a summary of the processes for requirements R7 to R16 which cover Digital Object Management and Technology. These public documents are available from the CSIRO DAP Help page.
What stage are we up to?
Data Seal of Approval ceased applications October 2017 and we missed this deadline
Our application was submitted with Core Trust Seal in February 2018 as part of their soft launch to test their system
Processing of our application will begin when the Core Trust Seal legal entity is finalised
We are currently waiting to pay the administration fee of 1,000 EUR
We found getting an account for the application management tool gave access to a staff member who promptly answered our questions.
A word of warning once an application is submitted it is locked however we found the helpful staff member could amend a small error we had made.
As part of the project we investigated policies, procedures and system changes to host externally owned data.
Why was this part of our project?
As an organisation we understand the value for new research possibilities in drawing together research data produced by organisations beyond CSIRO and across the research community.
Researchers from the Land and Water Business Unit are interested in investigating a trusted repository for water research data. The vision is to bring together nationally significant data from a wide range of organisations for the benefit of industry, policy and research.
What did we implement?
We defined the scope for accepting data in the Collection Development Principles. For example data should be aligned with CSIROs functions set out in section 9 of the Science and Research Industry Act 1949.
Terms and conditions were developed into an agreement to be signed by the depositing organisation called the Data Deposit Conditions.
Some examples of the terms and conditions include:
Data is free from embargo,
It has not been previously published with a DOI,
Data is owned by the depositing organisation,
Data complies with ethics, privacy, confidentiality, contractual/licensing, and copyright obligations, and
Data will have a CC-BY licence applied.
A Data deposit form was developed for the data depositor to provide metadata.
Procedures were developed for depositing externally owned data
The DAP is a self-service repository with access to deposit by CSIRO staff only. The Research Data Service will liaise with the external data owner to facilitate the deposit of data.
A CSIRO Science Leader with domain knowledge of the data will be the approver of the collection. This is part of the risk management framework that all public data collections in the DAP are subject to. It involves a check of the data quality and legal issues prior to publishing.
Future enhancements to the DAP include:
Ability to customise a collection landing page such as the addition of logos for external organisations
Automate the Data Deposit Conditions within the existing DAP software
To develop a self-serve deposit interface for external organisations
This project has had some immediate benefits:
Applying for recommended repository status with journal publishers and funders has meant we have had information ready to use.
We have had enquiries from our researchers for publishing externally owned data and we have a response with policies and procedures in place.