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2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Changing the Narrative for Women &
Girls - Treatment, Recovery & More
Alton J. King, MBA
Public Health Advisor (SAMHSA/CSAT/HSB/HIV)
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Disclosures
Presenters have no financial interest to disclose.
This continuing education activity is managed and accredited by
Professional Education Services Group in cooperation with HSRA
and LRG. PESG, HSRA, LRG and all accrediting organization do not
support or endorse any product or service mentioned in this
activity.
PESG, HRSA, and LRG staff has no financial interest to disclose.
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Obtaining CME/CE Credit
If you would like to receive continuing
education credit for this activity, please
visit:
http://ryanwhite.cds.pesgce.com
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Learning Objectives
At the conclusion of this activity, the participant will be able to:
1. Recognize how the SAVA syndemic affects your clients
2. Discuss innovative approaches to engage women where they
are at and to move them forward (e.g., TCE-HIV, NORA's
Recovery Support Service Model)
3. Understand how Recovery Support Services can assist at-risk
populations
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
AIDS 2016 (Durban) - Quotes
o “We heard all about vaginas. But vaginas are
attached to people …”
o “HIV operates in a gendered world and it thrives
because of that.” - Elizabeth Bukusi, KEMRI
http://us7.campaign-archive1.com/?u=57d869773227fef9486fa97dd&id=cf26fcab7e&e=dc5c717e22
“I have a penis! I have a vagina! I have sex!” - Stella
Iwuagwu, 47, from Lagos
o “recently rediscovered her
sexual freedom as a young,
African woman on PrEP” -
Buhle, conference attendee who educated her physician
by walking through the CDC website together with him
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Location & Population (HIV)
Avac.org/infographics
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
A Call to Action - 2020
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Target Achievement Overlooks …
Px Wire: A Quarterly Update on HIV PreventionResearch | Volume 7 | No.4 | October–December 2014
Today’stargets
leavea
prevention
gap.
UNAIDS 2014 Targets for 2020
Diagnosed
OnTreatment
Virally Suppressed
90% 90% 90%
On
Treatment
Needle
Exchange
Ending the
AIDS epidemic
by 2030 takes
comprehensive
targets and
action.
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Women – Long Ignored Globally
o 1 out of 3 substance users and 1 out of 5 substance
users in treatment are women
o Pooled HIV prevalence among injection drug users
(IDUs) who are women (13%) vs. men (9%) [30 countries]
o HIV/AIDS is the leading cause of death among
women of reproductive age (15 – 49)
o In 2015, women accounted for :
• 47% (900,000) of new HIV infections
• 51% (17.8 million) of PLWHAs
UNAIDS, 2015 estimates from the AIDSinfo online database.*; http://www.avac.org/blog/i-bleed-i-rise-day-4-aids-2016; United Nations Office on Drugs and Crime (2015) WorldDrug Report, p. 17
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Universal Factors for Women
 Gender-based (GBV) and intimate partner violence
(IPV)
 Gender inequality and discrimination
o Inclusive of unequal cultural, social, and economic status
 Women living with HIV often experience violence
due to their HIV status, including violations of their
sexual and reproductive rights
 Lack of access to healthcare services
 Discriminatory criminal laws linked to HIV
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Additional Context in the U.S.
 PTSD and trauma are common among women with
GBV histories whereby substances become coping
strategies and/or a form of self-medication
 Experiencing the substance abuse, violence, and
HIV/AIDS (SAVA) syndemic ↑ (nearly 7x) the likelihood
of depressive symptoms
 Black (63% of new HIV infections) and Latina women
are disproportionately affected by HIV and IPV
o 40.4% of reported lifetime IPV and 80% of new HIV infections
 HIV+ women experienced IPV 2x the national rate
Schwartz et al, 2014; Illangasekare, 2013; Morales-Aleman et. al, 2014; Chen et al., 2013; Machtinger,et al, 2012
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Is the Puzzle Complete?
Substance use disorders (SUDs) and co-occurring disorders
(CODs) facilitators of risky behavior and HIV progression
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Substance Use in America
Only 11.6% (2.6 million) received SUD treatment in 2014
>85% did NOT receive any form of treatment, age 12 or older
2014 National Survey on Drug Use and Health (NSDUH) - SAMHSA
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Vital Signs January 2014 (CDC); Source: CDCBehavioral Risk Factor Surveillance System (BRFSS), United states 2011-2013
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Heroin, Opiates Morphs the “War”
2014 NSDUH(SAMHSA); National Vital Statistics System, 2002-2013 (CDC); VitalSigns July 2013 (CDC)
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Treatment, Justice, & “The War”
[1] Szalavitz, M. (Nov. 7, 2011). “Study: WhitesMore Likelyto Abuse Drugs Than Blacks.” Time.
[2] “Drug Facts: Treatment Statistics.” (March 2011). National Institute on Drug Abuse
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Women’s Rights – Collateral?
http://www.huffingtonpost.com/2014/04/04/arrests-of-pregnant-women_n_5083480.html
http://www.theatlantic.com/health/archive/2015/05/into-the-body-of-another/392522/
Most pregnant women arrested
in South Carolina, the state with
the most cases 1973-2005, were
black
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Another Causality in the “War”
http://www.huffingtonpost.com/2014/04/04/arrests-of-pregnant-women_n_5083480.html
http://www.theatlantic.com/health/archive/2015/05/into-the-body-of-another/392522/
Some drug-using women have
even become skittish about
receiving prenatal care …
“There's no evidence that
punitive responses promote
healthy moms and babies, … if
you seek medical attention, you
could go to jail, or you could lose
your children.”
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
President Barack H. Obama
World AIDS Day 2015
(March 6)
“... ending the epidemic
also requires a focus on
prevention. Especially
when it comes to
empowering our young
women and girls to
protect their own health,
secure economic
opportunity, and pursue
their dreams.”
Making Women a Priority
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Where Women Were At (TCE-HIV)
The TCE-HIV: Minority Women program has engaged
clients in the treatment of:
And other health and psychosocial conditions*:
 >80% self-reported traumatic experiences
 <3.5% HIV seropositivity
 <7.2% HCV seropositivity
TCE-HIV: Minority Womenprogram (FY13) as of February 2015; *Year 1 (September 2013 – August 31, 2014)
Substance SUD COD ALL Polysubstance SUD COD ALL
Alcohol 1st 1st 1st Alcohol + Marijuana 3rd 1st 1st
Marijuana 2nd 2nd 2nd Alcohol + Cocaine 1st 2nd 2nd
Cocaine 3rd 3rd 3rd Alcohol + Marijuana + Cocaine 2nd 3rd 3rd
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Client Demographics (TCE-HIV)
 Primarily Black (41.5%) and
Latino (43.6%)
 Transgender (2.6%), Males
(0.4%)
 Some HS or HS/GED (56.7%)
 Income < $20k (95%)
 96.3% live below 200% FPL
TCE-HIV: Minority Womenprogram (FY13) as of February 2015
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Changing Lives – Women & Clients
TCE-HIV: Minority Womenprogram (FY13) as of February 2015
Measure Type # Valid
Cases
% at Intake % at 6-
months
% (∆)
Change
Employment/Education: were currently
employed or attending school
1,799 24.0 32.4 35.3
Stability in Housing: had a permanent place to
live in the community
1,801 49.2 54.4 10.5
Abstinence: No alcohol or illegal drugs 1,780 52.1 68.8 32.0
Measure Type # Valid
Cases
% at Intake % at 6-
months
% (∆)
Change
Trouble controlling violent behavior 1,762 15.0 9.9 -33.7
Injected illegal drugs 1,787 4.5 2.8 -38.3
Had unprotected sexual contact 543 72.4 64.6 -10.7
Had unprotected sexual contact with someone
high on any substance
298 30.2 18.5 -38.9
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
We Are Trauma-informed!!
• Realizes widespread
impact of trauma and
paths for recovery;
• Recognizes signs and
symptoms of trauma;
• Responds by integrating
trauma knowledge; and
• Seeks to actively resist
re-traumatization
SAMHSA's Concept of Trauma and Guidance for a Trauma-Informed Approach
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Overcoming Traumatic Effects
When trauma-informed care (TIC) is integrated into
SUD treatment, it can:
 enhance HIV care retention and medication
adherence
 improve the health/wellness of people living with or
at risk for HIV and have histories of trauma
 reduce disparities among communities of color
 enrich the quality of life for communities of color
SAMHSA’s TIP 57: Trauma-Informed Care in Behavioral Health Services
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
VITEL Takes On the SAVA Syndemic
 Violence Intervention To Enhance Lives (VITEL)
o SMAIF funded (2015 award, 2016 continuation)
o Novel intervention incorporating IPV screening with
concurrent SUD screening and follow-on referral services
o A 2013 White House report reaffirms attention on
trauma, HIV, and violence against women & young girls
 To-date results
o >500 clients and nearly 100 staff educated on IPV
o 73 clients received intensive IPV-specific classes
o 22.4% clients screened positive for IPV (past 30 days)
o 93% clients referred to trauma-informed services
Secretary’s Minority AIDS Initiative Fund (SMAIF) provides supplemental funding to existing TCE-HIV: Minority Women(TFY13) grantees per funding opportunity announcements (FOAs) TI-15-013 and TI-16-010
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Utilizing a More Holistic Approach
Women of color & clients are able to maintain/sustain
their HIV negative status or viral suppression:
TCE-HIV: Minority Womenprogram (FY13)
o Provides SUD/COD treatment
o Provides TIC services in a safe and
trusting environment
o Provides HIV and Hepatitis testing
o Provides coordinated care for SUD,
HIV, Hepatitis, IPV and trauma
o Enhances overall health and
wellbeing
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Snapshot – Augusta U.
• Testimonial #1: Perseverance pays (PLWHA)
 In/out treatment for 4 years with multiple relapse episodes. History of
chronic paranoid schizophrenia, crack cocaine use, medication non-
compliance, and personal instability (e.g., multiple incarcerations,
unstable housing). Once re-engaged in HIV care CD4 = 147 & VL = 564k,
now CD4 = 300 & VL undetectable. Stably housed (1 yr) and sustained.
• Testimonial #2: Anchor for new family (PLWHA)
 Referred to SUD Tx (crack cocaine) in December 2013. Positive for HIV,
HCV, and syphilis. Became pregnant one year later, referred to prenatal
care while sustaining HIV care. Crack relapse caused premature delivery
(26 wks), linked to SUD Tx and mental health (MH) Tx and post-natal
care. Referred to long-term SUD and MH services, stably housed.
TCE-HIV: Minority Women(FY13) grantee
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Snapshot – The Village
• Testimonial #1: Convincing local government
 The Virgin Islands (VI) Legislative Finance Committee unanimously
approved funding to continue providing many of the core gender-
specific services provided by Susanna’s Place. Although significantly
less than current federal (SAMHSA) funding, Susanna’s Place will
continue to support the of women of color in need on the island.
• Testimonial #2: Incredible client & peer (PLWHA)
 C.A. has been invited to represent the VI’s Positive Women’s Network
USA and the program at the 2016 National Leadership Summit for
Women Living with HIV (September 2016). She joined the program 2+
years ago and presented with chronic crack addiction, being HIV+, and
other serious health concerns.
TCE-HIV: Minority Women(FY13) grantee
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Snapshot – PROCEED
• Personal story #1 (PLWHA)
 48 year-old Latina: experienced trauma and begun having unprotected
sex, and ↑ drug and alcohol use. Tested HIV+, referred to care and
treatment, received case management services, and was linked to
charity care, HOPWA, and other services. Now living a healthy life.
• Personal story #2 (PLWHA)
 52 year-old Black woman: PTSD due to ACE at age 5-6. Initiated cocaine
use at age 43 to deal with anxiety and depression, later diagnosed with
HIV in 1998. The program is helping her to restore her broken self.
TCE-HIV: Minority Women(FY13) grantee
“The Women’s Wellness and Recovery Care Program has been helpful in reducing my
harmful behaviors. As I learned to respect myself and my body, my confidence and
assertiveness in communicating my needs has improved. I don’t let my traumatic past
dictate my present life. I feel great and I love myself more!”
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Snapshot – Northeastern U.
• Co-located in a primary care clinic, can provide OBOT
• Utilizes the Boston Consortium Model, recently
introduced trauma-informed yoga
• Provide an intervention called Love, Sex and Choice
(LSC) - watch 12, 20-minute episodes
TCE-HIV: Minority Women(FY13) grantee
“Like, it was just really real. It could happen to anyone of us, if we
didn’t take care of us. And that was an eye opening. It was like
‘Damn you really need to start taking care of yourself.’ You really
need to start going to primary care. You really need to start
protecting yourself.”
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Snapshot – UCC
• UCC’s Cadre of Services
TCE-HIV: Minority Women(FY13) grantee
“I have learned to take care of myself and other friends, I gain more insight about the
importance of protecting against sexually transmitted diseases. I've also spread the
word and shared educational materials and condoms with a friend that is exhibiting
high-risk behaviors.”
Outreach Transportation HIV Rapid Testing HEP C& B Testing Medical services
Risk Reduction
Plan
Active Case
Management and
linkages with
services
Personalized
Treatment
Planning
Individual
Counseling using
EBP’s
Clinical
Assessment
Educational and
self-care materials
Prevention Kits
(condom,
lubricants, etc.)
Community Health
Fairs
Recovery and
Wellness Retreat
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Snapshot – LESC
• Client Demographics (n = 360):
 Primarily African-American/Black (62%) and Latino (19%) women;
nearly 50% under the age of 40 (age 8 to 63); 20% were LGBT
 33% had unprotected sex (past 3 mos); 38% have exchanged sex for
money or drugs (past 12 mos)
 23% are or have been an injecting drug user (IDU) and nearly 43% had
been a victim of sexual assault or experienced some form of IPV
• Client Outcomes:
 88.6% were abstinent at discharge and 39% were employed (up from
3.8%)
 25% had stable housing at discharge (up from 8.3%)
 IDU ↓ by 81.8% and unprotected sexual contact ↓ by 25%
TCE-HIV: Minority Women(FY13) grantee
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Snapshot – Gaudenzia
• Testimonial #1: One very inspiring lady
 Recently completed course work to become a Certified Recovery
Specialist (taking test soon). Also, she recently celebrated one year in
recovery - many emotions arose, including fear, sadness, regret, pride,
and happiness. She has become strong enough to confront her peers
and hold them accountable to support their recovery and has refused
to allow their poor decisions to affect her recovery as well.
• Testimonial #2: A self-reliant woman (PLWHA)
 Initially housed in a halfway house for co-occurring women, she is fairly
independent. She utilized the BCC ReEntry Housing Assistance Program
to help her find her own apartment (as of 4/1/16) and continues to
utilize her supports today.
TCE-HIV: Minority Women(FY13) grantee
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
Always Remember That …
“Each of us has a
role to play in
giving every man,
woman and child
on Earth access to
life-saving
treatment and
care.”
President Barack H. Obama
World AIDS Day 2012
(December 1)
2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
THANK YOU!!
Alton.King@samhsa.hhs.gov

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Changing the Narrative for Women & Girls (Tx, Recovery)

  • 1. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Changing the Narrative for Women & Girls - Treatment, Recovery & More Alton J. King, MBA Public Health Advisor (SAMHSA/CSAT/HSB/HIV)
  • 2. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Disclosures Presenters have no financial interest to disclose. This continuing education activity is managed and accredited by Professional Education Services Group in cooperation with HSRA and LRG. PESG, HSRA, LRG and all accrediting organization do not support or endorse any product or service mentioned in this activity. PESG, HRSA, and LRG staff has no financial interest to disclose.
  • 3. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Obtaining CME/CE Credit If you would like to receive continuing education credit for this activity, please visit: http://ryanwhite.cds.pesgce.com
  • 4. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Learning Objectives At the conclusion of this activity, the participant will be able to: 1. Recognize how the SAVA syndemic affects your clients 2. Discuss innovative approaches to engage women where they are at and to move them forward (e.g., TCE-HIV, NORA's Recovery Support Service Model) 3. Understand how Recovery Support Services can assist at-risk populations
  • 5. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
  • 6. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT
  • 7. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT AIDS 2016 (Durban) - Quotes o “We heard all about vaginas. But vaginas are attached to people …” o “HIV operates in a gendered world and it thrives because of that.” - Elizabeth Bukusi, KEMRI http://us7.campaign-archive1.com/?u=57d869773227fef9486fa97dd&id=cf26fcab7e&e=dc5c717e22 “I have a penis! I have a vagina! I have sex!” - Stella Iwuagwu, 47, from Lagos o “recently rediscovered her sexual freedom as a young, African woman on PrEP” - Buhle, conference attendee who educated her physician by walking through the CDC website together with him
  • 8. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Location & Population (HIV) Avac.org/infographics
  • 9. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT A Call to Action - 2020
  • 10. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Target Achievement Overlooks … Px Wire: A Quarterly Update on HIV PreventionResearch | Volume 7 | No.4 | October–December 2014 Today’stargets leavea prevention gap. UNAIDS 2014 Targets for 2020 Diagnosed OnTreatment Virally Suppressed 90% 90% 90% On Treatment Needle Exchange Ending the AIDS epidemic by 2030 takes comprehensive targets and action.
  • 11. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Women – Long Ignored Globally o 1 out of 3 substance users and 1 out of 5 substance users in treatment are women o Pooled HIV prevalence among injection drug users (IDUs) who are women (13%) vs. men (9%) [30 countries] o HIV/AIDS is the leading cause of death among women of reproductive age (15 – 49) o In 2015, women accounted for : • 47% (900,000) of new HIV infections • 51% (17.8 million) of PLWHAs UNAIDS, 2015 estimates from the AIDSinfo online database.*; http://www.avac.org/blog/i-bleed-i-rise-day-4-aids-2016; United Nations Office on Drugs and Crime (2015) WorldDrug Report, p. 17
  • 12. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Universal Factors for Women  Gender-based (GBV) and intimate partner violence (IPV)  Gender inequality and discrimination o Inclusive of unequal cultural, social, and economic status  Women living with HIV often experience violence due to their HIV status, including violations of their sexual and reproductive rights  Lack of access to healthcare services  Discriminatory criminal laws linked to HIV
  • 13. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Additional Context in the U.S.  PTSD and trauma are common among women with GBV histories whereby substances become coping strategies and/or a form of self-medication  Experiencing the substance abuse, violence, and HIV/AIDS (SAVA) syndemic ↑ (nearly 7x) the likelihood of depressive symptoms  Black (63% of new HIV infections) and Latina women are disproportionately affected by HIV and IPV o 40.4% of reported lifetime IPV and 80% of new HIV infections  HIV+ women experienced IPV 2x the national rate Schwartz et al, 2014; Illangasekare, 2013; Morales-Aleman et. al, 2014; Chen et al., 2013; Machtinger,et al, 2012
  • 14. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Is the Puzzle Complete? Substance use disorders (SUDs) and co-occurring disorders (CODs) facilitators of risky behavior and HIV progression
  • 15. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Substance Use in America Only 11.6% (2.6 million) received SUD treatment in 2014 >85% did NOT receive any form of treatment, age 12 or older 2014 National Survey on Drug Use and Health (NSDUH) - SAMHSA
  • 16. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Vital Signs January 2014 (CDC); Source: CDCBehavioral Risk Factor Surveillance System (BRFSS), United states 2011-2013
  • 17. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Heroin, Opiates Morphs the “War” 2014 NSDUH(SAMHSA); National Vital Statistics System, 2002-2013 (CDC); VitalSigns July 2013 (CDC)
  • 18. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Treatment, Justice, & “The War” [1] Szalavitz, M. (Nov. 7, 2011). “Study: WhitesMore Likelyto Abuse Drugs Than Blacks.” Time. [2] “Drug Facts: Treatment Statistics.” (March 2011). National Institute on Drug Abuse
  • 19. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Women’s Rights – Collateral? http://www.huffingtonpost.com/2014/04/04/arrests-of-pregnant-women_n_5083480.html http://www.theatlantic.com/health/archive/2015/05/into-the-body-of-another/392522/ Most pregnant women arrested in South Carolina, the state with the most cases 1973-2005, were black
  • 20. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Another Causality in the “War” http://www.huffingtonpost.com/2014/04/04/arrests-of-pregnant-women_n_5083480.html http://www.theatlantic.com/health/archive/2015/05/into-the-body-of-another/392522/ Some drug-using women have even become skittish about receiving prenatal care … “There's no evidence that punitive responses promote healthy moms and babies, … if you seek medical attention, you could go to jail, or you could lose your children.”
  • 21. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT President Barack H. Obama World AIDS Day 2015 (March 6) “... ending the epidemic also requires a focus on prevention. Especially when it comes to empowering our young women and girls to protect their own health, secure economic opportunity, and pursue their dreams.” Making Women a Priority
  • 22. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Where Women Were At (TCE-HIV) The TCE-HIV: Minority Women program has engaged clients in the treatment of: And other health and psychosocial conditions*:  >80% self-reported traumatic experiences  <3.5% HIV seropositivity  <7.2% HCV seropositivity TCE-HIV: Minority Womenprogram (FY13) as of February 2015; *Year 1 (September 2013 – August 31, 2014) Substance SUD COD ALL Polysubstance SUD COD ALL Alcohol 1st 1st 1st Alcohol + Marijuana 3rd 1st 1st Marijuana 2nd 2nd 2nd Alcohol + Cocaine 1st 2nd 2nd Cocaine 3rd 3rd 3rd Alcohol + Marijuana + Cocaine 2nd 3rd 3rd
  • 23. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Client Demographics (TCE-HIV)  Primarily Black (41.5%) and Latino (43.6%)  Transgender (2.6%), Males (0.4%)  Some HS or HS/GED (56.7%)  Income < $20k (95%)  96.3% live below 200% FPL TCE-HIV: Minority Womenprogram (FY13) as of February 2015
  • 24. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Changing Lives – Women & Clients TCE-HIV: Minority Womenprogram (FY13) as of February 2015 Measure Type # Valid Cases % at Intake % at 6- months % (∆) Change Employment/Education: were currently employed or attending school 1,799 24.0 32.4 35.3 Stability in Housing: had a permanent place to live in the community 1,801 49.2 54.4 10.5 Abstinence: No alcohol or illegal drugs 1,780 52.1 68.8 32.0 Measure Type # Valid Cases % at Intake % at 6- months % (∆) Change Trouble controlling violent behavior 1,762 15.0 9.9 -33.7 Injected illegal drugs 1,787 4.5 2.8 -38.3 Had unprotected sexual contact 543 72.4 64.6 -10.7 Had unprotected sexual contact with someone high on any substance 298 30.2 18.5 -38.9
  • 25. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT We Are Trauma-informed!! • Realizes widespread impact of trauma and paths for recovery; • Recognizes signs and symptoms of trauma; • Responds by integrating trauma knowledge; and • Seeks to actively resist re-traumatization SAMHSA's Concept of Trauma and Guidance for a Trauma-Informed Approach
  • 26. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Overcoming Traumatic Effects When trauma-informed care (TIC) is integrated into SUD treatment, it can:  enhance HIV care retention and medication adherence  improve the health/wellness of people living with or at risk for HIV and have histories of trauma  reduce disparities among communities of color  enrich the quality of life for communities of color SAMHSA’s TIP 57: Trauma-Informed Care in Behavioral Health Services
  • 27. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT VITEL Takes On the SAVA Syndemic  Violence Intervention To Enhance Lives (VITEL) o SMAIF funded (2015 award, 2016 continuation) o Novel intervention incorporating IPV screening with concurrent SUD screening and follow-on referral services o A 2013 White House report reaffirms attention on trauma, HIV, and violence against women & young girls  To-date results o >500 clients and nearly 100 staff educated on IPV o 73 clients received intensive IPV-specific classes o 22.4% clients screened positive for IPV (past 30 days) o 93% clients referred to trauma-informed services Secretary’s Minority AIDS Initiative Fund (SMAIF) provides supplemental funding to existing TCE-HIV: Minority Women(TFY13) grantees per funding opportunity announcements (FOAs) TI-15-013 and TI-16-010
  • 28. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Utilizing a More Holistic Approach Women of color & clients are able to maintain/sustain their HIV negative status or viral suppression: TCE-HIV: Minority Womenprogram (FY13) o Provides SUD/COD treatment o Provides TIC services in a safe and trusting environment o Provides HIV and Hepatitis testing o Provides coordinated care for SUD, HIV, Hepatitis, IPV and trauma o Enhances overall health and wellbeing
  • 29. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Snapshot – Augusta U. • Testimonial #1: Perseverance pays (PLWHA)  In/out treatment for 4 years with multiple relapse episodes. History of chronic paranoid schizophrenia, crack cocaine use, medication non- compliance, and personal instability (e.g., multiple incarcerations, unstable housing). Once re-engaged in HIV care CD4 = 147 & VL = 564k, now CD4 = 300 & VL undetectable. Stably housed (1 yr) and sustained. • Testimonial #2: Anchor for new family (PLWHA)  Referred to SUD Tx (crack cocaine) in December 2013. Positive for HIV, HCV, and syphilis. Became pregnant one year later, referred to prenatal care while sustaining HIV care. Crack relapse caused premature delivery (26 wks), linked to SUD Tx and mental health (MH) Tx and post-natal care. Referred to long-term SUD and MH services, stably housed. TCE-HIV: Minority Women(FY13) grantee
  • 30. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Snapshot – The Village • Testimonial #1: Convincing local government  The Virgin Islands (VI) Legislative Finance Committee unanimously approved funding to continue providing many of the core gender- specific services provided by Susanna’s Place. Although significantly less than current federal (SAMHSA) funding, Susanna’s Place will continue to support the of women of color in need on the island. • Testimonial #2: Incredible client & peer (PLWHA)  C.A. has been invited to represent the VI’s Positive Women’s Network USA and the program at the 2016 National Leadership Summit for Women Living with HIV (September 2016). She joined the program 2+ years ago and presented with chronic crack addiction, being HIV+, and other serious health concerns. TCE-HIV: Minority Women(FY13) grantee
  • 31. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Snapshot – PROCEED • Personal story #1 (PLWHA)  48 year-old Latina: experienced trauma and begun having unprotected sex, and ↑ drug and alcohol use. Tested HIV+, referred to care and treatment, received case management services, and was linked to charity care, HOPWA, and other services. Now living a healthy life. • Personal story #2 (PLWHA)  52 year-old Black woman: PTSD due to ACE at age 5-6. Initiated cocaine use at age 43 to deal with anxiety and depression, later diagnosed with HIV in 1998. The program is helping her to restore her broken self. TCE-HIV: Minority Women(FY13) grantee “The Women’s Wellness and Recovery Care Program has been helpful in reducing my harmful behaviors. As I learned to respect myself and my body, my confidence and assertiveness in communicating my needs has improved. I don’t let my traumatic past dictate my present life. I feel great and I love myself more!”
  • 32. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Snapshot – Northeastern U. • Co-located in a primary care clinic, can provide OBOT • Utilizes the Boston Consortium Model, recently introduced trauma-informed yoga • Provide an intervention called Love, Sex and Choice (LSC) - watch 12, 20-minute episodes TCE-HIV: Minority Women(FY13) grantee “Like, it was just really real. It could happen to anyone of us, if we didn’t take care of us. And that was an eye opening. It was like ‘Damn you really need to start taking care of yourself.’ You really need to start going to primary care. You really need to start protecting yourself.”
  • 33. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Snapshot – UCC • UCC’s Cadre of Services TCE-HIV: Minority Women(FY13) grantee “I have learned to take care of myself and other friends, I gain more insight about the importance of protecting against sexually transmitted diseases. I've also spread the word and shared educational materials and condoms with a friend that is exhibiting high-risk behaviors.” Outreach Transportation HIV Rapid Testing HEP C& B Testing Medical services Risk Reduction Plan Active Case Management and linkages with services Personalized Treatment Planning Individual Counseling using EBP’s Clinical Assessment Educational and self-care materials Prevention Kits (condom, lubricants, etc.) Community Health Fairs Recovery and Wellness Retreat
  • 34. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Snapshot – LESC • Client Demographics (n = 360):  Primarily African-American/Black (62%) and Latino (19%) women; nearly 50% under the age of 40 (age 8 to 63); 20% were LGBT  33% had unprotected sex (past 3 mos); 38% have exchanged sex for money or drugs (past 12 mos)  23% are or have been an injecting drug user (IDU) and nearly 43% had been a victim of sexual assault or experienced some form of IPV • Client Outcomes:  88.6% were abstinent at discharge and 39% were employed (up from 3.8%)  25% had stable housing at discharge (up from 8.3%)  IDU ↓ by 81.8% and unprotected sexual contact ↓ by 25% TCE-HIV: Minority Women(FY13) grantee
  • 35. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Snapshot – Gaudenzia • Testimonial #1: One very inspiring lady  Recently completed course work to become a Certified Recovery Specialist (taking test soon). Also, she recently celebrated one year in recovery - many emotions arose, including fear, sadness, regret, pride, and happiness. She has become strong enough to confront her peers and hold them accountable to support their recovery and has refused to allow their poor decisions to affect her recovery as well. • Testimonial #2: A self-reliant woman (PLWHA)  Initially housed in a halfway house for co-occurring women, she is fairly independent. She utilized the BCC ReEntry Housing Assistance Program to help her find her own apartment (as of 4/1/16) and continues to utilize her supports today. TCE-HIV: Minority Women(FY13) grantee
  • 36. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT Always Remember That … “Each of us has a role to play in giving every man, woman and child on Earth access to life-saving treatment and care.” President Barack H. Obama World AIDS Day 2012 (December 1)
  • 37. 2016 NATIONAL RYAN WHITE CONFERENCE ON HIV CARE & TREATMENT THANK YOU!! Alton.King@samhsa.hhs.gov

Editor's Notes

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  5. SDGs help to reduce the impact of the social determinants of health Many of these “buckets” put key populations at risk
  6. Goal 5 is Gender Equality … yet is broken down further into key components such as 5.2 and the generality of what this goal seeks to achieve
  7. 15 countries account for 75% of the 2.1 million new HIV infections (UNAIDS [2014] The Gap Report) http://www.unwomen.org/en/what-we-do/hiv-and-aids/facts-and-figures * Additional disaggregations correspond to unpublished estimates for 2015 provided by UNAIDS, obtained from country-specific models of their AIDS epidemics. http://www.unwomen.org/en/news/stories/2015/12/ed-statement-world-aids-day
  8. http://www.avert.org/professionals/hiv-social-issues/key-affected-populations/women
  9. References: DOI: 10.1089/apc.2013.0342 - Psychosocial Correlates of Gender-Based Violence Among HIV-Infected and HIV-Uninfected Women in Three US Cities Illangasekare, S., Burke, J., Chander, G., & Gielen, A. (2013) The Syndemic Effects of Intimate Partner Violence, HIV/AIDS, and Substance Abuse on Depression among Low-Income Urban Women. Journal of Urban Health. 90(5):934-947. Morales-Alemán, M. M., Hageman, K., Gaul, Z. J., Le, B., Paz-Bailey, G., Sutton, M. Y. (2014) Intimate Partner Violence and Human Immunodeficiency Virus Risk Among Black and Hispanic Women. Am J Prev Med. 47(6):689–702. Chen P-H., Jacobs, A., Rovi, S. L. D. (2013) Intimate partner violence: office screening for victims and perpetrators of IPV. FP Essentials. 412:11-17. Machtinger, et al. AIDS and Behavior. 2012;16(8):2091–2100.
  10. Substance use disorders (SUDs) and co-occurring disorders (CODs) are well-documented initiators and amplifiers of risky behaviors and HIV progression
  11. Note: SUD refers to dependence or abuse in the past year related to the use of alcohol or illicit drugs in that same period. Estimated # of individuals having disorders for specific substances do not sum to the 21.5 million people with any SUD because people could have disorders associated with their use of more than one substance (e.g., polysubstance).
  12. CDC Vital Signs 2014 (Source: American Journal of Preventive Medicine, 2011; Volume 41.) http://www.cdc.gov/vitalsigns/alcohol-screening-counseling/ http://www.cdc.gov/media/releases/2015/p0924-pregnant-alcohol.html 1 in 10 (10.2%) pregnant women in the U.S. ages 18 to 44 years reports drinking alcohol in the past 30 days. In addition, 3.1% of pregnant women report binge drinking – defined as 4 or more alcoholic beverages on one occasion. This means that about a third of women who consume alcohol during pregnancy engage in binge drinking according to a report in CDC’s Morbidity and Mortality Weekly Report (MMWR).
  13. Sources: National Survey on Drug Use and Health (NSDUH) [SAMHSA], 2002-2013; National Vital Statistics System, 2002-2013 [CDC] http://www.cdc.gov/vitalsigns/heroin/infographic.html CDC Vital Signs July 2013 (SOURCE: Drug Abuse Warning Network, 2010. (Suicide attempts are included for the cases (.03% of total) where opioids were combined with illicit drugs in the attempt.)) http://www.cdc.gov/vitalsigns/prescriptionpainkilleroverdoses/
  14. http://www.dualdiagnosis.org/race-recovery/
  15. 1989 study – (FL) found that African American women were about 10x more likely to be reported to health authorities for illegal drug use during pregnancy, even though white women were slightly more likely to test positive 2007 study – (8,487 women) found that African American women and their newborns were 1.5x more likely than others to be tested for substances, even though they were no more likely to have a positive result. Similarly, the study by Paltrow and Flavin found that the majority of women who faced criminal charges or deprivations of liberty for doing drugs while pregnant were African American
  16. Approximately 68.0% (1,601) of the clients presented for SUD treatment were tested for HIV (<3.5% rate of positivity). Additionally, the most frequently reported sexual risk behaviors are unprotected sex with a male and unprotected sex while high on drugs/alcohol Almost 3,000 Hepatitis C (HCV) test kits were purchased of which 1,132 screenings were conducted - overall 7.2% rate of seropositivity ( also 72 staff trained on hepatitis testing and/or case management)
  17. Client Demographics (both FY12 & FY13)  Clients are primarily Black (50.6%) and Latino (32.2%), but also includes AI/AN (<1.5%) and Asians (<1%)  70.1% of clients’ educational background range from none (0.1%) to having a high school diploma/GED (37.1%)  92.4% of clients live below the 2015 Federal Poverty Level (200%)  23.4% of clients are employed (full/part-time)
  18. According to SAMHSA’s concept of a trauma-informed approach, “A program, organization, or system that is trauma-informed” embodies the above slide’s bullet-points (Realizes, Recognizes, Responds, Re-traumatization) There are a number of terms being used in the health field related to trauma. For the purposes of this presentation when we say “Trauma-informed” we mean a trauma-informed approach to the delivery of behavioral health services that includes an understanding of trauma and an awareness of the impact it can have across settings, services, and populations. It involves viewing trauma through an ecological and cultural lens and recognizing that context plays a significant role in how individuals perceive and process traumatic events, whether acute or chronic. http://www.samhsa.gov/nctic/trauma-interventions http://store.samhsa.gov/shin/content/SMA14-4884/SMA14-4884.pdf
  19. Trauma Informed Care is a strengths-based framework that is grounded in an understanding of and responsiveness to the impact of trauma…that emphasizes physical, psychological, and emotional safety for both providers and survivors…and, that creates opportunities for survivors to rebuild a sense of control and empowerment.”–(Hopper, Bassuk & Olivet, 2010, pg. 82) http://store.samhsa.gov/shin/content/SMA14-4816/SMA14-4816.pdf
  20. 73 clients enrolled in intensive IPV-specific classes and at least 2 clients receiving IPV-specific individual counseling
  21. SAMHSA’s TCE-HIV: Minority Women program (FY13) addresses all the steps in the HIV Care Continuum
  22. Ms. B. return to ID care after a substantial lapse in care related to substance use and untreated psychiatric concerns. She was referred to treatment navigation by the HIV clinic staff and psychology consult team in January 2014 following her release from an inpatient psychiatric hospital. Patient had a history of chronic paranoid schizophrenia and crack cocaine abuse. In addition, she had a history of medication non-compliance associated with substance use and mental illness, personal instability (such as multiple incarcerations, lack of stable housing and no stable phone number). Patient has been in treatment navigation with Kena Arnold for 4 years. During that time she has been incarcerated twice and hospitalized for psychiatric concerns six times. She has remained engaged in treatment navigation throughout her housing instability, incarcerations, and hospitalizations. Kena is able to make contact with the patient by calling the litany of friends and family members the patient identifies for contacts. Further, Ms. B. reaches out to Kena to request assistance acquiring medication when she has been incarcerated and when she is hospitalized for mental or physical health concerns. Kena has been able to maintain communication with the patient and has been able to facilitate communication between Ms. B. and her care team. She was able to help this patient, who has been involved in solicitation, to engage in the WILLOW women’s group which focuses on secondary prevention. When Ms. B. returned to care her CD4=147 and viral load was 564,000. As of her most recent lab appointment in March 2016, her CD4=300 and her viral load is undetectable. She has been stably housed for the past year though she has continued to have problems maintaining contact. Ms T. was referred to treatment navigation in December of 2013 following her initial clinic visit. Patient was actively using crack cocaine at the time of her referral. She had been recently HIV, HCV, and Syphilis. Patient became pregnant later in the year. With the assistance of Kena Arnold, her treatment navigator, the patient maintained engagement in ID care and prenatal care. In mid-2014, the patient reached out to Kena immediately after a relapse where she used crack cocaine which resulted in preterm labor. Kena was able to contact emergency services and have the mother rushed to the hospital. While the infant was delivered at 26 weeks, the mother had been compliant with medication and her viral load was undetectable at the time of delivery. Kena was able link the patient to substance use treatment and mental health treatment following the delivery and follow-up with the mother and infant during postnatal care. The patient remained engaged in treatment navigation and Kena was able to interact with the patient’s DFACS case workers, OB/Gyn social worker, and psychologist at GRU. Once Ms T., baby, and the father were home, she remained a critical link to the patient and her treatment team. Kena was able to refer the patient to Hope House for longer-term substance use treatment and the patient has become engaged in that program which provides stable housing, mental health, and substance use care and facilitates transportation to medical appointments.
  23. Another story (3 powerful ones) … C.A., A Susanna’s Place client and peer support volunteer, has been invited to represent the Virgin Islands’ Positive Women’s Network USA and Susanna’s Place at the 2016 National Leadership Summit for Women Living with HIV in September 2016. C.A. joined Susanna’s Place over two years ago and presented with a chronic crack addiction and serious health problems, including HIV and another condition requiring surgery off island. She is currently engaged in comprehensive HIV care and her serious medical conditions were appropriately addressed through our integrated health care and care navigations system. CA provides peer support to women in Susanna’s Place and is an active member of our Friendly Faces peer outreach program. We are so proud of her!
  24. The Women’s Wellness and Recovery Care Program (WWRCP) is an agent of positive change among African-American and Latina women who have substance use or co-occurring disorders, are HIV & Hepatitis positive, or those who are at-risk of these conditions. The availability of professional, multi-cultural, and compassionate staff in the program offers a safe, non-judgmental, and nurturing environment where clients feel understood and their experience valued.
  25. OBOT – office-based opioid treatment Love, Sex and Choice (LSC) is an intervention where participants watch 12, 20-minute episodes that portray four characters that are based on the stories of real women who face relationship dilemmas
  26. Universidad Central del Caribe (UCC) Provide guidance reconnecting women's with government healthcare system. Referrals for primary care, mental health, detox, residential treatment, occupational and career planning services thought government system and community base organizations. Increase awareness of safer sex practices. Project Woman’s participants show improvement in physical, psychological, social, and environmental domains of quality of life , decrease in stressful situations, and improvement in coping behaviors for dealing with substance use. Treatment completers significantly improve psychological domain of quality of life in comparison to non-completers.
  27. Another story (3 powerful ones) … C.A., A Susanna’s Place client and peer support volunteer, has been invited to represent the Virgin Islands’ Positive Women’s Network USA and Susanna’s Place at the 2016 National Leadership Summit for Women Living with HIV in September 2016. C.A. joined Susanna’s Place over two years ago and presented with a chronic crack addiction and serious health problems, including HIV and another condition requiring surgery off island. She is currently engaged in comprehensive HIV care and her serious medical conditions were appropriately addressed through our integrated health care and care navigations system. CA provides peer support to women in Susanna’s Place and is an active member of our Friendly Faces peer outreach program. We are so proud of her!
  28. Remember these words in moments of despair, frustration, and angst
  29. We can make a difference, many lifetimes over!!